Ben, we, too, were baffled about
the incredibly low biopsy report. It was like a sledgehammer when we got the path report. There are probably two ways to look at it: it was very fast-growing OR the biopsy needles (12) just missed a big part of what they were intended to do. On 8/10, at the cath removal, our surgeon suggested some fatty tissue leakage. Our first post PSA was done just prior to the visit on 10/3. He declared it a non-detectable. That was after a month of knuckle-biting and expecting the worst. At that time, too, we had enjoyed two weeks post-cath of near dryness. Then, started gushing with walking. The doc put husb. on pills for 30 days and we scheduled a follow-up for 11/1.
At the 11/1 visit, he upgraded the recurrence to 30%-50%. I have to admit we sat there like bobbleheads, as we were still discussing the issues of incontinence, which seemed to be our big focus at that moment (and continues at the 5-month mark-dry when sitting/sleeping-leaking when up). I kicked myself all the way home for letting that one go.
I did question the doc on waiting until April for the next PSA and he "swore" to me that all would be well. We, like you, don't want to add any further issues unless absolutely necessary. Not for one minute did we regret the surgery - even if we had known of the spread, we would have wanted the prostate out first to know exactly what we're dealing with instantly. Luckily, we were good candidates for making that choice. For now, we will remain in la-la land about
the change in predicted recurrence and keep riding on the .00000. I'll be drilling in on that one at our April visit.
This was a big lesson for us in being aggressive about
questions and not letting those things slide - it won't happen again.
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now