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jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 8/17/2006 11:26 PM (GMT -7)   
Four months after Robotic surgery , I'm finally or suddenly getting over it.  I gushed and gushed forever,  starting the minute the catheter was removed.  Never dripped or leaked.  Thought it would never end.  Used diapers and pads and tried external catheters and bags.  Hate being soaked in urine.  Sensitive skin.  My point  Wash many times a day and  use  Balmex.  Its a baby diaper rash cream.  Not messey and works really good to keep skin healthy.  Zinc oxide.  The length of time it takes to get over it depends on many things.  We're all different.  I'm 69 and had the "going often" problem a long time before finding I had cancer.  Hopefully it will be over before long.  Best to all.

DennisFlorida
Regular Member


Date Joined Apr 2006
Total Posts : 50
   Posted 8/18/2006 4:22 AM (GMT -7)   
One - I am still dripping after 3 months. It is not getting better or worse. I have been somewhat negligent of doing kegels and seem to keep forgetting. I have just grown accustomed to the situation. I do relly wish I could get rid of this last pad though! I definatly leak when passing gas and coughing. Sometime it just leaks for no reason at all. Hope it to get better soon.

Dennis

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 8/18/2006 7:38 AM (GMT -7)   
Dennis,

It does take some time to get dry. It took me about 3 months to achieve 98+% dry. I believe the constant daily kegeling and walking got me to that point. There were many days that I felt I was not going to improve, but finally after 6 months I'm totally DRY. Some of us take longer, but you have to keep doing those exercises.

Good Luck,

Glen

Steve, Santa Fe, NM
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 8/18/2006 10:29 AM (GMT -7)   

Who did your Robotic Surgery?  What hospital?  What has your doctor said about your results from his procedure?  Did he save the bladder sphincter? 

I hope you get this to a managable level soon.  That must really be depressing.  Keep the spirits up.  I suspect that things will be fine with a little more time and patience, and this forum should help you with support and ideas too.

Our positive thoughts are part of your support team too.

Steve B.


1mikec
Regular Member


Date Joined Aug 2006
Total Posts : 22
   Posted 8/20/2006 11:32 AM (GMT -7)   
If you have an experienced doctor, Robotic is the answer! He should have done at least 250. (I don't know how he gets those 250?) The robot is much more precise with A LOT LESS BLEEDING!

I had mine on Aug 11, 2006 (about one week ago) at St Lukes in Milwaukee, WI.
http://www.aurorahealthcare.org/services/cancer/whatwetreat/prostate-cancer.asp
http://www.aurorahealthcare.org/doctors/display.asp?id=8329

I'm feeling great! Only had catheter in for 7 days. Incontinence is minimal already. I did do "some" Kegel exercises prior to surgery for about a month (not as much as I should have.)

Good luck to you all and anyone who reads this in the future.

1mikec

Post Edited (1mikec) : 8/20/2006 5:31:10 PM (GMT-6)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 8/20/2006 6:16 PM (GMT -7)   
The key numbers of procedures seperating low from high volume hospitals re: the robotic, is at least 100 per year. It is generally said the first 50 a surgeon does are practice and after that it just keeps getting better. One hopes anyway!
Right now there are a good number of surgeons that have mastered the RRLP. Every state has a few. Look and you will definately find them. Robotic procedures are the up and coming surgical specialty making surgeons by the boat load run to the nearest and best in which to train along side. Might be wiser these days to make sure the surgeon you think is yours, is actually the one you get. I'd be more worried about Mr. Roboto playing video games in my gut myself.
 

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 8/21/2006 6:12 AM (GMT -7)   

YES (yelling) to asking questions, specifically about skill, results, and "how many?" regardless of which procedure anyone chooses.

We found a robotics surgeon one hour away from our home, but called his office and no one could say "for sure" how many daVincis he had done. Was it more than 50? "Yes, I think so." At least 100? "Maybe."

Then, the only quote we could find from him on-line at his web site was "this is a really 'cool' machine." That pretty much ended our quest. (As Swim said, this guy sounded like he would be playing games in there.)

