Dr. Patrick Walsh's Guide to Surviving Prostate Cancer"

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Wicket
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Date Joined Aug 2006
Total Posts : 316
   Posted 9/3/2006 9:34 PM (GMT -7)   
I bought his book on the recommendation of some people in here.  I just started reading parts of it and it scared the heck out of me so put it away in a drawer.  I'd much rather  get my information from the men and their wives in here.
Thanks everyone!!
Ellen
 
 
Curtis, 63,  was diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10


spinbiscuit
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Date Joined Apr 2006
Total Posts : 818
   Posted 9/4/2006 7:31 AM (GMT -7)   
Hi Ellen,

Yes Dr. Walsh can be scary, but PCa is a scary thing to even think about for us. Dr. Walsh has to talk in plain English so we can understand as much as possible. Maybe the best strategy is to use the book as a reference resource, and not try to read it cover to cover. In this way you can just pick a chapter that addresses a specific question, and not have to deal with unexpected scary details which are not pertanent.

I hope you and Curtis have a Happy Labor Day.

Glen

bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 9/4/2006 5:42 PM (GMT -7)   

I will remind all that my opinions are my own and I am only sharing them because I truly feel they will help others.  That’s why this forum is so important…

 

Different folks,  Different backgrounds,  Different opinions, Different choices….

And “YOUR CHOICES and YOUR DECISIONS ARE THE RIGHT ONE” !!

 

I use to say to my mom…

“Mom…I will always ask your opinion (input) about things…  The more information I have about LIFE…. The more options I have… means more information to pull from.... and this will definitely help me make MY DECISIONS!!

Same goes here….  It’s my opinion but you need not take it at any time…. It’s just another tool to look at for information.  J

 

Dear Ellen,

 

I really hope you reconsider at some point along the way. 

The best thing you can do now is educate yourself.  Yes, the forum is a wonderful source of information….. but did you find out about the prostate and it’s function from the forum?? 

 

This book is the tool I used and felt comfortable sharing this information with others.  Especially after our urologist suggested this reading…  But if you are looking for KNOWLEDGE…I think any book would be worth looking at.

 

Yes…some sections were very scary but they made me aware of what “WE” were dealing with and that there is a LIGHT AT THE END OF THE TUNNEL… J

 

(I did not read Chapter 12 because I felt no need to know this until we knew the diagnosis from the pathology reports….. I knew this Chapter would still be there…if I needed it.)

 

If you have the answers to the following ..then by all means you do not need to read “any” book….

Do you know where the prostate is located? (I didn’t)

Do you know what took place during the biopsy? (I really wanted to know!)

Do you know the function of the prostate, the bladder, the urethra, the sphincter muscles? (Some but not all)

What your options are? (Surgery? And what kind?, radiation?, chemo?….. )

 

This book was written in 2001.  But it still educates you about the disease.

Yes…Dr. Walsh is known for doing The Radical Retropubic Prostatectomy…  but the contents still taught me so much about this disease…and it showed me there were different options… and with new technology there are still MORE options.

 

The Preface in this book lets you know right off how scary this disease really is!!  But the author “a woman like you and me” took the time and energy to help guide us through this HELL…  Ms. Janet Farrar Worthington (a daughter, a sister, a wife, a mother) and Dr. Patrick Walsh (one of the most respected prostate disease specialists in the world) are giving us information in this book to help us better understand prostate cancer so we will know what “WE” are up against.  I say THANK YOU to both....
 
Sharing is Caring....  and I Care...... :-)
In Friendship, Lee

mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 


DWT
Regular Member


Date Joined Jun 2006
Total Posts : 89
   Posted 9/4/2006 8:55 PM (GMT -7)   
Wicket,
my god i should have told you about that scary book. I had to throw it away. It scared us so much and clouded our decissions for months. It's outdated by 5 yrs and so Dr. Walsh is an imminent Dr. he has no compassion for the patients. He is cold and almost sadistic in his writing. If you need info try Dr. Peter Scardino's Prostate Book. It explains everything with drawings, etc. his wording is much softer and very clear. I am sorry but to me anyone that suggests to read Dr. Walsh's book must enjoy to be tortured and scared to the point of a breakdown. That's how I feel about this book. I will never ever forgive DWT first Urologist for telling me to buy this book and read it. This book added so much to our emotional turmoil. Not what we needed. SL

