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Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Who here has been undetectable the longest? (Survey)

Support Forums
>
Prostate Cancer
How many years have you been undetectable since treatment?
1-2 - 18.3% - 11 votes
3-4 - 18.3% - 11 votes
5-6 - 15.0% - 9 votes
7-8 - 10.0% - 6 votes
9-10 - 11.7% - 7 votes
More than 10 (tell us how many) - 26.7% - 16 votes
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9315
Posted 10/26/2020 2:12 PM (GMT -8)
Wonderful stories of victory
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logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/26/2020 4:52 PM (GMT -8)
Never been undetectable to my knowledge...all I really care about is I feel and look great...at some point in time that may end...is this a contest?...well good luck...logo
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Mack54
Regular Member
Joined : Mar 2016
Posts : 90
Posted 10/26/2020 7:46 PM (GMT -8)
Hello to everyone. I rarely get to the forum and seldom post. But I'm thankful to say I will be 5 years undetectable in spring 2021. It is good to see old friends still on the site, unfortunate to see many new ones.
I consider you all brothers. My PSA post RALP in 2016 have all been <.01
Best wishes and blessings to all,
Mack 54
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Tim G
Veteran Member
Joined : Jul 2006
Posts : 3052
Posted 10/27/2020 8:32 AM (GMT -8)

logoslidat said...
Never been undetectable to my knowledge...all I really care about is I feel and look great...at some point in time that may end...is this a contest?...well good luck...logo

If it's a contest, everyone here is a winner!
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81GyGuy
Veteran Member
Joined : Oct 2012
Posts : 3529
Posted 10/27/2020 9:00 AM (GMT -8)
Tim G. said: "If it's a contest, everyone here is a winner! "

LIKE!
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A Yooper
Veteran Member
Joined : Jul 2012
Posts : 2149
Posted 10/27/2020 10:18 AM (GMT -8)
8 years undetectable with 0 SE's.
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logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/27/2020 11:22 AM (GMT -8)
graarsh...even me??..aw .shucks... what would Woody Allen say...or was it Groucho Marx?..any way...I still love a parade...
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logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/27/2020 11:28 AM (GMT -8)
I still member Ya Yoop...good on ya....time steals but always gives back
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wingman63
Regular Member
Joined : Apr 2012
Posts : 37
Posted 10/27/2020 12:27 PM (GMT -8)
8Yrs in Dec
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Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9315
Posted 10/27/2020 1:20 PM (GMT -8)
Yoop, so great to see you!!! Glad you are undetectable and still setting records.
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jmadrid
Regular Member
Joined : Sep 2017
Posts : 408
Posted 10/28/2020 5:13 AM (GMT -8)
I am a bit reluctant to comment my own results after I started with the post surgery test. But I guess this thread is perfect for it and, morever, I reached the mark of 3 years, which is generally considered relevant. I never get a < or indetectable result, but nobody I know gets it in this particular lab, they generally get something in the 0.02-0.06 range. Although sometimes I slightly exceed this range, my values have clearly remained below 0.1. Last time I visited my urologist he said that in other places he has been these results are written as <0.1 instead, and I am happy with this explanation. Of course, I would prefer to have a series of untrasensitive indetectable results, specially given my high grade update in the path report, but I do not know where to go for the tests and now, after a few years, I guess keeping with the same lab reference is not a bad idea.
I will keep fighting with the psa anxiety at least a couple of times a year, you know what it means. Good luck to everybody with PCa and the other threads we face in this uncertainty time.
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RickyD
Regular Member
Joined : Dec 2009
Posts : 170
Posted 2/23/2021 10:16 PM (GMT -8)
David (Purgatory)
So good to see you are still posting. I hope things are going better for you.
I rarely visit here except when I have my annual physical which I did on 2/22/2021.
Now for the 11th year, still undetectable. I know I am one of the lucky ones.
I did vote in your survey.
Good to see you (virtually anyway).
Go Gamecocks! LOL
RickyD
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pasayten
Veteran Member
Joined : Mar 2007
Posts : 539
Posted 2/25/2021 10:07 AM (GMT -8)
Not undetectable, but 14 years out and PSA seems stable at the .2 -> .4 range for the last couple of years. Possible benign tissue left over...

pasayten
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mattam
Veteran Member
Joined : Aug 2015
Posts : 3984
Posted 2/25/2021 10:41 AM (GMT -8)
Although not quite the same question, but similar, my MO said the record for his patients is a 17 year run on Lupron for staying undetectable.
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NY-Sooner
Regular Member
Joined : Sep 2009
Posts : 478
Posted 3/25/2021 4:07 AM (GMT -8)
14 years for me . Zero psa every year since my surgery in 2007. The only side effects I have now is that I have stress leaks if I move the wrong way or I coaugh. Also, I can't hold my urine in my bladder. When I feel the slightest urge to go, I have to go immediately or I will start to leak. It is frustrating, but I have kearned to live with it.

ED wise, I have had no problems after my surgery. I was getting rock solid erections ( without drugs) since the day the catheter was removed, and still have them to this day. The only really strange thing is that after my surgery, now when I climax, I ejaculate urine. I ejaculate urine like a fire hose with more force then I ejaculated sperm when I had my prostate. From my research, I guess this is a side effect of this type of surgery that no one talks about and the docs don't tell you.
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Largebill68
Regular Member
Joined : Feb 2019
Posts : 54
Posted 3/30/2021 6:01 AM (GMT -8)
Never made it to undetectable. After surgery, PSA was .07. Did 39 radiation sessions about six months later and post radiation PSA was .14. Since then, number has migrated to other side of the decimal point.
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alephnull
Veteran Member
Joined : Dec 2013
Posts : 2452
Posted 3/30/2021 7:22 AM (GMT -8)
Having voted now, my being undetectable was based on an assay with only one decimal place. ie <0.1
Every since I switched to two decimal places I have been detectable.
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