sensations are back - we know it's coming

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M. Kat
Veteran Member

Date Joined Jul 2006
Total Posts : 715
   Posted 11/19/2006 10:19 AM (GMT -6)   
hi everyone,

Jeff woke me up at 5 AM this morning to tell me that he had those sensations "down there" for the first time since he had surgery and he had more growth in his penis then he has before. it wasn't enough to have intercourse, but it's getting there. He's been taking Cialis every other day and we've been working on the stimulation. we keep hearing that we have to be patient and we do see a light at the end of the tunnel....or an erection at the end of this journey. :) We know that the nerves need to heal, inch by inch. He sees his doctor again on the 28th and will discuss the pump and injections at that time.

I won't have a computer available for a couple of days so I'll be back on Tuesday. take care all...kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

Veteran Member

Date Joined Oct 2006
Total Posts : 621
   Posted 11/19/2006 10:24 AM (GMT -6)   
Good news Kat for you and Jeff!

It's so great of you to share this information . . .we are on the Cialis routine as well but about a month later in our journey so it gives us hope.

So far Bob's only taken two (just saw dr. last week) and the differences are definitely there, just not enough to do anything with yet.

Good luck!
;o) Linda
Bob had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; PSA UNDETECTABLE.
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platlets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

New Member

Date Joined Nov 2006
Total Posts : 11
   Posted 11/19/2006 2:04 PM (GMT -6)   
smurf  Jeepers...
This is so frustrating.... the wait... and the what if...
(concerning continence/ED/etc...)
This site is so excellent..
to hear so many comments...
To know I am not alone in this "personal" nightmare.... 
I have never seen so much honesty, concern, kind words and comradery (?)  passed to others.... This place is great place for
us to sorta open up...
the many  confused questions  most of us have.. in some way getting answered.... 
thank you

Regular Member

Date Joined Aug 2006
Total Posts : 316
   Posted 11/19/2006 9:31 PM (GMT -6)   
Yes this is a very open site where people tell all their personal feelings and experiences in order to help others along the same path which we've all found very helpful!!  Doesn't seem anything is taboo in here and that's great!!!

Curtis, 63, Diagnosed Aug 21, 2006
Gleason 3+3=6, 3+4=7
PSA 4.10
Bone Scan Negative!!
DiVinci surgery done Oct 3, 2006
Catheter out Oct 11, 2006
After surgery T2C and cancer found on both sifes instead of just one.
Pathology report came back clean!!!

Regular Member

Date Joined May 2006
Total Posts : 54
   Posted 11/20/2006 3:21 AM (GMT -6)   


Great news!  That is for sure a good sign of healing.  Who knows, maybe you will get to skip those injections.  I thought you could only take Cialis every 3rd day?  That is good to know it is OK to be more aggressive and take every other day during the healing process.  Maybe that would help me as well.  Thanks for sharing your journey and keep encouraging him (and all of us).


Age:41, Lump found on routine physical. PSA:1.4, 2 of 13 cores positive, Gleason:6, DeVinci surgery on 8/8/2006

Veteran Member

Date Joined Apr 2006
Total Posts : 1732
   Posted 11/20/2006 11:19 AM (GMT -6)   
Injections, Viagra, Muse , Cialis, Levitra...they can all be used every 24 hours according to the manufacturers directions.


Regular Member

Date Joined Jun 2006
Total Posts : 89
   Posted 11/22/2006 10:19 PM (GMT -6)   

DW has tried Cialis every other day for 3 weeks without much result. Thanks to Swimom'e email address for the less expensive pills, we had ordered Viagra and now there is some good results.DW HIFU treatment was 8 weeks ago and so it took longer than we had been told to recouperate, he is very happy with the results. PSA test will be just before X-mas. We hope that it will be a good X-mas present for us both. What amazes me ( read all the input daily)is, that when I said that sex, erections, etc are very important to us and the idea of this never happening again most of you told me that I shouldn't be that interest in the side effects, that erections aren't important only that the PCa is gone. The PCa being cured is the most important issue but so are all the side effects which last for the rest of your life. Each treatment has side effect to be considered before you jump into the procedure. Now I read all these postings that talk about how important erections are for both partners. I am smiling to myself - We are not the only ones who want and need sex, ecrections, physical contact and more for us both. Maybe I was just the first one who dared to say what we felt and wanted and we hope that we found the best possible solution to everything.

Happy Thanksgiving to you all

Dee & DW


M. Kat
Veteran Member

Date Joined Jul 2006
Total Posts : 715
   Posted 11/24/2006 7:29 AM (GMT -6)   
hey DWT, it's good to hear from you again. I'm glad that the recovery is continuing and that things are better now. kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

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