Scared and in need of a little support

New Topic Post Reply Printable Version
51 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

Leandra
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 1/3/2007 8:35 PM (GMT -7)   
I've been lurking about on this board for quite a while and have gained so much information from all of you, and a great deal of comfort, I finally decided to join you.
 
My husband (58) was diagnosed with PC back in Oct he's a gleason 4+3=7 as far as they can tell only one side is affected and they dont think it has escaped the capsule, he's due for surgery Jan 16th and we are so scared about it, but I guess all of you know how we feel,he has an added complication in that he had a stent fitted in Oct 2005, we are seeing the cardiologist in the morning for the final go ahead on the surgery, though he did have a blockage they are telling us that he didn't have a heart attack and there is little or no damage to the heart itself but it's still worrying us.
 
All of you seem so calm about everything and there is so much humour on here, I cant help but wonder how on earth do you do it?  We dont dwell on it but it always there, and I know my husband is very nervous about the operation, as am I. Is there anything I should deffinately make sure we have in the house before he comes home? I've read alot of people use a recliner, we do have one and I know he will probably be most comfortable on that until he gets the catheter removed, is the anything else I can get to help him out and make him more comfortable?
 
Any suggestions you have I will be truly grateful for, we are in this together and I know we will get through it, we just have to get passed the panic stage, we are getting there but it's taking time. We have also been reading Dr Walsh's book and have found alot of information on the internet, so much that I think we scared the Doc the first time we met him, we had so many questions, he said he'd never been asked so many good ones and that we really tested him, we were well informed before we met him, thanks mainly to forums like this one.
 
This is deffinately one forum that I wish i didn't need to  join but also one that has been a godsend to both of us. Thanks everyone for your much appreciated help, you do a great job on here  tongue

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/3/2007 9:01 PM (GMT -7)   

Dear Leandra & Loved One,

 

                              Sending a Special  “Warm Welcome”  to You

 

                                                       We are so happy you’re letting us walk with you!!!!

 

You have joined a group of wonderful individuals who are so willing to share their journey with you… which in turn ~ will make your journey much smoother.  You will be getting lots of input from all of us with your questions….  Keep sharing with us

 

You’ve probably already hit the OVERLOAD phase and this is normal.

 

Take a deep breath… ~ and continue on…. Once you’ve made the decision as to the treatment you want…. things smooth out!  But ~ you have to step on this stone to get there…..  I call it the BIG stepping-stone in your journey with prostate cancer.  It is one of many along this path and our goal is to reach the stone of being free of prostate cancer.  And we are here to help you on ~ to each and every stone.  Our helping hands will always be there for you!

 

Buddy and I invite you to read “Our Journey”… and our other threadslisted below… 

I know it will help you……  tongue  

 

We learned so much from Dr. Walsh’s book…. It truly educated us and took the fear away.

 

Trust me when I say we become calm…. only after we realize that there are so many out there who have traveled this path…. and they have traveled it well. 

 

Positive attitude and make sure honey is exercising……..  VERY IMPORTANT… have you checked out the KEGEL Thread..???  Start now and climbing stairs…too! 

 

Excerpt from “Our Journey”…

 

KNOWLEDGE IS POWER... and POWER conquers FEAR!!!!!

 

We decided to share “Our Journey” in hopes of helping at least 1 person!  If it helps more….  If it helps you!!!!      That will truly be a blessing 

At no time are we writing to tell you what you must do, or what you should do….

                               Your decision is Your Decision!!

Just giving you a view of what decisions we made, what the process was for us, and the outcome as of this date. 

 

 

Keeping you close in thoughts and prayers…

In New Friendship ~ Lee & Buddy

 

                             "GOD Bless You"

 

It's a little prayer "GOD Bless You"...

but it means so much each day,

It means may angels guard you

and guide you on your way.

                                                                                ~author unknown~

 

Sharing ~ Our Personal Threads with new members:  updated  11-17

If you or your loved ones ~  pull “1” thing from our journey that helps you on your journey…… it will truly make our hearts happy!!! 

Our Journey ~ Sharing is Caring, A Special Note for Loved Ones (Wives, Partners, & Caregivers), Give Yourself a Second Opinion, and Murphy ~ Our Special Helper, and Helpful Hints for New Members.

