Biker90's Page.... Welcome New Friend :)

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bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 11/7/2006 9:05 PM (GMT -7)   

Quote from Biker90 from Age and Treatment Thread:

Hi everyone.  I was diagonosed last Friday with PSA 7 and 3+3 and another 3+3 on the other side.  We (my wife and I) are in the process of deciding what procedure to  have done.  We meet with the oncology team in 2 weeks.  I'm 72 so am glad to see some posts from other old f____s.

We are doing a lot of reading and surgery or radiation seeds seem to win out so far.

 

Hi Biker90 and Biker90 Wife,

 

Welcome new friend….  I’m kinda glad to see some old “fellas” joining us on this forum.

Oops I think maybe I didn’t fill in the blanks exactly as you might have meant it to be filled in.  tongue   

 

We are so glad to have you share your journey with us all !!!! With the technology we have it’s so powerful and so informative.

 

I hope you don’t mind I’m posting you on your own page so we can welcome you and follow with you on your journey.  Remember….. this journey is traveled best with friends….

 

It is a wonderful forum where true feelings can be shared and understood.  And we speak openly as you will see from previous postings.

 

My boss had the seed implants at the age of 71 and he’s doing great!!!  Just thought I’d pass this along.

 

Please let us know how your research goes and your discussions with your oncology team in 2 weeks.  Keep us posted … okay.

 

P.S.  What kinda bike do you ride???  I rode on a Honda Gold Wing ¾ of the way across Canada back in 1982…. What a ride!!!!!!!!

 

In New Friendship,

Lee & Buddy

 

"GOD Bless You"

 

It's a little prayer "GOD Bless You"...

but it means so much each day,

It means may angels guard you

and guide you on your way. 

                                 ~author unknown~


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 1/1/2008 7:35:00 PM (GMT-7)


biker90
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Date Joined Nov 2006
Total Posts : 1463
   Posted 11/9/2006 3:44 PM (GMT -7)   
Thanks so much for the kind welcome, Lee and Buddy.
 
We are still reading and talking about it all.  I wake up in the morning convinced that surgery is the way to go and by bedtime am back to radiation and vice versa.  It seems that time doesn't help the decision making process but time does dull the sharp edges of the news that I have cancer.  We CAN live with it............
 
The bike trip sounds great.  We never rode much in Canada but did ride across the US three times in the last 20 years.  Twice on Gold Wings and once on a Harley.  She doesn't ride any more (bad hips), but I still putt around on a Sportster.
 
Thanks again............

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/9/2006 7:12 PM (GMT -7)   
hello biker90. we are here for you - there is no dumb question or whining. wow, 3 times across the US! that's wonderful.
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/9/2006 7:41 PM (GMT -7)   
Hey biker90. sorry that you have to be here, but it's a great place. I used to ride Ducati's and Moto Guzzi's till my spinal disc problems stopped it, but that's ok. Hang in here, it's a good place to be.

Regards,

Bill

Letty
Regular Member


Date Joined Sep 2006
Total Posts : 80
   Posted 11/10/2006 7:54 AM (GMT -7)   

Welcome biker90,

You sound like a young feller still puttin around on a sportster at 72!  That's great and very inspiring!  It sounds like we have a few bikers in our forum family!  My husband has a 1948 panhead that is his pride and joy and that he has rode all over the country.  I just take short rides with him as I'm not all that fond of a hard tail!

We were told that if your older and not expected to live much longer because of other health issues, then radiation or harmone therapy may be better and not as hard on you as a surgery might be. 

However, If you have longevity in your genes biker90, surgery may be something to consider.  We have a neighbor about your age, 75 actually, whose family members almost always live into their ninety's.  For that reason, he and his wife chose surgery and he did very well with it and they are extremely happy with their choice. 

Write down your questions as they come for your doctor and learn all you can in the meantime.  You will make the right decision for you.  We will all be here with and for you and yours whenever you need us.

Best of luck to you,

 


Letty,
 
Husband diagnosed May 2006 at age 50.  RRP performed 13 July 06.
PSA 5.7,  Gleason 3+4=7, Staged T2C, Cancer confined to prostate.
His father diagnosed at age 62 and is currently a 13 year survivor!


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/10/2006 3:59 PM (GMT -7)   
Thanks Letty and all you others.

Yeah, hard tails are hard on the tail but look and sound cool.........

We broke the news to all of our kids (4) and I think it was harder on them than on us. I am going to point them to this web site because of all the hope displayed here. One daughter said "Oh dad, what can I do?"
I told her that from now on I would expect more expensive presents more often. ( There has to be an up-side somewhere in this situation )

We are still coming up with questions to ask the oncology team a week from Wednesday (11/22) My wife favors surgery so far and I still am on the fence. (No, not a picket fence..........)

