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whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/25/2006 8:43 PM (GMT -7)   
Hi-My name is Lisa.  My dad-Vernon, is 61 years old.  Last year, he was diagnosed with PC.  He was scheduled to have his prostate removed in November 2005.  When they went to remove his prostate, they found both of his lymph nodes bulging with cancer.  They removed the lymph nodes and kept the prostate intact.  His PSA was 64.  In December 2005, he had the castration surgery.  At his 3 month check up, all was well.  His PSA had dropped to .04...almost gone.  He was looking and feeling wonderful.  Then, in Sept 2006 at his next 6 month check-up, his PSA had risen to 8.1.  We were referred to an oncologist-whom we really like and trust.  Two weeks ago...my dad's PSA was 15.88..it has almost doubled in a 2 month period.  We had a Pet Scan, Cat Scan, MRI, and Bone Scan..all came back negative with the exception that there is cancer in the lymph nodes between his kidneys.  Last week we started chemo-Taxotere.  We are enrolled in a Clinical Trial Study that is Taxotere weekly plus a high dose of Vitamin D called DN-101.  It is the Ascent-2 study so they are in the second phase and it looks like the first phase did well.  I am completely terrified.  I love my dad so much.  I am hoping that since the cancer is in the prostate and the lymph nodes only so far..even though it is the next set of lymph nodes up..that this cancer is gettable with chemo.  Does anyone have any experience with cancer at this stage?  My dad is otherwise very healthy.  He has started a low fat diet-mostly veggies and fruit, still works full time, and exercises some.  What else can I do to help him?  I go to all his treatments with him and am trying to educate myself the best that I can.  Is there hope for us?  We also have very strong faith in God.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/25/2006 9:53 PM (GMT -7)   

Dear Lisa *Whispers… & Dad,

 

I am so glad you’re reaching out to all of us!!!!  My heart goes out to you ~ Lisa!!!  And we will be here for you ~ just stay with us and let us help you in the way ~ each of us can!

 

I think most of us are all “new learners” about this disease and each Thread and each Posting that individuals are willing to share ~ helps us to gain more knowledge.  And in turn ~ we help others coming behind us.

 

Taking the time to share ~ is so important to help our understanding and help us to learn more about prostate cancer…..

 

You ask what more can you do????  You’ve answered… your own question sweet lady…

Partial Quote: We also have very strong faith in God.

 

Lisa ~ I don’t have any experience with this stage of cancer but just quite possibly you will have opened the door for someone else who’s been there and will be willing to share… their journey ~ and in turn help you!  Maybe you could mention this site to members who are enrolled in the  Ascent-1 study and they can post and in turn will help you and others…  this site is growing in membership each and every~day….. and the more we know ~ the better equipped we all can be.

 

I will say that we are never promised tomorrow.  None of us!!!  So ~ take this time to live each day to the fullest.  Leave nothing un-done or un-said. 

 

Your dad sounds like he’s in good fighting condition and this is a fight that we all hope and pray he wins….  Having trust in your doctor is a big part of the journey.  Continue to have hope and we will help you ~ to keep any dark clouds away….

 

Please ~ continue to keep us up-to-date as to how he’s doing and what’s being done.  In your continued sharing…. Someone may come on board ~  when you least expect it with some extra guidance for you.

 

Sending extra strength to you and your dad through prayer.  Our thoughts will be with you each and every day as you travel this path.

 

This journey is best traveled with friends….. so stay with us friend.

 

In New Friendship,

Lee & Buddy

 

 

                “God Bless You”

 

It's a little prayer  ~  "God BlessYou"

...but it means so much each day,

It means may angels guard you

 and guide you on your way.


mama bluebird - Lee & Buddy… 53 on surgery day

RRP April 3, 2006   PSA 4.6 Gleason  3+3=6  T2a   Confined to Prostate

June 29th PSA Less than 0.1 Non-detectable


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/26/2006 6:44 AM (GMT -7)   
Thank you so much bluebird. Your note brought tears to my eyes. I so appreciate your kind words and especially the prayers.
I would love to speak with someone who has been in the Ascent 1 study, but do not know how to find them. I tried to research the study and only found a couple of articles, but it was said the DN-101 patients did show more improvement over the taxotere only patients. The study we are in now-the Ascent 2-is the Vitamin D versus a steriod called prednisone-both with taxotere chemo.
Has anyone here had experience with Taxotere Chemo? Our doctor said it is body tolerant -even weekly-and he even has a 90 year old man that does well with it.
I am just so confused. I am trying so hard to be strong and postive-and am with my dad and my family. I don't really understand how we got here. The urologist told us that removing the testicles, would in turn kill the testostorone, which would make the cancer die out. My dad's cancer is very aggressive...but aren't we still on the same cancer-and beings it is in the prostate and lympth nodes by the kidneys-it is still somewhat contained....it seems that it would be gettable.
Please-if anyone has been in this situation, I would love to hear from you. I also welcome any other thoughts, suggestions, prayers...anything else. Drawing comfort from others in this situation and hearing encouraging stories is what gives me strength. Thank you so much for going thru this with me :)

