After the surgery

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Tinker
New Member


Date Joined Nov 2006
Total Posts : 13
   Posted 12/28/2006 8:56 PM (GMT -7)   
I need your help.  My Dad had surgery two weeks ago and they just removed the drain tube and 2 days ago they removed the catheter.  He never urinated all day Tuesday, and on Wed. he was in so much pain, so my Mom rushed him to the hospital were they drain so much urine from him that it was unbelievable.  They decided at our small town hospital to put another catheter in and today I saw him, he was so depressed and urine was leaking out of the end of his catheter into his pants.
Should the Doc tells us about exercise to strenghen the muscles that were cut during the surgery?  They removed the cancer through the front of his belly and there is a huge incision, will this itch?  My parents are in their 70's and they really need some help.  How long till my Dad can urinate?  Please help me if you have time to chat.
Dawn

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/28/2006 9:08 PM (GMT -7)   
Tinker - welcome back with the group! So sorry your Dad is having a complication with his urinary function. There have been others in here with similar problems, so although what he is experiencing isn't the "norm" it does happen.

They will probably leave the catheter in and let more healing take place. A return visit to his surgeon would be in order I'd say (or was it hiim who ordered the catheter back in)

As for the leakage, my hubby had leakage around the catheter the whole time it was in and did wear a pad along with it. Is you Dad prepared to need to wear something after the catheter is removed and until he regains control . . this too is different lengths of time for each individual.

Take care and please keep us posted on his recovery!

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.   Next PSA check Feb 27, 2007.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Tinker
New Member


Date Joined Nov 2006
Total Posts : 13
   Posted 12/28/2006 9:24 PM (GMT -7)   

Thank you for your reply to my question.  This has been the most horrible 4 months of my life.  My Dad is a big tough marine and this has really got him down, our whole family revolves around the big guy....

 

Did your husband have any therapy after the surgery to help him learn how to do kegel exercises or to walk more.  My dad is just sitting about by the tv and he has always been a very active man.

 

Tinker


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/28/2006 9:41 PM (GMT -7)   

Tinker . . . he was told to do the kegal exercises . . .but not until the catheter was out.  He was told to do them 12 to 20 times in one session, holding each for 5 to 10 seconds and relax for 10 seconds. . . . .and to do this 3 times per day.

Briefly -- the kegals are done . .

- either lying with knees bent and feet and knees 10 inches, apart, OR they can also be done while sitting.

- Concentrate on pelvic floor muscles and relax all other surrounding muscles of the stomach, buttocks, and thighs.

- Firmly and steadily squeeze the muscles of your pelvic floor (just ahead of the rectum) . . . also described in here as imagining he is using his penis as a straw to suck up water (those are exactly the muscles to tighten) OR the same muscles used to stop the urine stream mid way.   Hold this squeeze for 5 to 10 seconds.

- Repeat the firm squeezes and relaxation 12 to 20 times per session.

Walking will help in a big way as well.  Several people in this forum were walking a fair distance within 2 weeks of surgery or even sooner and as far as comfort prevails.

Does your Dad have a leg bag he can use if he goes out??  This wouldn't be as humiliating for him as the large one that's mostly for night use.

Urinary continence takes everyone different amounts of time.  You may read in here that someone has their catheter out and has instant control . . .this is great, but by no means the "norm"

Others gush and leak for a long time.  Three months until control is considered normal.  My husband is now 3 months post operation and still wears one pad per day for drips and leaks.

Make sure your Dad has the mens pads . . they make it easier to wear normal clothes.  The "diapers" should be reserved for night time use.  In our case, Bob used a pad along with the night time pants as extra precaution.

Will your Dad read some of the posts in here, or would he attend a support group of prostate cancer surivors??

That would help him with how he feels about all this.  The sooner he's thinking positive, walking, and exercising, the sooner he'll be back to normal.  This is just one "glitch" along the stepping stones of life (to quote mama bluebird)

Hope this post helps you all.  There are others that will be answering you as well I'm sure.  Good luck to you and your family!!

;o)  Linda & Bob

 


Post Edited (lawink) : 12/28/2006 9:44:08 PM (GMT-7)


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 12/29/2006 7:49 AM (GMT -7)   

Quote from Tinker....on a different thread

            Bluebird,

I am new to all of this and my questions are all the ones with the name Tinker, that is my childhood name given my my Dad to me.

