On January 15th, I posted a long overdue update on my journey. It included bladder damage that had finally showed up after 10+ years following radiation.
The urinary bleeding has gotten worse and Wednesday it required a hospital visit because on my inability to urinate for about
9 hours. This was the fourth such occurrence since my bladder scan, but the first that required going to the hospital. Seems the bleeding has gotten to the point that the urine is interacting with the blood to forms clots that are backing up the system, along with some constipation issues.
I met with my Uro on Friday and for the first time in my life I left with a Foley Cath. The options for this are few and all of them will have some sort of effect on QoL.
They are:*Conventional Urostomy
*Continent Urinary Reservoir
As my local Uro's onIy recommendation was a Urostomy, I did some researching on my own and found the other two options. I have requested an appointment with the Uro department of the Jacksonville, FL Mayo clinic as soon as possible. My local Uro may be quality for local standard issues, but I don't feel he has the depth and breadth of dealing with this as well as Mayo. Besides that, his manner is kinda dickish and I am ready to fire him anyway. He is relatively new to me as I have only seen him for this issue.
After doing a lot of research I am really leaning towards the NeoBladder, if I qualify. I will update on this after the appointment
I am sharing this info here because I have learned so much here since I was diagnosed and joined in 2009. Others may find themselves in this same situation and can use this info.
My best to all of you,