He rises again!

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hamala
Regular Member


Date Joined May 2006
Total Posts : 54
   Posted 11/17/2006 1:22 AM (GMT -7)   
Hi all,
 
It is amazing what we will share with each other since our journies began. It has been a little over 3 months since surgery.  My last hurtle is the obtaining an erection.  I have been taking Cialis and it help with lengthening at times but nothing close to an erection.  Taking Buddy's advice I went for the injections at my 3 month check up.  I had the option of trying the pump as well but I am wanting to be aggressive.  I remember reading all the information about impotence post surgery and clearly saying I do not want to deal with any of this especially when talking about pumps and injections.  Well, we all have to face our fears of prostate cancer and choose what we feel the best course to take.  Now after 3 months of not making love with my wife I am willing to try anything.  Interesting how your outlook on things can change.
 
The concept of jabbing a needle into the shaft of your penis is....well....just....not natural!  The actual pain is very little, thank God.  The PA, Jeff, first taught me how and where, and then he gave my first injection at the office of only 0.1 ml of medicine.  I obtained about a 50% erection which was very encouraging.  The next time I gave myself the injection under his supervision of 0.2 ml.  I had I would guess an 80% erection.  Unfortunately, I could not get together with my wife until after an hour or so and by the time we tried, it was not good enough for penetration.  Finally, I used just a little more, around 0.23 ml a week later and acheived a 100% erection.  Yahoo!  He rises again.  We were able to get the job done!  According to the PA this is a temporary solution and in time I should obtain my own erections like before.  I hope so.
 
I must admit it did ache quite a bit, but the little guy (I have to say that now I am post surgery :-) ) is out of practice.  So men, it will take time for most of us after surgery, but I would look into injections for a sure way for success.  Those of you who have waited over 3 months and longer, maybe check it out.  Best of luck!
 
Michael
 
Age:41, Lump found on routine physical. PSA:1.4, 2 of 13 cores positive, Gleason:6, DeVinci surgery on 8/8/2006


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/17/2006 6:05 AM (GMT -7)   
yeah Michael! that is good news indeed. I know you and your wife are a happy couple and enjoying "doing it" again. don't you feel like teenagers? I'll pass this on to Jeff because he's like you (so am I) - we are getting tired of being patient. we keep hearing that it takes time, but we miss having intercourse. have a great weekend! kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/17/2006 7:12 AM (GMT -7)   
Hi Michael!

Your story is very encouraging! Congratulations on reuiniting with your wife. Bob was just put on Cialis, so we are trying that for a bit, but the doctor has mentioned the possibility of injections at some point.

A question for you . . . were both your nerve bundles spared in the surgery??

In our case our nerve sparing surgery was only able to spare one because of the location of the cancer. Now, however, hearing how completely contained the cancer was to the prostate, I'm saying to hubby in hindsight . . ."see, they really could have saved that bundle" . . . but would hate to have taken that chance and had another result. As the doctor said -- first job is get the cancer -- the rest will come with time.

Good luck to you!
;o) Linda
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/17/2006 7:17 AM (GMT -7)   
Michael,

Thanks so much for sharing this with us. The experience of men with injections for ED is the one item that I have found missing from this forum. I am only a little over two weeks post op and have not started the Viagra therapy that my urologist has set up but I have committed that I will do anything to get an erection back. Just a few questions if you do not mind. How long did the erection last? Did you get it immediately or did you have to wait a while? Was there any soreness where the injection was at? How long did the aching last?

Once again, thanks.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/17/2006 8:31 AM (GMT -7)   
Linda,
 
They also took one nerve bundle of Curtis' that controls ED and I'm also wondering if things will be able to get back to normal in time...I guess time will tell!!  tongue
 
Michael,
 
I'm so glad your found the right course for you and your wife and that everything is "up" and raring to go!!!  yeah
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/17/2006 10:11 AM (GMT -7)   
Ellen - the doctor assures us that if in time injections are the option they always do the trick!!
;o)
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/17/2006 10:13 PM (GMT -7)   
Way to go! Gives me hope when I read of other's struggles and success.

Regards,

Bill

hamala
Regular Member


Date Joined May 2006
Total Posts : 54
   Posted 11/20/2006 12:40 AM (GMT -7)   

Hi Linda and Ellen,

In my case, they tell me that both bundles of nerves were spared.  I do not know if having one bundle will affect the results of the injection.  Does anyone know?  Swimom do you?

Tamu, after the injection it takes only 5 minutes to see a response.  I did not notice any soreness at the injection sight.  It is a very small needle.  My next injection I will go back down to 0.2 ml though.  It was great it worked, but I must admit "it" really ached.  It took close to 3 hours before completely relaxing.  You have to be careful about your dosage.  It will vary from person to person.  It becomes dangerous if the erection lasts longer than 4 hours.  Same warnings all ED drugs talk about.  You can use the injections twice a week.  You change sides each time when giving yourself injections.  Hopefully, your dosage volume declines over time as the healing process continues.

If others have used the injections, please share your experience.  The impotence risk was one of my biggest concerns when deciding on my treatment as I was confident they had caught my cancer early.  I still do not know yet if I will regain on my own yet, but at least there are alternatives in the mean time.  I hope this gives some encouragement to others. 

Mike

 


Age:41, Lump found on routine physical. PSA:1.4, 2 of 13 cores positive, Gleason:6, DeVinci surgery on 8/8/2006


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/20/2006 7:20 AM (GMT -7)   
Mike
I'm no expert, but the doctor did say the injections would be successful with only one nerve bundle. So, we're hoping. He also felt that if we were patient with the healing process, the Cialis may be all we need. Next consult will be February, so we have until then to see.

The number of younger men in this forum with PC amazes me. Makes me fear for my son whom the doctors say needs to begin testing at 40 . . . .part of me says . . .maybe sooner??? He's only 28 now.

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

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