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Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/17/2006 6:30 AM (GMT -7)   
Good morning everyone,
This is the 1st time I've been in this forum at home and not working. I took the day off to drive my Mom to Tampa, Fl. to pick up my sister who is flying down from N.J. to attend my God sons & neffew's wedding. He is a Navy Coreman (medic) who has been at Paris Island training with the Marines for the last 6 mo.and is going to Irak with a division of Marines in January. He is marrying a Navy nurse who's father is retired Navy and is totally against the wedding because of his orders for January. Sorry I got off topic but I just can't stop thinking about him and the courage he has at 23 years old. It's just another eye opener to me that makes me realize what a idiot I've been for the last 3 years. Like an ostrage with his head in a hole. I've been so pissed off about what happened to me that I never let anything out. It was like my own private little hell that I didn't want anyone to be a part of. Not my wife or sons, my mom, brothers and sister, my friend and coworkers, no one new what I was hiding inside. If the subject came up , I would always say I'm fine! There's nothing wrong with me! Then laugh and joke about it. While all the time it was tearing me up inside. There were too many time when someone would ask me, " whats a matter with your eyes?" I'd say it's just alergies or I have something in my eye, hiding the fact that I'd just finished crying my eyes out in the bathroom. But thats all changed now thanks to people like you and my friends at "Real Recovery". I've learned that there are alot of others out there who are just like me, with the same feelings and I know now that I don't have to "man up" and pretend any more. And my GOD does it feel good!!! THANK YOU!!! Reading all your theads has helped me so much and if it wasn't for Reel Recovery (please check them out on the web) I would have never even looked at. let alone participated in this wonderful forum. I'm sorry to ramble on but as I said, it feels so good! For those of you who don't know me, my name is Pete, I'm 53 and live in S. Florida. I had my surgury at Johns Hopkins (after firing 3 surgins here) I had a 3 + 3 = 6 Gleason, PC contained and my PSA was 6.6 at pre-op. I have plenty of problems both mental and physical that I will most likly talk about at some future time, I woun't bore you now! God bless all of you, you have my deepest thanks.
 
Pete
PS, sorry about the spelling! never could get the hang of it!!   

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/17/2006 6:57 AM (GMT -7)   

J

 

Hi Pete Sr………. This HUG is for you!!!

 

I’ll be back soon.

 

Thank you for your heartfelt sharing…!!!!!

 

In Friendship from Lee & Buddy

 

 

~   ~   ~     ~     ~      ~     ~   ~    ~    ~

 

Please....Keep your other Thread going because of all the information / knowledge that is posted there. 

 

Thread:    Low testosterone count 2 years after prostate surgery…

 

this is a very important thread........

 

 


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 11/17/2006 7:47:17 PM (GMT-7)


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/17/2006 7:04 AM (GMT -7)   
Pete - Welcome to our forum! I too have found such warm and wonderful stories and caring people here and feel stronger for having these contacts in my life. (I say my, but my husband, although he doesn't post and read asks me about this place all the time and knows the stories as well)

I have to say, a journey with cancer or any other serious medical issue (we too have more than just the one) certainly makes a person learn a lot about themselves and others and about "waiting".

I'm so glad you've decided to join us and share your story. Feel free to include us.

Talking and sharing and admitting always does make a person feel stronger and healthier in the long run I think.

Bless your nephew and his new bride! What a story, and good luck to them and you.

A small suggestion . . . .if you were to go back in as if to edit your post and rename it PETE's THREAD, and then continue your journey posting there, we'd all have such an easy time staying with you and not missing anything.

Welcome our new friend and our prayers are with you.

;o) Linda & Bob
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/17/2006 7:07 AM (GMT -7)   
Pete,

A hearty welcome to you. When I was first diagnosed with PCa I felt like I was stigmatized. I did not tell anyone about it but family and for a few weeks was much like you. Then I found rhis forum and begin to realize that I had another "family" out there that understood and I could share all of my thoughts with them. This caused me to open up and since I have discussed my PCa freely with friends and acquiantences. In fact, I feel that it is my obligation to encouraged other men to get their PSA checked and watch out for other signs of PCa. It sounds as if you have successfully addressed the PCa so now it is to get back into the "living life good" game. We all look forward to helping you.

Your PCa Friend,

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


iggy_pop69
New Member


Date Joined Nov 2006
Total Posts : 11
   Posted 11/17/2006 7:07 AM (GMT -7)   
HI Pete,
nice to hear from you, i also live in Florida, 40 miles north of Tampa. Hearing all this marine corps stuff sorta brought back memories for me. i had the surgery on 10/23/06.. a radical.. not fun.. my gleason was 3+4 psa was only 4.5... i dont know much of the other lingo... all i know is after i got done feeling sorry for myself, i pulled myself up by my bootstraps and accepted reality and did what i have to do...... was not told it would take a long time to become totally continent....  not the mention the ED... even cialis dont help me... i am hoping that in time i will get things working... my insides are still recovering from the surgery.
lots of odd pains i never felt before... if you have msn messenger maybe we can chat in private.... for msn... my name is iggy_pop69...   @hotmail.com.... at the moment i am thinking of suing my primary doctore for failing to tell me my psa numbers rather than just telling me they look fine... boy was she wrong.... and last year she forgot to include a psa test... this year the psa numbers were high as i stated... i am only glad that my surgeon said it appears they got all the cancer   ( fingers crossed)...
take care for now Pete... Gods speed.....
Iggy

Letty
Regular Member


Date Joined Sep 2006
Total Posts : 80
   Posted 11/17/2006 8:31 AM (GMT -7)   

Hi Pete,

We're so glad that you joined us and that you are able to share your experiences.  When we first learned my husband had pc, he didn't want to tell anyone either.  I'm not sure why.  I think there were several reasons.  First, he was so scared and just new it was going to be the end of his life.  Like you, the tears wouldn't stop at first.  It was heartbreaking.  Another reason he didn't want to tell anyone, was because he, like his co-workers, believed in the "old school" about pc, that if you have treatment, you will never be able to be continent or have sex again.  He thought he would be inferior than other men and didn't want any of them to know.

