Gleason 9

kate12, now it's time for you to look at all the options, make a decision and get in the best shape of your life (or your other half's life). there are a lot of different experiences here so keep posting. take care, kat

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Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

Hi Kate,



Take a deep breath.... and know that there are a lot of hugs coming at you right now…..



*&^%$ Special WARM HUGS for you *&^%$



Hormone therapy for 3 months…. Can you give us a little more information?

Knowing more would help us to understand where you’ve been and where you’re at right now.

How old is your honey?

General health at this time?

When was his first PSA and was it the 16.1 ?

When did he have his biopsy?

and any other information that will help to understand....



Know that we care and our thoughts and prayers are with you at this time.

Please stay with us and let us all help you in the best way we can.



In New Friendship… Lee & Buddy

Hi Kate & Loved One,



Thank you for your updated information. I’m not sure exactly what this means… “sclerotit deposits consistant with mets on spine and hip 1.8 cm”… so I really don’t know how to respond… but others will know and they will respond.



I will share with you that the most important thing you can do now is to keep your strength by taking care of yourself. This in turn will help you to help your honey to stay strong.



This is a journey filled with a lot of stepping-stones. And this journey is best traveled with friends…. So please make sure you stay with us… okay! We each have a special way of sharing with each other. Let us help you!



How is your husband taking this news?? Is he able to talk with you about his fears and concerns…. Remember…. This is a team journey and you need to pull from each others strength. Being scared is okay it’s part of the process….not knowing is what brings the fear.

Will you be seeing your doctor between now and February???



We will keep you close in our thoughts and prayers….

In New Friendship ~ Lee & Buddy

thanks everyone for your help its good to know thats there is others out there going through the same thing . In the past three weeks hubbys psa has risen from 5.6 to 6.1 and is beginning to experience hip and lower back pain.Someone explained that his cancer is probably not living of the testosterone so even though he is on hormone therapy the cancer continues to grow.. Have you heard this before? thanks

Kate-It sounds like your husband's cancer is not responding to hormone therapy. It means that the cancer does not need the testosterone to live. Our doctor explained it as the cancer gets smart and learns to live and grow on it's own. My dad is also going thru this right now. I believe there are several things to try. it sounds like your doctor has opted for radiation treatments which is probably a good move. My dad is doing chemo in a clinical study, but he had two surgeries already and did not respond to hormone therapy. He is responding to chemo though-his PSA has dropped from 15.88 to 4.5 already. They have made great strides with advanced prostate cancer. There is hope and there are ways to control it. Also-get him on a low fat diet-lots of fruit and veggies and fish. I also recommend 8 ounces of pomegranate juice a day. They are doing a study on Pom juice for prostate cancer and are in phase 3 already-and it helps slow the cancer.
Stay strong...and positive...please keep us posted on his treatments and progress.

once again thank you so much, honestly sometimes I think talking to all of you is so much easier than the medical fraternity ( our doctor uroligist and oncologists are lovely but i,ts not always easy to take every thing in) I wish you all best and merry christmas
Kate

Hi kate

Please have hope. My husband had orginal PSA of 30 - 32 with a Gleason 9 and was had a hormone implant that was good for 1 year and had 40 + radiation treatments. It took a whole year but the hormones brought the PSA steadily down. He just got his new PSA results and he is at .08. Hopefully you will see it go downward also. This past result was the greatest news to get before Christmas. Here is wishing you and your's a joyous and healthy New Year.

Hi, Kate. Like everyone says, with all the therapies out there, it's a matter of staying positive and knowing you'll find the right one. They say prostate cancer is a slow-grower in most cases, but there are many of us who know that it can also seem to simply explode. We all will carry positive thoughts and believe that you'll be guided in the right direction toward a cure!

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Husband age 65

PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)

DaVinci Surgery 8/2/06

T2a (at biopsy)

T4c (at pathology) w/cancer cell leakage into fatty tissue

Post-Surgical PSA on 10/3/06 - undetectable!

Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence

Future: PSA tests twice-yearly for now

 

Pooks you have eased my mind a bit and I can tell you it was running overtime thats for sure. I,m so glad that your hubby is doing so well. It seems to be nearly the same as my hubbys so from now on its all positive thoughts . Thanks

Wow, I will never again whine about hot flashes...

Best to all of you...

Jim

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Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.

RRP 12/7/06. Nerves and nodes okay.

Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.

PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.

 "Patience is a virtue - especially when dealing with the effects of PCa."

I'm sorry to hear this Kate. I wish I knew the answer..... it sounds like this is not prostate cancer, but something else now. kat

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Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06

Kate I'm so sorry you and your husband have to go through this. There is a site where you can subscribe (free), send an email describing tje situation, ask for advice and get a response from a doctor specializing in Prostate Cancer. The site is called P2P -- Physician to Patient -- PCa specialists answer clinical questions and the address is http://www.prostatepointers.org/p2p/
I hope you can find some help there. You are in my heart and prayers
Elena

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Dad is 61 years old, diagnosed 11/06
PSA 56,7 all samples positive,
Gleason 8
Hormone Therapy (complete androgen blockade)
cancer in both sides of prostate
Propable bone metastases