We searched further out - found a doc five hours away who put all the info on-line including a pdf booklet on the procedure, his techniques and training history, and what to do/expect before-and-after. It became our Bible. Had done more than 300 procedures (plus 200 laps). He did a superior (we think) job - have had a few dribbles only and already seeing great response with Cialis (although not allowed to work on that, yet).


Paten
New Member


Date Joined Mar 2006
Total Posts : 14
   Posted 8/21/2006 7:41 AM (GMT -7)   
I was 98% dry as soon as the catheter was removed. However I'm sure my age, 40, had something to do with that. I did practice kegels several times a day for three months before the surgery. The only leakage I had was during coughs, sneezes, or lifting heavy objects. Now 2 months later even that has improved.

1mikec
Regular Member


Date Joined Aug 2006
Total Posts : 22
   Posted 10/15/2006 2:34 PM (GMT -7)   
For Incontinence:
I'm taking Detrol LA
It's a 24 hour drug for bladder control (really only lasts 22 or 23).

It's been 2 months since my robotic laproscopic surgery at St Lukes in Milwaukee.
I first leaked just a wee bit (no pun intended) about 22 hours after Detrol LA.
Used "Very Light" Serenity Slender Pads. (They're cheap.)
I'm almost leaking nothing now. Maybe I'm just lucky :-)

Mike C
PS: I'm a little afraid of what might happen if/when I go off the drug?

northernbear
New Member


Date Joined Oct 2006
Total Posts : 4
   Posted 10/15/2006 5:18 PM (GMT -7)   
So I'm 48, and the cancer was diagnosed in July (2 of twleve, PSA = 5.2, Gleeson = 3+3 on both).  Quite honestly, I just have had no time to worry about it, as we have way too much going on in our lives.
 
I had the prostate removed on Oct 3.  Blood loss during surgery was about 150 ml - or less than one-half a Coke can.  I was very pleased.
 
Catheter was removed on Oct. 10.  I had been practicing kegels for about 2 months previously - off and on.
 
When the catheter was removed, I gushed and gushed and gushed, dribbled, gushed, dribble when I sit, lay down, stand up, etc. ad nauseum.  Never took any Detrol.  The gushing continues as I stand up and walk.  Coughing and sneezing still hurt a little, and I get a dribble or gush when that occurs as well.  I continue practicing kegels, but it seems that I have more control when I have a nap lying down.  I can get up, hold my bladder, and make it to the toilet to relieve myself.  In fact, yesterday (Saturday), I actually felt a "flow" of urine that I could push out as I relieved myself, rather than simply just an uncontrollable flowing gush.
 
I understand that this will take time to control.
 
My question regards the blood.  It seems that after I urinate, I get 6-12 drops of blood after I am done.  I am trying not to "push" to clear my bladder - as I used to do.  However, the blood just drips after the urinating stops.  There is no pain, and no burning.  Just the blood.

What should I be expecting?, and for how long?
 
 
 

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 10/15/2006 5:29 PM (GMT -7)   
N. bear,

If the blood is a concern you need to call your urologist tomorrow morning. Don't feel like you are bothering him/her they are there to help you. It's likely to be nothing be serious, but why worry needlessly?

Glen

northernbear
New Member


Date Joined Oct 2006
Total Posts : 4
   Posted 10/15/2006 6:59 PM (GMT -7)   
They said to expect the blood in the urine, but even though they have done several hundred of these, they have not had it done themselves - hence, I'd like to figure out how "normal" this really is, and how long it should continue.

1mikec
Regular Member


Date Joined Aug 2006
Total Posts : 22
   Posted 10/15/2006 8:58 PM (GMT -7)   
Northern Bear,

What type of procedure did you have?
Was it robotic laproscopic?

Mike C

northernbear
New Member


Date Joined Oct 2006
Total Posts : 4
   Posted 10/16/2006 4:04 AM (GMT -7)   
RObotic

1mikec
Regular Member


Date Joined Aug 2006
Total Posts : 22
   Posted 10/16/2006 1:23 PM (GMT -7)   
Hey Northern Bear,

With robotic I also had some blood for a few days.
I'd check with your urologist if it doesn't clear up soon.

