Biker90's Cancer Summary

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biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/12/2006 12:16 PM (GMT -7)   

Cancer Summary

 

History:  My father died of prostrate cancer in 1985 at age 81.  I was 51 at that time and began having annual PSA tests with my yearly physical exams.  All was well until August 2006 when my PSA jumped from 5.1 to 7.1.  The first biopsy in September showed some suspicious areas so a second test was done in October.  The results on 11/3/06 showed a T2B cancer.

 

Plan:  My wife and I decided on RRP.  This decision was reached considering that surgery was the fastest and surest way to get the cancer gone.  We decided that a few weeks of discomfort followed by the possible incontinence and impotence was worth the risk.

 

Surgery:  RRP was performed on 12/7/06.  The lymph nodes were clean and the surgeon saved nerves.  I was in the hospital for two days.

 

Pain:  The anesthesiologist  put some morphine in the spinal and I had absolutely no pain for the first two days after surgery.  I took hydrocordone on day 3 and day 4, then nothing from then on.  The problems with morphine were a lot of itching (relieved with frequent body rubs with lotion by my dear wife)  and vomiting during the first day after surgery.  These problems were gone by day 4 but I had severe drug withdrawal (monkey on my back) for about 3 hours on night 4.

 

Emotional:  The days spent waiting for the results of the second biopsy were the most anxious of the whole process.  On that day the doctor said I had cancer but that my outlook for longevity was excellent.  From then on, I have had no fear or anxiety about the process or outcome.  (Probably a holdover from my “bulletproof” days.)  But more than that, the support from the HealingWell forum and the prayers and support from my family, friends and neighbors have been invaluable.  While I was being prepped for surgery, Fr. Michael from the hospital chapel administered the prayers for the sick.  I felt a great surge of confidence and carried it into the operating room.

 

Future:  The staples and catheter come out tomorrow, 12/13/06.  I feel strength in my sphincter and look forward to regaining continence soon.  The catheter has caused no problems at all but “carrying the bag” is not my idea of a great way to live.


Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP performed on 12/7/2006
Lymph glands clean
Both nerves intact


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/12/2006 1:38 PM (GMT -7)   
Hi Biker!
So glad your outcome is so great! You sound so strong and healthy. Your wife sounds like an angel!

Please keep us posted as you continue to recover. All the best to you both.

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


mickeyboy
Regular Member


Date Joined Nov 2006
Total Posts : 56
   Posted 12/12/2006 2:29 PM (GMT -7)   
All the best to you my friend, i wish you well with your recovery. Stay positive and look forward to getting back to a normal life. I myself get the results from my 4th biopsy tomorrow 13.12.2006 after already being told i have PC, now they have asked for a second opinion ( hence 4th biopy ) , been waiting 2 weeks for tomorrow, fingers crossed. My father also died with this disease when he was 70, ive been tested since i was 40.
Mike 48 ( London Uk )

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/12/2006 5:07 PM (GMT -7)   

Wonderful thread with great information...~ thank you!!!!!  Biker90

I’m glad you’re checking the other thread…

 

So glad Hang has been good to you.  One day at a time…. Friend! 

Take care and know we keep you close.

 

In Friendship ~ Lee & Buddy

 

~If you are reading Biker90’s information for the 1st time…the beginning of Biker90’s Journey began on the following thread:  Biker90' Page.... Welcome New Friend :) *started by Bluebird

(*mentioned this ~ in case you look for it through Started by:  and down the road they get separated)  J


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


Dougroc
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 12/12/2006 5:27 PM (GMT -7)   
Good on you Biker 90! Withyour attitude and fortitude you will be back on that sportster in no time. Ride on and Ride Safe!

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 12/13/2006 6:56 AM (GMT -7)   
Hi, Biker90. Remember to still take it easy - even though the cath removal is like a new lease on life in itself!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/13/2006 7:06 AM (GMT -7)   
Hi GreenAcres, Dougroc, Mickeyboy, Bluebird, Lawink and all,

Been up since 4:30 am. I got all tangled up in the tube so just got up and changed to the leg bag and realized that this was the last night with the exterior plumbing. Phew........... So I'm sitting here listening to The Carpenters old recordings on the internet. Karen Carpenter died young. She fought anorexia (sp) for years. Makes me so grateful to have something that can be cured.