DWT
Regular Member


Date Joined Jun 2006
Total Posts : 89
   Posted 9/5/2006 6:24 AM (GMT -7)   
Wicket, one more thing. Dr. Walsh pushes the 25 year old Radical Surgery procedure. 25 yrs ago women had their breasts removed at the drop of a dime, their uterus too with radical procedures. Hardly happens any more their are much gentler procedures now. For men robotic or LLP plus amny more none of which Dr. Walsh embraces, he developed the "Gold Standart" (what's gold about it I don't understand) so that's what he pushes. We women have stamped out feet, screamed, yelled and protested so loudly that even the Senate had to listen and fund more research monies. There are walks, races, fundraisers and thousands mor events for the pink ribbon. WHAT IS THERE FOR THE MEN? Nothing!!!!!THEY ARE QUIETE and accept old procedures because there isn't much else in this country. WHY DON"T WE WOMEN GET TOGETHER AND STAMP OUT FEET, RAISE OUR VOICES FOR OUR MEN?!
Men believe, I think, this is something to be ashamed of. DWT says don't speak so loud about it, in out home, some one could hear you. WHO the fly on the wall? Not much research is done here for better treatments and the FDA blocks all kinds of new development for men, not for women. THe surgeons also block advances and insist that only 15 year track records are acceptable so - there is the GOLD STANDART - 25 yrs old. If there is a doctor who embraces new methods and informs his patients about it - he is called a charlatant and is being shunt. We have been told by a Orofessor here that Dr. Manni with his nervesparing Robotic Surgery can't be believed about his results, he's not writing any papers. BULL he writtes papers and his results are real, BUT they are less than 15 years old. SL

Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 9/5/2006 9:59 AM (GMT -7)   
Bluebird and DWT,
 
I do read Dr. Walsh's book, but only parts of it.  I find it helpful in some waysand am very selective about what I read.
Thanks for the input.

Ellen
 
 
Curtis, 63,  was diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10


DWT
Regular Member


Date Joined Jun 2006
Total Posts : 89
   Posted 9/5/2006 12:41 PM (GMT -7)   
Mama Bluebird,
my impresion of Ms. Janet Farrar Worthington, and that's mine please remember this, is that she is one cold blooded women without compassion or any idea what we the wives feel when our husbands and loved ones receive the diagnosis PCa.  She has no idea what we go though or how to give a helping word. I am sure that she can't even imagine the emotions, the pain, the love, the anger, the frustration - she is cold as ice. I don't know her in person, but from this book she co-authored, I wouldn't want to meet her ever.
So that is my feelings about this book and this person - that you say is given us the wives and women in our situation - helping advise. Never. You all are a million times more valuable with your input. Soothing, caring, advising, listing, informative. She is not!!!!
SL

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/5/2006 3:48 PM (GMT -7)   

Hi…Ellen,

I'm glad it's out of the drawer! Like Spinbiscuit says.... Prostate Cancer is a scary thing!!... But this book truly is a wonderful reference resource.  Selective reading is better than no reading....  and plain talk is better than talking above us.

Thank goodness for free speech and Thank goodness the forum allows us to express our own opinions.

 

I firmly believe that we draw from each other ~ what we want to draw from ~ to help us in our own personal journey.  And that's what our comments/postings/opinions are all about.  It's not to scare but to share..... and we all react differently. 

 

I know if we had selected another type of surgery... Buddy & I still would have bought this book.  Again… a personal decision.

 

When I saw the title to Chapter 12.... I said to myself.  I don't need to go there... 

 

And I am a true believer that POSITIVE THOUGHTS bring POSITIVE REWARDS in every area of MY LIFE. 

 

Negative thoughts and angry thoughts can kill you faster than the cancer cells that are attacking the prostate. 

 

My sharing will always be on the POSITIVE and CARING side.... and I hope you feel this.

 

Sharing is Caring,

Lee & Buddy

 


mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 

Post Edited (bluebird) : 9/6/2006 7:04:51 PM (GMT-6)


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 9/5/2006 4:08 PM (GMT -7)   

Bluebird,

The book I bought had been used and it was very nice of the preceeding user to mark all the stuff that is important to read.  LOL

Buddy had has RRP April 3, 2006...how is he doing?  Are things back to normal for you two yet?


