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My day of truth arrives on December 12th......... Anxiously waiting

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spinbiscuit
Veteran Member
Joined : Apr 2006
Posts : 818
Posted 12/18/2006 10:50 AM (GMT -8)

Hi Jay,

Well I can honestly say that I've never read an account of regaining of basic body functions  stated quite that way, but I can definitely relate. I'm guessing then it would be even more profoundly satisfying than the Redskin's victory over the Saints? I can't wait to read about the day of surgery.

Keep up the good work, and speedy recovery to you.

Glen

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Tamu
Veteran Member
Joined : Oct 2006
Posts : 626
Posted 12/18/2006 4:20 PM (GMT -8)
Hey Jay,

Have you looked at how many times this threat has been hit? We know there are many lurkers out there that are getting a lot out of our experiecnes. With nearly 600 hits you should feel good about those that are being helped by your experience. You are definitely doing better then the average other sider. Keep it up!!

Tamu
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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 12/25/2006 7:53 AM (GMT -8)
Good morning all! Merry Christmas to all my Christian friends on the forum. I am long overdue for a post-op report regarding my surgery. This is for good reason.....

 

First, my surgery, while extraordinarily successful, took 7.5 hours! I wrote an email to my surgeon, Dr. Leveillee, asking that he take whatever time necessary to spare the nerve bundles surrounding the prostate. Guess what? He took me seriously! Also, the doc found a "suspicious" lymph node and decided to remove that as well while he had me opened up. When my sister told me that I was under anesthesia for 10 hours, I didn't believe her. My recovery the nexty two days in the hospital was unremarkable. I know I insisted on getting up out of bed the next morning and could barely manage to walk even a few yards down the hallway. But, that is in the past now, it all seems a blur.

 

To cut to the chase, the eventual results of my surgery are beyond good. I regained my continence within 4 days of the surgery when the Foley was removed because it wasn't operating properly. I still have an occassional leak when I cough, laugh, pass gas, but bottom line, the plumbing works. Second, I was able to achieve an erection within a week after the surgery. Thge doc gave me a Rx for some Viagra which I took on Day 8 and sure enough..... BAM, it was there. What a relief!!!! Third, if I felt any better physically, they'd have to clone me. The wounds from the small incisions from the surgery are healing rapidly, though they are annoyingly irritating. I am walking well and largely without any discomfort. Now, all this would have been incredibly positive except for the fact that I was still waiting on my post-surgical report. My doctors office set that appointment up for Dec. 21st, then pushed it back one day to Friday, Dec. 22nd. My buddy drove me to the appointment at the University of Miami Medical Arts building. I had to wait nearly 2.5 hours to meet with the doc because he was in surgery and running late. When he finally came into the exam room, he did some basic exams of the incisions, they had me pee in a cup and then did an ultrasound to see if I evacuated all the uring in my bladder. He was very happy that the urine and sexual function appeared to be in good order. And then, the report.......

 

The post-surgical report could not have been any better. During the surgery, the doc removed a suspicious lymph node.... biopsy negative. No surrounding tissue showed eveidence of any malingnancy. And finally, the biopsy of the removed prostate indicated one malignancy with a 3+3=6 Gleason. Dr. Leveillee, declared me a T2A, about as low on the scale as you can get and still be diagnosed with cancer. We talked more, the doctor, Raymond Leveillee, was fantastic. We concluded the appointment, and as I was leaving it hit me........... my original biopsy in early October indicated TWO malignant tumors on the prostate, the worst of the two was a Gleason of 3+4=7! I was confused. Before leaving, I got ahold of the doc in the hallway and asked him how there could be LESS cancer on the removed prostate than there was from the original biopsy?????? He indicated that the pinpoint nature of the sample needle sometimes shows more cancer than actually exists. Hell, this was incredibly GREAT news, so why question it? Bottom line, he told me the odds that any cancer escaped the prostaste were minimal to say the least.

