Newly Diagnosed with Prostate Cancer

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CHIMPA
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 11/13/2006 8:14 PM (GMT -7)   
Looking for some feed back from anyone 60-65 years with a PSA of 4.5 or higher and a Gleason of 6.  Am weighing options for removal of microscopic cancer found on the right side of the prostate.
 
Thank you

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 11/13/2006 8:41 PM (GMT -7)   
Welcome to the forum, CHIMPA.  I'm nearly 60, had a microscopic PC confined to one area of the prostate, with a low PSA, non-palpable tumor. I had a biopsy based on the PSA velocity which quadrupled in one year. 
 
Based on what you've written, I'd say you definitely are a good candidate, at your age, for treatment of the cancer rather than watchful waiting.
Hope to hear more from you.
 
Tim

Age 58  Open Nerve-sparing prostatectomy 6/21/06  Cancer confined to prostate  3-month PSA non-detectable


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 11/14/2006 4:26 AM (GMT -7)   
To start with, I'd suggest reading of Johns Hopkins newsletters, especially their Winter 2003 edition about "insignificant Cancer"
One would need your full profile to make any logical observation.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/14/2006 7:55 AM (GMT -7)   
Chimpa,

I will be 57 next week and my PSA was 4.3 when I was diagnosed with PC with a Gleason of 3+3. My biopsy indicated 1 of 10 core samples with 40% adenocarcinoma. I had a Da Vinci two weeks ago. The post op pathology showed that the the cancer was on both sides but totally confined to the interior of my prostate. While your biopsy indicates a microscopic level it is almost always the case that when a prostate is removed that there is more PC found then indicated by the biopsy. The first thing you should do is be sure that the slide is read by another pathologist. Im my case I went for a second opinion to a university based medical center and their pathologist read my slide as being "atypical". The slide was then sent to Dr. Jon Epstein at John Hopkins who is a well known expert and he confirmed it as being adenocarcinoma. You certainly have plenty of time to research your options. You will not find that task easy. Each provider of a treatment is obviously biased toward that method. Many of us have traveled the road you are going down. There are some key learnings that you will find. One is that almost always a radiation type of treatment precludes any subsequent surgery. If surgery is your choice that finding an experienced surgeon that has done hundreds of the procedures and can give you good numbers for his/her complication rates will make a difference on your outcome. There are many knowledgable people on this forum. Ask away and they will come to your service with answers. Good luck as you travel the the road none of us ever wanted to take.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


Vanyel
New Member


Date Joined Nov 2006
Total Posts : 7
   Posted 11/14/2006 8:05 AM (GMT -7)   

Hi Chimpa,

My best wishes for you.  You have already received some great advice from others in the chat room.  The best is to take time to explore the options.  My PSA was 9 and a Gleason of 7, so a bit more advanced than you.  My mistake was to go with the intial recommendations instead of getting more information and talking to doctors at more advanced facilities. There are a lot of options out there: surgery (various techniques), freezing, seed implants, external beam radiation and hormone therapy.  There are also things you can do with your diet and supplements.  On the advice of others in this group, I am now drinking pomegranate juice every day and exploring other less traditional ways to fight it.  Something of utmost importance is attitude, and you will find a lot of support here. 

Best regards


JayMan56
Regular Member


Date Joined Oct 2006
Total Posts : 61
   Posted 11/14/2006 3:44 PM (GMT -7)   
Hi Chimpa,
 
Welcome to the board...... you will get great information here. Consult with your doctor as to any decisions you make, but from what I can see you're in a position to take your time over the next 30-60 days to make a decision. If you discover anything with certainty it is that each of us is different and our therapy decisions are totally personal based on many factors. I have elected to have a robotic laporascopic prostatectomy based on my age.
 
Good luck and keep checking in.
 
Jay
  • 56 year old male, divorced
  • Diagnosed: 10/12/06
  • Two of twelve samples contained malignent cells, Gleasons: 3+3=6, 3+4=7
  • Last PSA as of 11/5/06: 2.3
  • Scheduled a DaVinci Robotic procedure for Feb 6th
  • In control, but partially terrified about the future
  • Click (or paste) this link to watch the DaVinci Procedure: http://www.or-live.com/ShawneeMission/1664/event/webcast.cfm?


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/14/2006 5:31 PM (GMT -7)   

Hi Chimpa,

 

Sending a warm welcome!   

 

This forum is a wonderful place where true feelings can be shared and understood.

 

In Friendship ~ Lee & Buddy

 

Sharing ~ Our Personal Threads with New Members... 

If you or your loved ones ~  pull “1” thing from our journey that helps you on your journey…… it will truly make our hearts happy!!! 