I am doing really well, thanks to you guys and gals and all the info that is available.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/10/2006 4:19 PM (GMT -7)   
Biker90,

Welcome to a wonderful site. I am 56 and just had a Da Vinci done last week. I have done very well since the surgery. I get the catheter out on Monday and find out my pathology. I have not had to deal with the incontinence and impotence issues yet so that is tstill in front of me. My biopsy had 1 of 10 core samples with 40% and stage T1c with a 3+3. I have thoguht about what I would have done if I was your age. I definitely would have checked into the radiation approaches. If you have not already found it there is a site at www.yananow.net that is fairly good. It has all kinds of information on it and links to other sites. What I found to be of the most help was the stories provided by many men that have traveled this path. These are listed under "Mentor Experiences" and are categorized by type of treatment. Just to warn you there are some tragic stories but mostly from men whose cancer was much more advanced then what you apparently have.

Good Luck!

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 11/10/2006 6:02 PM (GMT -7)   

Hi Biker90 and Mama Biker90 & Family Members  :-)  

 

We took a trip in August and were close to where the Sturgis Bike Rally was just ending…. And  man oh man talk about some fine bikes!!!  We saw a lot of bikes around Deadwood and Mt. Rushmore and on the road heading home from Sturgis!!!! 

 

Buddy and I went with the open Radical Retropubic Prostatectomy in April.  I would like to share a few of our personal Threads… listed below…

 

Biker90 it’s really important that you start now with the kegel exercises.  This is so important for urinary continence.  And ~ if you have any stairs around… start climbing them daily.  Be in the best shape you can be no matter what treatment you decide on.

 

I’m going to be very interested in knowing what the first “expensive gift will be”..   tongue  

I do have some suggestions…  Nice comfortable lounge chair, Neck pillow, and a  Donut pillow with an extra soft cushion to place on top of it!!  :)

 

The most important thing to remember in all of this….. The decision you make is the right decision for you!!

 

Keeping you close in our thoughts and prayers.

In Friendship ~ Lee & her Buddy

 

 

Our Personal Threads: If you pull 1 thing from our journey that helps you on your journey…… it will truly make our hearts happy!!! 

Our Journey ~ Sharing is Caring, A Special Note for Loved Ones (Wives, Partners, & Caregivers), Give Yourself a Second Opinion, and Murphy ~ Our Special Helper.

To quickest way to find them  is to change the way you look for Threads…  I have mine set at Last Comment.  If you go in and change it to Started By and look for Bluebird (pages 4 & 5 as of Nov-10 ‘06)…. You will find them a lot easier!


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/12/2006 1:00 PM (GMT -7)   
Hi Guys and Gals,

We have 10 days to go till we meet the oncology team and hopefully find out which treatment to do. I have prioritized my fears into: 1)death from the spread of the cancer, 2) incontenence and 3) impotence. I suppose these are the same priorities that most men have.

I would like the opinions of you who have been in the fox holes before we meet with the pros. I have had several (6) prior abdominal surgeries in the last 50 or so years and am "full of adhesions" according to the last doctor that saw my insides in person. I have some emphysema but it does not bother me unless I really over do things. I'm 72 years old.

Please send your thoughts if that is okay to do here..........

Thanks so much

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/13/2006 9:39 AM (GMT -7)   

Partial Quote from Biker90 posting above:

I have prioritized my fears into: 1)death from the spread of the cancer, 2) incontenence and 3) impotence. I suppose these are the same priorities that most men have.

 

Hi Biker90,

 

Interesting….. in my last posting I typed in top priority…..#1 Cancer Free (*stopping the spread of  and/or eradicating this cancer), #2 Urinary Continence, & # 3 Sexual Potency.  For some reason I deleted this line…..   

I wish I had left it because you can see the twist in wording showing POSITIVE and NEGATIVE.

 

You’d be surprised how # 3 kinda “tries…to wiggle”…. its way into #1 many times during this journey.  But the underling truth for all of us is …..#1 ….

 

Fear is just one of the many stones you face in your journey…… it has to be processed and then it has to be left behind…………… Fear will eat you up and take away all the energy that you need to fight this cancer!!!!   So – leave it on the last stone and take a deep breath and move forward.  No looking back.....  Now it’s gone!!!  And you can move forward in a positive direction in finding the treatment that is best for you.  And guess what!!!!  You have new friends who want to travel this path with you.  And this journey truly is traveled best with friends.