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/26/2006 6:54 AM (GMT -7)   
Hi, Lisa. Sounds like you are fighting aggressively and taking a good road. MamaBlue is right - you've found the best support group right here. And often, people lurk who are going through the same fight. Of course, you're scared - we all are/have been. For some of us, we may be facing what you are somewhere down the road and will learn much from you.

Whether it's a dad, a spouse, a relative, or friend, we all understand the rollercoaster ride of emotions that you feel - and the need to be constantly strong. So, here's your spot to rely on everyone else's strength, too!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 11/26/2006 1:51 PM (GMT -7)   
Hi Lisa.  You are doing the best thing for your dad--being there for him when he needs you.  My daughter has been wonderfully supportive during my own prostate cancer journey. 
 
I'm not up on prostate cancer recurrence therapies, but it sounds as if the negative scans give plenty of hope to beat it.  I have read in prostate cancer books that chemotherapy is not effective for prostate cancer, but don't quote me on that. I would suggest that you not hesitate to get 2nd opinions, if needed.
 
Please come to this forum to read and post as you need to.  There's a lot of experience, strength and hope here that you can borrow any time you need it. Take care and hang in there, Lisa!
 
Tim 
 
 

Age 58 PSA 2.6 Gleason 5
Bi-lateral nerve-sparing RRP 6/21/06
Cancer confined to prostate 3-month PSA non-detectable


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/26/2006 3:33 PM (GMT -7)   

Lisa,

Go to www.yananow.net.  Click on "Mentor Experiences".  When you scroll down you will find stories of men who have experienced PC and have had different types of treatment.  There are several under the chemo category.  Most of these men have committed to be contacted directly so if you find a case similar to your dad's you could email the person and get more information.  Your dad and you are in my prayers.

Tamu


Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Prostate Confined


Motelmat
Regular Member


Date Joined Nov 2006
Total Posts : 50
   Posted 11/26/2006 3:46 PM (GMT -7)   
Hello, my name is Mat and I found out about 2 weeks ago that I have prostate cancer.  I am just starting to investigate what treatment I should take, but from what I have read and the men I have talked to who have had both surgery and the seeds, I am strongly leaning toward the seeds and maybe follow up with external radiatiion.  I would appreciate any input from others who have been through this.  My stats and facts are as follows:
 

Age-66, very good health, walk 5 miles each day at a good pace, use a rowing machine and lift weights 5 days a week, 6’ 3”, 195 lbs.  Never had a major illness
Family History of prostate or breast cancer-Both grandfathers had prostate cancer and one cousin so far.
PSA history was around 3 t 3.5 for many years then to 4.95, back to 4.8 and then this fall up to 6.6
Stage ???
Gleason 3+3
Findings of the DRE  - soft and no hard spots, not enlarged, ultra sound showed size at 19 cm
Number of needles in the biopsy - 8
Number of positive needles - 5
Percent cancer or volume in the needles. – less than 1/3 on any of them
City and Country of patient – Discovery Bay CA,
Any scans (Bone, CT, Etc.) none yet, I am under VA care from Palo Alto and San Francisco which has a prostate clinic and going for those test in the next couple of weeks.


Motelmat
Regular Member


Date Joined Nov 2006
Total Posts : 50
   Posted 11/26/2006 7:30 PM (GMT -7)   

Lee and Buddy,

Thanks for the info,I have never been in a chat room of forum before so I did not know how to do it. I tried what you suggested so let's see if I got it right.

Mat


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/26/2006 8:28 PM (GMT -7)   

Mat ~ you did great starting your own Thread J

 

     New Thread /Topic:  Need information on Prostate Cancer treatments  started by MotelMat

 

I’ll see you over there……


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

5 of 7 cores right lobe, 2 of 7 cores left lobe

Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/26/2006 8:34 PM (GMT -7)   

J          Whispers…..

 

Lisa ~ We are sending a special rainbow to help clear away some of the darkness that tries to surround you...

 

and WARM HUGS to give you strength....  Tears are good ~ they help to cleans the soul and renew our strength!!

