Posted 8/30/2021 12:42 PM (GMT -6)
After becoming castrate resistant with PSA climbing from 29 in January '21 to current number of 64.8, I've been extremely fortunate to have gotten into a compassionate use program for LU-177. I'm still on Orgovyx (the new Lupron-like TX in tablet form) and have been through the Taxotere/Zytiga/Xtandi/Nubeqa treatments until they eventually failed after a few years.
Last week I had the first dose of LU-177 and can report that aside from being VERY NUCLEAR for a few days (having to seriously hydrate, use separate bathroom, while staying away from other humans), the other side effects were mild. Maybe a bit more fatigue, but nothing drastic. I am scheduled for five more treatments, six weeks apart, all of which assumes it will be working and I'll be able to handle it. I can't give any instructions on how this might become available to others, but I would check with your onco docs to see if they can contact Novartis for possible treatments. This should be FDA approved (this year, per the experts I've spoken to), but it's the Government--so we'll continue to wait and hope.
My next labs are in a couple weeks, and I'll hope to post some good news then. Besides PSA, docs will be looking at WBC, RBC, platelets and a couple other markers. All the best, brothers.