Ellen
 
 
Curtis, 63,  was diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/6/2006 6:26 PM (GMT -7)   
Hi! Wicket (Ellen), I'm heading over to the thread titled "For Wicket" to respond to your question on how we are doing!! See you there. Lee
mama bluebird
~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~
Buddy 53 RRP April 3, 2006 PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable 


SJC
Regular Member


Date Joined Jul 2006
Total Posts : 113
   Posted 9/9/2006 7:42 AM (GMT -7)   

I read an earlier post that was primarily negative about Dr. Walsh and his book.  I have a different perspective.  Dr. Walsh is the most renowned urologist in the US.  He developed the "gold standard", the nerve sparing radical prostatectomy, that gives us an opportunity for quality of life after surgery.  His book addresses what we can expect before/after surgery.  I, personally, found it very informative.  It is not for the weak of heart; but, I'd rather know reality beforehand so I can make an informative decision and also know my chances for a successful surgery.  His book was published about five years ago before the robotic/lap surgery was available at most hospitals.  The procedure followed by the rob/lap surgeons in most respects follows the gold standard developed by Dr. Walsh. 

I had my surgery Aug. 2.  I followed Dr. Walsh's suggestion and searched for a surgeon with a proven, extensive track record.  I looked at rob/lap surgeons as well as open surgeons.  There are some good ones at one or the other....none are the real experts at both.  This is where you have to come to a personal decision which way you prefer.  I ended up going with a surgeon I felt had the most extensive track record.  He was an open procedure surgeon....Dr. Walsh's colleague, Alan Partin.  I was in the hospital two days, did not need a transfusion during surgery.  I was back at work a couple of weeks after the surgery (two to three hours per day at first...office job).  This past week I was at full days and felt good at the end of the day.  I still wear a pad when at work; however, when I come home the pad is DRY!  I don't wear a pad while at home.  I think I will go pad free to work next week. My pathology report post surgery was negative.  Still saying my prayers for a good PSA report Nov. 2. 

I think we men have a lot to thank Dr. Walsh.  He developed the procedure followed by the best surgeons in the country, be they rob/lap or open.  His procedure gives us a chance for quality of life.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 9/9/2006 11:30 AM (GMT -7)   
SJC said...

I read an earlier post that was primarily negative about Dr. Walsh and his book.  I have a different perspective.  Dr. Walsh is the most renowned urologist in the US.  He developed the "gold standard", the nerve sparing radical prostatectomy, that gives us an opportunity for quality of life after surgery.  His book addresses what we can expect before/after surgery.  I, personally, found it very informative.  It is not for the weak of heart; but, I'd rather know reality beforehand so I can make an informative decision and also know my chances for a successful surgery.  His book was published about five years ago before the robotic/lap surgery was available at most hospitals.  The procedure followed by the rob/lap surgeons in most respects follows the gold standard developed by Dr. Walsh. 

I think we men have a lot to thank Dr. Walsh.  He developed the procedure followed by the best surgeons in the country, be they rob/lap or open.  His procedure gives us a chance for quality of life.

Ditto from me.  When faced with a life-threatening disease, I want all the facts that will lead to a cure if possible.  To be fair to Patrick Walsh and his ghost writer, this book is about a cold, destructive, calculating disease--cancer--not about the joys of a trip to Provence, France when the springtime flowers are in bloom.


Age 57  PSA 2.5  Gleason 5   Open Radical Retropubic Prostatectomy/Bilateral Nerve-sparing  6/21/06  Cancer confined to prostate  No further treatment


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/21/2006 7:24 PM (GMT -7)   
Quote:
56pontiac said...
I CAN'T FIND YOUR PERSONAL THREAD "OUR JOURNEY" WHERE IS IT?

Hi 56 pontiac…. It was on page 4….

I’m going to post this so it brings it back to page 1….
Our Journey triggered some interesting views on this book.

I’ll also pop the other Thread started by Wicket 9-3-06… “Dr. Patrick Walsh’s Guide to Surviving Prostate Cancer”….

Good postings on both!!
mama bluebird - Lee & Buddy 53
RRP April 3, 2006   PSA 4.6 Gleason 3+3=6 T2a   Confined to Prostate
June 29th PSA Less than 0.1 Non-detectable  :)

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