The quickest way to find them  is to change the way you look for Threads…  I have mine set at Last Comment.  If you go in and change it to Started By and look for Bluebird (pages 4,5,&6 as of Dec 20 ‘06)….

You will find them a lot easier!


mama bluebird - Lee & Buddy… from North Carolina

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a  

Confined to Prostate   June 29th ~ PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 1/3/2007 9:07:27 PM (GMT-7)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/3/2007 9:24 PM (GMT -7)   
Hi Leandra,

We here on the forum welcome you and are sorry you have to be here but glad you are with us for help through this most difficult time.

Our fear went away once we (my wife and I) had met our surgeon and he gained our confidence. He had done about 800 surgeries like ours and was honest, straightforward and confident in our meetings and amswered all our questions. He didn't pull any punches and told us the bad possibilities as well as the good.

We then spent about 2 weeks studying the literature and scanning this forum. Just like you we joined after a while and became part of the "family". Having a lot people in the lifeboat with us gave us more confidence that things would be okay.

We made our decision for the "open" surgery for all our own reasons. We were then sure that the decision was right for us. Next, we asked ourselves what else we could do and the answer was that all we could contribute from then on was "attitude". I got myself in as good shape as I could with diet and exercise and felt really good on the day of the surgery. I became a cheerleader for the surgeon. I told him to get a good night sleep the night before because I wanted him fresh the next day. Then we turned the outcome over to him and God.

It worked! Everything worked! It was truly amazing how easy the recovery was and how good the outcome is! It is exactly 2 months from diagnosis to the first post-op PSA of 0.04.

Be confident. Be assured that all of us here on the forum are rooting for you and our prayers are with you.

Your friend.........

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
            "Cancer feeds on fear.  Starve it to death."


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 1/3/2007 9:50 PM (GMT -7)   
Hello Leandra,

We're sorry you and your husband have to join us too, but you couldn't have come to a more caring and supporting group. Like you and your husband when we found out the diagnosis PCa we too were scared, worried, and had little idea of what to expect. Gradually with the help of this wonderful group of friends each of us gained the strength, and the knowledge to fight and defeat PCa, and so will both of you.

Now as to what he might need after surgery. I found that a nice soft pillow to sit on is worth it's weight in gold. I also found that with the catheter putting on even PJ bottoms was uncomfortable, so Just a 3x or larger T-shirt (or nite-shirt) was perfect with a light robe for around the house. Dogs, cats, and catheters don't mix to well either. Baby wipes, prune juice, stool softener, and Neosporin ointment (or what ever your doctor recommends for catheter maintenence). Normally the catheter is gone in a week depending on the type of surgery. I'm sure I've missed some things, but the others will help me out here shortly.

So good luck to you all on the 16th, and we will all be here thinking of you. Please keep us posted when you can.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


ed from pa
Regular Member


Date Joined Dec 2006
Total Posts : 42
   Posted 1/3/2007 11:57 PM (GMT -7)   
Hello Leandra, I am 64, and had a gleason of 7. The operation went well, the catheter didn't. I hated that thing. When they took it out that was the worst day of my life. The nurse said breathe in then she said breathe out, as i did, she yanked the catheter out. Like starting a lawn mower. Hurt, like i never hurt before, only for about three minutes. They should have a Catheter Forum on this site.
 
After the operation it is just a waiting game, waiting for the pathology report to come back. Once that is in you will know the results, and go from there. Our prayers are with you and your husband. Prayer works, so hang in there. We are praying for positive results.
 
