My journey with P-C

Hi Jerrio and welcome!

You are fortunate to have found this group BEFORE surgery. You can read back posts, ask questions, and prepare yourself for your day.

I found this forum almost three weeks post surgery and it has helped a hundred fold. I only wish it had jumped out at me before surgery. We might have done more walking and kegels, etc.

I also just realized that while I (the wife) had many teary days following Bob's surgery I can honestly say since this wonderful group of supporters came into our lives the tears have dried and hope has prevailed.

Bob isn't much for digging and reading this stuff but he's so interested in all of the posts and always says "what's new today in there"

So hang with us and keep us posted along your journey and all the best to you.

;o) Linda & Bob

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Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.

 

Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

Thank You all for the great concern and encouragement. The Dr had wrote in my report, gleason 3+3=6 and 3% left, nothing right. I walk over 1 3/4 miles a day and am wondering what are kegals??? I went looking for a forum today after I got home from the Dr. as I had found one when I had my total knee replacement and learned so much. Thank You again for all your support and I am pulling for all of you too. Jerrio

GreenAcres, Thank You for your support. The thing now is the long wait untill surgery, 1/22/07. I am trying to put it out of my mind and think postive. Dr said I had to wait 8 weeks to make sure everthing was healed from the Bio, so now I just keep doing my walks and let the fresh air clear my head and here in Oregon the weather can present something different each day. Can someone tell me how to put my stats at bottom like all the others?? Thanks Again Jerrio

Jerrio!

The waiting is tough indeed, but before you know it January 22 will be here (with the holiday season and all).

We waited from May 27to all the way to September 27th and managed to have a good summer. On hindsight and if only we'd had this forum, I'm sure more would have been done in the way of preparation, exercise and kegel wise. But, as they say, hindsight IS 20:20.

Keep checking in and posting here and we'll get you to surgery date and beyond!

:o)

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Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.

 

Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

Jerrio I had these same symptoms went on for maybe a month this also showed even longer in my ejactulate. Don't hesitate to contact your urologist thats what we pay them for. Had my open rp 11/21 am feeling great good luck my friend God bless. jw

hi Jerrio, sorry to have to welcome you here, but it's a great place to be. like you said, exercise a lot, do your kegels, and have sex as much as possible! :) kat

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Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

Hi Gerald…. I’m still getting caught up after being away for 10 days....and I’ve missed a few postings along the way. Just saw this one on a different thread and wanted to send a "special Hi!"   12-03   Quote on different thread:   from Jerrio to Magaboo… Like you I am starting on my adventure too, Surgery sch. for 1-22-07 ( open) so you will be able to give me advice too. These people are great and you know it is not just talk as they all have BEEN THERE. We all know what you are saying about being worried and scared, YES I am worried and scared too. Good luck and there has to be a briter spot ahead. Jerrio   Hi Gerald,   Sending a warm welcome …   I hope we can make your journey smoother just by being here for you!   This is a great forum which you’ve already joined… so stay with us and keep us up to date as to how your doing getting ready for surgery on the 22 nd …   We felt the same way as you felt!!!!! Excerpt from “Our Journey”… (C) We had already made our decision before the Consultation Radical Retropubic Prostatectomy…..Lift the Hood …We wanted Dr. Staley to visually see and feel the tissue and take out all surrounding tissue that may be hiding… cancer cells.     Buddy and I invite you to read “Our Journey” We chose Radical Retropubic Prostatectomy   Excerpt from “Our Journey”… KNOWLEDGE IS POWER... and POWER conquers FEAR!!!!! We decided to share “ Our Journey” in hopes of helping at least 1 person!   If it helps more….   If it helps you!!!! That will truly be a blessing …   At no time are we writing to tell you what you must do, or what you should do….                                Your decision is Your Decision!! Just giving you a view of what decisions we made, what the process was for us, and the outcome as of this date.     Hope to hear from you soon…  Keep posting.... OKAY!!  Take care and know our thoughts and prayers are with you.   “God Bless You”   It's a little prayer   ~   "God BlessYou" ...but it means so much each day, It means may angels guard you   and guide you on your way.     In Friendship ~ Lee & Buddy mama bluebird - Lee & Buddy… from North Carolina Link to our personal journey…>>>      Our Journey ~ Sharing is Caring   April 3, 2006  53 on surgery day RRP / Radical Retropubic Prostatectomy with "wide excision" PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate June 29th ~ PSA Less than 0.1 Non-detectable Post Edited (bluebird) : 1/21/2007 11:28:38 AM (GMT-7)

Hi Jerrio,

Good luck on your surgery tomorrow. I am sure that it will all go fine. Please keep us posted on your recovery.

Ben

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DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           

SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.

POST OP: 12/15/06: First post op PSA was 0.00.

Hello Jerrio,

Today's the big day, and we all wish you the best of luck. Please post us when you feel up to it.

Glen

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Diagnosed at age 60

PSA went from 2.2 to 3.8 in 14 months

2 of 14 cores positive at 10%

Gleason 6(3+3), negative DRE, neg. boundaries

DaVinci surgery on 02/23/06

 

Hello Friends, its 2nd day home from hospital and 2:50 am in morn, just had to get out of that bed, figured this be good time to get caught up. I am doing well, sore but that will go away. Walked 100 yds + down street yesterday. For those who missed my other post, Dr gave me good news, said NO suprizes, looked good inside. He said got part of report from Patholigst, lymnph nodes clean and he had went completed around the perimiter of prostrate and found NO cancer yet meaning that it is deep inside the prostrate and that was good news. Wife is an angel as a nurse. Will try to do better job on reporting, will go now and read others post and try to give them some support.

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PSA went from 2.3 to 4.5 12 months

Biop was 3+3=6 3% left side on 1 0f 12

sch. for total removal 1-22-07 (open)