Four months ago he was diagnosed with postrate cancer and my life has really changed.  His surgery 3 weeks ago went well, but the catheter being removed this week has been horrible for him.  He had not urinated for a whole day and my Mom had to rush him to the hospital.  They drained his bladder, but he waited so long and he is in soooo much pain.  He is a 72 year old proud marine and this is so hard.  He sits in his chair and watches tv all day.  The catheter they put in today is leaking where they inserted it and he now has to wear diapers.  Our doc has said nothing about how long this will be or if there is excersise.  If you have any input, please reply. 

Thanks,   Tinker

 

 

Dawn, Dad, & Mom ~

 

Call his urologist’s office immediately if you haven’t already… 

 

Who took the catheter out the 1st time????  Scarring is a concern and this may or may not be the problem. 

BUT…. He needs to see his specialist!!! 

 

Let’s worry about why he can’t pee right now.   

 

Reminder:  Don’t try to do kegels while he is catheterized…….  There’s good info on this site on how to do them right.  I’ll find the Thread and pop it to you later.

 

I do know that walking and stairs are wonderful exercises…. But right now you need to be focused on why he couldn’t pee and why the catheter is leaking…. 

 

Then we need to get him moving ~ this would be a good thing!!!!!  He needs to keep his strength up and just sitting isn’t going to cut it. 

 

I’m sorry you’re having to go through this but you need to deal with it immediately…. So ~ jump on it Dawn…  Once this is under control he’ll be better and then we can move forward off this stepping-stone on to the next one and that one will be much smoother.

Don’t leave us hangin’ girlfriend….. we need to know what’s goin’ on and that you are all okay.  yeah  

 

In Friendship ~ Lee & Buddy

 

To….DAD….

You BIG ole” USMC guy…..  get moving ~ fella or it’s going to take a lot longer than you want to heal & recover.   I worked for a gentleman who was retired from the USMC and so I know the “attitude”…. And I worked with him for 17 years… and I loved him because of his “attitutde”…. So ~ get moving once you find out what’s going on with the urinary concern. 


mama bluebird - Lee & Buddy… from North Carolina

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/29/2006 8:02 AM (GMT -7)   

Hi Tinker,

Your Dad and I are about the same age.  While most of the people on this forum are younger,  we old foggies do recover from PCa too.

For me, the single most important element in this struggle is a positive mental attitude.  Look for the upside in each event during your journey.  Having cancer is a life changing experience, a time to re-evalutate priorities and put in place plans to make each day better.

Kegels and walking help me feel better each day.  It seems to be important to do something physical.  I feel like I am contributing to the healing process.  But don't overdo it.  I doubled the Kegels that had been prescribed and ended up with a wet bed that night.  (If a little of something is good then a lot is not always better!)

I also had the "open" surgery and the scar doen not itch.  (To answer your question.)  It was a while before I could wear a belt but that gets better each day.  Once the catheter was out, I put on street clothes and started walking.  I am back up to my previous mile a day again.  This was one of the milestones that I wanted to reach as soon as possible.  Success breeds success.
 
We (my wife and I) have been very open and honest with our kids and grandkids about my having cancer.  We keep them posted each time some new event occurs in our journey.  This keeps them up to date and dispels any fear of the unknown that they may have.  Having them in on the recovery process is important to them and to me.  Their support bolsters my confidence and my confidence reassures them that I am going to be okay.  (Once again, success breeds success.)
 
Good luck, smile a lot and look for the little things that are positive signs............
 
Jim
Age 72. Diagnosed on 11/03/06. PSA 7.05. Gleason 3+3 on both sides.
Clinical stage: T2B.
RRP on 12/7/06. Nerves intact and lymph nodes clean. Catheter and staples out on 12/13/06.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
First PSA will be on 1/3/2007
 
            "I have cancer but cancer does NOT have me."


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/29/2006 12:20 PM (GMT -7)   
Hello Tinker,

I am a big, tough guy and I can tell you that we handle these types of things the worse of anyone. The complications of prostate surgery hit right at your self esteem and it really takes the gusto out of life for a while. Ine thing that I learned from this forum and talking to others is that the incontinence gets a lot better with exercise. Your dad needs to get away from the TV and walk at least a mile a day and every day. If he will just take htis step he will be surprised at how quickly he will heal and things will start to come back to normal. He has to wear the right pad to keep from the embarrassing accidents. The male undergards are probably the right style of pad that he needs now and they will work well with the catheter still in. I would also make sure that his surgeon knows what is going on.

