Age and treatment

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sluggo72
New Member


Date Joined Oct 2006
Total Posts : 5
   Posted 11/2/2006 3:56 PM (GMT -7)   
I've bee reading the posts on this forum for the past few weeks.  Am I wrong in thinking that most of the men taking part here are younger, say from 40 to 65, and everyone seems to be having surgery - daVinci or whatever.  All the problems of post-op deal with surgery.
 
I'm just wondering if there are older guys on this forum.  I turned 72 last March.  My PSA went up to 5.7, free PSA at 9% early in May.  I had a biopsy on May 16 (under complete anasthesia - I wasn't offered any alternative, and had an easy time of it) and 2 of 14 sections showed cancer and 2 were pre-cancerous.  I live in Florida and spent July and August traveling with my wife, visiting friends and relatives up North.  Came back in September and treatment started in October.
 
Urologist said I was on the cusp, age-wise, where they do not recommend surgery.  I opted for radiation.  This is not "seeds", but image guided radiation therapy.  I had 2 minor surgical procedures called "high dose radiation with boost" which were not very pleasant, but not the worst.  The plan is then for 25 sessions of radiation.  This involves my driving to the Oncology clinic, getting on the table under the "Trilogy" machine (a real Star Wars contraption) and getting the image guided radiation for less than 10 minutes.  Then I drive off.  Today I had my 15th treatment.  Ten more to go.  I see the Oncologist every Monday, and the Urologist every few weeks during the treatment.  The only problem with this method is that, although the Oncologist said the odds were overwhelmingly in my favor, they really won't know the real results for 6 months to a year after I'm finished.
 
Is anyone else out there using this method of PC treatment?  Looking to share experiences, and help others along if I can.  I'm certainly not an expert on radiation, but I have learned a few things.  Love to hear from you.
 
 

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/2/2006 4:16 PM (GMT -7)   

I too would like information on treatments other than surgery.  Anyone know anything about proton beam therapy?  My neighbor had it and is very enthusiastic.

Regards,

Bill


Letty
Regular Member


Date Joined Sep 2006
Total Posts : 80
   Posted 11/2/2006 4:23 PM (GMT -7)   

Hi Sluggo72,

I don't think we've welcomed you to the board yet so on behalf of my husband and I....WELCOME!

There does seem to be a lot of younger men on this forum but we've also seen older gentlemen such as yourself as well.  We were told that for older men, radiation is sometimes the best because many times their cancer is very, very slow growing and chances are that they will die of something else other than the prostate cancer.  Also, the surgery can be very hard on older men, especially if their not in very good shape.  For the younger men, surgery is many times recommended because their life expectancy is naturally longer. 

There is an another excellent prostate cancer website at www.yananow.net where men have wrote about their different kinds of treatments and are willing to answer your questions.  There are a lot of experiences with radiation treatment there.  It helped us and I'm betting it would help you to. 

Best of luck to you and yours,


Letty,
 
Husband diagnosed May 2006 at age 50.  RRP performed 13 July 06.
PSA 5.7,  Gleason 3+4=7, Staged T2C, Cancer confined to prostate.
His father diagnosed at age 62 and is currently a 13 year survivor!


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 11/2/2006 6:43 PM (GMT -7)   
Hi Sluggo72,

Welcome to the family. You're correct most of us had the surgery, but all of the different procedures offer the same high rate of success. One of the things you mentioned; "the 6 months of treatment" is why I opted for the DaVinci Robotic procedure. In my case the diagnosis was very early, and Robotic Surgery offered excellent results with a short recovery time. As I mentioned before all of the other treatments are equally effective. It is just a matter of which one suits your needs. Good luck with your treatment, and I'm sure it will be successful.

Glen

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/2/2006 9:09 PM (GMT -7)   
Hey Jet,

There's a PCa fourm on WebMD where a few men had Proton. Maybe they'd be able to help you out.

Sluggo,
Gosh, it does seem we have a bit of a younger group. It wasn't intended that way. Wasn't intended to be mostly surgery either. It is rather odd isn't it?
Hang in a while anyway!

Swim

family4
New Member


Date Joined Oct 2006
Total Posts : 9
   Posted 11/3/2006 8:14 AM (GMT -7)   
Hi jetguy

My uncle and a good friend of ours (both in their 60's when diagnosed) opted for the proton and had no regrets whatsoever. They were totally pleased with their results and wouldn't have done it any other way if they could go back. They both had theirs done at Loma Linda in California. We didn't opt that way due to the fact that my husband is only 42 and surgery is what they pretty much recommend at a young age.

Welcome sluggo72

There are definitely a lot of people on here with different scenarios. We opted for the Radical Perineal Prostatectomy and I haven't seen anyone that has ever gone that direction. Hopefully we can all learn from one another.

