Traveling for PC Surgery-Items to pack

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GreenAcres
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Date Joined Jul 2006
Total Posts : 474
   Posted 8/16/2006 9:01 AM (GMT -7)   
I'm sure others will come up with additional suggestions, but we had to wing it when packing for the driving trip. We stayed in a hotel after release from hospital and this bag of items all came in handy:
 
-Small wastebasket to keep Foley catheter bag upright. (Looked all over for a very small one - finally found one at a "dollar" store with molded handles)
-Surgical gloves (all the catheter info said was to "wash your hands." Gloves really were easier to deal with - in addition to hand washing.)
-Antibiotic ointment - we took it, but the hospital provides a tube.
-Old sheet, washcloths, and towel - hotel sheets are white and there is some blood leakage following surgery. The folded up sheet was for underneath. Laid a washcloth over catheter/penis and then a towel to prevent leakage onto top sheet. At that point, husb. did not feel like wearing pants/pajamas of any type. (Although I had slit an old pair and re-Velcroed for that purpose.)
-Gallon freezer bags - there are simply some things hotel staff do not need to see or deal with. The latex gloves, bloody tissues, and empty enema bottle (from the night before surgery) were stashed in the bags and disposed of at home.
-Generic stool softener - less expensive than prescription type and better to have everything on hand if possible.
-Small bottle of vinegar - for rinsing out leg bag and replacing with overnight bag. Used the leg bag to go from hospital to hotel.
 
One last thing. We took a small travel bag with a shoulder strap and top opening. If you're self-conscious about leaving the hotel, just run the bag through the pants leg (this style zippered at bottom) and into the travel bag. Can carry by the strap and it's much less obvious.
 
P.S. Hi, Spinbiscuit - glad to see you back from your second round of hernia repair. How did it go?

spinbiscuit
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Date Joined Apr 2006
Total Posts : 818
   Posted 8/16/2006 10:00 AM (GMT -7)   
Hi GreenAcres,

Thanks for asking; I'm a tad bit sore, but I'm up and limping around today as per the post-op instructions.
Do you suppose the people who right these instructions ever went through the procedure? More importantly though how are you and your husb. doing? I hope things are settling into a manageble routine. There is nothing like predictability to calm us all down.

Glen

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 8/16/2006 10:23 AM (GMT -7)   

Glen - thank YOU for asking. Still not as good as we'd hoped - testicle pain is still pretty bad, but swelling is gone (one side was huge). Makes it very difficult to walk. Otherwise, urinary control is amazing - one pad daily and then only a drop or two at that. We keep thinking it will get worse - not better.

Still somewhat bummed about the cancer cells in fatty tissue thing. I'm assuming it was so minute that it could not be detected, but don't they do a pathology inspection at the time, before everything's closed up? We were in too much shock to ask those questions at the follow-up. Just waltzed in expecting to return to la-la land, I suppose.

Now, we just wait for the PSA results in six weeks. Then, maybe it will be our turn to do the hernia repair. I don't know you got emotionally ready for the surgeries one on top of another.


spinbiscuit
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Date Joined Apr 2006
Total Posts : 818
   Posted 8/16/2006 11:23 AM (GMT -7)   
Hi GreenAcres,

I'm not absolutely sure about this, but if the doctor can sees any evidence of an abnormality during the procedure it would certainly seems to be sop to get a sample to the lab asap. So as you suggest if the encroachment is that microscopic the only way it could have been detected was when the prostate was sent for analysis post-op.

As for getting myself up for the hernia repair; I had little choice because by the time I went to surgery I was barely mobile. Now it is done, and maybe no more surprises.

I pray all goes well for husb. and you this first psa test.

Glen

spinbiscuit
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Date Joined Apr 2006
Total Posts : 818
   Posted 8/17/2006 5:01 AM (GMT -7)   
One more thing...

Sorry about that, but I forgot to mention the sensetivity (pain) in the testicle. I can't recall exactly how long maybe a few weeks. Anyway it did make sitting uncomfortable for some time. Your husb. is definitly gaining bladder control faster than I did, and that means you all will be able to go places an do things. I believe my goal was to be able to go out and eat BBQ ribs. Mission accomplished.

Glen

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 8/17/2006 6:36 AM (GMT -7)   
Glen - there must be something about bbq ribs and post PC surgery. That was the first thing my husb. wanted on the way home from the cath removal. Unfortunately, a favorite place in Dallas wasn't open for lunch, yet, so we had to settle for a bbq sandwich on down the road.
 
You have no idea how happy we are to hear about the testicle pain. Thought it was some sort of "malfunction." Now that we know it's normal, we won't worry so much. Thank you!

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/3/2006 5:44 PM (GMT -7)   

GreenAcres,

 

I finally found you again!!…..  You’ve been in my thoughts and prayers and I want to hear how things are going….

 

I’ve been away for 3 weeks and I’m just now getting caught up. 

 

Couldn’t find where you had posted anything and I finally did under the post “Running”…. 

