Post-surgical increased urination/leakage

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GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 10/5/2006 7:39 AM (GMT -7)   
Husband was sailing along post-daVinci for the first six weeks with 1 pad/day after catheter removal and just an occasional little "oops" squirt with exertion.
 
Then, he started urinating much more, and then a couple of weeks ago, started leaking badly at varying times of day. Sometimes all morning long, then the next day, it would be in the evenings.
 
We brought this up with our daVinci doc and he was concerned, stating that frequency shouldn't be happening and leaking shouldn't be getting worse.
 
On the spot, they numbed and did a bladder check. He said it could be any of three things:
-infection
-scarring
-spasms
 
The camera showed no indication of the first two, so he put husb. on 30 days of anti-spasm pills. These apparently aren't spasms you "feel." They are the kind that just make you "go." We go back to Austin in 30 days for a follow-up. (They also put him on a 2-day antibiotic as a precaution against infection for the camera look.)
 
I'm posting this for others who might be experiencing this same thing. We'll keep you posted on progress. Leakage is emotionally discouraging/frustrating/disappointing/you-name-it.
Husband age 65
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Future: PSA tests twice-yearly


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 10/5/2006 8:15 AM (GMT -7)   
Hi GreenAcres,

I have experienced the same thing, but only a few times, and the leak was minimal. Still it concerned me because I was 6 months post-op. If I was to describe the sensation; it would be a slight spasm almost imperceptible. I hope the meds. work for husb., and he will continue to heal. Please tell husb. to keep his spirits up, and we all wish him the best.

Glen

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 10/5/2006 10:40 AM (GMT -7)   
We can relate with it because Jeff will be fine most days, but then other days he just dribbles all day. we're trying to pay more attention to what he's doing and/or drinking those days to see if that makes a difference. just the other day he was sitting on the toilet and no matter what he did, the urine kept dribbling out. he finally said the heck with it and pulled his pants (with a pad) up. I can understand how disappointing this must be and hopefully the pills will do the trick, and you won't have to take them 4-ever either. thanks for bringing it up because if it's happened to you, surely it's happened to others.
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006


wittler
Regular Member


Date Joined May 2006
Total Posts : 104
   Posted 10/5/2006 1:02 PM (GMT -7)   
Thank you GreenAcres for sharing the experience as discouraging as it must be. Tom just had his catheter removed on Tuesday, and so far (after the first 12 hrs) has only had stress incontinence. He has gone back to work and is afraid to wear anything lighter then the depends briefs yet. I will keep this in mind incase he should start to get worse later on. Good luck with this, I hope it resolves soon.
Kate
 
My Husband is 52 yrs old
* Diagnosed 7/13/06 with 11.4 PSA, Gleason 7,T2b and Negative Bone and CT scan.
 
* Had Open Radical Prostatectomy on 9/18/06
Gleason was reduced to 6, had negative nodes and negative margins. 75% of the prostate was affected.
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 10/15/2006 5:27 AM (GMT -7)   
hey GreenAcres, how are things going now? I saw your post at another thread and thought of this one. I hope the pills are working and that things are better.
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 10/15/2006 6:35 AM (GMT -7)   
Nope. Not better. It's very frustrating, discouraging, and downright, oh, whatever. As we've said time and time again, though - we'll take this over having cancer!

We got spoiled to those first weeks of success. Now, it's fine lying or sitting and not a problem getting up. Just any other type of activity does it. Little control. Have kegeled religiously since way before surgery. So, don't know what's up, but we believe strongly that it will be like many others have experienced - one day it will get better again.

Thanks for asking. Just another one of those "things" ya have to deal with. Repeat with me - "But it beats the heck (substitute the word of your choice here) out of having cancer!"
Husband age 65
PSA on 5/1: 4.2 (doubled in 13 mos.; up to 4.3 on 6/1)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Future: PSA tests twice-yearly


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 10/15/2006 8:16 AM (GMT -7)   
Well Curtis is doing really good I think since he just got the catheter out last Wednesday.  He has no problems at night and very little problem when getting up if he doesn't wait to long in between bathroom visits and is ok walking around.  He tries to go to the bathroom every hour or so that way his bladder doesn't get to full for him to be able to control.  He did have a couple of drops of blood in his urine this morning, but I expect that's normal at this early stage of recovery.

Ellen
 
 
Curtis, 63,  Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
DiVinci surgery done on October 3rd, 2006
Catheter out October, 11, 2006
After surgery T2C and cancer found on both sides instead of just one side.
Pathology report came back clean!!!


Letty
Regular Member


Date Joined Sep 2006
Total Posts : 80
   Posted 10/15/2006 8:34 AM (GMT -7)   

Hi GreenAcres,

My husband is still dealing with leakage too but he had the open instead of the Divinci so I don't know how comparable they are.  I know it is frustrating for them though and especially hard for your husband after doing so well the first few weeks.  Gordon's has been a good but very gradual improvement.  Like the others have said though, its good to hear these things so the rest of us can be aware of them.

Good luck to you both,


Letty,
 
Husband diagnosed May 2006 at age 50.  RRP performed 13 July 06.
PSA 5.7,  Gleason 3+4=7, Staged T2C, Cancer confined to prostate.
His father diagnosed at age 62 and is currently a 13 year survivor!


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 10/15/2006 9:29 AM (GMT -7)   
Ellen,
Curtis should to continue drinking a normal amount of fluids and wait until his bladder needs emptying before he goes. At least that's what I thought. At bedtime or when leaving the house for a drive is always a good time to go but otherwise don't they suggest returning back to a normal rountine so the bladder doesn't get lazy or something like that?

Paul

Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 10/15/2006 11:56 AM (GMT -7)   
You may be right Paul.  I'll mention it to him.  Thanks for the info.

Ellen
 
 
Curtis, 63,  Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
DiVinci surgery done on October 3rd, 2006
Catheter out October, 11, 2006
After surgery T2C and cancer found on both sides instead of just one side.
Pathology report came back clean!!!

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