Our Journey ~ Sharing is Caring, A Special Note for Loved Ones (Wives, Partners, & Caregivers), Give Yourself a Second Opinion, and Murphy ~ Our Special Helper.

To quickest way to find them  is to change the way you look for Threads…  I have mine set at Last Comment.  If you go in and change it to Started By and look for Bluebird (pages 4 & 5 as of Nov-10 ‘06)…. You will find them a lot easier!


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


CHIMPA
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 11/14/2006 7:25 PM (GMT -7)   
Thanks to everyone who responded.
Appreciate the comments, suggestions and support.
 
Chimpa

Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 11/16/2006 11:36 PM (GMT -7)   
hey Chimpa,
 
Sorry for your diagnosis.   Sounds like my signifigant other and you are in almost exact same position.
 
My hun just got diagnosed end of October (just turned 63).  5% cancerous in right apex in one out of ten needle samples. 6 Gleason.  3.7 PSA. 
 
So far we have had a consult with the urologist.  Set up three more consults but the range of these is from early december to early january.  Not sure what to do here either with "microscopic" cancer.  But exploring all options.
 
Please keep us updated on your course of action.  I would be interested to know your course in a similar situation.
 
Best wishes and thoughts!
 
Tanya
 
 
 
 
Signficant Other diagnosed: 10/30/06 (age 63)
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Treatment:  Undecided


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/17/2006 7:25 AM (GMT -7)   
Hi both Izzy and Chimpa!

My husband was diagnosed earlier this year while his PSA was 3.9 at age 60. Biopsy showed 2 of 12 samples were malignant and gleason was 3 + 3. After first considering radical surgery we sought a second opinion and chose laproscopic.

Pathology has shown all to be completely contained in the prostate itself which we were thrilled with. However, a second "microscopic" form of a very aggressive cancer was found separate from the original two and because it was found this early was completely contained.

So, my advice to you is to seek opinions and by no means let this be on a back burner in your life.

We are thanking God that we followed this through from first sign of trouble and that our original family doctor who said "you know, 3.9 isn't that high, but at age 60 I want the opinion of the urologist". We are so thankful for all of the things along the way that got us to our eventual surgery date of September 27 (including someone else's cancellation when we were anticipating Nov or Dec surgery due to long waits for this newer laproscopic form of surgery and only a handful of experts doing it)

Good luck in your journey's and please stay with us in the forum and keep us posted.

;o) Linda & Bob
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/17/2006 7:58 AM (GMT -7)   
Tanya and Chimpa,
 
I think we're all in about the same boat.  Curtis was diagnosed Sept 21 with a PSA of 4.10 and Gleason of 3+3=6 and 3+4=7 in two out of 13 cores.  He decided on the DeVinci surgery simply because he wanted it out of there and that with a pathology report afterward we would know for sure if it was all gone...and it was!!!  I agree with Linda...do your research, but don't put off doing something about this for to long.
 
It's almost 7 weeks since his surgery and he's doing fine...in fact yesterday actually started hanging plywood in his shop for the inner walls.
 
Good luck and we'll be thinking of you!!
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


CHIMPA
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 11/17/2006 7:57 PM (GMT -7)   

Thanks to all for the responses.

A lot of choices out there. Has anyone experienced the Bracytherapy (seed/pellets implanting)?  If so, would like to know about your experiences.

Again, I am 61 with a PSA of 4.8 and Gleason of 6 (3+3). Right core.  Left core negatative for malignacy.

Chimpa

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/17/2006 9:46 PM (GMT -7)   
Julies' hubby recently had seeds done. Oh where oh where has our Julie gone??? She's pretty informative Chimpa.

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/17/2006 9:54 PM (GMT -7)   

Hey Chimpa, I'm 62, Gleason 6, PSA 5.0 and I'm going to have it treated. 

Regards,

Bill


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 11/18/2006 1:51 PM (GMT -7)   
hey again chimpa and all who responded,
 
Chimpa, we are looking into the seed radiation too, have an appointment with an oncologist on December 26th, and then an appointment with the robotic guy on January 5th.
 
I would suggest setting up appointments with specialists in any area you are thinking of as soon as possible.  in our case, even calling the day after our urologist recommended names to set up consults, they were already booked way out.  but may be different in your area.  (and have to consider that the holidays are happening now, which probably makes it worse).
 
will keep you updated on what we find out as far as what we learn from our consults.
 