ed from pa
 
Jesus Christ Big C
cancer small c

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/4/2007 6:18 AM (GMT -7)   
Hi Leandra,
We all know that P.C. is very scarry and you are going though the same thing all of us have and trust me, we were all scared and its normal. You are putting your trust in yor surgin so its important that you like and get along with him. From what you've said, you sound like you did your homework, thats great! Most of us have come through this experiance with a greater apreciation of what we have, the people we love and life in general. So for me, it wasn't as bad a thing as you might think. Of course the surgery and recovery is unplesant but I wouldn't say it was nearly the worse thing I've experianced! I've had tooth acke that were much worse! As for the cath. We are all different, Ed had a problem but I had mine for over 3 weeks and didn't mind it at all. In fact, I kind of liked it, I never had to even think about peeing through the whole experiance and when they took it out, there was no pain at all! From that day on I was dry except for a couple of accidents at night. I guess my system got used to just letting it out when I was sleeping. So please stay with us and remember that we were all in your shoes at one time, no one knows more about the PC experiance better than the people here who have lived it!
Best of luck from your new friend,
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 1/4/2007 6:43 AM (GMT -7)   
Leandra
Sorry to have to welcome you to this forum, a place none of us thought we would be in. But welcome.
As others have said you are already quite knowledgable about your situation. At first I was scared of the impending surgery because I had never had surgery before. I had nine monthe to think about it from diagnosis to the actual event. But after awhile I just decided to accept things and go with the flow. After this acceptance I grew very calm with the idea of surgery and placed myself in the good Lords hands. The surgery and recovery was not that bad at all. After I left the hospital I never had the need for any painkillers at all. Though the catheter was an anoyance once you got used to it it was no big deal.
Your situation is somewhat different due to the heart complications but you will be surrounded by competent surgeons and support to get through this. Best of luck and God Bless
Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 1/4/2007 7:29 AM (GMT -7)   
Hi, Leandra. You know, all of us have had our ups and downs through this process. I know in the decision-making months, we'd fall apart and then turn right around and pick ourselves up. Any time a person goes under anesthesia, there's some worry. Some people worry more than others - my husb. and I are worriers, so be it. But everything will be fine and you have to believe that - and believe it so strongly that it overtakes the worrying side!

Everyone here is a greater comfort in many ways because each person has either gone through it or is facing the road ahead. As I've said, you can't get this kind of support from someone who hasn't been there. Others can love you and be there, but those who are walking in your shoes can make you stronger.

My husband and I are grateful for this forum and we're grateful for everyone new who finds their way in here so we can repay those who have gone before us.

Know that you two are already loved on this forum and stay with us! Because before you know it, you'll be helping the next one in.
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/4/2007 7:58 AM (GMT -7)   
Leandra,

An unfortunate welcome to you. As already mentioned the last few weeks leading up to surgery are definitely trying ones. Getting exercise is one of the best stress relievers. Get yor husband up and walking if he has not already started that. This should be done every day. As to things that you should have when he comes home here is a quick list.

!. A pillow to hold against his abdomen. You should have this is your car when you leave the hospital. Clutching this to the abdomen helps with the soreness and is highly recommended especially when he sneezes or coughs.

2. A small cushion or pillow to sit on. His perineum will be tender for a few weeks and it will especially be that way when sitting staight up in a chair.

3. Some antibacterial soap in the plunger type of dispenser. This helps in the cleaning out of the catheter bags.

4. Neosporin for applying to the tip of his penis around the catheter. He will have some small amount of blood leaking around the catheter. This will have to be cleaned often and neosporin applied to keep the tip and catheter lubricated to keep it from pulling on his penis. I believe most of us hated the catheter the most because of the pulling that it does. My penis was sore for two weeks after the catheter was removed. By the way, having a package of baby wipes handy in the bathroom is a good idea as this is perfect for cleaning the penis tip and catheter.

5. What to wear while having the catheter in has been discussed on this forum. What I did was buy some basketball pants from Dick's Sporting Goods and these worked fine. Within a few days of being home I found that with the leg bag I could wear blue jeans or slacks without any problems.

6. The night bag for the catheter is fairly large and how to hang it becomes an issue. It is made to hang off of a bed rail but if you have a dust ruffle on your bed that does not work well. I found that taking a small plastic trash container like those use in an office by a desk worked real well. The bag goes in it perfectly and it hangs from the lip. This allows you to move around and all you have to do is carry the trash container and set it back down on the floor and not have to wonder where you are going to put the bag. It also kinds of hides the bag so others do not have to look at the urine in the bag.

7. Once he gets home drinking lots of liquids is important. These cannot be carbonated drinks as this would develop gas which you do not want especially if he is having a Da Vinci. Juices are good.

