Posted 1/4/2007 4:43 PM (GMT -6)
Hello to all once again as I have been absent from this forum since last May. I thank Bluebird for her comment under a different post and her suggestion to give an update.
My journey so far has been one of many bumps, bruises and diversions that, like many others probably in this group, have made life most interesting if not the most rewarding. For those who may be new or missed my few posts last year I will attempt here to both recap and give some info from 2005 to date.
April 05 at my annual physical I received news that my PSA tests had progressively increased in the previous 2 years basically over 2 points to 7.1 . This was in contrast to prior readings that I have had taken each year since I was 50. PSAV or velocity had me being sent to a urologist who scheduled a TRUS biopsy, 10 cores that showed 1 core positive. The DRE was negative, T1c with a Gleason 3+4 or 7 with 5% PCa. Now at 58, I saw a different urologist (my first was very new to the hospital and as yet had no operating time) and a radiation oncologist who both recommended that I have a radical retropubic prostatectomy as the best choice of primary. The most difficult for me to handle was the wait time. I waited to see the urologist, waited again to get the results of the biopsy and waited more to go back to see the urologist and the oncologist. Believe it or not I actually felt better knowing I had the PCa then the way I felt through the waits.
After much time spent on the internet learning as much as I could about PCa and the possible treatments (and side effects), I chose the RRP which was done mid December, 2005. The pathology came back Gleason 3+4, one lobe, 20% PCa total glandular involvement. SV were clear, nodes were X, not removed for checking. The pathologist indicated that I had a possible positive margin (I like the way they protect themselves from possible misdiagnosis. hehe) and staged me as pT3, GS 7, still 3+4. In March 06 I had my first post op PSA that came back 0.87 – they didn’t get it all. I was referred back to the same rad onc and, after another PSA test in May of 1.1, planned for 36 EBRT radiation treatments, total 66Gy, that I received from mid June 06 to the end of July. In the meantime, it was suggested by my rad onc that I also include a GnRH agonist probably for 18 to 24 months. After checking with my family doctor about the drug, I consented and, after two weeks of Casodex, I had my first Lupron Depot shot, which continues to this day. More waiting – my rad onc said at least 7 weeks before another PSA. This result I received in late September 06 – PSA <0.1, Testosterone (T) down from 13 (US measure 394) to 0.4 (US11). My next PSA will be in 2 weeks and I am hopeful that these numbers will continue. J
My next posting to this thread will explain to you why I titled this thread the way I did. It all has to do with my dealings with my radiation oncologist, if you care to read more.