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Considerin Radium 232

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Prostate Cancer
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Posted 1/7/2021 2:59 AM (GMT -7)
As you know, three chemo regimes kicked my ass, along with 10 days of whole head radiation. Once treatment stopped, my team got my GI issues under control, went to rehab to get my strength up.Got bushwhacked with blood in urine. Back to rehab, and getting legs under me

My MO Team is aware that on this final stretch the QOL is very important. Next Standard of Care is scans and potentially Radium 232. My mindset is instead of letting wind down, and looking at 12-18mos, is to try and extent this period. Dr. Pomerantz usually has some clinical trail that may be worthwhile at these interludes. I feel great except for the week legs.

Can any of my fellow warriors who have experience with R232 provide some feedback on side effects. I am ready to restart the battle and go on the offensive again.

Mike aka kmclark 1
"Opportunities multiply as they are seized. - Sun Tzu
Posted 1/7/2021 11:01 AM (GMT -7)
Mike
Glad you're feeling better. You are largely in control for the path ahead you choose. I hear positive tones in your words. I will be looking for your posts.
Posted 1/7/2021 6:29 PM (GMT -7)
Bumping this up hoping someone answers you. Cheering for you. Keep getting stronger.
Posted 1/7/2021 8:32 PM (GMT -7)
GoBucks Thanks. I am hoping my teammates can continue to provide their experiences and decision making on my journey to get double digits (decade long fight).

Milestones upcoming.

KC graduates nursing school. 2021
Liv graduates from URI 2022
Nephew and niece in-law have baby 2021-2023.


Mike aka kmclark1

"If we desire to avoid insult, we must be able to repel it; if we desire to secure peace, one of the most powerful instruments of our rising prosperity, it must be known, that we are at all times ready for War." - President George Washington
Posted 1/7/2021 9:54 PM (GMT -7)
Mike,
Here's a pretty good article about Radium 223:
https://www.urotoday.com/conference-highlights/snmmi-therapeutics-conference-2019/116009-snmmi-2019-current-and-future-role-of-radium-223-in-prostate-cancer.html
Member NOTkidney stones took part in trial last year, but ne new posts from him since 7/20
Dan

Post Edited (Wings of Eagles) : 1/7/2021 9:59:13 PM (GMT-7)

Posted 1/8/2021 2:18 PM (GMT -7)
Mike

I was being considered for radium 223 in October, as I had started having alot of hip pain again after 4 yrs of none. The R.O. then spoke to me about SABR 6 treatments, each one 6gy one to hip the next 5 to the prostate bed. This was done once a week until all 6 where done. He had told me the Hospital had just started this treatment. I had next to no side effects a few loose bowel movements.. My PSA has been slowly climbing so we will see if this knocks it back. I am in Canada.

I wish well in your next treatment phase.

Mike
Posted 1/9/2021 7:03 AM (GMT -7)

Hello, KMCLARK1 ~~~

I have been thinking of you, my compadre.

I just bumped NotKidneyStones's post to the top of the feed ---- it concerned radium treatments, and there might be insight there for you in his thread. You'll find it at the top of your screen this weekend.

I hope you are doing your best each day. Rely on the wisdom and guidance of your doctors.

You are determined, and we have new members posting lately --- and your story of tenacity inspires others to find their inner "fighting spirit" ...

I am thankful to read your updates, and I am sending you 100% of my encouragement and support --- each & every day.

In fellowship & comradeship ~~~
CYCLONE - # Iowa State University
Posted 1/10/2021 7:42 AM (GMT -7)
My apologies for commenting on your thread...no worries it wont happen again...tho once a blessing is given all the powers of Hell cannot rescind it...so there is that...silly one's...logo
Posted 1/13/2021 7:05 PM (GMT -7)
Not sure what you mean. Feel free to post always,
Posted 1/13/2021 7:16 PM (GMT -7)
Hey all,

Busy day tomorrow. Leave rehab at 730 for blood draw at Dana Farber at 910

Bone scan with contrast at Brigham and women's 10-12.

Cat scan at 315 pm
Return to rehab.

Today was a good day and finally able to stand with walker with no assistance. Bodes well for tomorrow keeping energy level up.

Ambulance transport to Hospital. Received permission for my Sr. Nursing student daughter to get me around hospitals.

Have not touched her in two months. Hugs will be good.

I will let you know about blood work, scans and then start planning for treatment options.


Mike aka kmclark1

"I think our life is a journey, and we make mistakes, and it's how we learn from those mistakes and rebound from those mistakes that sets us on the path that we're meant to be on. " - Jay Ellis
Posted 1/13/2021 9:55 PM (GMT -7)

That's a marathon day of tests ahead, KMCLARK1!

Rest up afterwards!

Godspeed to you, my compatriot, on testing day!

C-Y-C-L-O-N-E -- # Iowa State University
Posted 1/14/2021 9:53 AM (GMT -7)
Much Grace... gracias...
Posted 1/14/2021 10:22 AM (GMT -7)
Mike,
Please lets us know how your work-ups go today. I know you'll enjoy visiting your daughter.
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