Darla

 

My Husband was Diagnosed 9/22/06

*42 yrs old

*Abnormal DRE with nodule

*3+4=7 Gleason

*2.6 PSA

*3 of 9 cores on right positive, 6 on left negative

*Perineal prostatectomy 10/23/06

*Gleason came back 6 after path and confined to prostate
*Negative Bone and CT scan


PLDBrandon
New Member


Date Joined Nov 2006
Total Posts : 10
   Posted 11/4/2006 1:50 PM (GMT -7)   
sounds like there so many treatments I was unaware of. Seems like the different methods all cater to different people and age groups, Im glad there so many options out there if I was ever to get this.

sluggo72
New Member


Date Joined Oct 2006
Total Posts : 5
   Posted 11/7/2006 11:50 AM (GMT -7)   

To all, well, thanks for your replies.  This really is a great forum, even if does seem to lean toward the younger crowd.

I never even heard of proton therapy, and it was never offered.  I have heard of HIFU, high intensity focused untrasound, but I'm not even sure if that's offered in the US.  Might have to go to Canada or Europe.

Had my 18th radiation treatment today, 7 more to go and I'll be finished.  Saw the urologist yesterday.  Urine is normal, left about 50cc behind, anything under 100cc is good, at my age.  He put me on Enablex to control urges to urinate.  So far, no other problems, no leaking at all, no e.d. - (and if you young'uns don't think you'll be worrying about e.d. when you hit 72, allow me to enlighten you: you will not want any e.d. problems at any age, maybe when you're about 97.)

Thanks again to all.  I wish you all success.      Sluggo72

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/7/2006 12:05 PM (GMT -7)   
Indiana Univesity is in phase 3 trials of HFIU...check em out on their we site. Just google...it should come up. Several places across the country are now doing Proton Beam. Jacksonville FL has one of the newest sites.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/7/2006 12:28 PM (GMT -7)   

Hi Sluggo72 & Loved Ones...

 

A belated welcome  yeah    Just wanted to say hi!!!  I’m glad to see you’ve posted to let us know how you are doing.  Sounds like things are going as expected….. I’m glad to hear this!!  

 

Please continue to let us know how things are going for you… 

 

Your journey will definitely be appreciated.... a good one to keep documentation on … since few have shared their experience with this procedure.  Thank you for sharing J

 

Take care and know we care about you!!

In Friendship, Lee & her Buddy

 

"GOD Bless You"

 

It's a little prayer "GOD Bless You"...

but it means so much each day,

It means may angels guard you

and guide you on your way. 

                                 ~author unknown~


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


JayMan56
Regular Member


Date Joined Oct 2006
Total Posts : 61
   Posted 11/7/2006 1:09 PM (GMT -7)   
Welcome Sluggo... I am prety new to this forum as well. As the information in my signature indicates I was notified of the diagnosis on 10/18/06. One thing I've learned for certain is that there are so many variables involved: Age, Gleason Score, PSA, etc, etc, etc. I have decided that I will do the DaVinci Robotic Laporascopic procedure unless or until I find out something better for my particular situation.

This is one journey we take that must be taken on our own. I only ask above for guidance that a) The cancer is removed completely, never to return, and b) I will continue to have a good quality of life as long as I live. I just seek to accept the consequences of any decision I make. Good luck to you.....

Jay
  • 56 year old male, divorced
  • Diagnosed: 10/12/06
  • Two malignent cells, Gleasons: 3+3=6, 3+4=7
  • Last PSA 11/5/06: 2.3
  • Scheduled a DaVinci Robotic procedure for Feb 6th
  • In control, but partially terrified about the future
  • Click (or paste) this link to watch the DaVinci Procedure: http://www.or-live.com/ShawneeMission/1664/event/webcast.cfm?


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/7/2006 8:00 PM (GMT -7)   

Hi everyone.  I was diagonosed last Friday with PSA 7 and 3+3 and another 3+3 on the other side.  We (my wife and I) are in the process of deciding what procedure to  have done.  We meet with the oncology team in 2 weeks.  I'm 72 so am glad to see some posts from other old f____s.

We are doing a lot of reading and surgery or radiation seeds seem to win out so far.


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/7/2006 11:29 PM (GMT -7)   
Sluggo,
 
I don't think this forum is for the younger crowd, but for anyone who has PC.  As you can see by my signature, my husband is 63 and there are husbands who are older than that.

Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/8/2006 7:07 AM (GMT -7)   
Hi, Sluggo and Biker. Glad you found this place. Sluggo, you are so right. ED worries aren't just for the young-uns! Let's hope it's always that way.

Biker - Treatment options are not more varied for the younger men - it depends more on health and status of the cancer than age, I think. We, for instance, were not candidates for seeding because of where they thought the initial cancer spot was located. We were good candidates for surgery (and what we believed would be total removal and cure), but we met with an oncologist and a surgeon before making that decision. Even more important, do your research. Each practitioner is going to point and/or pressure you in their direction, anyway, and may leave out some of the "important" facts.

Sluggo - we were very impressed with the explanation and cure rates of your choice of treatment. We were not impressed with the "great" oncologist who presented it. We will not hesitate to go that route if needed down the road, for sure!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 

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