Good luck and I am sure that he will get better relatively quickly.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/29/2006 12:54 PM (GMT -7)   
Hi Tinker,
I'm right with Tamu on this one, I thought I was a tough guy untill I joind this club. It really bought me down to earth quickly but as a lot of girls & guys here will tell you, It make you a better person in the long run. Hang in there and please stay with us. This is a healing place! Our prayers are with you!
Your friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 12/29/2006 1:28 PM (GMT -7)   

Hi Tinker,

Like the others have already said; get your dad to exercise; do the Kegels, and walk every day. It will help him to feel that he is regaining control of his recovery. Then he'll sleep better at night, and he'll want to do more the next day. With time and a little effort he can get back to normal.

Good luck to your Dad, and the family.

Glen


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


USMC Retired
Regular Member


Date Joined Oct 2006
Total Posts : 29
   Posted 12/29/2006 2:38 PM (GMT -7)   
Hi Tinker,
As you can tell from my 'handle' I know Marine's and their toughness.  It too was hard for me to deal with this but once I accepted that I had to move forward, it was like my time in the Corps and moved full speed ahead.
 
Many have suggested many things for him/family to do.  Kegels have been very helpful and are a must to train the body that the prostrate is not there anymore to help with urinary contral and other muscles must take over.
 
The cathetor concerns me.  I had a little leakage while mine was in but before they took it out they did some xrays to ensure that I had healed and there was no leakage.  I would check to see if they have that procedure.
 
Also exercise as has been stated is important.  I have been a runner since my early time in the Corps and continued after leaving active duty.  Walking for me is tough right now because I would rather be running but that will come.  Walking is great for not only the physical healing but the mental healing.  I live in a small IA town and when I went for my walk today, I stopped at many of the shops and homes just to say hi to folks and it was by far the best mental day I have had in years.
 
If your Dad has email and wants to communicate direct with me, we can easily set that up.
 
Mac
 
 

Mac & Donna
 
Age - 59 (barely)
PSA - 4.4
Oct 3, 2006
Biopsy - 3 of 8
Gleason - 3 + 3 = 6
Oct 12, 2006
CAT & Bone scan - both clear
MRI - Nov 14
Treatment - Da Vinci (Dec 13 2006)
Returned Home Dec 15, 2006.
Dr said it looks successful, save nerves on both sides.
Cathetor out on Dec 21, 2006


Tinker
New Member


Date Joined Nov 2006
Total Posts : 13
   Posted 1/2/2007 6:52 PM (GMT -7)   

Hello everyone and thank you much for all of your responses to my Dad.  I have been emailing him all of your ideas and he really appreciates all of you.  I hear all of you saying not to let him sit around, but with the sidewalks so slippery and not able to drive this is hard.  I am going to go get him after work and walk with him at the local school.  They have open gym in the evenings and I also thought about asking the local church if he could walk inside the church a few evenings a week.

When someone replys and I want to reply back, do I just stay in my name tiner when I am checking messages and reply there?

I saw Bluebird had some pointers, I will have to go find that.

 

Thanks again,

Tinker


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/2/2007 8:39 PM (GMT -7)   

    I had the open RRP also.  I had a complication after surgery due to a bleed that caused the cathiter to get blocked by clotting.  They had to fluch the cathiter several times to keep it running.  I know the pain he was in due to the build up of urine.  I also had leaking around the cathiter the entire time I had it and that was for three weeks.  My first cystogram about two weeks after surgers still showed some leaking in the stitching inside.  I had to keep the cathiter in for one more week then another cystogram before they removed it.  To deal with the leaking around the cathiter I would tape 1/2 of a woman's pad around the tube to catch what urine followed the tube out of my undergarments.  I still have quite a bit of leaking, especially when walking.  I have been doing two hours a day at the local mall.  Have to change after the first hour,  then agian when I get home. 

    My incision never really bothered me.  Some of the pain might have been masked by the pain I had with my back.  5 days before my surgery my back went out on me.  On surgery day it was still sore but not as bad as it was.  Having to lay on my back so much after surgery made it hurt alot.  The incision never really itched that much,  Or I just didn't notice it.  The musles of the stomach should not have been cut.  I asked my surgeon about that and he said they just use retractors and spread the fibers of the musles open.  I assume your incision was verticle from just under the belly button down to about a inch of the base of the penis?  That is how big mine is.

