Radiation Treatments

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Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 12/11/2006 4:04 PM (GMT -7)   
Hi All,

I saw my doctor last week and he stongly suggested that I have radiation treatments after I've completely healed from my surgery (11/3/06). My post operative pathology report noted "right apical margin focally positive". I've got an appointment with a radiologist 12/20. I assume I'll have 6 weeks of treatments - what am I to expect through this process - side effects, etc.?

Ken

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/11/2006 4:25 PM (GMT -7)   
Ken,

I had surgery and no need for follow up radiation but if you have not already been there go to www.yananow.net and click on Mentor Experiences. Then scroll down the page and you will see a section on radiation. You will find the stories and experiences of men that have either radiation instead of surgery or radiation after surgery. I am sure that others on tyhe forum ith more knowledge of the side effects will be responding.

Good luck!

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear


slls
Regular Member


Date Joined Dec 2005
Total Posts : 38
   Posted 12/11/2006 4:55 PM (GMT -7)   
After my RP I did not go on radiation until my PSA went above point 2, it took 2.5 years. In Boston they do not treat until treatment is needed. Do you know your PSA after surgery.

Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 12/11/2006 6:08 PM (GMT -7)   
slls,

I'm right down the road from you, Providence.
My PSA is 0.1 but my doctor wants me to see the radiologist to go over my options - I think he feels we should nip this in the bud. He said it's basically a crap shoot. So I would rather err on the side of caution.

Ken

bernieboy31
New Member


Date Joined Dec 2006
Total Posts : 10
   Posted 12/12/2006 10:36 AM (GMT -7)   

Hi Ken,

 

MY PSA was 19 and Gleeson 4+3 and I had RT in the UK last year and no major surgery. Although I did have a TURP to help me pee as peeing was darned painfull.

 I expect that the treatment for you will be the same - Mon to Fri for 6 weeks. Takes 20mins max per visit. I am lucky as can work from home so drive to the hospital, get "zapped" and back home in no time at all.

The initial visit is crucial as they measure you up so that the RT is mega accurate.  I had small Tattoos on each side and front for lining up the lasers on the RT equipment. (They have since worn away.) 

Skin care is essential during the treatment to stop you getting burnt. I had no side effects at all except PSA went down to 0.1 due to the RT and the 3 monthly hormone jabs.  Some guys did suffer a bit with "D" - cant spell diorrea  :-) but the radiologist should explain all the possible side effects. 

I admit that I am a bit surprised that this is being offered with your PSA being so low. I would have thought that a "watch and wait" strategy would have been the best option but I am no Oncologist - they are the experts.

Since last year PSA has gone back up to 10 but after bone scan and a full MRI nothing untoward so I am now in the "watch and wait" camp with monthly blood tests and visits to the oncologist. No pain at all and peeing as good as ever.

Hope that helps

Cheers

Bernie

 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 12/12/2006 4:41 PM (GMT -7)   
Ken-

My PSA was 26.5 and Gleason 7 (4+3). My experience was the same as Bernie's. Only diff was that, although they warned me of severe diarrhea, I became constipated and still am. No biggie - I just take a couple of OTC pills each day. No fatigue or anything else.

-Gordy

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/21/2007 6:31 PM (GMT -7)   

Hi~ Ken,

 

I see where you’ve only posted 3 times…. since December 11th.

I hope you are still with us!!!    As time permits ~ we hope you’ll re-join us!

 

                 Sending a “Warm Welcome” …to You!

 

I know we can “all” make your journey smoother just by being here for you! 

This is a great forum!!! which you joined… so hopefully you’ll come back soon.

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!    Hope to hear from you soon… 

 

Working together and making this a team journey will make you both stronger in every area of your life!!!

 

              “God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

 and guide you on your way.

 

Take care and know our thoughts and prayers are with you.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

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