Bob & Linda's Journey Thread - ZERO times TWO YEARS!!!

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lawink
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Date Joined Oct 2006
Total Posts : 621
   Posted 11/5/2006 11:52 AM (GMT -6)   
yeah   This is such a positive place! yeah
 
It's now been around the two week mark since I found this forum and began posting on behalf of my hubby (Bob) and myself (Linda)
 
We started by reading everyone's postings for the last few weeks and then by asking questions; then posting some replies and supportive messages of our own.
 
Although a summary of Bob's story is included in a previous post / question, it was never it's own thread.  Hence I'm posting our summary here, only so that I may add to it from time to time and have all in one place. (Not trying to be first on the list or anything)
 
I am 56 and Bob is 60. He retired at 58 and actually his health took a beating from that point on. To that point always the picture of health . . . .still a picture of health . . .however, in February of 05 his extremely elevated white, red and platelet counts caused a diagnosis of Polycythemia Rubra Vera which is now controlled by Hydroxyurea (actually a cancer drug, although this isn't cancer) and doing nicely.
 
At the time of this diagnosis further tests were taken (bone marrow biopsy) to try and find the possible origin and showed a secondary illness . . Myelofibrosis in which the bone marrow produces fibrotic tissue. It moves slowly but has no cure. He was told he had 5 to 30 years left -- we chose 30!! another dr. looked him in the eye and said it'll be a miracle if you're here in 20 years . . .so we know not what lies ahead.

To date this has all been very inactive with the blood levels normal thanks to the Hydroxyurea. . . . then this May 26 the diagnosis of prostate cancer .(ironically, 2 years to the exact day of retirement) . . .hubby still the picture of health, but the not knowing sometimes gets to us both.

First urologist recommended open surgery - we asked for referral to laproscopic surgeon and that surgery was September 27, 3006.
 
Bob's older brother by 4 years had this exact surgery 1-1/2 years prior to Bob's and their father was treated for prostate cancer in his early 80's. . . . Their youngest brother is watching closely at 58 years old. . . and tested regularly.
 
Bob's surgery went as scheduled and the doctor is certain it was contained.  Pathology hasn't been reviewed yet . . we await November 14th for that.  (When gasping at some of these long waits, please remember we are in Canada where healthcare is great but severly behind timewise. . . . also there was no huge "rush" for the procedure.
 
At the 5 1/2 week post surgery mark Bob continues to feel great and is anxiously awaiting being able to return to some of his previous hobbies that required some exertion on his part and he was told to wait 6 - 7 weeks.
 
Urinary control has been an interesting journey.  Without the knowledge and advice of his brother and not knowing about this valuable forum site pre surgery we would have been very concerned at this point.  However, both the brother and forum are invaluable.
 
Nights are mostly dry and length of time between bathroom visits is getting longer every night.  Daytime control is pretty good when Bob goes from sitting straight to the bathroom.  However, when on his feet for a period of time or walking (treadmill, shopping, etc.) he still feels he has limited control (sometimes almost none) . . . .but this too is better than last week at this time.
 
Erections are non existent and we've obtained much comfort (not to mention humor) in the comments and experiences of others in this same situation.
 
We will be discussing the sexual function with the urologist on the Nov 14 visit.  However, from the wife's prospective, it is very difficult to try and make the little guy stand up and shout when he's dribbling all over the place.
 
Thanks for the friendship and I will cherish the new friends made in this forum and wish everyone continued good health and speedy recoveries at all stages of this journey.

:-)   :-) ) Linda   :-)   :-)


Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Post Edited (lawink) : 11/10/2008 2:30:46 PM (GMT-7)


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/5/2006 12:57 PM (GMT -6)   
Hi, Linda. Sounds like you two are progressing beautifully. We, too, have been grateful for all the folks and wealth of knowledge on this forum. Have said many times that doctors should pass the link along to each of their patients.

You two are traveling many "roads," but I hope this one, for sure, is beat!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/5/2006 6:57 PM (GMT -6)   
Linda,

thank you for starting this thread. it's always so interesting to hear what others are dealing with. I'm glad that things are progressing well so far, well, as good as they can. I am laughing my head off about your comment about making the little guy stand up. Jeff is dry except when we start playing around and I try to "prime the pump." we had a really good laugh about that yesterday. boy oh boy....did any of this think we'd be talking about this?? kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/5/2006 9:10 PM (GMT -6)   
We sure didn't think we would be talking about some of this stuff. That's what is so great about the site -- we can talk openly and frankly and all learn from each other. . . . . now I'm laughing at your "prime the pump" story.
;o)
Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14, 2006.
 
Also taking Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/5/2006 9:33 PM (GMT -6)   

Linda & Bob,

 

Thank you for sharing your journey.  It truly is a gift we can give to others.  It is a gift of sharing because we care.

 

We will continue to keep you close in our thougths and prayers as you travel on the path of recovery/healing.

 

In Friendship,

Lee & her Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/6/2006 6:51 PM (GMT -6)   
Linda,

Thanks for your post on my thread. I will be praying for excellent results on Nov. 14th. I chuckled when you mentioned the "little guy" . This site is easier than meeting face to face in a support group, I think, because it's easier to share this personal stuff! When we went to the Dr. today I had a list of things to talk about, some because of what I read here. I had decided if he didn't bring up the viagra issue I would. Fortunately, he got in to that right away so I didn't have to look desperate!

becky
husband Jeff 45 years old
diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
pathology - cancer in both sides of prostate,
positive in one area of margin
first PSA in 1/2007


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/13/2006 5:15 PM (GMT -6)   
Just brought this to the front to ask a favor of new friends . . tomorrow at 11AM Mountain Standard Time, we find out post op pathology report along with first PSA result. Even though we've had positive comments from the doctor post surgery and the numbers indicate all should be well, along with other postings in here with similar numbers, I still feel apprehension. . . . .just asking for thoughts and prayers through tomorrow.