 

 

 

!@#$%^&*     H U G S  comin'atchu     *&^%$#@

 

~ A Special Rainbow ~

 

/////////////////////////////////////////////////////////////////

////////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

 

 just for you!!!

 

Thinking of you and hope you’re finding answers.

Stay with us ~ and pull our strengths as we send them through thoughts and prayers…

 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

5 of 7 cores right lobe, 2 of 7 cores left lobe

Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/26/2006 9:26 PM (GMT -7)   
Thank you to everyone who has posted to me...I so appreciate it. It is so nice to find people who truly understand what my dad and my family is gong thru. I spent some time today on the yananow website-thank you for suggesting that. It was really encouraging to read about families that were even worse than my dad and are now 10 year suvivors and going strong. I plan to find a mentor there to email that can possibly help me steer my dad in the right direction and possibly help us on our journey.
This Friday-Dec 1-will be just our second chemo treatment. My dad did very well on the first one. He is so brave and such an awesome man. We do really like our oncologist...I hope we are right in trusting that this is the right thing to do. The cancer is growing so fast that the doctor said that chemo was really our only option right now for treatment. I think they have come a ways with chemo for treatment-especially when teamed with something else such as the Vitamin D he is taking. I will talk to the doctor more on Friday and see what I can find out about what is in store for us. I believe that around the 3-4 week chemo mark, we run new scans and see if the cancer is shrinking. Please pray that it does-I am so scared of it spreading even more.
Thank you so much to each of you for sharing your experiences. I am so glad that I found this site. You will all be in my prayers as well. God Bless you all.

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/27/2006 5:24 AM (GMT -7)   
Lisa, I will continue praying for and your dad. I'm glad you found some support and that you feel comfortable with the doctors. take care, kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/27/2006 6:32 AM (GMT -7)   
Hi Lisa, I'm so sorry to hear about your dad, but it's wonderful that you have a faith you can turn to that will bring you comfort & strength no matter what happens. If you go back a page in the posts, you will find a thread titled "Advanced prostate cancer questions" There is a reply by "Gunner" who had advanced cancer back in the 80's who is still going strong. He shared some good information about some things your dad can try along with the treatment he's going through. He would probably be a real encouragement for you.

We will keep your dad in our prayers - please keep us updated on his progress.

becky
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/27/2006 5:38 PM (GMT -7)   
Thanks Becky-I read The Gunner's post and found it to be amazing. I am going to print it out for my dad. Unfortunately, because he is involved in the clinical study, he can't do any supplements right now. They even made him quit his daily Vitamin. He is allowed to have Boost or Ensure-as long as it is the lower 20% Vitamin D. We have to be careful with him overdosing on Vitamin D since he takes a high dosage once a week. A plus side is that the steriod that they give him weekly really makes him feel great-he has a lot of athritis and it has helped him. I'm gonna get my dad some promeganate juice..that is something he can do. He is already doing the low fat-mostly fruit and veggie diet. I worry though because he has lost 8 pounds. He is 5'9" and weighs about 182 right now.
Today my mom went to her gynocologist. She had utures cancer about 4 years ago. They found a lump in her breast today. She has an appointment to get a mammogram on Jan 29th, but I have her calling tomorrow to get it moved up. She is also having a CT Scan on Monday because they are watching a spot on her kidney. I so hope and pray she is okay. I don't think I can handle her being sick right now too..and she is my dad's main caregiver-plus they have her 89 year old mother living with them. My prayer list will be really long tonight.
All this cancer in the family has really got me concerned for my own health-I am 42. I had a pre-melanoma cut out of my arm this year so I think I too have some cancer genes. I have also started a low fat diet.
Anyways, thanks for letting me babble- :) You guys are really great and I feel fortunate to have found you. God Bless everyone on their journeys thru PC.

2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 11/28/2006 1:29 PM (GMT -7)   
Hey Lisa -

I'm so sorry to hear about these situations pilingup with your family. I know what you're feeling - the same week we found out about my husband's cancer, we found that my dad's had come back. (My information is under the thread Jeff & Becky's journey). Fortunately we had a lot of support from our church family - and amazingly, the kindness of strangers at the most unexpected times. But it was still overwhleming - in part because I felt like I needed to figure out how I was going to help take care of everything, and there was no way I could figure it out. So I finally just told the Lord He was going to have to work out the schedule and then fill me in, and that's basically what happened. I need to do that again with my husband's recovery - surrender my expectations and know that He is in control. Hard to do sometimes! This site is very encouraging, uplifting and informative - and I often ask questions here that I could NEVER ask of my best friends! I hope the things you learn here will be helpful to your dad, and mom. I will be praying -

