Posted 11/22/2019 9:02 PM (GMT -6)
At age 54 I was diagnosed with high risk prostate cancer; PSA 34, G9 (4+5), Stage T3b N0M0. Cancer was identified outside the capsule based upon CT and MRI scans.
Subsequent IMRT radiation at the university hospital was completed August, 2008 (73 Gy, 41 fractions) followed by 3 years of androgen depravation treatment (Lupron) completed in April, 2011. PSA baseline while on Luprone was 0.2 ng/ml. After Luprone treatment the PSA began rising slowly then began doubling at a rate of ~6-7 months. The university doctors immediately suggested a clinical trial. Not being satisfied with a discussion that didn't include the word 'cure', I immediately sought another doctor.
I was accepted as a patient with Dr. Charles Myers in November, 2012. A Ferroheme and F-18 bone scan indicated the cancer was still localized within the gland. After attempting controlling the disease with various non-toxic medications, another scan (C-11 acetate) and biopsy was performed prior to salvage cryablation being performed by Dr. Silverman (March, 2014). The PSA rose again from a low of 0.5 at a DT of again 6-7 months.
After eight years from the initial IMRT radiation to the prostate, it was decided to again radiate the gland after a discussion Dr. Rossi (Scripps Clinic, San Diego). A 'SpaceOar' was inserted between the prostate gland and the colon followed by eight weeks of proton beam radiation. Prior to radiation treatment, I was again put on hormone treatment (Xtandi, Firmagon).
After completing the proton beam treatment in July 2016, my PSA indicated <0.006 ng/ml and has remained there since.
I spent a lot a time perusing these forums looking for bits and pieces of hope - maybe this one can provide some hope to someone as well.