I went to my 2/17 cystogram (no leaks) and post-op follow up, on the 8th day following the RALP. Both went well, I guess. The surgeon who did my RALP said that everything went more or less according to plan. My pre-surgery and post-surgery Gleason scores are 4 + 3. The cancer was approaching the left neural vascular bundle, but he is sure they got it all, and the lymph nodes they removed tested clean. The next step is monitoring the PSA levels, and no need for radiation at this time.
In this whole process, I’ve been impressed with the various medical staff members, facilities, etc, that I’ve come in contact with. Everyone is so nice, caring and seemingly well trained. After I met with the surgeon, a couple of nurses came in to remove the catheter. One (experienced one) helped show the other (new to this department) the ropes, then left the room. The inexperienced one removed the catheter, which was surprisingly painless, then told me I could pull up my pants. As I bent over to do so, a flood of urine came out. We were both totally caught off guard. I had read about
incontinence, but didn’t really grasp it. I’ve never experienced anything like that, and they hadn’t warned me about
it or told me to bring Depends or anything. After much scrounging around, she was able to find a diaper for me. It was like a scene out of a comedy movie, with me clamping my hose while she frantically ransacked the cupboards as we tried not to laugh. Her training and that one visit was the single weak link in this whole process. Each day I am dryer and need to change the diaper less often. I (being a civil engineer and architect) weigh the used diaper on a digital postal scale so I can calculate exactly how much I am leaking (30g = 1 oz). Tomorrow, I might try a shield instead of a diaper, as a test run. I visit a physical therapist in early March to help me tone the right muscles, but in the mean time, I’ve been doing the stop/start pee exercise that I’ve read of elsewhere in this forum. I appreciate the knowledge and experiences that everyone has shared. It makes me feel like I’m not in it alone.
Up until January, I had never discussed prostates, ED, incontinence, etc, with anyone other than my doctor. Now, it seems like it’s all anyone wants to talk about
. During phone calls with many clients and contractors, when I explain my absence from work, they all share their experiences and thoughts on the matter. I guess I am part of the club now...
Post Edited (patrickm) : 2/22/2021 5:26:27 PM (GMT-7)