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Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/13/2006 2:26 PM (GMT -7)   
PCa Friends,
 
tongue Defoleyed!!!  Mr. Foley was removed today and what smile it brought to my face.  That was just one of the good things that happened today.  The best was the post op path report.  The cancer was confined to the prostate with all margins, lymph nodes and vessels clear.  Thank God!!  The cancer was found as a single tumor located across both halves of the prostate but representing only 5 % of the gland.  I am leaking some but I am not gushing so this pleases me.  I have already seen some improvement in the leaking in just a few hours.  I have started back on kegels.  I no longer have the perineum tenderness but I am having occasional aching and throbbing in the area where the prostate was located.  The nurse practitioner said that this was to be expected and in a couple of weeks it should get a lot better.  I am taking Naproxen Sodium(generic Aleve) for the inflammation and it is helping.  Incisions are all healed and I have no abdomen soreness at all.  I feel liberated in many ways.  Next step is to get to work on the erection.  Viagra therapy will start a week from Wednesday.
 
Once again, thanks for all of the support!!
 
Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


dawgfan
Regular Member


Date Joined Aug 2006
Total Posts : 148
   Posted 11/13/2006 2:29 PM (GMT -7)   
Outstanding news. Congratulations!

Diagnosed 8/24/06
Gleason 6
PSA 3.32
stage T1C
age 48
daVinci on 10/20/06
 
"Never miss a good chance to listen."
 


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/13/2006 4:08 PM (GMT -7)   
That is awesome!
becky
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007


italbeok
New Member


Date Joined Nov 2006
Total Posts : 6
   Posted 11/13/2006 5:24 PM (GMT -7)   

Thats GREAT  yeah

         italbeok


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/13/2006 5:47 PM (GMT -7)   

That is just great news!

Regards,

Bill


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/13/2006 6:43 PM (GMT -7)   
Wonderful news Tamu! Keep us posted!
;o) Linda & Bob
Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14, 2006.
 
Also taking Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis)


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 230
   Posted 11/13/2006 8:55 PM (GMT -7)   
So glad to hear the good news!!!!!!!!! yeah

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/13/2006 9:16 PM (GMT -7)   
Ditto...good news indeed!

Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/13/2006 9:28 PM (GMT -7)   
So glad to hear you're doing so well Tamu!!!

Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/14/2006 5:30 AM (GMT -7)   
YEAH Tamu! another stepping stone achieved....
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 11/14/2006 9:18 AM (GMT -7)   

Tamu

Isn't it great to get rid of the "umbilical cord". Glad to hear you are doing good. I had the foley out last thursday and was doing somewhat good with the continence until Sunday. I gushed all day, went thru about 8 pads and started to get really depressed. Went Monday to get my hair cut and while sitting there I could feel my bladder fililing and miracles of miracles I started to feel pressure pain. I was actually holding it in. Went to bed with my diaper last night, got up once to pee, slept the rest of the night and woke up perfectly dry. Amen

Best of luck

Daveed


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/14/2006 10:23 AM (GMT -7)   
That's great Daveed yeah   Things will improve every day!!  Curtis is 6 week post surgery today and only using one pad a day and sometimes doesn't even need that, but isn't ready to stop wearing one all together.
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/14/2006 12:16 PM (GMT -7)   

Wonderful news Tamu!!  VIEW IMAGE

 

Continue to take care of yourself….. Remember ~  you are still healing and we want a positive move forward in all areas.  Fewer and fewer stepping-stones to the shoreline....

 

Take care and all the best in your recovery/healing process.   And thank you for continuing to keep us up-to-date with your journey.

 

In Friendship ~ Lee & her Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/14/2006 12:27 PM (GMT -7)   
I think that I was feeling a little too confident yesterday. After getting home from having Foley removed I was leaking some but seemed to be getting a little more control. Then took my dog for a long walk yesterday afternoon and it felt like that every ten steps I was gushing some. When I got home I thought I would find the pad soak but it was not as bad as I thought. Then I took a shower and went to bed last night and as I was laying there reading my book it just started gushing and I got soaked. I was very disappointed and frustrated. I got up cleaned up and put on a new pad and laid down but just could not get to sleep. It did not gush anymore and I did go to sleep and woke up in a few hours with that wonderful feeling that I needed to go. The pad was dry and it was the first time I felt normal urinating. Went back to bed and slept till this morning and got up with a dry pad and immediately urinated as normal. So far today I am still leaking especially when I took the dog for a walk but have started doing like Daveed and hitting the throne about every half hour to an hour and it seems that I may be getting a little more control. Gone through a couple of pads but they were not soaked. Hopefully things will get better over the next few days.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/14/2006 4:38 PM (GMT -7)   
Hi Tamu!

Hang in there -- your story sounds like Bob's. We are now at 7 weeks post surgery and there's still some leaking but control gets better all the time.

