Mike Cather said...
Thanks for all the well wishes and the direction. I'll definitely look into the JHU path and figure out how to do that.
I have been given Valium before the MRI but it doesn't work for me. I'm looking into a Gen Anesthesia MRI to see if I can do that. I'll get more info from my surgeon when I have the cystoscopy to recheck the bladder Sept 18. During surgery they did do a contrast for my kidneys and they were clear of cancer. Have a stone in there though.
I'm definitely open to radiation if that's the best choice. I've never had radiation. I just had a mastectomy and chemo for my breast cancer. When I read the word "cure" connected to RP, I'm attracted to that. But I definitely will listen to my options. How is radiation administered? Is that in a tube? I have no idea.
PC seems different than Breast Cancer in that there was great urgency put upon me to get it taken out as it was aggressive Her 2 pos and was pretty rare for a male. But I'm GD anxious about PC for sure as I learn more.
Don't be too anxious about
the PC, not yet. Usually, PC is a very slow grower compared to most cancers. Autopsies have shown that most older men- who have died of everything from a heart attack to car wrecks- have PC and do not even know it. At least this was common in the days before PSA, which tends to alert
us to PC very early compared to the old days. The older they were, the higher the % that had PCa and never even became aware of it before they died of something else.
Though your samples are not from a biopsy, so it might be hard to directly compare( I don't know ), your volume of cancer cells appear to be quite low, which probably means you are still very early in the game. Have they suggested a biopsy?
Next, your rising PSA could be primarily from the same thing that caused you to need a TURP, too much prostate tissue. Maybe, maybe not, could go either way.
Clear something up for me: when you say "one had a 3, another had a 5", are you saying that was a 3+5 = Gleason score 8 for one sample? And has been mentioned, a 2nd opinion on the Gleason scores will probably be a good idea. Obviously, if it is a total of 8 rather than a 6, then you need to be in a bit more of a hurry. But still, if you are low volume, you still have plenty of time to figure all of this out.
And RT is an excellent option compared to RP, there are pros and cons to each approach, but either will get the job done. I sort of wish I had RT for my G9 6 years ago rather than surgery, but again, pros and cons. Both have potential bad side effects (SEs), but different SEs. And the SEs of RP tend to be sudden, and more common I think, while the RT problems tend to appear later. But you can worry about
all of that when you get that G8 confirmed or not. And if it turns out to be a low volume G6, you might choose to do nothing but keep an eye on it. Many do. I would if I had been a G6, personally.
Post Edited (BillyBob@388) : 9/2/2020 8:06:33 AM (GMT-6)