best wishes!
Signficant Other diagnosed: 10/30/06 (age 63)
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Treatment:  Undecided


kingsport
New Member


Date Joined Nov 2006
Total Posts : 8
   Posted 11/22/2006 6:28 AM (GMT -7)   
Chimpa - I was diagnosed about 2 1/2 wks. ago:  55 years old;  PSA 6.5 Gleason 6 w/ cancer on right-side only (~10%).  Pretty clear I want surgery, but struggling w/ going out of town for robotic laparoscopy vs. staying in town w/ an experienced surgeon who does open (prepubic) radical prostatectomy.  Concerned about stats showing slight increase in urinary risks w/ open surgery and longer recovery & more pain.  Anybody who's gone the open surgery route - or at least struggled w/ decding between the 2 forms of surgery - I'd be interested in their experience.  Thanks in advance. Tom

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/24/2006 5:47 AM (GMT -7)   
Tom, my husband opted for open surgery and is recovering very well. he didn't have pain from the incision, did not take pain medication once he got home, went home 36 hrs after surgery, and has control of his urine. we're working on the erections and know they will come eventually. you might want to start a new thread with your info so that others can respond easier than here.

Chimpa, it sounds like you have some good advice here. kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


kingsport
New Member


Date Joined Nov 2006
Total Posts : 8
   Posted 11/24/2006 9:10 AM (GMT -7)   
Thanks Kat for replying & for providing the information about your husband's i & i.  All very reassuring.  Your suggestion about starting a new thread sounds wise, too.  Thanks again.  
~ Tom

ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/18/2006 7:22 PM (GMT -7)   
Chimpa, i had a psa of 5.1, had biopsy done, gleason score of 6, had radical surgery and lymph node removal nov 30 of this year. Pathology report gleason 7, no tumors, no margins to set.
the incontinence issue so far is good, i have control over night, use about three pads a day. the more you excerise the better it will get. I am 64 years of age. Key is do not wait, what ever you choose, get it done. cancer is a killer, get rid of it fast.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/19/2006 6:04 AM (GMT -7)   
Chimpa, welcome aboard! As you can see, you came to the right place. I'm sure what ever route you choose will be the right one! Good luck and hang around.
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


kjg
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 12/19/2006 8:22 AM (GMT -7)   

i am sorry to hear of your cancer...  i am 55 and was given the news on oct 23 2006 i just underwent surgery on dec 12 2006 i am at home now recovering .. my psa for many years was 2.3 2.4 2.2 thne in feb of 2006 it was 2.6 then in august 4.9 !!! my gleason score was 6 and found to have 5% in right lobe of prostate was cancer... i am the first in my family to have any kind of cancer , i am feeling better every day i have about 20 small staples and of course my friend the catherter for 3 weeks or so... i am going to try to get it out by dec 28,, my staples come out this friday dec22. whatever you do listen to your heart and the decision you make will be the right one there is no wrong decision... i also get tired of hearing folks say, well if you have to have cancer prostate is the one to have  BUULcrap no cancer is good to have, you will have alot of people who have no idea of what they are talking about tell you all kinds of stupid stuff..i think they just dont know what to say to you.... so like i said do all your research and then make your decision i elected to have surgery because if it returns i then can have radiation , remember if you have radiation you cannot have surgery.. good luck in your journey....

kevin


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/19/2006 9:30 AM (GMT -7)   
Hi Chimpa,

I chose surgery because it is the fastest and most direct way to get the cancer out of me. I chose RRP because I wanted the doc to have an up-close and personal look at my insides so he could apply his skill directly to my problem.

Good luck.......

Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007
 
"I have cancer but cancer does NOT have me."


floridarobert
New Member


Date Joined Dec 2006
Total Posts : 11
   Posted 12/26/2006 1:42 PM (GMT -7)   

I am 61; last year my psa was 4.6 then 5.2--prostate cancer diagnosed; Gleason score: 6. Now one year later the biopsy: 12 samples were all benign. My psa is 1.3.  

 

What your doctor does not tell you.

 

In December 2005 I was diagnosed with prostate cancer. The urologist game me a pamphlet which spelled out the choices for treatment.   After reading the pamphlet I started to read via the Internet and found more treatment option than the pamphlet recommended.

 

In the U.S. the treatments are typically 1. watchful waiting; 2. radiation (several kinds) and 3. surgery to remove the prostate.  

 

  1. Watchful waiting capitalizes on the usual slow growing nature of prostate cancer.  If one is over age 70 or 75 one might die of something else before prostate cancer kills.  The operative word is “might” as the available information is statistcaly based. If  a high percentage of people with prostate cancer will experience slow growth of the cancer, that does not rule out the small percentage that might have cancer that is spreading to other parts of the body.  It is not easy to distinguish slow growing from fast growing cancer.  In addition men are living longer these days; waiting is risky.               

 

 

  1. Radiation either by beam or by wire of one source or another tend to kill the cancer but also carry some unwanted side effects: impotence and incontinence (fecal and/or urinary).