Age is definitely a factor…. And health issues such as emphysema is a huge thing to consider and your scar tissue.  Will they have a difficult time ~ meaning more time on the operating table.???    It is a fact that as we age things begin to weaken.  You will need strength to recover both from major surgery and muscle strength to work the sphincter muscle which is responsible for urinary control.  As we age these muscles do weaken and this is something you really need to be prepared for in making your decision at the age of 72.  After your meeting in 10 days you will have a better idea where you stand on health/recover/healing.  And I’m sure your decision will come easier.

 

You asked for personal thoughts and this is what Buddy and I both have talked about before surgery, after surgery, and as we follow the path of our friends here on the forum.  At 72 we feel we would select radiation seeds.  But can one really know exactly what they would choose!!!  Life is very precious.  And when it’s time to make that decision….. Quality of Life is what we want.

 

Surgery –vs- Radiation was not an issue because of our age and PSA results, which we were thankful for.  We definitely wanted our urologist to have hands on…. So we went with the open surgery.    But - we did have discussions about this because my boss had radiation seeds at 71 and this was definitely the best decision for him due to other health issues….  In our discussions we talked about the age we felt would warrant radiation over surgery.  Many variables come into play and this is where you are!  Age and health.  

 

Good Quality of Life –vs- Quanitity of Life……………..  even today…. Good Quality ~ is and will always be ~ our top priority.  We know not what the future holds….. but you can put money down on Buddy & Lee living each day to the fullest and enjoying each and every moment.  One-Day-At-A-Time………. Giving thanks to each new sunrise and each new sunset that we are so Thankful for the Gift we share ~ Today…… Together!

 

Keeping you close in thoughts and prayers as your next stepping-stone faces you.  Remember ~ we are there with you and feel your fears… but we are also there to help you place your fears behind you as you read our journal entries/postings…..  you will realize you can let it go!

 

In Friendship,

Lee & Buddy

 

No one can be 100% assured of being here tomorrow.

Live one-day-at-a-time and enjoy each and every moment!!!

So give yourself a “Present”… J

 

     What a GIFT!!!!  One Day At A Time……

     Yesterday was history.  

     Tomorrow is a mystery. 

     Today is a gift. 

     That’s why it’s called the Present.

 


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/13/2006 12:54 PM (GMT -7)   

Thanks so much Lee and Buddy for you thoughtful reply.  It is so helpful to see the thought process that others go through in making a treatment decision.

Thanks again.........


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 11/13/2006 1:13 PM (GMT -7)   

Hi Biker90 & Family,

 

You are so very welcome!!!… Speaking from my heart.............  This is a wonderful forum where true feelings can be shared and understood. We can all share our experiences (good, bad, & ugly) with others and they have the right to choose what helps them in their journey.  Why re-invent the wheel.

 

All different kinds of lifestyles…  different PSA scores, different surgeries, different incomes, different jobs, different health issues, all different ages, and

most of all… MENTAL ATTITUDES ARE DIFFERENT.

 

Ultimately the decision will be yours and know

It will be the right decision!!

 

I personally want to say thank you for sharing your journey with us.  It will help all of us as we age to know what future stepping-stones are ahead.  And your sharing will give us knowledge also.  Thank you!

 

In Friendship,

Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/21/2006 12:47 PM (GMT -7)   
Hi Biker90,

Just wanted to let you know we're thinking of you!!! How did the appointment go??

Touch base as time permits... OKAY :)

Lee & Buddy

mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


Dougroc
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 11/21/2006 4:59 PM (GMT -7)   
Ride safe and ride on. I had the open sugery this June. Rode my Sportster 5 weeks later and took a 700 mile 3 day trip 5 weeks after that. There is life after prostate surgery and it can be good!

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/22/2006 4:28 PM (GMT -7)   

Hi Bluebird and the rest of you nice, helpful people.

I have RRP schedulled for 12/7/2006.  Phew......... the waiting is finally over and surgery is not a problem (I thought prior surgeries may have precluded RRP but this is not the case.)  I guess that waiting was necessary to make sure we made the right decision but it did get tedious.........

Thanks everyone for all the support.


Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP scheduled for 12/7/2006


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/22/2006 4:33 PM (GMT -7)   

Hey Dougroc,

Thanks for the encouragement.  Riding after 5 weeks sounds great but we will still have snow for a few months.

Anyway, go ride that thing and wave at every Sportster you meet cause one of them could be me.


Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP scheduled for 12/7/2006


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/24/2006 5:33 AM (GMT -7)   
hey biker90, the next two weeks will fly by. keep working out, having sex and enjoying your life. soon you'll be waking up from surgery, walking and trying to fart :). take care, kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/30/2006 9:46 PM (GMT -7)   
One week to go till surgery. I've been sneaking a peek at the various pads etc. in the drug store. What a selection. I don't know which kind to get. My wife says she will take of it when the time comes. (She had lots of experience with the kids 40 years ago.) I never thought I would regret not doing some of that stuff myself.