You'll see our good results from today's doctor appointment in my earlier posting. He was not at all concerned by the leaking as long as we see progress and said by one year we should be completely dry if not before.

Keep us posted.

;o) Linda
Husband (Bob) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results due Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA = UNDETECTABLE.
 
A minute spot of an agressive cancer was also found which has been eliminated as well -- we are so lucky we didn't wait.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/15/2006 6:29 AM (GMT -7)   
yes, tamu, it will get better. Jeff would be dry for a few days, then leak for a day or so. he stopped wearing pads a month ago, but still has minor leakage here and there. it's hard to predict. keep kegeling and walking... remember it's only been 2 weeks since your surgery. patience...patience...
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/15/2006 7:42 AM (GMT -7)   
Okay, yesterday was a lot better with the leaking. I have started being able to hold more in my bladder and going longer between trips to the bathroom. Got up only one time last night. I feel like I will get back to being dry and maybe it will not take months to get there. I got a question for all of you. My prostate was large at 90 grams. I did not ask my surgeon which was a mistake so I thought I would ask everyone here. Does the nerve sparing become less successful with a large prostate? I am starting to wonder about that. I guess it seems to me that if more of the nerves has to be peeled away because of the size of the prostate that the trauma to the nerves is more severe. While I have had feelings of starting to get an erection there has been no lengthening at all. I am hoping that when I start on Viagra next week things will be different.

I would also like to ask for your prayers. Yesterday I found out that my mother has been diagnosed with mestastic cancer. She is 92 years old so she has had along life and has lived by herself is her home since my father died 23 years ago. She lives in another state about 12 hours away so I can not go to her right now. She survived breast cancer that she had 45 years ago. It is tough recovering from prostate surgery and then to be hit with this news.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 11/15/2006 8:00 AM (GMT -7)   

Tamu

Sorry to hear about your Mother. You can be sure I will add her to my prayer list.

Daveed


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/15/2006 8:42 AM (GMT -7)   
Oh boy Tamu - that's rough! Will keep all of you in thoughts and prayers!
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/15/2006 12:11 PM (GMT -7)   
Our thoughts and prayers with you and your family. Mom is mom. There is only one to a customer God Love Her.

As for ?.....nerve sparing isn't any different on a 90 gm prostate Tamu. It's all about skill and the body it's practiced on. No one really knows who is going to be perfect and who isn't. Worry more aobut that later.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/15/2006 2:26 PM (GMT -7)   
A quick question for those who have traveled the road. I am using the male undergards pads which are fairly thick and certainly very absorbant. My leaking has slowed down enough where one of these pads is lasting me just about all day and one certainly lasts all night. I am thinking about trying a lighter pad but I have forgotten what others have recommended. Please let me know what you went to once you got out of the larger pads.

Thanks,

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


SJC
Regular Member


Date Joined Jul 2006
Total Posts : 113
   Posted 11/15/2006 5:36 PM (GMT -7)   

Sounds to me you're progressing well.  If you bought one of those bags of 52 pads, why buy any more?  You'll probably not need any pads before long.  I just used what I initially bought, like you one pad a day, for about four weeks.  I threw half the bag away b/c I didn't need the rest of them.  When you get to a few dribbles a day, that's when you experiment pad free one weekend.  I bet you never wear one again after the experiment.  I didn't.

Remember, the sooner you get rid of the pads, the sooner you regain continence.

By the way, I'm traveling to your home State Saturday for the Iron Bowl.


Post Edited (SJC) : 11/15/2006 9:12:00 PM (GMT-7)


SJC
Regular Member


Date Joined Jul 2006
Total Posts : 113
   Posted 11/15/2006 9:10 PM (GMT -7)   

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/16/2006 7:40 AM (GMT -7)   
SJC,

Boy, I hope you are right. Yesterday was not a good day with the leaking. Our church has a Wednesday event where voilunteers prepare a light meal and then there is Bible study afterwards. It was my time to work the kitchen. While doing the preparing in the afternoon I could feel myself leaking almost continually. Then I was serving last night and the same thing happened. I was so frustrated that I did not stay for the Bible study and just went home. When I am sitting or lying down it is not too bad but when I stand and walk it is just a constant dribble. I am not a patient person so this is tough for me. I am kegeling to the degree that I am getting perineum tenderness again which had gone away.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/16/2006 8:35 AM (GMT -7)   
Tamu, It sounds to me like every time you start pushing youself a little too much, you start leaking more. It was that way for me. I was impatient too and tryed doing too much too soon also. Take it easy! Your body has been through a lot. It WILL get better, but you can't rush it. Sounds to me like your doing great so far! Have faith and hang in there. If you have any questions I can help you with, please ask. My surgury was over 3 years ago.

Sincerly,
Pete
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