 

  1. Radical prostatectomy carries similar side effects as radiation.

 

After reading about the above options I was not happy with any.    I  kept reading and found hormonal treatment, freezing,  and ultrasound. Hormonal treatment and freezing (cryo surgery) which  both carry significant levels of unwanted side effects.  High intensity focused ultrasound(HIFU) appeared most promising.

 

HIFU

 

Hifu has been used in Europe and Asia more than a decade to treat benignly enlarged prostate.  More than a half dozen years ago this method has been used for treating prostate cancer. This is the least invasive treatment for prostate cancer that carries the possibility of a cure.  There is no incision and side effects appear to be less than other methods.  Since this is experimental one is engaging in a degree of risk since large numbers of patients over many years have not yet been studied. 

 

From my amateurish reading of literature on the internet, it appeared to me that HIFU offered similar survival rates to someone in my situation (T1C; psa 4.6; Gleason score of 6) with less likelihood of  such side effects as impotence, incontinence, and  fistula.  Perhaps radical prostatectomy has a slightly better cure rate.

 

 

Among HIFU machines, I chose Sonablate over Ablatherm largely because Sonablate gives the physician a live image.

 

I emailed a number of different practitioners and researchers  who use Sonablate in Italy, England, Germany, U.S.A. and Japan. Most responded quickly and were willing to answer my questions.

 

I asked each physician about price and how much experience they had.   The American physicians were the most expensive($20,000 for treatment in Dominican Republic or Mexico), followed by the English, Japanese and finally two  Italians.   Dr. Durso in Torino, Italy was willing to do the procedure for about $7800. With my love for Italy and a good price, I nearly chose him. I then learned there was an “upgrade” to the machine; when I asked him about the upgrade, he did not respond.  I finally chose Dr. Uchida who not only has the most up to date equipment, but he has more experience than any other person working with Sonablate.  For $10,000 I could employ the services of one of the most respected researchers and practitioners in the field.  

 

We arranged for the procedure and I flew to Tokyo on my spring break.  I took my wife and daughter so we could have a little tour of Tokyo, a welcome distraction.  Dr. Uchida met me in the lobby of his hospital, Tokai University Hachioji Hospital.  Hachioji is a suburb of the sprawling city of Tokyo.  I felt as though I was taking the subway to Queens from Manhattan. 

 

Dr. Uchida gave me a room in which my wife and daughter could spend the night.  He spend two hours working on me with the Sonablate from approximately 5- 7 p.m.    I felt very little except the insertion of the catheter through the abdominal wall into by bladder. That felt like someone was trying to jam a screwdriver through my belly.  The next day I was ready to leave the hospital and continue my tour of nearby parks, museums, and temples.  Unfortunately the tube of the catheter prevented me from closing my pants! I was walking around Tokyo with my pants unbuttoned and my shirt tails out covering my front. 

 

The catheter was the most uncomfortable part of this experience, though I never doubted that it was a worthwhile trade off.  I complained to Dr. Uchida who gave me a more flexible tube. It was still irritating but tolerable.  Over the next 3 weeks, increasingly more urine was coming out of my penis than the plastic tube. 

 

I returned to Florida after about 10 days in Tokyo and sought a way to remove the catheter. I had made an appointment with the local urologist who had called for a biopsy.  When I showed up for my appointment to remove the catheter, he refused to see me since I had gone to another doctor.  However annoying that was I called a number of other doctors and found two urologists willing to work with me. 

 

I had my psa tested every 3 months, and it went from 4.6 biopsy, to 5.2 at time of treatment to 1.2  two months after.  Two more tests a few months later yielded 1.3.  I had a biopsy 12 months after the first and 9 months after the HIFU, and all 12 samples were benign.  Such a biopsy does not guarantee that I am cancer free, but I am in pretty good shape to face the future.  Erections have been weaker than prior to the treatment, but I can attain and maintain an erection. There is no ejaculate, but I can climax. Climaxes are slightly weaker than before. I tried the three drugs for erectile dysfunction: Cialis, Levitra, and Viagra each for daily dosage for several weeks.  Levitra worked best for me. I have no other side effects. 

 

I would be happy to talk to anyone interested in HIFU. I am not an expert but I have acquired valuable experience. 

 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/6/2007 8:40 PM (GMT -7)   

Hi ~ Chimpa,

 

It’s been quite awhile since you’ve posted and we wanted to let you know that you are still in our thoughts and prayers.

We hope to hear from you soon as to your research and your decisions made along the way.

 

I’m glad we found you.  Sometimes threads get moved to the back pages quickly and that’s why we need everyone to help keep us up-to-date which in turn pops their threads back to the front... When we started there were approx. 7 pages on the forum.  Now there’s over 38.

 

I hope you’ll let us know how you’re doing… :-)    In Friendship ~ Lee & Buddy

 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

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