How's the incontenence going?
I'm surprised you had that much "gushing"!
Not to make you scared, but I had no "gushing".
Don't get me wrong, I leaked a LOT in the begining.
Wore full diapers for a week. Then Serenity Slender Pads (Very lights) for another 9 weeks. (30 pads for about $6.00)

Are you taking Detrol LA? If not have your doc prescribe it. It's for bladder control.
My doc put me on it right away. It's a 24 hour pill (but I leaked after 22 hours in the begining).
Almost no leaking now after 10 weeks.

By the way, I'm 65.

Mike C

northernbear
New Member


Date Joined Oct 2006
Total Posts : 4
   Posted 10/18/2006 9:44 AM (GMT -7)   
Hey Mike,

It’s been two weeks since robotic surgery. On Monday morning, my surgeon told me to stop my kegel exercises. As a result, the blood appears to have cleared up as of Tuesday afternoon. No blood today (Wednesday).

I’ve got the Detrol LA, but have never taken it. I was told not to use it within 24 hours of having the catheter removed. I’ve never seen the need to take it subsequently.

I’ve been wearing diapers with pads since having the catheter removed. My bladder leaks more than gushes – though when I stand up, I will gush into the diaper pad. I guess that my control will take a little longer since I am not supposed to practice kegels for about a week. Not really concerned about long term continence, as I’m 48. The blood was disconcerting as the last thing I wanted was to get the catheter re-installed. That is a life experience I’d rather avoid. :-)

1mikec
Regular Member


Date Joined Aug 2006
Total Posts : 22
   Posted 10/18/2006 1:08 PM (GMT -7)   
Sounds like you have things under control.

I think you'll have good effects when you start the Detrol LA.

Keep smiling with a positive attitude. We're all pulling for you.,

Mike C

Axeman
Regular Member


Date Joined Oct 2006
Total Posts : 43
   Posted 10/23/2006 8:17 AM (GMT -7)   
I just recently found this forum, so thought I would respond. Wish I had found it sooner. I had the DaVinci surgery in January, 2005. Catheter out in about 8 days. Lot's of leakage, no blood in urine. Got out of diapers in about 4 weeks. Actually kept wearing the Depends diaper with a pad just to be sure for a couple of weeks. Went back to work in six weeks with just a pad. Still wear a small Poise pad just to be sure. I find that if I drink alcohol at a party for example, there is a good chance I will leak.

I found that walking is really a great factor in getting everything back under control. I was out walking within 7 days of being out of surgery. I slowly built up my walks to a couple of miles per day. Now I try to get out at least 4 days a week and walk.

I wasn't a big fan of the Kegel exercises. Maybe I should go back and try to start that again.
Axe - 59
Diagnosed - October, 2004 - PSA 3.3 up from 2.4
Gleason 3+3 = 6
T2A
DaVinci Surgery - January, 2006
UVA Medical Center
All PSA's at 0.00 since


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 10/23/2006 1:55 PM (GMT -7)   
Hi Axeman,

I as well as most if not all the guys on this sight did a fairly rigorous Kegel routine before and after surgery. I too had the DaVinci procedure (02/23/06 at age 60). Futhermore I'm convinced that the walking & Kegel exercising got me to 99% dry in 3-4 months. Today its almost like the surgery never happened. It's not a bad idea to ask your urologist about doing a Kegel routine.

Glen

shepla
Regular Member


Date Joined Sep 2006
Total Posts : 102
   Posted 10/23/2006 5:21 PM (GMT -7)   
Hi Axeman, I am 59 3+3=6 psa 3.3 up from 2.4 Just had my cathater removed today 10/23/06 Surgery 10/12/06. I am gushing and leaking today. I did stop and start urine but man there is a lot of urine. I can see how it could get depressing! Wearing diapers and running to the bathroom alot. Did kegels a little bit should have done more. I am doing them now! Any advice? Thanks Shepla
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