Soon it will be time for breakfast and then off to get liberated....................

Thanks for all the support and see ya later.

Jim
Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP performed on 12/7/2006
Lymph glands clean
Both nerves intact


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 12/13/2006 10:27 AM (GMT -7)   
Jim, everytime I hear Karen Carpenter sing the Christmas songs, I'm saddened by the way she died. yes, we have something that can and is cured! enjoy not having hang around.....kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006
2nd post-surgery PSA test 0.1


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/13/2006 11:53 AM (GMT -7)   
Thanks Kat and all,

Just got back from the Dr. and the catheter and staples are gone, gone, gone! What a relief.....

The path report is the best we could hope for. Cancer completely confined to prostate so it went out last week. Pathological stage stayed at T2B and the Gleason went from 3+3 to 3+4. I am so glad that we chose surgery and got it over and out of our life so soon....... First PSA will be on 1/3/2007 so will hope for "undetectable".

Now to the Kegels and regaining control - this starts tomorrow.

During the month between being diagnosed and the surgery, I had time to reflect on what was important in my life and, as would be expected, have rearranged things somewhat. The little things that I overlooked for 72 years suddenly have taken their proper place in my life. The smell of a winter morning, the poem one of my sons wrote for me (I still can't read it with dry eyes), hunting with my other son (he gets the deer, I just get to carry a gun in the woods), my daughter's (both of them) smile, my dear wife's (of 51 years) sweet kiss.
These things now replace the thrill of going balls out and pedal to the metal in everything that I do. Cancer did this for me but I would never have realized it but for the support of this forum, my family and friends and all the staff at the hospital and Dr office that helped show me the way.

Thank you all so much,

Jim
Age 72
Diagnosed on 11/03/2006
PSA 7.05
Gleason 3+3 on both sides
Clinical stage: T2B
RRP performed on 12/7/2006
Lymph glands clean
Both nerves intact
Catheter and staples out on 12/13/2006
Pathological stage: T2B
Gleason 3+4
Cancer confined entirely inside prostate
First PSA will be on 1/3/2007


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/14/2006 4:56 AM (GMT -7)   
Biker, what a great additude!
I can learn alot from your words, thanks. Just take it easy for awhile and you'll be back to normal before you know it! Congrads on joining the "otherside club" Your words and experiance will be of great value to other newbies here. Keep writig!
Your friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/14/2006 9:43 AM (GMT -7)   
One week after surgery and one day after the catheter removed.

I'm wearing my regular clothes and using a pad in my shorts. Had 3 small leaks yesterday and nothing since then. Doing Kegels as perscribed by the doc. No pain and no medication since since 3 days after surgery. Drug withdrawal from the morphine is letting up and have not had the "monkey-on-my=back" in the last 2 nnights - just some emotional flashbacks now and then.

Please keep propping me up folks - I need all the help I can get............

Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/14/2006 12:27 PM (GMT -7)   
Biker - sounds like you are doing really well! Sorry about the drug related withdrawals . . . must be annoying if anything. Way to go on the "small leaks" . . . . Bob had his surgery September 27th with catheter removal a week later which was followed by gushing and many many leakages. He is now down to one pad per day with only small leaks, BUT we are at the 11 weeks post surgery point. This too is normal, but your experience is GREAT!!

Keep us posted!

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


JayMan56
Regular Member


Date Joined Oct 2006
Total Posts : 61
   Posted 12/15/2006 1:58 AM (GMT -7)   
Jim,

Well my friend... looks like we're in the same boat.... I'm just a few days behind you. If I can just expel the gas pocket that's in my abdominal cavity, I'll consider that a major accomplishment...... more later.

