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Operation on Monday-Home Tuesday Checking in on Friday- Status report

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Operation on Monday-Home Tuesday Checking in on Friday- Status report  
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Posted 12/1/2006 9:35 AM (GMT -6)
Hey Gang,
 
A couple of things I need to share and thank this group about:
1.  I don't like the unknown and I am a planner.  The feedback from this group was excellent and helped me so much.
2.  Sweat pant shorts are the best.  I just carry the BIG BOY Folley around in a shopping bag when I am walking.  It appears to be a more substantial device with the conections, so this is my pal until MONDAY when I get it out.
3.  Only pain medication is at night and I can sleep on my side just fine now.  I will not use any medication tonight.
4.  Sloan Kettering- NYC is an amazing place.  Ask me if you are considering that hospital.  FIVE STARS out of Five.
 
5.  I will follow my excellent experience and continue to use this group for the opportunities ahead.
 
Thanks,
JJK
Laparoscopic Radical 11/27
Gleason 3+3
PSA  3.7
54
Posted 12/1/2006 9:41 AM (GMT -6)
JJK,

Welcome to the other side. Sounds as if you are doing very good. Getting the hang of hang was my first priority and it went well. Glad to see that the pain is minimal. Next step is getting back to your normal self. Good luck and keep us informed.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear

Posted 12/1/2006 9:55 AM (GMT -6)
Good to hear back from you JJK! You sound like you are coping so very well. Please keep us posted.

One word re the pain meds and our experience. Bob really also felt like he needed nothing after being on only extra strength Tylenol for a few days. However, sometimes the body seemed to need something as he would get very pasty looking and kind of weak . . . upon taking the Tylenol this would disappear. So we kept him on them every 4 - 6 hours for a few extra days until this too was gone. It was kind of like the body was in pain mode, but it wasn't being perceived that way by the brain, except for the pastiness.

Re reading this I'm hoping it makes sense. . . but wanted to share.

;o) Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

Posted 12/1/2006 12:24 PM (GMT -6)
JJK, glad to hear you are feeling so well and doing just fine. keep it up.. well, that comes later. :) kat
Husband Jeff 56 years old
diagnosed July 27, 2006
PSA 6.5
2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006

Posted 12/1/2006 2:16 PM (GMT -6)
Miss Kat, you are one funny Lady!!
JJK, gad to hear it wasn't so bad for you! You've crost the bridge and it's all down hill from now on.
Keep it up! (Oh yea, That's what Kat said!)
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  

Posted 12/1/2006 2:33 PM (GMT -6)
Glad to hear you are doing so well. When you go to get Mr. Foley removed be sure to take some whitey tighties and a couple mens type pads. My doctors office never mentioned anything about waht to bring or expect. When the catheter was removed I dribbled all over the place for a minute or two, then got control. Would of served them right if I had pisssed all over their fancy equipment. I found some pretty good generic pads for men, not a name brand at Walmart. You will need them for a short period of time if all goes well and it should. I had my surgery 10/12/06 and am now 99.9% hardly ever a leak or drip. Best of everything to you.
Posted 12/1/2006 2:43 PM (GMT -6)

JJK

Way to go. Sounds as if everything went well. 56 is right about the cathetr removal be ready for the unexpected. My hospital wanted me to hang around for two hours to see "if" I could pee. Well they certainly found out when they pulled the catheter out. They sent me home tongue

Daveed

Posted 12/1/2006 2:47 PM (GMT -6)
JJK     I went to Sloan Kettering 10/12/06 to have an open RP. Fantastic Organized and how about room service ina waiters vest and attire! My Dr. James Eastham is a nerve sparing Doc and I was getting it up 2 days after the catherter was removed. I go back 12/13/06 to get checked and PSA.     59years old 3+3=6 Pathology Great so far,clean. Was your Dr Gillioneau? You are in good hands.         Shepla
Posted 12/1/2006 7:54 PM (GMT -6)

Shepla,Right on Dr Gillioneau.  Monday is around the corner, in the meantime, thanking my lucky stars having been to that hospital and that doctor.

Chilling,

JJK

 

Posted 12/1/2006 9:34 PM (GMT -6)
Congrats, JJK! One of the best days in my recent memory was getting that freaking catheter pulled out of me. Man, what a relief. SWEET FREEDOM! lol. I'm betting you'll do fine....for me it's almost like going back to childhood and learning when i need to pee again. Doing well so far....no dribbles, and i was even getting morning wood with the catheter in. Ouch. Still hurts a little to pee though, and the stream ain't as strong as it was, but i'm thinking that'll come with time.

I have a few pairs of sweats with the left pockets cut out....guess i can't sell 'em on ebay. LOL

Blessings,

Dennis and Sara
41 years old
6.7 PSA
3+3=6 Gleason
Pre-op Stage T1c
7/12 Positive Samples in Biopsy
RLP on 11/16/2006
Cancer confined to prostate

Posted 12/11/2006 12:40 AM (GMT -6)

Hi~ JJK,

 

I’m sorry we missed your homecoming….. been out of touch since 11-30….

 

Welcome home and you sound like you’re doing great!!!  yeah

I agree… the better shape you’re in ~ the better the mental attitude is also!

 

Stepping-stones are the same but some of them are a little more shaky ~ than others and that is why we are all here to lend helping hands.  I hope and pray that our journey in some way helped you with yours. 

 

You got it down right!!!! One-Day-At-A-Time…..  Life is Good!!

Take care and know you continue to be in our thoughts and prayers.

 

In Friendship ~ Lee & Buddy

 

 

See….other threads by JJK

Going back to work

The Big Operation is Monday the 27th -Tips for coming home

mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable

Posted 12/11/2006 9:29 AM (GMT -6)
Welcome home!

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!

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