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ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/18/2006 7:05 PM (GMT -7)   
New kid on the block.
 
I was diagnosed with prostate cancer in October of this year 2006. Biopsy report was gleason 6.
I chose to get the radical prostate and lymph node removal. This was done on Nov. 30 of this year.  My pathology report came back clean, praise God!!! No tumors, no margins to set. Gleason score of 7. All cancer was contained in the prostate.
 The foley was the worst, big time pain coming out. only for about three minutes. I am able to hold my urine over night, meaning i have to get up to go, but there is not any leakage. Daytime is a little different, so far i use three pads a day. l do kegels on a daily basis. Like about 50 a day. I am 64 years of age. I hope this will help someone that is questioning the radical surgery, for me it was the best route to go. Early in April of this year i was diagnosed with testicular cancer, prostate cancer, and a mass on my pelvis. Let me tell we serve a 'Big God, one who is bigger than cancer, it has been a tough ride for the past eight months. But all is well, testicular cancer is cured, gone!!!!! Chemo and a lot of prayer, then the next hurdle was the prostate cancer, now that is gone!!! Do not get discouraged, do not giver up, there is always hope!!!
 
 

Post Edited (ed from pa) : 12/18/2006 7:10:23 PM (GMT-7)


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 12/18/2006 8:02 PM (GMT -7)   
Hello Ed,

Your cancer story is one of the more amazing to date. It is truely wonderful to hear how you've been able to overcome so much in just 8 months. You have been blessed, and I'm glad that you can share this with us. Many others will be able to draw strength and reassurance from your experiences. We will look forward to hearing more as you continue the healing process.

I hope you and your family have a very Merry Christmas, and a Happy New Year.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 ot 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 12/18/2006 8:12 PM (GMT -7)   
Ed-
Thank you for sharing your story. You have truly been through a lot and have been blessed to have come through it so well. You are right-God is the biggest of all..bigger than cancer...and there is always hope. Thank you for sharing that with us as a reminder. I am going through advanced PC with my precious daddy whom I love dearly...and know this is true. The doctors can't say there is no cure.... I believe in Miracles :) May God continue to heal and bless you!

Lisa

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/18/2006 8:12 PM (GMT -7)   
Holy Cow Ed!!!!

When you do something you do it big! Glad you're doing so well.

Swim

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/18/2006 8:18 PM (GMT -7)   
Thanks Ed for sharing your story. So glad to have you with us and so glad the big "C" is out of your life!

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 12/18/2006 9:25 PM (GMT -7)   

Good to hear from you about your prostate cancer journey.  I'm surprised that you got testicular cancer at your age--that's usually a young guy's cancer.

Best to you and hope to hear more from you here.

Tim

 


Age 58 PSA 2.6 Gleason 5
Bi-lateral nerve-sparing RRP 6/21/06
Cancer confined to prostate 3-month PSA non-detectable


ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/19/2006 12:18 AM (GMT -7)   

Hey Tim, I am a young guy! I just want to thank all of you on this forum, because i have been trolling here for the past few months. And you guys and gals have really gave me hope, not knowing from doctor visit to doctor visit what to expect next. Again, we serve a Big God, a God of Hope. It would be selfish for me not to tell my story. As you all know, you cannot go the journey by yourself.

I have one terrific wife, one of forty years. She walked with me every step of the way, my five children who are from 30yrs to 40yrs travlled the road also. We are a tight family, now we are a lot tighter!And now I have all of you in my family, Thank You.

