Billy welcome to our club, sorry you had to find us, but you'll get lots of good advice, and support here. Just remember nbody here is a medical professional, we are just a bunch of guys that were more or less as unlucky as you who chose to educate and advocate for ourselves.
With that said, I'd def follow up and ask for PSMA Pet scan. You want to be 100% sure that you dont have mets before you move forward with surgery, because if you do have mets, surgery wont cure you, so why go through that.
Good luck and keep us posted.
What Prato said, PLUS: whether you are able to diagnose mets or not, if you are a high PSA G9-10(is that right?) you have a high likelihood of having some buggers which have left the prostate and are out there somewhere, just too small to detect yet. So surgery still may not fix you up. So, talk to radiation oncologists and medical oncologists regarding whether it is a good bet for you to have surgery and all of the possible bad, very unwanted side effects that sometimes come with that. Of course, the RT and hormone and any other therapy can have some bad SEs as well, though USUALLY not as bad or as sudden. But the thing is, if you have mets- you will need the other therapies, and whatever SEs that might add- anyway. Regardless of surgery. Why take on the SEs of all 3 treatments if there is not a really good chance the surgery will rid you of cancer?
Look carefully at the odds of you actually being met free, regardless of what current scans show, before you agree to surgery. With your G scores and PSA levels, the surgeon is going to have to do a wide cut, just as was needed in my case, which increases odds of unpleasant SEs significantly. But, if it has escaped even a small distance out from the prostate bed, that wide cut still won't get er done. But don't listen to me, just consult with the radiation and oncology guys and add their opinion on this subject to whatever the surgeon is telling you. But, just remember, there is a tendency for all of them to favor their specialty. But just ask all of them - regardless of what the scans show- what are the odds that you have mets too small to detect yet.
All of the above only applies if your scans show no mets. If they do show mets, I think you already said your surgeon would not do surgery if you have mets. And it would be wonderful if you could get that newest scan, the PSMA. Baring that(so new as to be hard to get) you should at least have an auxumin scan.
Post Edited (BillyBob@388) : 10/30/2021 9:25:01 AM (GMT-6)