I’ve never had an AUS. My earlier post was only meant as a validation of, given enough complications, your (what appeared to me) feelings of isolation that can arise as a result of them.
My prostatectomy has been my only surgery. The “tear” in my urethra was a result of an anastomosis. (The urethra at the neck of my bladder wasn’t healed when the cath was pulled). This (unknowing) resulted in leakage of urine into my abdomen during the week following the first cath being pulled, and re-admission to the hospital for an additional week.
My other complications all stemmed from that one complication. My story is boringly long. (It’s a 6 month to a year long ordeal). What I can say is, in the four years of being on this forum, I’ve yet to see anyone with the number of complications I had from that one operation.. That’s not to say they weren’t here. It’s only to say, if they were, they either didn’t talk about
them or I just missed them.
To this day, when people come in for help, support and connection, asking what they can expect, I have very little to share. I’ve never had a “normal” prostatectomy. From my own personal experience, I have nothing to share.
After reading through some of your past posts, my sulfur burping began during my second stay in the hospital. It went away for about
a year, and has since returned. (It’s mostly in the morning. In the hospital, it was constant). In the hospital it was diagnosed as GERD and a gastro was brought on board. He performed an endoscopy several months later. (I could not eat for the week I was in the hospital). He found a small hiatal hernia. He said it was not large enough to repair. He said he did not believe that was the cause of my inability to eat during my hospitalization.
Since the doctors have no explanation, I’m left to formulate my own. I believe the hernia was somehow caused by the operation. And that has left me with GERD. Either that or the ascites left some kind of permanent damage to my digestive tract. One doctor told me “ascites plays havoc with your intestinal and digestive system”.
A long winded way of offering a possible explanation to your sulfur burping.
I also noticed you were “mostly dry” before SRT. Then became totally incontinent after. Call me “The Theory Guy”, But that may have had something to do with how your urethra healed after surgery, and the SRT irritated it.
The doctors don’t seem to have all the answers themselves, so why should I not come up with a few of my own? Your case is what gives me serious pause about
SRT should I ever need it. QOL is right at the top of my list where “trifecta” is concerned. But it’s easy to talk a big game unless faced with the real prospect. So, we shall see.
Good luck going forward. This is such a personalized disease. And we all have different definitions of what QOL means to us.
PSA 2010 thru 2014...4.0 +/- .7
Dx 12/14 @ 56 yo...2 cores G6 <5%, 1 core G6 20%, 1 core HGPIN.
RALP 11/25/15...3+4. 3 mm G6 surgical margin, 15% involvement
(5% G4) pT2+ Decipher: non-aggressive
Post Edited (island time) : 11/16/2019 4:32:02 AM (GMT-7)