My cancer was detected last October 2018. I had regular PSA checks, and my PSA was never higher than 1.36 but did not have a DRE for the last couple of years. Started noticing a little blood in my semen and urine, and a little problem urinating, so I and went to have my PSA checked. It was .01. The PA was not alarmed but suggested I see a urologist. The urologist did the digital rectal and he was. He immediately scoped me, and the bladder looked OK but the was a polyp in my urethra that looked like a Bradford Pear tree, tethered to the side with a small round top the size of a BB. It passed after the scope, so we never found out what it was. Other than the tip-off to start my incredible journey. My biopsy showed Gleason score 10 in 11 of 13 quadrants, most standard acinar adenocarcinoma, but I had 2 quadrants with sarcomatoid, and 2 with ductal. After an
open RP, non-nerve sparing, removal of the seminal vesicle and 17 lymph nodes in Dec. 2018, they thought they had all the cancer. But 9 months later it has shown up in my pubic symphysis. And is also nonreactive to PSA. I'm going to have it radiated in 3 weeks. I had to have a bone biopsy because my MRI and bone scan was inconclusive and actually contradicted each other. The report of the MRI suggested osteomyelitis, but could not rule out metastatic disease. and the bone scan said I was clear. The cancers that aren't producing PSA, either the ductal or the sarcomatoid must look different on the scans. I am wondering if I should have a C-11 Choline PET scan. A friend has recommended the Mayo Clinic and said they did the test there. I can't seem to find who else does.
Post Edited (DxeChicken) : 9/27/2019 11:06:38 AM (GMT-6)