8. Walking is a must immediately after surgery. You may want ot have some slip on type of shoes. It is difficult with the sore abdomen to bend over and tie shoes. Of course, if someone is going to be around then that is not a big need.

9. In preparation for the removal of the catheter you need to purchase incontinence pads. If your husband wear brief type of underwear the male undergards work well as they fit inside the underwear. If he wear boxers then either he should buy a few briefs or get the Depends type of underwear.

I am sure that others will add to this list but this is what I thoguht about. As apprehensive as the two of you are at this point you will be pleasantly surprised how well he will feel afterwards and how quick he recovers.

Good luck!

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 1/4/2007 11:38 AM (GMT -7)   
Hi Leandra,

Sorry to hear about your husband and his heart complications. Sounds like we were diagnosed about the same time as you. We were panicked for a while too, especially when everything is so complicated and overwhelming. The more doctors we talked to and the more we read here and elsewhere, it did help me at least feel more in control of the disease than the disease having control of us. Sounds like you are being very proactive in your treatment, but there is only so much one can do, then just have to let go and let God and doctor's do what they do :)

How did your meeting go with the cardioliogist? Hopefully he was able to put you more at ease regarding any potential complications?

We will be thinking of you leading up to and through your surgery.

Tanya and Ken
Signficant Other diagnosed: 10/30/06 (age 63)
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Treatment:  Undecided


djhouston
Regular Member


Date Joined Jan 2007
Total Posts : 68
   Posted 1/6/2007 1:12 AM (GMT -7)   
Dear Leandra and Hubby,
Congratulations on your good cardio checkup. I am new to this forum, having just learned about it from my old school friend Tamu (see above). The details of my situation are on a post in the Tamu update thread, I think, but just to say, I am 57, and I, too, had a Gleason 4+3=7 tumor that was thought to be, and did turn out to be, confined to the prostate capsule. I had the robotic-assisted laparoscopic prostatectomy in Houston with a doctor who has done several hundred of these. I never had surgery before in my life, and was expecting to either die or have excruciating pain. Obviously, the first didn't happen, and, to my surprise, neither did the second.

I, too, am sorry you two have to go through this, but you sound like you are doing all the right things. I am a worrier, too. However, I found that these message boards are a great comfort and a wealth of information. This one is not the one I started with, but the folks here are so compassionate and supportive that I am sorry I didn't know about it sooner. But, most of these are like that, because we all know what it's like to be scared about this, and want to share when we have found something that might help someone else.

Another informative site that you might check, the one that I started with, is the one associated with msnbc.com. One of their staff writers who lives in the Seattle area found himself with PCa and wrote a series about it for all to share. It is called Low Blow, and you can find it by going to the msnbc.com main web page and scrolling down to the ad about Low Blow on the right side of the screen. Besides his story, which parallels ours, there is a message board where people are sharing info just like here. I got some good advice there, as well.

To put in my two cents about a shopping list, there are two musts. One is the Neosporin that you have already read about (I used the Walgreen's store brand triple antibiotic ointment-not the cream, but the clear greasy stuff without the anesthetic). This you apply to the opening of the penis when you have the catheter in, and because it is antibiotic, you can do the following: while you are sitting on the toilet, you can smear the stuff up and down the area of the catheter tube where it enters the penis, then gently(!!!) slide the head of the penis over the greased area. This seemed to make the thing more comfortable to wear.

The other must is a nylon cloth strap with a velcro closure and a little velcro loop thing that goes around the area on the catheter that is the closest to the thigh. You get the catheter into a comfortable position, and then wrap the little loop around it and snug that up, and then wrap the big part of the strap around the thigh with plenty of slack in the catheter tubing. This provides strain relief so the catheter tube doesn't accidentally pull too hard if you are messing with the bags or get in a wrong position with whole assembly. Being that the thing is nylon, it can get wet when you get in the shower and it will dry quickly. It is so much handier and less hassle than trying to tape the catheter tube to your leg and then pulling hair to get the tape off or fighting to get off the tape adhesive that sticks to everything. If they don't offer this strap to you in the hospital, then try to find one at a medical supply store or maybe make one with some velcro. I had to have the catheter for 4 weeks so this little gem was well worth it, but some of the others here only had it for a week or so. Even at that, after I accidentally pulled a little too hard on the tubing when I was trying to change from the leg bag to the overnight bag, I saw stars and didn't want that to happen again. By the way, the changing from the leg bag to the overnight bag was just a big drag for me, and the little bag doesn't hold very much, so I just used the big bag all the time. I had some baggy trousers that accommodated the thing when I had to go out to walk or go to my doctor, but to each his own.