Thanks to all.
;o) Linda
Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14, 2006.
 
Also taking Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis)


jwtw
Regular Member


Date Joined Oct 2006
Total Posts : 31
   Posted 11/13/2006 5:55 PM (GMT -6)   
Bob and Linda consider it done just did quick prayer hope these little thoughts help ease your nerves maybe just a little. God bless. jwtw

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/13/2006 6:43 PM (GMT -6)   

The very best to you.

Regards,

Bill


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/13/2006 8:11 PM (GMT -6)   

Dear Linda & Bob,

 

Thinking of you and keeping you close ~ in our hearts, thoughts, and prayers…. 

 

I’m so glad you joined us and I’m glad you’re posting on “Your Journey” thread J

Take care and know we will be with you…..

 

In Friendship,

Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/14/2006 6:32 AM (GMT -6)   
Linda and Bob, keeping you in my prayers today. the pathology report will come back clean! kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/14/2006 10:20 AM (GMT -6)   
Linda & Bob,

I will be praying that you get an awesome pathology report back today.

becky
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/14/2006 11:00 AM (GMT -6)   
Tap, Tap, Tap.....anxiously awaiting a good report :>)

Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/14/2006 11:19 AM (GMT -6)   
Linda,
 
It's 10:10 AM here in Idaho (Mountain Standard Time) and I'm thinking of you both and am sure that Bob will have a wonderful pathology report.
We go in tomorrow at 11:30 to find out the results of Curtis' cat scan.  He was having pain so they wanted to check him out, but since then he's been using Ibuprofen and feeling much better so am sure nothing is wrong there. 
Anyway you two are in my thoughts...heck we're actually  neighbors...sort of...both same time zone anyway.  LOL
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/14/2006 5:35 PM (GMT -6)   
Boy are we relieved!!! Pathology report shows cancer completely confined to the prosate gland. PSA was UNDETECTABLE!! In the Doctor's words "you got the best news you could ever hope for!". A secondary spot was found which was minute but a very aggressive cancer which was also contained . . .so we are ever so thankful we didn't wait around to have this taken care of as the aggressive cancer was not evident in the biopsy!

Thank you to our forum friends who have been pulling for us. We will continue to cheer all of you on and add to the information shared on the site.

We came home with samples of Cialis to get started on the rehab part of ED. So, on to the next phase. Follow up PSA and results will be end of February.


Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA = UNDETECTABLE.
 
A minute spot of an agressive cancer was also found which has been eliminated as well -- we are so lucky we didn't wait.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

Post Edited (lawink) : 11/14/2006 4:39:32 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/14/2006 6:12 PM (GMT -6)   

Woo  Hoo  Undetectable!!!

 

Great News Linda & Bob, 

 

What a journey you've had.... and how thankful we are you shared it with us!!!

 

Each time we have “news” ~ good, bad, or ugly……. It is such a warm feeling to know that we can share such intimate feelings with each other and know that the support here is unconditional love.

 

Take care and enjoy each day to the fullest and watch that beautiful sunrise/sunset to know that we are blessed!

 

In Friendship ~ Lee & Buddy

 

"GOD Bless You"

 

It's a little prayer "GOD Bless You"...

but it means so much each day,

It means may angels guard you

and guide you on your way. 

                                 ~author unknown~


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/14/2006 7:32 PM (GMT -6)   
Linda,
That's wonderful news!!  I'm so glad for you and Bob!!!
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/14/2006 10:51 PM (GMT -6)   
Congratulations on the great news!

becky
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 11/15/2006 6:05 AM (GMT -6)   
Bob and Linda
Outstanding news!!!!!!!!!!!! Congrats
Daveed tongue tongue tongue tongue tongue tongue

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/15/2006 6:18 AM (GMT -6)   
Good news, jolly good, bravo, kudos, outstanding, swell, wonderful, fabulous, great, smashing news, yea and Thank God!

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/15/2006 7:11 AM (GMT -6)   
ditto what everyone else said!! :)
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/15/2006 11:23 AM (GMT -6)   

CONGRAT'S That's GREAT NEWS!!! I know the waiting was hard, but now maybe it's time to work on getting a different kind of HARD!!

Good Luck!

Pete (newbe)


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/15/2006 12:03 PM (GMT -6)   
HA HA HA Pete! Thanks so much! Love your sense of humor!
 
By the way - glad you've joined our forum!  Please stick around and keep us posted!! yeah tongue
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


jwtw
Regular Member


Date Joined Oct 2006
Total Posts : 31
   Posted 11/15/2006 2:05 PM (GMT -6)   
This is the kind of news that makes us all so happy! Congrats. jwtw

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/15/2006 3:20 PM (GMT -6)   
Linda & Bob,

Fantastic!! I experienced the same thing on Monday and when I saw the big smile on the nurse practitioner's face I knew it was good. I have to say a few tears of relief were shed that day as I am sure that was your reaction. What good luck also to have gotten rid of it before the aggressive cancer got started good. Obviously your guardian angel is watching over you.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined

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