We chose RRP because it seemed to be the best way to get the most information on my condition in the fastest possible way. Waiting for seeds to take hold and watching the PSA drop over time did not seem like a very good prospect. We chose the open procedure because we want the doc to have the best possible opportunity to see what is going on and get lymph glands out.

I've had numerous abdominal surgeries in the past so know what to expect and don't look forward to the discomfort but that seemed like a small price to pay for more information faster.

The doc mentioned a "wait and watch" study but we rejected that for the same reasons as seeds.

If we are overlooking something please respond. There is no such thing as too much information.

Thanks everyone...................
Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP scheduled for 12/7/2006


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/1/2006 8:07 AM (GMT -7)   
Biker - you are thinking positively and strongly and will be so much better off for this. Know that we are all pulling for you and I for one have your date marked in my little book (to remember who goes when) and on my prayer list.

about the pads . . .boy there are a lot. Bob chose to use the Depends Guards for Men (52 pkg) along with a pull up Depends undergarment for added security (especially at night).

He continued to wear the undergarment along with the pad until just this week only for security and because they were so comfortable. Now he just uses the Depends Guard pads and is down to only one per day for drips only.

Good luck and we'll be with you on your journey. Please keep us posted.

;o) Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/1/2006 3:36 PM (GMT -7)   

Thanks Linda,

The hints on pads is very helpful.  Your thoughts and prayers are really appreciated. 


Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP scheduled for 12/7/2006


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted Today 11:12 PM (GMT -7)   

Quote from  Other posting for Biker90:  BIKER - GOOD LUCK - DECEMBER 7th started by lawink ;)

Quote from Biker90….

Hello to all you great people and thanks so much for your thoughts and prayers.  They were what brought us through the surgery in such fine shape.

Checked in to hospital at noon on Thursday 12/7.  In OR from 1pm till 3pm then in recovery till 4:30 pm.

Lymph glands were clean and Dr. saved both nerves.  Yippee!!!!!

Came home at 9am on Saturday 12/9.  Get staples and catheter removed next Wednesday 12/13.  Path report on prostate due then.

Thanks again.................

 

Biker90 ~ Yeah!!!  You’re home … :-)

 

I was thrilled to get caught up and when I found your posting I sent out a huge Yippeeee!!!!

You sound great!!! And things seemed to go smoothly for you.

Now ~ take time to heal/recover…..  and don’t lift anything heavy for quite awhile… okay!

Hope Hang has been good to you!  The 13th is just around the corner and we will be hearing from you again.

Take care and we continue to keep you in our thoughts and prayers.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/11/2006 11:28 AM (GMT -7)   
Thanks so much Lee and Buddy.  Your support keeps me on top.

Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP performed on 12/7/2006
Lymph glands clean.
Home on 12/13/2006


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/11/2006 12:02 PM (GMT -7)   
Biker,
Sorry I haven't posted yet! CONGRADS on your surgury, I know the waiting was the worst of all. We are all glad you made it though w/ flying colors! You'll be back on 2 wheels before you know it. I still have my 1978 Ducati Desmo I bought brand new! I take it out for a cruise ones in a while but I sure don't ride it like I did back when it was new. Alot of WFO riding if you get my drift? South Florida is flat and straight and no fun on that bike, too crowded with alot of blue heads in big cars. (No offence to anyone who drives big cars) But we have alot of 90 - 100 year olds still driving around here, NO FUN on a bike when they pull out in front of you. Sorry to get off track! Any way you hang in there and keep the shiny side up!!
Your friend,
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/11/2006 3:49 PM (GMT -7)   
Hey Pete,

Yeah, the waiting is over. Phew.... I feel great and get the staples and catheter out this Wednesday. The Sportster is put up for the winter and will come out in April when the snow goes away. My son-in-law used to ride with me but he moved to Florida and doesn't ride anymore because of the traffic and old folks. The Ducati sounds fun. Never had one but see a lot on the road.

Take care,
Jim
Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP performed on 12/7/2006
Lymph glands clean
Both nerves intact


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/11/2006 4:32 PM (GMT -7)   
Biker90,

Glad to be hearing that you are doing well. When the catheter comes out you will be smiling and ready to get on with life. On pads I used the male undergards pads for the first week. These fit inside brief underwear and have a lot of absorbancy. Depending on the degree of leakage you may be able to move to the poise type of pad in a week or two. I am at six weeks post op and now I use the Dri-Active type of poise pad which is a very light pad.

Glad to have you on the other side!

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear

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