Another couple of things. I think one should have some disposable incontinence full undershorts. I wore them for a while or alternated with jockey shorts with the male guards in them, even when I had the catheter in. I noticed a lot of leaking of urine around the catheter, maybe more than after the cath was removed. This can happen when you stand up, cough, sneeze, or pass gas. It definitely will happen when one has a bowel movement. Speaking of that, walk, drink prune juice, do whatever you usually do to stay "regular" and then some. Constipation and early recovery from this are not very compatible, as I learned (too much info?).

I got one of those vinyl blow up ring cushions (they used to be red rubber, but now they are blue vinyl at Walgreen's-hmm,the second time I mentioned them-I don't have stock in them; they are just a few blocks from the house). I found that to be more comfortable than a regular pillow to sit on. You don't fully inflate it, or it will be hard and bouncy. You can play around with the amount of inflation if you get one, and get the most comfortable level. It works as a good shock absorber, as I also found this to be the most comfortable thing to be sitting on in a car when it goes over bumps or potholes.

Another thing I would suggest is to buy or check out from the library Dr. Peter Scardino's book, I think it's called The Prostate Book. It gives some of the same but some different information that Dr. Walsh's book. Being a big worrier, I got a lot of comfort and hope from the Scardino book. He is a major researcher in PCa, and invented a bunch of stuff about the surgery, just like Dr. Walsh. He used to be in Houston, but is now at Memorial-Sloan-Kettering in New York City.

These are just a few things I remember were key. If I think of some more, I'll post them. All the best, and we'll all be praying for you and watching for your good news post.

dj

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 1/6/2007 5:04 AM (GMT -7)   

Hi Leandra,

Before the surgery your hubsband can start his exercises. In particular the Kegels which will strengthen the abdominal mussles, and help him to regain contenence quicker. Walking is another good way to help the body tone-up prior to the procedure. A body that's in good shape heals faster. Plus the activity helps to make you feel more in control (a participant in the treatment) not just a helpless patient.

Good luck to you and your husband, post us up-dates when you can.

Glen

 

 


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/14/2007 3:05 PM (GMT -7)   

Leandra & Hubby,

 

Just a little hug to let you know we will be there ~ in thoughts and prayers as you head into surgery on Tuesday….. January 16th….

 

We will be waiting patiently …. to hear from you!!!!

 

Please don’t wait too long to touch base… remember we tend to get a little anxious when we don’t hear anything… Even just a little one liner!!! Like A-OK at our end.  Anything just something……

 

I hope in some small way that “Our Journey” has made a difference for both of you! 

Give Hubby a big fat hug and know that we will “all” be right here waiting for your return home.  On the next stepping-stone which will be recovery/healing process

 

We were planning to send our hugs today….. and were thrilled to see that you had posted!!!

