Posted 3/8/2020 3:26 PM (GMT -6)
Our newest member posted this on an old thread.
Welcome to HW. I have started this new thread for you in the hopes that you will get some more responses. Jim
Hello everyone ...
I just joined - just became a member of this site. The forums are highly interesting, and as such I would like to share my story and perhaps get some feedback of any kind from as many members as I can.
I will warn you though, that my story if quite complicated (medically) and I dare say significantly different than most other PC posts here. It does involve prostate cancer, but there is an important precursor to it. Here it is:
In 2015 I came down with lymphoma (Large B-cell) cancer. I saw affected lymph node which had the tumor with my oncologist on the scans. It was the size of a tennis ball! Coincidentally, it was also in the rectum and just next to the prostate. I also had two tiny pea-sized infected lymph nodes in the groin area.
I was then put on chemo.
After many scans of all types and tests, the chemo came to an end, and all the tumors were gone. I had a biopsy and was declared officially "cancer-free".
However - and here it comes - while viewing my last scan of success, my oncologist suggested I get the rectum radiated (where the tumor was) AND he also pointed out my prostate, which he said looked like "something weird" inside it. He then referred me to a urologist right there at the medical facility.
Fine. I went and had the prostate biopsy done. One week later I came in for the results, and sure enough it was positive for PC - Gleason 6 - very small (just a few samples of 5 cores or something like that).
The urologist (a woman) sat me down and began to explain things to me - some of which I truly believe were blatant lies (more on that later). She explained that "something this tiny could possibly go through Active Surveillance". However, because of the location of the cancerous lymph node (just next to the prostate) AND because I needed to have that area radiated I had better have my PC treated along with it (IMRT), stating that if this cancer ever became aggressive (a lie, as it was a tiny G6) OR if another more aggressive prostate cancer flourished (about 30% of G6 cancers have a higher risk cancer growing right behind it) I could not treat because it would severely burn and damage the rectum area. I would not have been able to do radiation, pellets, surgery, or anything else, except ADT (which I am totally against and will never do). Furthermore, I only had two (yes - 2) weeks to decide...!
I began to do internet research on PC and treatments and more, I became confused and became more and more fearful the more I read. I would lose sleep at night waking up in a panicked state of mind. What should I do, I would ask myself. Finally one morning I woke up and just made up my mind to go through it. After all, just how bad could it get, right? I had nothing to compare it too, and she said that I would "just probably need a little more Viagra" to offset the side effects (of the treatment).
To sum up a very long story into a few sentences... I have become progressively more depressed and sad and - nearly five years out - I still have this anguish and regret in my mind and no matter what I do (I'm in therapy for the third time) IT DOES NOT LIFT; I have a bad feeling this will be with me for the entire rest of my now-saddened life. I do not want to get sexually explicit in this site, but in my mid-fifties still had unsurpassed sexual energy. But enough of that.
That is my story (in a nutshell). I apologize for writing a dissertation, but there is no way to shorten this.
My ask is - can anyone please chime in on this? Any thoughts? Did I do the "right thing"?
I look forward to hearing from other members.