Do not ever forget we serve a God of Miracles!!!! Back in April before my diagnoses of all this mess, I had just purshased my first brand new car, that was in March. the other car we had let my wife sit five times in one month, it was a ford tarus, not a bad car, it was purchased in 1994, it was a 1991 model. So all my children got together and myself and financed this car. Low and behold i start having problems with my right testical. This was on Good Friday, so I knew that i knew that i had to see a doctor and see one fast. I got an appointment that day, and the Doc said I must see a specilist, just to be sure everything is ok. Well the doc got me a specilist for the following week which i thought was a miracle. So i go into the office and the uro-doc checks me out and says, yep that has to go! So I said, Lets do it asap! The uro-doc say no, we are going to put you on antibiotics for a month,just to make sure it is not an infection. I said, No way uro-doc, we either get this out next week or i go to a different uro-doc. You just told me it has to go, now you tell to wait a month or more. cancer is a killer and it is coming out ASAP!!! That same day the uro-doc sent me to the hospital to get all these test done, ultrasound, cat scan, chestxry, and who knows what all else. this was a tuesday after Easter, Thursday the same week we meet with the uro-doc to get the diagnosis. Now for what reason i have no idea, but his nurse sits my wife down and hands her a clip board, and i sit next to the docs desk. the doc sits down looks at the test results of the tuesday before, and starts reading. Ed you have testicular cancer, you have prostate cancer, you have a mass on your pelvis, you have blood in your urine, you have possible lymphoma. Well with all of that my wife just about fell off the chair, forget the clip board! The uro-doc said we will remover the testicle the following tuesday. So my wife and i left the office, heart broken, in tears, not beliving what we just heard, the death sentence of cancer. How many bullets can we dodge. We had to driver about twenty miles back to our home in Lebanon, and on the back we cried and prayed, I told my wife that we serve a Big God, a God who is over cancer, and there isn't one problem He cannont handle. Jesus Christ is Big C, cancer is little c. and we do not bow to cancer.

I just want to tell you about our first miracle in this little blog. My oldest daughter who is a nurse already had the results of the hospital tests and told us things do not look good.

I notified my employer and told him i would be off for i do not know how many months, but i would be back. I received no pay the whole time i was off. That was a real problem in my mind. You see, we always think we have to be control of everything. This is the nature of the beast. Not this time, ed was in control of nothing. After the operation, the uro doc told me i have to see an oncologist, and he would be in Lebanon's Good Samaritan Hospital, this guy is awesome, what a saint. The following tuesday we had our appointment with  him. He came in the room, checked me out, reviewed the exrays and biopsie report from the testicle that had just been removed. and said, ed you have testicle cancer, you will die in six months if not treated. we have chemotherpy that will cure this disase, it is your choice. I said to the Onco-doc, lets get it done, lets start asap. He said i would have to wait until my insicion from my operation was healed, so we started chemo in May of 2006.

My first day on the cancer ward was very scary, only other people get cancer, what am i doing here??

In this hospital one nurse is assigned to you for your whole chemo treatment, which for me would be 13weeks, 5hours a day 5days a week, 1hour a week on the off week, then back to 5hours a day for five days. so i walk into the room and i am met with an angel (my nurse) she says to me,"ed we are going to hit you hard and furious", I said lets get it done. and for the next 13weeks i went through a living hell, to say it mildly. I had to travel everyday to get these treatments. I was about three weeks into it and i am lying in bed, just miserable, and wanting to die. thinking about my bills, the new car i just bought, which now i am saying i shoud not have bought. It was 9:30 on a friday night i get this phone call. It went just like this, "Hello my name is Mickey, I understand you have cancer, i know you are without a paycheck, and have a few bills to pay". I have know clue who this Mickey guy was!!! I do not know anyone by the name of Mickey! Mickey proceeds to tell me that he will cut me a check for $1000.00 now, and give me $350.00 in Giant food gift cards. I jumped up and said What!!!!!!!!

I do not even know you Mickey, I could not even pay you back, Mickey's reply was this,"Ed i know what you are going through, you never missed a day of work in your life. You are not suppose to pay me back" then i said I do not even know you, Mickey again replys back," you are not suppose to know me, this is about Faith, Hope, and Love"! "And I will send you a check for thousand dollars a month for as long as you are off from work". Mickey had sent me a check every month for 5months until i could go back to work. Listen everybody, we serve a Mighty, All Knowing, All Powerful God. He is The Good Sheperd, He is A Good Heavenly Father. I belive we are put  in these situations to get closer to Him, He loves us and wants to take care of us. to be continued

 

 


Post Edited (ed from pa) : 12/19/2006 12:27:12 AM (GMT-7)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/19/2006 5:36 AM (GMT -7)   
WOW!!! What a great inspiring story to read 1st thing in the morning! Ed you are quite a lucky guy! So much love and faith. WOW!!! I can't wait for the rest of the story! It makes me want to get up and scream I'm so glad to be alive! and because of BIG JC, I am! Thanks Ed for sharing with us. Please stay with us, we need guys like you!
Your new friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/19/2006 11:44 AM (GMT -7)   

Dear Ed ~

 

Sending a warm welcome to you…. I’m so happy you’ve joined us!!!