 

~~~~~~~~~~~#$%^&*   Group Hug %^&*(%~~~~~~~~~~~~

From the 3 of us...

Lee, Buddy, & Murphy

 

Keeping you extra close in our thoughts and prayers.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/14/2007 6:09 PM (GMT -7)   
Hi Leandra,

Our thoughts and prayers are with you, we are cheerleaders for you, Hubby and the medical team on Tuesday. Please get back here when you can and let us know that you are okay....

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
            "I have cancer but cancer does NOT have me!"


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/17/2007 5:58 PM (GMT -7)   
Hi Leandra…

Things happen for a reason and it was meant to be!!! Glad to hear your both a little more relaxed… This could be a huge plus for both of you!

Will be keeping you close….
In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


Birdland
Regular Member


Date Joined Aug 2006
Total Posts : 31
   Posted 1/17/2007 6:26 PM (GMT -7)   

Hi Leandra

Just hoped on to this thread. Looks like you've heard everything I could think to tell you. I had my surgery in October and I think this family is great because I never felt like I was going throughthings alone. I encourage you to keep reading because there were so many things i would have freaked out about if I had'nt read that somebody else went through it.

I understand you were rescheduled. I'm glad it's not too far away because it's good to get it over with and to get on the other side...and yes, humor is an indispensible weapon. Best of luck

Birdland


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 230
   Posted 1/20/2007 7:01 AM (GMT -7)   
Hey there Leandra, Just llike Birdland I can't really ad anything that you haven't read. Except that there are a lot of other folks on this site that don't post that are thinking, caring, and praying for you. Birdland and I had our surgeries the same day in October 12. 2006. One thing they all kept saying and it was true is "it will be over before you know it". God bless you guys on the 23rd I'll be thinking and praying for you.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/22/2007 2:20 PM (GMT -7)   

Okay….  Let’s move those snow clouds away so you can get down to the city!!!!

 

Our previous post…. still holds true !!   yeah  

 

Leandra & Hubby,

 

We will be waiting patiently …. to hear from you!!!!

 

 

~~~~~~~~~~~#$%^&*   Group Hug %^&*(%~~~~~~~~~~~~

From the 3 of us...

Lee, Buddy, & Murphy

 

Keeping you extra close in our thoughts and prayers.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/23/2007 11:51 AM (GMT -7)   

Extra hugs comin' atchu!!!!!  Thank you for letting us know!!!  Keep up the positive attitudes… and know that the time will be right  ~  soon.

Keep in touch okay... yeah   

Thoughts and prayers continue to be with you!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/24/2007 5:58 AM (GMT -7)   
Oh no! Your blood pressure is going to go to the moon. I guess all you can do is keep hanging in there. I hope you have better luck the next time.

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


Leandra
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 3/14/2007 11:09 PM (GMT -7)   
So sorry I haven't been online for a while, we have a satelite internet link and the Transmitter has been acting weird for about a month, we just found out what the problem is and the tech is supposed to be coming to fix it tomorrow.
 
My husbands op was rescheduled for Mar 20th, we are on the count down to it now and starting to get very aprehensive again, I guess it comes with the territory. Hopefully this time we wont have any problems and it will actually go ahead, we still dread the day but are hoping that all goes well and he comes home cured.
 
I dont have much time this evening as I have to be up early in the morning but I will keep you updated and thanks for all the support you have given us

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/15/2007 6:31 AM (GMT -7)   
Best of luck to you both and we are so glad to have you back online! Prayers go out for a successful outcome to the surgery and a lifetime of PSA ZEROOOOOOOOS

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 3/15/2007 6:44 AM (GMT -7)   
Hi, Leandra. Finally! Yes, the buildup of apprehension is pretty intense those last few hours. But, truly, the time will pass so fast and soon it will be time to start the recuperating process!

Good luck and stay with us - we're all here rooting for you two!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 3/15/2007 7:56 AM (GMT -7)   
Leandra

Good luck and by this time next week you will already be looking at this part in the rear view mirror and on your way to healing. The time passes very quickly.

norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test Scheduled for 3-22-07 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/15/2007 8:16 AM (GMT -7)   
Leandra - So glad to see you are back on line that's one less frustration to deal with, right?
As you can see by all these postings there are many here who have sound advice & wonderful words of encouragement for you both.
Read & read them again...they are heartfelt and the concern is real.

Stay strong and we'll be here.
All the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3

New Topic Post Reply Printable Version
51 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Tuesday, December 12, 2017 5:05 PM (GMT -7)
There are a total of 2,904,569 posts in 318,769 threads.
View Active Threads


Who's Online
This forum has 158155 registered members. Please welcome our newest member, Wyatt40.
385 Guest(s), 17 Registered Member(s) are currently online.  Details
Alcie, skeye, Tim G, Break60, DianeB, Purrrsiankitty, paniccu, 1000Daisies, rafaeltoral, Laugh and live, cr3ativegirl, Dreamerboy, David_in_VA, momem3, SueCAll, Nowitshell, iPoop