This is such a positive place!
It's now been around the two week mark since I found this forum and began posting on behalf of my hubby (Bob) and myself (Linda)
We started by reading everyone's postings for the last few weeks and then by asking questions; then posting some replies and supportive messages of our own.
Although a summary of Bob's story is included in a previous post / question, it was never it's own thread. Hence I'm posting our summary here, only so that I may add to it from time to time and have all in one place. (Not trying to be first on the list or anything)
I am 56 and Bob is 60. He retired at 58 and actually his health took a beating from that point on. To that point always the picture of health . . . .still a picture of health . . .however, in February of 05 his extremely elevated white, red and platelet counts caused a diagnosis of Polycythemia Rubra Vera which is now controlled by Hydroxyurea (actually a cancer drug, although this isn't cancer) and doing nicely.
At the time of this diagnosis further tests were taken (bone marrow biopsy) to try and find the possible origin and showed a secondary illness . . Myelofibrosis in which the bone marrow produces fibrotic tissue. It moves slowly but has no cure. He was told he had 5 to 30 years left -- we chose 30!! another dr. looked him in the eye and said it'll be a miracle if you're here in 20 years . . .so we know not what lies ahead.
To date this has all been very inactive with the blood levels normal thanks to the Hydroxyurea. . . . then this May 26 the diagnosis of prostate cancer .(ironically, 2 years to the exact day of retirement) . . .hubby still the picture of health, but the not knowing sometimes gets to us both.
First urologist recommended open surgery - we asked for referral to laproscopic surgeon and that surgery was September 27, 3006.
Bob's older brother by 4 years had this exact surgery 1-1/2 years prior to Bob's and their father was treated for prostate cancer in his early 80's. . . . Their youngest brother is watching closely at 58 years old. . . and tested regularly.
Bob's surgery went as scheduled and the doctor is certain it was contained. Pathology hasn't been reviewed yet . . we await November 14th for that. (When gasping at some of these long waits, please remember we are in Canada where healthcare is great but severly behind timewise. . . . also there was no huge "rush" for the procedure.
At the 5 1/2 week post surgery mark Bob continues to feel great and is anxiously awaiting being able to return to some of his previous hobbies that required some exertion on his part and he was told to wait 6 - 7 weeks.
Urinary control has been an interesting journey. Without the knowledge and advice of his brother and not knowing about this valuable forum site pre surgery we would have been very concerned at this point. However, both the brother and forum are invaluable.
Nights are mostly dry and length of time between bathroom visits is getting longer every night. Daytime control is pretty good when Bob goes from sitting straight to the bathroom. However, when on his feet for a period of time or walking (treadmill, shopping, etc.) he still feels he has limited control (sometimes almost none) . . . .but this too is better than last week at this time.
Erections are non existent and we've obtained much comfort (not to mention humor) in the comments and experiences of others in this same situation.
We will be discussing the sexual function with the urologist on the Nov 14 visit. However, from the wife's prospective, it is very difficult to try and make the little guy stand up and shout when he's dribbling all over the place.
Thanks for the friendship and I will cherish the new friends made in this forum and wish everyone continued good health and speedy recoveries at all stages of this journey.
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008. WHOOO HOOOO!
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.
Post Edited (lawink) : 11/10/2008 2:30:46 PM (GMT-7)