Jay
  • 56 year old male, divorced
  • Diagnosed: 10/12/06
  • Two of twelve samples contained malignent cells, Gleasons: 3+3=6, 3+4=7
  • Last PSA as of 11/5/06: 2.3
  • ReScheduled a DaVinci Robotic procedure for December 12th, 2006
  • In control, but partially terrified about the future
  • Click (or paste) this link to watch the DaVinci Procedure: http://www.or-live.com/ShawneeMission/1664/event/webcast.cfm?


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/15/2006 7:30 AM (GMT -7)   

Post-op day 8, post-cath day 2.

Still dry. No leaks since 8 hours after the cath came out so I am going about in "street" clothes today.  I will risk it.  My biggest fear in this whole ordeal was that if I survived, I would have to wear diapers the rest of my life.

Reading your posts was the biggest help in this area for me.  Thanks  for being here.........

Jim


Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/15/2006 9:06 PM (GMT -7)   

Jim ~

I’m sure you didn’t overlook the things you stated….  They’ve just become more precious with the thoughts of losing them.

How lucky we truly are…. We’ve been diagnosed, we’ve made our decisions toward being 100% cancer free, and we continue on with our lives.

But we are changed and we are changed for the better!!!!!  The flowers truly are brighter, the smells truly are stronger, and the loves in our lives truly are LOVED!!!!

How lucky we truly are!!!  To have a path we can follow ~ that others have traveled and are willing to share their experiences to help smooth our way.  How lucky we truly are!!!!

Wonderful news in your postings…. Thank you for sharing!!!!  Taking-one-day-at-a-time and enjoying each and every moment. 

This stepping-stone is a stone where we have to listen to our body….. it will tell you what it needs….  

Our thoughts and prayers are with you!!!!!  Take care friend….  Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/16/2006 9:18 AM (GMT -7)   

Thank you so much, Bluebird for your beautiful words.  Every so often throughout my life I have had experiences that caused me to pause and, once again evalutate the things that really important.  This was one of those times.  I have always feared and hated the word "cancer".  I cannot say that I am at all grateful for having cancer but once again having the opportunity to get my priorities straight and get my attitude readjusted are great side effects.

For a few days during the time between diagnosis and surgery, I considered dieing.  Was I ready for that?  I had never really seriously asked myself that question before because it always seemed so far in the future.  Facing that fear and overcoming it gave me confidence that it wasn't going to happen now.

I have learned that the single most important resource to carry into a difficult situation is a positive attitude.  Once the decision to go for surgery was made I felt a great sense of confidence that the outcome would be good.  It has been better than good, it has been great.

Thanks again and see ya........

Jim


Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/16/2006 9:28 AM (GMT -7)   
Jim,

I found your comments concerning the thought of dying after the biopsy to hit home. I have to say that I too went through the process of considering my death and after a couple of weeks and the help of others including this forum I realized that I was not afraid of death but that I was not going to die from prostate cancer. That got me going again and the positive attitude built and is still there today. I do not like the fact that I am different then before but I accept it and do not let it get me down. All I have to do is play with my grandson and know why I chose surgery and any complications as a result of it. I know that I got the best Christmas present I ever had when my cancer was contained and is gone.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/16/2006 4:36 PM (GMT -7)   
Post-op day 9, past-cath day 3.

Still no floods, no leaks and no drips. I threw out the remaining pads and diapers this morning as a gesture of dedication to continence. Doing Kegels as prescribed by the doc. (5 reps of 5 secs on and 5 secs off, 10 times a day, on the hour from 6 am to 4pm) The time of day is mine not his. Did my daily stretching excercises (for arthritis) and my daily walk. It sure feels good to get back to a routine again.

I drink lots of water because peeing feels so good. This is a side benefit of getting rid of my oversized, lumpy prostrate. I keep discovering small pleasures that I had taken for granted or overlooked entirely.

My wife came down with a nasty virus that hit her lungs. Had to take her to Urgent Care last night. They gave her some breathing treatments and some medicine and she is getting a little better today. She took such good care of me, now I can take of her.

See you all later.........

Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


geobet1
Regular Member


Date Joined Oct 2006
Total Posts : 54
   Posted 12/16/2006 5:10 PM (GMT -7)   
Jim - Really glad to hear that you're doing so well. Looks like we both crossed the finish line together doing really well. Take great care of that wife of yours. Like mine, she was there with you through all you went through. Treasure her!

George
        Age 59 -  psa 2.5 to 4.5 in 11 mon.
 9-17-06: DRE - enlarged prostate & nodule L/S
10-10-06: Biopsy
10-17-06: Biopsy Report: 3+3, 3+3, 3+4 
10-30-06: CT & Bone Scan - OK
11-13-06: 2nd CT & chest X-ray - OK
11-28-06: Physical Therapy - Intro to Kegals
11-30-06: Pre-Op for Surgery
12-06-06: Robotic surgery
 
Cancer is what we HAVE
"Cancer SURVIVORS is who we'll be!!"


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 12/18/2006 6:40 AM (GMT -7)   
Jim, so glad to hear you are doing so well. take good care of that wonderful wife of yours. I love your attitude - you sound a lot like my Jeff! kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1
no more pads Oct 12, 2006
2nd post-surgery PSA test 0.1


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/18/2006 8:09 AM (GMT -7)   

Thanks George and Kat,

My wife is lots better today and we both are doing fine now.  I got rid of the baggy clothes yesterday and started wearing my regular pants and belt.  The incision hurts a little when I bend over the buckle but it feels so good to be back to normal.  Still no incontenence and I'm going to stay on the Kegels until 1/3 when I go in for my first PSA

This whole experience has brought my wife and I lots closer together.  After 51 years of marraige this little bump in the road will be just one more opportunity to strengthen our relationship. 

See ya later.......

Jim


Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/18/2006 9:04 AM (GMT -7)   
Glad to hear you are doing so good! I have a suggestion for you. I haven't wore a belt since my surgery, I hate the way the belt buckle pushes against my scar. I'm a certfied suspender man know! I don't care what anyone says, It's the only way to go! There is always one wiseass who likes to pull back your straps and let go, but other than that, There Great! and come in all colors and styles. Try them!
Your Friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/18/2006 3:03 PM (GMT -7)   
Yeah Pete, I wore suspenders for a few years quite a while ago. I'll go back if the belt gets to be too much. Its better today, went shopping and did fine. It just feels so good to be in my regular clothes again. The bath robe and baggy pants just kept telling me that I'm sick. Now, I'm well again.........

Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/19/2006 12:40 PM (GMT -7)   
Post-op day13, post-cath day7

Had a small leak when I sat up, just enough to feel it, didn't get any thing wet. I had been doing Kegels and decided to do more in order to hurry the process. (If a little is good then a lot is better, right? Wrong!)

No pain.

I started working on getting my limited pre-op potency back. I had ED before and was using Levitra. Doc told me to keep using it. Nothing yet. The posts on this forum are helpful in assessing options.

See ya........

Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007
 
"I have cancer but cancer does NOT have me."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/19/2006 1:04 PM (GMT -7)   

Hi ~ Jim,

Thank you for keeping your updates coming in….  You found out that the little sphincter muscle can only take so much…. and then he lets you know to slow down… right!!

51 years of marriage is a true journey in itself…  You are so right about being there for each other.  I’m happy to read where your wife is doing much better.  I hope she continues to improve.  Please give her a “HUG”….. from us  tongue

And you sound like a new man!!!!  Can you believe it’s been 13 days!!! Since surgery!  You are doing GREAT!!! 

It’s truly been an amazing journey ~ this prostate cancer.  I say the word out right because the more I say it ~ I realize it’s just another word.  It is a disease that is curable if caught early so we are truly one of the fortunate ones.  Jim ~ I look at us being in our 50’s and you being in your 70’s…. and realize that each day we wake to a new dawn is another day to cherish.  We are not promised tomorrow so enjoy today.  And if this disease has helped put priorities into place…. We are better for having it.  It is one of many stepping-stones that are placed in our path…. and there’s a reason for it!  Having a positive attitude is such a strong source of healing…… yeah Take care dear friend and it is always a joy to read your postings and see the positive attitude that shines through.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable

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