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dazed-dad
New Member


Date Joined Sep 2006
Total Posts : 3
   Posted 9/8/2006 9:04 AM (GMT -7)   
Hi,
Brand new to board. Not quite sure where to start.

I am 55 yrs old and have just recently been diagnosed w/prostate cancer. 10 biopsies, 2 maligniant, gleason 6, psa 4.71, with a couple more atypical.

Had bone and abdomon scans, both looked clean of any spread.

I live in ft. lauderdale area, but am willing to travel if need be. How the heck do you chose the best facility and doctor?

What kind of surgery is really better?

Been thinking about MD Anderson in Orlando or Moffit in Tampa.
Any help would be greatly appreciated.

Tom

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 9/8/2006 12:17 PM (GMT -7)   

Hi, Dazed-Dad

Others will be here to encourage you on; I was just checking in. There will be several who can guide you in researching the Florida area.

I think just about everyone here will tell you that the method is less important than the skill of the doctor you choose. We chose the daVinci robotic surgery and my husband had it done (at age 65) five weeks ago. It seemed the best choice for us. But others have been superbly pleased with other procedures.

If you have time, read through as many posts here as you possibly can - there's so much information shared by all the great people here, that you'll gain greater insight into everything - from dealing with p. cancer to surviving it.


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/8/2006 1:33 PM (GMT -7)   
Hi Tom,

Check out Aaron Krongrads site too. He's in Florida. Note that he does laps. not robotic. He has done probably the largest number of laps of any Doc in the country. Krongrad is well recognized as are both Moffit and M.D. Anderson. You definately have some choices being in Florida.

Both robotic and laps are equal in every respect except one uses a robot and done does not. I spoke with Krongrad at one time and found the man to be extremely helpful.

I'm a fan of Tewari and Menon too. Both have some exceptional experience with procedures. If surgey is a choice, find one who is utilizing the ligand applications. A lot of surgeons are using ligands...a neuro protective showing much promise in recovery of spared nerve function. Just a few ideas to check in to. Take yer time and check out every option. Proton Beam has some really promising results too. It's a shame it isn't more available. There are several sites in connection with Loma Linda now doing Proton.

May I also suggest the use of 2-500mg. daily doses of L-Arginine starting now? The precursor to NO may offer some protection by helping provide a good healthy blood supply now. Raisiing it to 1000mg. twice a day after your procedure, especially one that messes with nerves, is useful IMHO.

We''re going to see Arginine in our next generation of oral ED meds I think. I recommend if a man can take arginine, he should. It honestly does make a difference in my husband. We've tested with and without...there is a definate difference in the level of blood supply to his genitals. Sorry to be so forward...we only just met...LOL!
Swim

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/8/2006 1:37 PM (GMT -7)   
Oh, and for those who want to know what other good Arginine does...it's a common enzyme used to treat healing burn patients with. It does promote tissue healing and helps reduce scarring. It's also being extensively tested in cancer treatment...prostate being one of them. Swim

techperson
New Member


Date Joined Sep 2006
Total Posts : 1
   Posted 9/8/2006 2:52 PM (GMT -7)   
Swimom is right: "Take yer time and check out every option." Surgery may be right for you...or not. You have time to check out the options. Do the Partin Tables with your doctor, a formal detailed risk assessment of your situation. The biggest mistake is to plunge right in to a treatment without doing research. Get a book or ebook like How To Beat Your Prostate Cancer and find out how you can mix conventional and alternative treatments. ( L-Arginine being one of many great examples.)
Good luck!

aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 9/9/2006 9:59 PM (GMT -7)   
Tom,
I always suggest the book "Prostate Cancer Prevention and Cure" by Lee Nelson. It's very comprehensive and covers stages, diagnosis, various treatment options, selecting your doctor, lifestyle changes, diet exercise supplements etc etc. Although written a few years ago it's a very good publication and covers all mainstream treatments, but not the "newer" one or two like HIFU.

He also provides a list of top surgeons, but no doubt there are many others.
Lifestyle changes are also very important regardless of what else you do.

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 9/10/2006 1:14 PM (GMT -7)   
Tom,
 
Welcome to the Prostate Cancer board.  Looking at your PC statistics, it seems that you're an early stage diagnosis and have a very favorable outlook to treat and cure your cancer. 
 
I did a lot of research and reading prior to deciding on a treatment.  My urologist was a good communicator, and the most helpful thing he told me after giving me the news that I had prostate cancer was "You've got time to make a decision about treatment.  There is no need to rush. "  Having time to think, to read, to talk to my wife, to pray was a good thing.  It takes time to process bad news, to let it sink in, to be able to come to a decision weighing all the complicated aspects together. 
 
The decision is a personal one.  I considered watchful waiting, brachytherapy, radiation, proton treatment, and surgery (laparoscopic, robotic/laparoscopic, and open).  Because I had time to process my decision, I had no regrets before or after the surgery.  My wife has been with me all the way, hand-in-hand, heart-to-heart, from the beginning of this shared journey. 
 
You'll get a variety of opinions here because everyone's journey is different.  But I've found that the folks on this board have a special way of caring, because they have travelled the same, difficult road that you are fated to walk.  Take care and hang in there, Tom!
 
Tim 


Age 57  PSA 2.5  Gleason 5   Open Radical Retropubic Prostatectomy/Bilateral Nerve-sparing  6/21/06  Cancer confined to prostate  No further treatment


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 9/11/2006 8:52 AM (GMT -7)   
You've come to right place for information.  Each one of us has been directly (or indirectly in my case, I'm a spouse) diagnosed with prostate cancer.  My husband was diagnosed at 44, 3.74 PSA, Gleason 6.
 
We researched everything and opted for Brachytherapy.  If you need more information on that option, I'm happy to provide you with information on our experience.
 
 
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