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/28/2006 2:42 PM (GMT -7)   
Thanks so much Becky. I have had some really big talks with God today. Not sure if he is testing my strength or what, but I have put it all in his hands. He has the final say and I have to have faith that he will give me no more than I can handle. I called the place where my mom is getting her mammogram today and got her appointment moved from Jan 29 to Dec 20-so that is at least better, we have a 3 week wait instead of a 8 week wait.
I met a gal on another website last night that has a similar case to mine with each of our dads. Her father is actually even a little worse off than my dad-his cancer is more spread and his PSA higher. Her father is also in a Clinical Study with Taxotere Chemo and another drug. Her dad has been doing it 4 months and gone from a 180 PSA down to a 23 PSA. I found that to be very comforting and encouraging. She says Taxotere is wonderful. I think that it is actually working well for PC patients now-which is great that chemo is an option for us. I will keep you guys posted on our progress. Three more days till Chemo treatment #2 and we can also talk to the doctor. I feel so much more secure and positive after being there and speaking with him and his staff.

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/28/2006 3:12 PM (GMT -7)   
Whispers - that is so encouraging! Good for you, too, for speeding up that mammogram. Hopefully, things will start to look up even more as your dad progresses. We will all be eager to hear the results of each step (and with your mom, too).
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/28/2006 5:06 PM (GMT -7)   

Dear Whispers, I am a year older than your dad and find it comforting that you care so much for him.  My daughter feels the same about me and it pleases me that there are others who are so fortunate.  I imagine that your dad is as nuts about you as I am about my daughter.

Regards,

Bill


Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 11/28/2006 5:49 PM (GMT -7)   
Thanks Bill-you made me smile :) Yes, I love my daddy so much! I look just like him and he has always been my hero. I would cut off my legs and sit in a wheelchair for the rest of my life if it meant I could save him from PC. I am the oldest child-and the only girl. My dad is lucky that he has a son that lives on a 5 acre tract on each side of him. Every Saturday morning, my mom cooks a big pancake breakfast for my dad and most of the time-his three sons. It is their special time together. I live an hour away from him, but go to everything PC related with him-all doctor visits and chemo treatments. I also buy him fresh veggies, fruits, Boost..and anything else I can find that may help him. I was really scared last year, but I think we let our guard down thinking this PC was gone. It crept back up on us. Now, I am terrified. I am so hoping and praying we can get it..and keep him strong and healthy in the process. He's ready to fight, and very positive.
Thanks again everyone for your prayers, thoughts, and kind words. It means so much to not feel alone :)

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/28/2006 5:54 PM (GMT -7)   
hi Whispers, I was just reading your last few posts and I can feel your enthusiasm, faith and love. you're a very special woman and your family is lucky to have you there. God bless you all...kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 12/1/2006 9:08 AM (GMT -7)   
Good Morning Friends-
I am feeling a little nervous and anxious today. I will be leaving in a bit to go be with my dad for Chemo Treatment #2. I am armed with Boost, Pomeganite Juice, 16 Bean Soup Mix...and a folder full of info and print outs to discuss with my dad and his doctor. I have been on my knees this morning begging God for strength, guidance, and most of all to heal my precious Daddy. Please keep us in your thoughts and prayers today. I'll come back on later and let you know what the doctors have said and how my dad did today.
Thank you so much for being with me as we fight-Die Bugger Cancer cells die!
Lisa

whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 12/1/2006 2:43 PM (GMT -7)   
Hello-
Just got home. My dad looked great day-good color, looked and felt healthy-I was pleased. Even after chemo-he looked and felt great. Thank God! I really do think that Taxotere is a gentle chemo-now, lets just hope it does the trick.
We were not able to see a doctor today. When you are involved in a Clinical Study-there is protocol to follow. The cancer center we go to is one of many branches. Our clinical study is at one branch, while our main doctor is at another. We go on Wednesday to see our regular oncologist-to speak with him and for my dad to have another PSA done. No chemo next week-on 3 weeks, off one. Then the 15th we start another 3 week cycle-and will see the second doctor then too. I found out today, we won't redo the scans until after the second cycle so will be early January till we find out about that...sigh..the wait. His white and red blood count today was great though.
Anyways, not too much to report. I gave my dad his stuff. He was really interested in the pomeganite juice-will start it tonight.
Thanks for the thoughts and prayers...please keep us in your prayers. I told my dad about my new friends and also told him about the chant from John-Die Bugger Cancer Cells Die. I printed him up the post from Gunner and a few cases that I found amazing. He was encouraged. I really am thankful for all the support here:)
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