Posted 7/16/2020 12:28 PM (GMT -6)
Sonny and CaliJR,
I know this is sort of a zombie post, but I have questions. Randy has been diagnosed with hemorrhagic radiation cystitis. The doctor originally told us there is no treatment and no cure. After I came home and started looking around, Hyperberic oxygen therapy came up. I don't think his has reached the point your had. Urination is not painful, but it is frequent. He started have blood in his urine on Memorial Day, then nothing for 2-3 weeks, then 3 times in a week, and it's escalated to a couple to three times per day. This morning, it looked like someone had been murdered in the toilet. I asked his doctor via patient portal this morning if this was an option. She said it was usually reserved for people who were losing enough blood to require transfusion or hospitalization, although she did not say why. Were you guys being hospitalized prior to treatment? What kind of results did you have from the treatment? Was it daily? Any information you can share would be appreciated. Thanks, Donna.