 

However, that's not I am late in reporting to you all. While I was healing from the surgery, news of the condition of my good buddy Terry got worse and worse. He was diagnosed originally with symptoms indicating hepatitis. Well, it turned out he had a positive cancer test in his liver. And then they found cancer in his esophagus AND his stomach. Even as I was groggy in my hospital room I knew what this meant. To make matters even worse, they eventually discovered the cancer had spread to his pancreas. On the fourth day out of the hospital I violated every rule in the book and drove to see him at the hospital on Sunday night, December 17th. I was still in my freaking pajamas and lied to everyone who told me not to drive in my condition. I knew in my heart that if I didn't see him on that Sunday night, I'd never have a chance to speak to him again. When his step-son called me and told me Terry was awake, I ran like hell to Memorial Hospital in Hollywood to see him. And lucky I did. By Monday afternoon, he was already unconcious. His liver and other vital organs were progressively failing. By Wednesday morning, Terry passed away peacefully, without pain. People, this meant that my buddy Terry went from a picture of health as late as November 10th, to being dead from cancer all in the space of 6 or 7 weeks, on December 20th. I was devastated and yet, I had to recover from my own issues. The wake and funeral pretty much drained any reserve energy from me. The memorial service was held on Friday night. Time has been compressed and the past two weeks since my surgery feels like the space of a day. I joined Terry's wife, my very close friend, for Christmas dinner last night. You can only imagine how difficult this was for all of us.

 

I am exhausted and will stay home all day today doing absolutely NOTHING!

 

Don't get me wrong, I am happy things worked out very well for me. I was in tears of joy with the post-surgical report. But in retrospect I took a BIG chance driving only 4 days after surgery. Please don't do this at home. If I had had an accident, I might have really messed things up. As things were, every bump in the road was an adventure in discomfort. While I am grateful for having seen or spoken to my buddy one last time before his death, it was a pretty stupid thing to do.

 

I meet again with Dr. Leveillee again on February 3rd. I expect to be fully healed and ready for some tennis in another two to three weeks.

 

I am very relieved that all went well........ Based on my experience I would heartily recommend the DaVinci robotic proceedure provided that surgery is called for in your individual case.

 

Talk to you more later.

 

 

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sjr
New Member
Joined : Sep 2006
Posts : 7
Posted 12/25/2006 8:41 AM (GMT -8)
Jay, so happy for you and sorry for the loss of your very close friend. Guess we now have a new perspective having had such good results yet seeing others not so fortunate.
Seven and a half hours seems extreemly long, but the results are great. I go tomorrow for my 3 month look at blood work.
Steve
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 12/25/2006 12:41 PM (GMT -8)
Dear Jay ~   What a heartfelt posting ……… Thank you! …for sharing ~ with all of us.     Isn’t it amazing that Terry helped you research your cancer…. not knowing he was educating himself at the same time.   It was meant to be that you visit Terry near the end... You needed to be there and he needed you there!!   And you know what!!!   Everything worked out just right… so let it go.   It was meant to be!!!   This was a stone that was placed in both your paths at the same time and having helped each other onto that stone….says so much!!!     There are so many different stepping-stones in our lives.   Taking each one as it comes makes the life we have…. What it is today!   You and Terry helped each other over some slippery stones and it’s special that you were there for each other.   This is a blessing my friend.   You need to take extra time to heal & recover physically and emotionally….. so give yourself that extra time.   I truly can relate in the time frame with Terry’s health going down hill so rapidly.   My mom got sick at the end of July and passed away in September (7 weeks) as quickly and the same as Terry.   Our thoughts and prayers are with you, your loved ones, and friends….   Thank you for sharing your surgery updates…   you really are doing GREAT!!!!        Continue on the path of healing/recovery.   Keeping you close and know that you will be a great source of comfort to Terry’s family.   As they in turn will help you deal with this loss also.   In Friendship ~ Lee & Buddy
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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 12/25/2006 7:54 PM (GMT -8)
Dear Lee and Buddy....... thanks so much for the comforting words. If I had only to deal with my surgery alonee, this would have been a breeze. The thing with Terry was just too much to handle for me. I am indeed going to kick back a little this week and try to enjoy New Years, health permitting.... Jay
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 12/25/2006 8:42 PM (GMT -8)
Jay ~   It truly is time for you to concentrate on your healing/recovery period…     Good things come to good people.   You are being rewarded with a wonderful recovery period…..     With all the stress ~ if you backslide a little in this department…. Just take a deep breath and know that time is a healer in all areas.... Physical & Mental......   Hopefully this won't happen.... but if it does…   don’t panic!   As the little verse below states….. find a few shoulders to lean on and hug them too!   When you hug someone…. You get hugged back ;)   Remember to lean on us because you may have some dark days try to slip in…. don’t let them….     Remember Terry as a Rainbow….   He would like this I’m sure.   And remember tears are good ~ so don't hold them in my friend....     Somethings…   There are no words for ~ Only shoulders to lean on… And “hugs” to comfort you as best they can… Holding You Close in Thoughts and Prayers
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Tim G
Veteran Member
Joined : Jul 2006
Posts : 3052
Posted 12/25/2006 9:08 PM (GMT -8)
JayMan,

