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Prostate Cancer
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Biker 911
Regular Member
Joined : Jun 2019
Posts : 23
Posted 1/27/2020 7:52 AM (GMT -8)
Been around here a while and figured I’d share my story to help you guys to get to know me a little...

I’m currently 63 dx with PC at age 60. Here’s a timeline of events.

June 2016:Had routine physical. PSA was 14.4 Biopsy revealed 8 out of 10 cores positive for PC. Gleason score 9

July 2016: Had RALP. Dr found PC in 1 out of 8 lymph nodes removed. Started Eligard. PSA went to 0.2

Aug 2016: Had a blood clot that stopped up my catheter. Went to the ER where they managed to rupture my bladder replacing my catheter. Next day I was having hallucinations and I went back to the ER. They discovered the ruptured bladder and drained around 2 liters of urine from my body cavity. Week in the hospital with drain. (Really long story here, I won’t bore you with all of it)

December 2016: stopped Eligard. PSA stable through radiation.

Jan 2017: Radiation 32 treatments

Aug 2018 PSA up to 4.2. Started Casodex due to reduced side effects. Worth a try I figured.

Feb 2019 PSA back up to 4.2. Bone Mets found in ribs and spine Started Eligard

Aug 2019MO started Zytiga, Xgeva, Prednisone to augment the Eligard. Started having mild pain I attributed to sciatica.

Oct 2019 Dr. started Casodex to augment the Zytiga for 1 month as PSA wasn’t going down fast enough.

Dec 2019Pain was a bit worse from Casodex flare. MO prescribed opioids for pain.

Currently, the PSA flare I had is over and my PSA is going the right direction (See below). Pain is better and I’m down to MM for pain with an occasional opioid when I over-do it. I feel great most days and enjoy my hobbies, motorcycles and driving my new ‘Vette. I’m thankful for every day I have on this earth

Post Edited (Biker 911) : 3/16/2020 7:59:41 PM (GMT-6)

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InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 1/27/2020 8:05 AM (GMT -8)
Great to hear your story.

We're looking forward to hearing more from you.
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JNF
Veteran Member
Joined : Dec 2010
Posts : 5736
Posted 1/27/2020 8:08 AM (GMT -8)
Welcome Dale. You have been through the ringer, but great to see it won’t beat you down. Many of our brothers have either Vettes, or cycles or both. Including Cajun Jeff, NOLA Vette, Sonny, HD Rider and others. You are in good company and we wish you well.
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mattam
Veteran Member
Joined : Aug 2015
Posts : 4070
Posted 1/27/2020 8:08 AM (GMT -8)
Dale,
Welcome to forum. That's a fairly hard hand you were dealt, but you are apparently responding to treatment. There are several guys on the forum with similar stats who have been doing well for a long time.

Hope you'll stay with us for support and fellowship.
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island time
Veteran Member
Joined : Dec 2014
Posts : 2343
Posted 1/27/2020 8:10 AM (GMT -8)
Welcome.

Enjoy that vette! 👍
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Biker 911
Regular Member
Joined : Jun 2019
Posts : 23
Posted 1/27/2020 8:31 AM (GMT -8)
And please forgive any errors in dates as my memory isn’t what it used to be....I suffer from CRS.
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9382
Posted 1/27/2020 8:51 AM (GMT -8)
Welcome. Tough story but you sound like a fighter. Glad to see that you are. As one of our foremost members lines to say, squeezing the juice out if life” every day.
Looking forward to your participation
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DjinTonic
Veteran Member
Joined : Dec 2019
Posts : 2234
Posted 1/27/2020 9:42 AM (GMT -8)
Welcome to you, Dale! You're a real trooper!

Best of luck,

Djin
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