Now however, after educating ourselves, having the surgery, having almost conquered incontinence and absolutely conquered ED, we can see how unrealistic all these feelings were.  It is just at first you fear the unknown and having never gone through this or knowing what to expect, people naturally think the worse.

Since learning all these things, we have taken the opportunity to try and educate all his co-workers and friends and family and really rallied for the cause telling them all to make sure and be checked.  That if pc is caught early, it is curable.  Many men only know how pc used to be treated a long time ago when it did leave men with permanent ED and often times permanent incontinence and it scares them to death.  The medical field has come so far in this treatment now that those outcomes are very, very rare but most people are unaware of it.  The public really needs to be educated on this issue.
 
The other thing that helps so much, as you said, is places like this forum and the Real Recovery group you talked about.  We are not alone in this.  Everybody here has experienced the same feelings and fears and thoughts as everyone else.  It is so comforting to know that there is a place of such great support, help and understanding as this forum.
 
Wishing everyone the best,
 
 
 
Letty,
 
Husband diagnosed May 2006 at age 50.  RRP performed 13 July 06.
PSA 5.7,  Gleason 3+4=7, Staged T2C, Cancer confined to prostate.
His father diagnosed at age 62 and is currently a 13 year survivor!


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/17/2006 9:48 AM (GMT -7)   
Wow Pete!

When you do something you don't step lightly do you? I'm guessing you're one to stand on the water's edge and think about before jumping? Sharks or no sharks you still eventually jump but only when ya think you have the best chance of out swimming that shark? I swear I smell an engineer!

You and my husband are cut from the same piece of cloth. At least you didn't take 10 years to jump back into life. We don't bite....Hard :>) Glad you joined us.

Swim

Wicket
Regular Member


Date Joined Aug 2006
Total Posts : 316
   Posted 11/17/2006 9:45 PM (GMT -7)   
Hi Pete,
 
Welcome to the forum...you know it's really strange how you men think...I know when we first found out that Curtis had PC he woudln't let me tell anyone..not even our kids about it...I've often wondered if I hadn't been with him when he was diagnosed if he would have told me at that time.  I wanted to tell the kids and our friends to have the emotional backup, but he was completely against it.  Once he told a few people and realized that he wasn't the only man in the world to have this problem he opened up and it really helped him and me to, I might add.
Ellen
 
Curtis, 63, Diagnosed Aug 21, 2006
T1C
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
 
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/17/2006 10:02 PM (GMT -7)   
Sorry you have to be here Pete, but it's a great place. I'm just the opposite of you. I told everyone! Work, friends, and family. I could do it alone, but time and experience have taught me that support from others is the way to go. You hang in there.

Regards,

Bill

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/20/2006 9:32 AM (GMT -7)   
Hellow all,
Thanks for all your kind words! The wedding was great! So many young guys & girls in every branch of the service attended. It was a military service. I struggled with my emotions talking to the ones who had received there orders and are headed to Irak & Afganastan or going back again.
They just seem so young. I'm sure alot of you know someone who is going or are over there and know what I'm talking about. It just makes my probems so insignifigant. Sorry for being off subject, but I think its important for all of us to remember them. Linda & Bob, I did what you said about editing. I hope I did it right!
Best to all!!
Pete
Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: OK  


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/20/2006 10:55 AM (GMT -7)   
Hey Pete! Looking good! Now, not wanting to seem like a fanatic or God forbid a "nag" -- how about editing that first post's title and instead of "to all my new friends" calling it "Pete's Travels" . . that way we can find you all the time and you can post updates in your very own identifiable thread.

You are right how sometimes we realize things (the military personnel) and our own problems get smaller. A friend of mine always says if we put everyone's problems in it's own pile we'd probably take back our own pile.

Take care and continued good health.

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/20/2006 1:27 PM (GMT -7)   
At the risk of sounding stupid??? I can't figure out how to change the title the way your nagging me to (just kidding!!) When I go in edit, it will not let me change it! DAAAAAA!!!! Help!!!
Thanks,
"Comp. Illiterate Pete"
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/20/2006 2:18 PM (GMT -7)   
Pete,

Don't worry about doing anything...just post. If we look, we'll surely find you! So far you've used the terms Nag, stupid and illiterate.....just post, dear man. Don't stress trying to please. It simply isn't worth it. The posts are not formatted in any specific way. Personally, I like a little spontaneous personality. I've always said "every crisis is a cluster..some are just better organized than others :>)

Swim

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/21/2006 6:12 AM (GMT -7)   
Pete,

thank you for sharing your story and reminding us of the sacrifices our military people are making. we may not agree on the war, but we have to support our troops. your emotional roller coaster sounds normal to me. Jeff is a very private person and I was completely surprised when he "went public" with his cancer. he did say, though, that the first time he actually said "I have cancer" he cried. we all have to deal with this in any way we can. I find this web site to be a tremendous support....actually it is the only support we have with others who have been there. take care, kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

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