I am so sorry to hear about the loss of your friend.  I'm glad that you were able to see him before he died.

And congratulations on the wonderful news about your prostate cancer surgery and recovery! 

Tim

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M. Kat
Veteran Member
Joined : Jul 2006
Posts : 715
Posted 12/26/2006 4:42 AM (GMT -8)
Jay, what a roller coaster of emotions you've been on! my heart goes out to you and Terry's family. and my hands are clapping and face beaming to hear how well your recovery is going. like you said, relax this week and enjoy life. there is a reason all of this happens, we just aren't always in the loop of knowing. kat
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Pete trips again!
Veteran Member
Joined : Nov 2006
Posts : 1899
Posted 12/26/2006 8:20 AM (GMT -8)

JayMan, It's been a pretty rough time for you. I am so sorry to hear about your friend. You were a true friend to go see him in your condition. Now you must take care of your self, I'm sure your friend would have wanted you to get healthy again ASAP. The world is a crazy place isn't it?

Sincerly,

Your friend, Pete

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spinbiscuit
Veteran Member
Joined : Apr 2006
Posts : 818
Posted 12/26/2006 9:49 AM (GMT -8)

Hi Jay,

I was glad to hear you have done so well, and that your original diagnosis was down graded. What a blessing. At the same time I'm very sorry to hear of your dear freind Terry's passing, and I offer you my heart felt sympathies. Please pass along our condolences to Terry's Family.

Glen

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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 12/26/2006 1:59 PM (GMT -8)
Thanks Pete... really, the recovery from the surgery has gone incredibly well. I am very grateful, but for the loss of my buddy. I am trying to help his wife who, while a strong woman, will have a tough time adjusting to his sudden departure.

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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 12/26/2006 2:02 PM (GMT -8)

Hi Tamu,

If anything that's been mentioned in this thread has helped prostate cancer survivors, I am happy. I consider myself one of the luckiest SOB's alive in that my healing has gone so well. My doc attributed to the fast healing as me having good "protoplasm".... hehehe

Had it not been for my buddy's death, this would have been a breeze. Well, except for the first 4 or 5 days.