 

Thank you for sharing your heartfelt story.  What a gift of love and caring… from a guardian angel.  That’s what giving is all about…. 

 

Your story needed to be told…. Thank you!!!  Now you are a giver ~ of love and caring to others. 

 

Your positive attitude is very contagious!!!   :-)   And this type of attitude is so important for the healing/recovery period.

 

I will say that I for one am so happy with the new car. Enjoy it and don’t ever think you shouldn’t have bought it ~ it was meant to be!!! Imagine you and your wife being stuck on the side of the road after a treatment!!! 

 

"GOD Bless You"

 

It's a little prayer "GOD Bless You"...

but it means so much each day,

It means may angels guard you

and guide you on your way. 

                                 ~author unknown~

 

Take care new friend!!!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… 53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

April 3, 2006   PSA 4.6   Gleason  3+3=6  T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/19/2006 1:23 PM (GMT -7)   

Amen to getting stuck on the side of the road, i have thought about that one. Thank you Bluebird for your kind welcome. This forum is a blessing to me.

 

ed from pa


ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/19/2006 2:26 PM (GMT -7)   

to be continued- It was over the fourth of July when my wifes mom had passed away. I told her she must go to the funeral, i will be okay. My wife stayed overnight because the trip was about 140miles one way. That night i lay in bed just miserable, sick, crying out to God. Where are you Lord! You hear people that are sick and dying that God is right there with them. At that moment the Lord recalled in my memory 40years ago. My wife and i use to go to mass with her mom an dad during the week. This one morning we went. Sat about 5 rows back from the alter railing. The priest was saying the sermon, and was reading from a piece of paper, the paper started to wave up and down and sideways. I immedietaly got out of my pew, leaped over the alter railing and grabbed the elderly priest by his waist and the back of his neck and gently lowered him to the marlble floor. The Lord showed me that He will never leave me or forsake me, and never let me go. This is what I am doing for you, as you did for that priest. The priest did have a stroke. At that point i started to cry, realizing He is always with us, always.

I ended chemo treatments in late july, took my last cscan. went to consult with my onc-doc. He said there was a small residual left, and would have to operate in two weeks. Meanwhile i had gotten a new urologist, and this guy is God sent, and i told him so. he said lets get a cscan in sept. The reason being is that where the residuel is located i cannot operate. It was beneath the bowels, and we could have all kinds of problems if we attempted this operation.

So we prayed, we have a core of people that are like minded in our Faith, and they prayed. Sept took the cscan. went to see the urologist for the results. ALL CLEAR!!!!!!! Praise God! cancer gone.

We serve a Mighty God, We are Kings kids, and He wants the best for all His kids Amen!

God Bless Everyone on this forum, HE loves each and everyone one of you. He is no respector of persons. We are all equal in His eyes.

I love you all,

ed from pa


shepla
Regular Member


Date Joined Sep 2006
Total Posts : 102
   Posted 12/19/2006 2:48 PM (GMT -7)   
Holy Mackeral ED from PA,  I would have said something else but I do not fool with anybody that close to the LORD! I can not wait to get home tonight to read this story to my family.God Bless You Ed  and Keep on Keeping On!! Welcome to this Forum and keep us Posted. Merry Christmas to your Whole Family!!!!!!          Shepla

ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 12/19/2006 3:11 PM (GMT -7)   

Thank you for your kind words Shepla. Merry Christmas to you and your family and may you have a Blessed healthy new year.

 

ed from pa

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