totally blocked after Foley removed

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riffl
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/6/2006 12:45 PM (GMT -7)   
 
I'm trying to find out if anyone has had the same experience as me.  I am 57 years old, diaganosed July 21, open radical prostatectomy September 1.  Foley was in for 2 1/2 weeks.  When the foley was first taken out, I was totally incontient for 3 weeks and then I became totally blocked.  I was then put on a straight cath which I have to do to myself at least 7 or 8 times a day.  I get very painful bladder spasms which can't be relieved except by a straight cath.  I'm up at night every 2 to 3 hours.  It has now been 9 weeks since surgery and I feel like I'm in house arrest.  Has anyone experienced anything like this and did it get any better?

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/7/2006 5:19 AM (GMT -7)   
sorry, riffl, we didn't have this experience. are you blocked because the uretha hasn't healed or what?
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


riffl
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/7/2006 8:26 AM (GMT -7)   
Thanks for the reply M. Kat. Your numbers were very simular to mine. I'm 57, Diagnosed July 21, PSA 6.5 , 10 out of 12 positive ares in biopsy, Gleason 3+4=7 (downgraded to a 6 after surgery) path report -- all clear-- cancer gone. I have not had a post usrgery PSA yet.

Congrats on being dry. Sounds like your recovery went well. I have been miserable beyond belief. Here I am 9 weeks out of surgery and I am worse now than ever. True no cancer but incredible upper leg pain since the surgery. I think the femoral nerve was hit during surgery. Then there is the blockage problem. I have to urinate like crazy and nothing happens. Feels like I am going to explode. I have already cathed myself twice since 6 a.m. Now I will go the other way and have no control for an hour and then go backed to being blocked. Don't know why I get blocked. It may be swelling or possible the uretha hasn;\'t healed or there may be nerve damage to the bladder. I also have been taking a lot of medicine for the leg pain and trying to reduce the bladder spasms. Being told to give it more time. This is getting real old.

I'm glad to hear how great people are doing, however it worries me that I'm not keeping up.

Thanks for your reply.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/7/2006 11:39 AM (GMT -7)   

Hi riffl,

Has your surgeon looked at possibly scar tissue around the urethra connection being the problem?  Our urologist told Buddy if he had any signs of having to pee and not being able to that he was to call immediately. A small incision to release the scaring could and would be done in the office if this happened.  It did not happen but we were made aware of it... and we monitored it closely.

You definitely need some guidance..... and with the bladder spasms.... did your doctor prescribe any medication to help with this other???  

Hopefully once the issues above get squared away the leg pain can be dealt with.... and hopefully the pain will go away.  But they need to be dealt with and 9 weeks is a bit much in my opinion!!

You and your body have been through a lot and you shouldn't have to contend with any more than you have too. 

Please........... Keep in touch okay because we need to know you are okay!!!

In New Friendship, Lee & Buddy 


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


Rick54
Regular Member


Date Joined Jul 2006
Total Posts : 40
   Posted 11/7/2006 1:38 PM (GMT -7)   
Although my experience wasn't exactly the same, it may help.  about 4 weeks out from surgery (foley out since day 6), my urine flow started to be restricted.  Over the next week until I saw the surgeon, it got less and less.  The restriction seems to me near the exit end of the urethra and it caused a whole lot of back pressure in the penis (and lots of pain).  I finally saw the doctor on a Thursday and he put me in surgery the next day.
 
It was a very simple and short procedure, to cut the stricture in the end of the urethra.  I was only put out for about 30-45 minutes.  I had a foley in for one day, but the surgeon told us how to remove it ourselves the next day.
 
Doesn't sound exactly like what you are experiencing, but I thought I would pass it on.

riffl
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/8/2006 6:55 AM (GMT -7)   
Thanks Rick-- Thanks Lee and Buddy.

It helps me a lot to know that I am not the only one in the world that this has happened to or can happen to. I keep trying to pin my surgeon down to see if he has ever had this result but all I get is that this not unheard of. My surgeon thought it was a stricture but is not sure because I am able to get the cath in without any real effort. But in a few hours I am blocked again. He wants to wait a little longer before he does surgery again. He thinks it may be swelling. They put me on vesicare for spasms last week but it does not seem to help much. We had tried the detrol LA without any success. Tried Lyrica for the nerve pain in my legs. Not sure if it helped as I didn't like the way it made me feel.

Thanks for your reply -- it really made me feel better or at least not as concerned.
Good luck to all of you.

Lou

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/8/2006 7:07 AM (GMT -7)   
Hi Riffl
Welcome to our group! Boy you are having a time for sure! You know, you mention feeling like you are behind the rest in your recovery and symptoms . . .however, keep in mind for every one of us who post there are probably several "readers only" who haven't posted yet. All of our journeys and experiences are helping way more than we realize.

I think you need to get on "some" doctor's case about your problem . . if the original surgeon is saying wait and see, go see your family doctor. Certainly does sound like something is going on and the pain cannot be fun either. The pain in the leg needs investigation for sure . . .perhaps an ultrasound to totally rule out a blood clot??

Nine weeks has to be getting "real old" as you say . . . ..please "BUG" some doctor into giving you some answers/results.

Please keep us posted . . .we care about you !

;o) Linda
Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14, 2006.
 
Also taking Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis)


lab
New Member


Date Joined Sep 2006
Total Posts : 5
   Posted 11/10/2006 1:52 PM (GMT -7)   

riffl: may have nothing to do with your problem but go to what is currently page 7 of the posts and read the post: welcome lab

 


riffl
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/11/2006 2:03 PM (GMT -7)   
thanks lab. Not exactly my problem but it good to get new ideas as the docs do not seem to be on top of this. Yesterday was 10 weeks post surgery. Still have the thigh pain and now having to cath myself every 4 hours -- so any ideas are appreciated.
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