Jay

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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 12/30/2006 4:59 PM (GMT -8)
Jay ~ Thinking of you and just wanted you to know! In Friendship ~ Lee & Buddy
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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 12/30/2006 8:01 PM (GMT -8)
Lee & Buddy, Thanks so much.... will have much more to write about shortly.... Jay
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Pete trips again!
Veteran Member
Joined : Nov 2006
Posts : 1899
Posted 1/3/2007 12:35 PM (GMT -8)
Hey JayMan!!! Happy New Years!!!
Were have you been hiding? How are you doing? Making progress? Playing tennis yet? When are we going to meet for a lunch or something???
Your S. Fla. Bud,
Pete
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JayMan56
Regular Member
Joined : Oct 2006
Posts : 61
Posted 1/3/2007 2:53 PM (GMT -8)
Hi there Pete!!

 

And.... to all of my Helaingwell buddies...... Happy NEW YEAR!!!!!!

 

Well, I'd have to say things are coming along swimingly. I biding my spare time by catching up on catalouging my photo files on the computer. Also, I am helping my buddy Terry's family cope with his loss. Other than that I am keeping out of trouble while I continue to heal. My friends and neighbors are coming around and keeping me occupied.

 

I admit I have to take some kind of pain killer in the evening as my lower abdomen acts up every now and then, but all and all I am well. I know I can't do anything terribly active as yet, but I figure I'm about a week to 10 days away from doing some hitting of the ole yellow ball. I am fighting off the leaking I get when I pass gas, laugh or cough. I am doing the Kegal exercises for that.

 

Pete, I'll call you and make arrangements for a get-together over lunch or dinner one evening.

 

Love ya all!!!

 

Jay

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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 2/8/2007 9:05 PM (GMT -8)
Hi Jay,   After reading the following on a different post…. Depression Following Prostate Cancer Surgery Partial Quote from Jay… The good news is that I've met with my surgeon for my one-month post-surgical meeting. Blood tests indicate a PSA of 0.1 and that's supposed to be good, right?   *&^%$#@     WOO HOO!!   (*&^%$#   undetectable!!!!!!   Go back and re-read that report again and again…. It better stir the blood!!!   This is a big thing and you best give it ~ it’s due in celebration!!     Our gift to you is...                                                                             and it is a gift we don't mind you returning                                ~~~~~~ G r o u p     H u g   ~~~~~~                                                 from the 3 of us!                                             Lee, Buddy, & Murphy     You’ve had a lot come at you during your diagnosis and surgery time and recover/healing.   You are allowed some extra time to heal mentally and physically…   so please take it..   Time is a healer in more ways than one.   Please take care of you!!!!   Partial Quote from Jay By every measure I've apparently beaten the Prostate Cancer, and I should be elated, but I'm not in the slightest... something is missing. I have sought the help of a counselor and I am hoping that will help in the long-run.   I’m thrilled to hear you’re reaching out for outside help!!!   This is a good thing.   Partial Quote from Jay and my "Mojo" ain't what it used to be. I am having difficulty imagining what a healthy woman would want with a man who can't achieve a full erection for more than a few moments.   Stop imagining it or it will come to be…. Negative thoughts lend to negative responses… Here’s something to think about !!!!!   My sister (widowed 4 years) just met a gentleman (widowed 2 years) and he was concerned about his MoJo… and he hasn’t had surgery!!!!!   She told him to get over it… ‘cuz they were going to have fun together.   Come to find out…. He likes to cuddle too!!!!   And they just came back from his 1 st cruise and her 17 th .   The best one out of the 17 for her….. So ~ get well and when the right lady comes along….. she’ll take you as you are.   Mojo or ½ Mojo or NoMoJo…. And if not ~ move on…..   The secret is to stop wanting a relationship so badly…. And it will happen without your realizing it.     J Remember this??   I hope so!!!!   It is still here for you!     There will always be rainbows…. Sometimes we just have to move the darkness away to see them…   We will be there to help you find both.   ~~~~ sunshine ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~ r a   i n b o w ~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ sunshine ~~~~~~   This rainbow was made just for you!!!   Take one-day-at-a-time….   Let this be the gift ~ you give yourself…   Our thoughts and prayers remain with you…. In Friendship ~ Lee & Buddy
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