 

I’ll touch base on Monday… J

 

In Friendship, 

“Mama Bluebird” Lee

 


mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 9/3/2006 8:13 PM (GMT -7)   
Greenacres,

I didn't realize there could be testicle pain after the surgery? Why is that? Did the doctor say why?
Ellen
 
 
Curtis, 63,  was diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/4/2006 8:24 PM (GMT -7)   
Hi GreenAcres,
I've seen several postings and they all seem positive that you're both on the home stretch recovering... Good News for sure. I think of you often... and hope to hear from you soon with an update.
Take Care,
Lee
mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 9/4/2006 10:50 PM (GMT -7)   
Hi Ellen

I had testicle pain too as well as in the lower groin area where the surgery was. My surgeon assured me that it was normal, and would subside over a week or two. I only took the pain meds for one day after returning home (I do not like strong pain medications). After that I just took a regular Tylenol as needed. Jane went out and bought me a donut to sit on (blow-up kind), but a nice soft folded beach towel worked even better.

The 4th or 5th day home I really started to walk around the house, and I think that is what helps to cure the soreness from surgery. I believe I was the slowest to heal among all the guys on this sight, but I'm certainly completely recovered now.

Curtis will likely have a normal recovery which may be somewhat uncomfortable for a week or 2, but it will be tollerable. Then he'll be feeling fine. Just make sure he doesn't try lifting anything heavy (more than 10 pounds).

Glen

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 9/5/2006 6:27 AM (GMT -7)   

Hi, Wicket. Yes, Glen (Spin) and my husb. seem to be the rare ones for the testicle pain. Husb. came out of surgery and one side of scrotum was huge and black. For several days afterward, he was unable to walk because of pain. We called doc and he prescribed a heavier-duty antibiotic, said to combine Tylenol with the Vicodin. That seemed to start the road to recovery on that part, anyway.

Hi, Mama Blue. Actually, the physical part of post daVinci is coming along nicely. However, we're trying to cope with the fact that there were some cancer cells that leaked out and hanging around in fatty tissue. We went from a very positive outlook of containment (Gleason 6; 1 core 10% cancerous to a post-path report of Gleason 7 and 7 cores consumed.) So, with that in mind, we don't know if we're dealing with the fast-growing type of Prostate Cancer or the 12-core biopsy was totally mis-read. The doc has said there's a 20% chance it will return (rather than the typical 7% he quoted for a contained state). We really won't know what we're dealing with until the next biopsy scheduled for October 3 post-visit. Glen has been the calming influence with the fact that perhaps the fatty issue has simply eaten up those tiny little cells! We do know in research that post-path reports can sometimes take this turn - it just had to be "our turn," and we're not amused. We thought we had ruled out Watchful Waiting the first time around and, now, here we are doing it after the fact! Nonetheless, we carry on!


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 9/5/2006 4:39 PM (GMT -7)   

Hi Green,

Glen is quite the "gentle"man..... in my opinion!!.... SO.... pull from his strengths... and from all of us who are sending extra special positive thoughts to both of you.  I hope you feel them.  The next time you feel a gentle breeze on your face... it's a gentle hug.... from us.

Thank you for sharing the information above... I see 80% chance it won't return.  In your posting above you state a biopsy on October 3rd.  What type of biopsy??

My understanding is when the 3 month PSA is done if there are cells still in the body the score will show it. 

Continue to Take Care of Each Other.... and please... continue to talk with us okay!!

In Friendship....Lee & Buddy


mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 9/6/2006 6:04 AM (GMT -7)   

Sorry, MamaB. I meant a PSA, not a biopsy. Our doc wants it done at the 8-week post-surg. point. And from there, at 6 mos. (like all you "normal" folks out there). The good news at this point is the doc is not advocating any radiation follow-up as that's something we wanted to avoid in the first place (after our researching).

Don't know what we'd have done without all of you! In fact, you're in our discussions every night at "quittin' time." We fix a cold libation, fire up cigars, and just yak about everything.

Yes, we're in the 80%. But we were in the 30% that actually has PC to start with. Now, that's my husband, the realist, talking. I'm the optimist, and somehow we meet in the middle! Of course, I like to win and will sugar-coat things if I have to!


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 9/6/2006 7:50 AM (GMT -7)   
Greenacres,
You've helped me so much trying to understand what will be happening to Curtis...I hope you know that I'm pulling for you and your hubby.  You are both in my thoughts!! 
Ellen
 
 
Curtis, 63,  was diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 9/6/2006 7:59 AM (GMT -7)   
Hi GreenAcres,

I'm glad you are going for a PSA and not a biopsy; you scared me a bit. Every time I go for my PSA test it is just as you say,"watchful waiting", and it is in my nature to worry. I am getting better however, and will not let this thing rule my life. What should worry me is I ate and drank a bit too much last night, and Jane brought home boxes of NY city pasteries; I'm in big trouble.

Be well, and have a Great Day Today...

Glen

Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 9/6/2006 11:49 AM (GMT -7)   
Hi GreenAcres,

Wishing you all the best!

Jim
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