   Good luck with your recovery.     KW


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Next Office Visit Feb. 12, 2007
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/3/2007 8:41 AM (GMT -7)   

Tinker,

You are doing just fine with your postings.....  yeah Keep doing what you're doing!!!!

 

cool  Lee


mama bluebird - Lee & Buddy… from North Carolina

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/3/2007 7:45 PM (GMT -7)   

Partial Quote from Tinker:

When someone replys and I want to reply back, do I just stay in my name tiner when I am checking messages and reply there?

 
YES.....  :-)
Tinker,   You would stay on this "your" Thread... and use the Post Reply button just like you've done previously in this thread to respond to USMC's posting to you.

You don't have to go looking for USMC's thread...

Don't get boggled down.... like Swimom says... Just keep posting 
    
 
Hugs...from Lee   tongue    


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 2/17/2007 8:58:11 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/3/2007 8:12 PM (GMT -7)   

Partial Quote from Tinker:

When someone replys and I want to reply back, do I just stay in my name tiner when I am checking messages and reply there?

Bringing Quote from Tinker…. To USMC Thread…. back over to her thread...  :-)   

Mac and Donna,

Thank you for your reply about my USMC Dad.  This has been a tough 4 months, and now the surgery is done.  They got most of the cancer from the right and left side of the prostate and Dad will have a radiation shot to take care of the rest.  They didn't find anything in the lymph glands so that is good.  I asked my Dad to email you, but he doesn't talk about feelings and it would be hard.  He has us 5 kids and they are all very busy with their lives, but me.  I am the baby and I am with him all most every weekend .  I call him every other day and I take him for drives till he can get out on his own.  I was going to ask Donna how she is doing, as my Mom is a quiet lady and very strong.  She looks tired and is up with my Dad so much at night and running around all day long that I think she is getting run down.

As a Marine my Dad has taught us kids to be strong and to always put pain in it's place, as if pain is the enemy.  I grew up thinking the Halls of Montezuma was a lullaby.  I am strong, but it is hard to see my Dad in this pain.  Today he still could not go to the restroom and the doctor gave him a catheter to insert if needed to relieve pressure and he did it. 

We live in Wisconsin and it is too icy to walk outside, so I am going up there this weekend to find a place inside for him to walk.  My Mom said he just sits around in the chair, and that is not like my Dad.

I didn't know how to find you after you replied to my email, do I just go to the bottom and reply back?  I went through all of the list till I saw USMC Retired to write this, I hope it get's there.

Thank for the support,

 
 
 

mama bluebird - Lee & Buddy… from North Carolina

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/7/2007 10:59 AM (GMT -7)   

1-7

Dear Tinker *Dawn, Dad, & Mom,

Thinking of you and wanted you to know!!!

   ~ Group Hug

From  us…….Lee, Buddy, & Murphy     ~     To you!!!

1-21  Haven't heard from you .....

Please touch base with us!!!!

We need to know you’re okay!!

 

In Friendship ~ from your forum friends…….


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 1/20/2007 11:42:27 PM (GMT-7)


Tinker
New Member


Date Joined Nov 2006
Total Posts : 13
   Posted 2/17/2007 9:16 PM (GMT -7)   
I have read all the replies for my Dad, but now they want him to have some more meds for bladder control after the surgery , it has been many weeks and I would like to know if it is normal to take meds for bladder control?

Thank you,
Tinker

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 2/17/2007 10:24 PM (GMT -7)   
I was given something called Detrol LA to help control the bladder after my surgery. I believe it was for overactive bladder. I had serious cramping and pain to the point that my abdomen felt like it was on fire literally. The meds helped quite a bit and I weaned myself off as soon as I could.
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/8/2007 8:38 PM (GMT -7)   

HEY TINKER!

Been thinking of you and your Dad a lot this week.  Haven't heard from you since mid Feb, and wondering how you are both doing?

Sure hoping you've been following some of the journey's in here and sharing with your Dad.

Just know that our thoughts and prayers are with you throughout Dad's recovery and we'd love to hear how things are going.

{{{{HUGS TO YOU}}}}}

;O)  Linda

Thanks Bluebird for the help in locating this link!  yeah


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/8/2007 9:45 PM (GMT -7)   
:-) You're welcome Linda...
 
 
Hi ~ Tinker,
Just a helpful reminder.... 
 
To respond to Lawink *Linda.... stay on this thread.
Click on the middle button/tab Post Reply
You don't have to go and look for a Thread started by Lawink to reply.
It's like a phone conversation.... Stay on this "line" this thread... :-)

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

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