Hang in there! It can sometimes take months even for people who get to where they never need a pad, like me. Some folks are good to go right away, others not. I agree that the electro-stimulation/biofeedback training treatments can be quite helpful. I also feel that walking helped me a lot. It might have been a coincidence, but not long after my surgery, and right after my biofeedback training had begun, I had to go on a walking tour of Europe. That was quite miserable, as I was filling up a couple of big pads a day, and public restrooms were not easy to come by. So I was kegeling all day long, trying to hold it in as much as possible. But I noticed significant improvement by the time we got back.
I can't remember all of the details now, though I am sure I wrote them down in 6 year old threads. But I was pretty bad for maybe a couple of months. Then maybe at 6 months(kind of guessing) I never needed more than 1 small shield per day. Then sometime between 6 months and a year I got to where I am now: I never really need anything, and many days I wear zero pads all day and night. (I just finished a 2 mile walk at 3+ MPH, no pad, and dry) But, I do sometimes wear that smallest shield, just for extra confidence on certain occasions. It could be better, I do have to pay attention and be ready to clamp down sometimes, and I still get small spasms when I get up from sitting that try and squeeze some out on me. But it is totally tolerable and at least 100 times better than that 1st month.
I also was dry at night and when sitting as soon as the catheter came out. My URO told me that was a good sign for ultimate recovery, even if it took a while. And here is something he told me about
this "dry at night" only situation, and why it is a good sign of final victory. There are two urinary sphincters: one at the exit of bladder and just before the prostate(so called internal), and one in the pelvic floor just after the prostate and the penis. When they cut out the prostate, they also remove the internal sphincter and have to cut thru the urethra- the tube that the urine travels thru from the bladder on it's way out. Then they have to give what remains of the urethra a tug and sew it back together.
This spot (anastomosis) is often very close to the external sphincter. It will have sutures until they dissolve, and swelling and scar tissue. When we are laying down at night, it falls back just a bot away from the external sphincter, which can now easily clamp down enough to close the urethra. But when we stand up, and especially when we urinate, that sutured area- with scar tissue, will often fall down into the sphincter. If that happens, the strongest sphincter in the world is not going to be able to squeeze the urethra, with sutures and scar tissue, closed. But as time goes on, the swelling goes down the scar tissue might lessen, and for sure the sutures are dissolved. So it gets easier every week for that sphincter- which is also hopefully getting stronger every day- to squeeze that urethra closed. Like it is already able to do when we are laying down and the sutures are not in between the sphincter muscles.
So, if "He’s ok lying down or sitting", that is a very good sign that sooner or later, he will be OK. But some are not and require some additional surgery. Good luck, hang in there!
Post Edited (BillyBob@388) : 9/28/2021 2:52:32 PM (GMT-6)