New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 1/13/2007 5:41 PM (GMT -7)   
Hi All,
 
I've been lurking here for some months now, following everyones progress.  I have been thinking about it for a while and decided I'd share my story in the event that it might help someone else.
 
Hopefully, it won't get too graphic, however, based on some of the posts I've been following here, it appears that you can report just about anything.
 
I guess you'd say that this is a "Happy Story," at least it is so far. :-)   
I've always been "disgustingly healthy" I suppose.  Never had any surgery, never been in the hospital, except for some routine tests.  Like many/most guys my age I'd been taking Hytrin and later Flomax to assist with enlargement.
 
My PSA scores had never been abnormal, but over the years had begun to creep up a little each time.  Finally at a PSA of 3.6 the Urologist thought it would be wise to do a biopsy.  This was done on 5/24/06.  On 6/2/06 we had the consult with the doctor.  He said that three of the twelve samples, all on one side, showed cancer.  What a way to celebrate a wedding anniversary.  mad Talk about a way to kill a mood! Ha.
 
The doctor carefully explained all the various alternatives, but then based on my age, physical condition, and life style, recommended the DiVinci assisted surgery.  Since he said it was slow growing, I negotiated for the summer and scheduled the surgery for 9/21/06 at Beaumont Hospital in Royal Oak (Detroit).  I'd had this urologist for several years, he had done well over 200 of the robotic surgeries, and I never felt the need to get a second opinon, however, I did spend a lot of time on the net reading everything I could find during that summer.  Besides, the timing of the surgery gave him an additional three months to practice on other people. :-)    By the way I told him that also.
 
The surgery went very smoothly, but for some reason I could not get rid of the bloating and the gas, and could not get the bowels working agin.  I ended up spending a couple of additional, miserable days in the hospital and believe me, I was glad to be there instead of at home.  During this time I had a constant parade of strange women (nurses) coming in asking if they could "peak under my gown," and if I'd "passed any gas."  Now normally I'd either be totally embarrased by this, or flattered, but in this case I felt so misserable I didn't even care.  Ha.
 
Well, once I got past the mile stone of "passing gas" and got out of the hospital I snapped back fairly quickly.  Like others on here have said, I walked several miles a day, climbed stairs, etc. trying to stay as active as I could.  The cathiter was a swift pain in the you know where, but fortunately, it was removed eight days after surgery.  And like others have reported, there was considerable leaking, but that also improved rapidly.
 
By about week six I wasn't wearing any pads and was cycling   50 and 60 miles a day in Florida.
 
 
This is getting long so I'll cut it off here and continue on a second post.
 
 
 
 

Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 1/13/2007 6:21 PM (GMT -7)   
Continuing on with installment #2,

The 10/11/06 doctor visit revealed that, after pathology, the Gleason score was revised to 4+3 and that only about 10% of the prostate was cancerous. It was all contained, margins were negative, and everything external to the gland was spared.

The 11/27/06 PSA was undetectable!

So things are slowly getting, more or less, back to normal.

OK, here is where this gets graphic. I hope it isn't TOO much information.

No incontinence when lifting, sneezing, etc. Some minor dribbling after urinating, mostly just a nuisance and uncomfortable. I read somewhere, and I don't know where, that by reaching back under the scrotum and then pressing upward, and stroking forward that it would clear any remaining trapped urine. Sure enough, after you think you're done, a quick press and a forward stroke, and there is usually one more good squirt. This almost entirely eliminates the after dribbling, at least for me. I don't recall reading this little tid bit on here. Maybe it will help others. Of course, depending on what kind of surgery you had, this may be a very tender location for a while. With the DiVinci it isn't a problem.

OK, more graphic information.

On the ED subject. Prior to surgery there was rarely ever a problem.

After surgery, nothing was happening at about week five. Fortunately, at about week six, with the assistance of the little blue pill, we were able to have VERY successful intercourse. [img]/community/emoticons/tongue.gif[/img] Oh what a relief it was. Ha.

Since then, some normal function has returned, but rarely enough to do anything with, without some assistance from the pill. The frequency of our sex life is back to normal, I'd say and in some ways better than before. Some days it is frustrating though. However, it still hasn't been four months since the surgery, so I'm optimistic that things will continue to improve.

I've read several comments on here about the various ED drugs. Let me share my experience. The doctor started me on 100 mg Viagra. It worked the first time I took it, but resulted in a severe headache. I learned, from reading on here, that cutting each pill in half it seemed to work as well and greatly reduced the side effects. The doctor also gave me some samples of Levitra and Cialis.

The Levitra "mostly" worked, but not as well, and didn't last as long. It was clearly better than nothing, but some days not much better. The Cialis took a long time to work and was, again, barely adequate. Clearly in my case, the Viagara has been the most successful.

So, in my case, and at least for now, life is good! [img]/community/emoticons/yeah.gif[/img] No more cancer, no incontinence, and with a little assistance the ED issue is very manageable.

The next PSA is set for mid to late March.



I feel extremely blessed. I feel that I have an extremely capable doctor, who found and corrected something that many other doctors wouldn't have detected until much later.

So that is the story. If there are questions, or if I can help others, feel free to ask. Otherwise, I'll likely just got back to lurking.

Dec.2009

Well, now maybe is a good time for an update.

It has been some three and a half years since my diagnosis, and almost that long since the surgery.

I'm pleased to report that "all is good!" Just got the results of the latest PSA. It continues, as it has been, less than 0.04, or essentially undetectable. So, that I consider to be my best Christmas present.

The doctor is only seeing me once a year now, even though he wants to continue the PSA every six months. They are now telling me, that if everything still looks good at the five year mark, the surveillance will likely be reduced to once per year.

So, I share this to, hopefully, provide encouragement to others who are at various stages of the struggle. You can get through it and return to a normal life. It never totally leaves you mind, but it can become a distant memory.

Bent1
Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6 revised to 4+3=7 after pathology, 11/27/06 PSA undetectable. Remains undetectable 12/09

Post Edited (Bent1) : 12/23/2009 9:24:28 AM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/13/2007 6:59 PM (GMT -7)   

Hi ~ Bent1,

 

                         Sending a “Warm Welcome” …to You!

 

Thank you so much for sharing your journey with us.  This truly is a “Happy Story”.

 

Caring Enough to Share!!!    Thank you!!!!!!!!

 

And I’m thrilled you named your thread Bent1’s page.  If we post to you… we will use this thread J 

 

Keep lerking but pop back on with your PSA in March …okay!!!  And feel free to jump in anytime…

 

You’ve been added to our daily prayers for continued recovery/healing.  Listen to your body… and you will continue to do well!!!

 

              “God Bless You”

 

It's a little prayer  ~  "God BlessYou"

...but it means so much each day,

It means may angels guard you

 and guide you on your way.

 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/31/2007 6:28 PM (GMT -7)   
Hi... Bent1,

Let us know when your March PSA results come in... Okay!!!

Take care and hope all things are going well for you.

In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 2/5/2007 1:00 PM (GMT -7)   

Hi all,

Since we all get reminded to keep everyone up dated, I thought I'd just post that things are going well and that I have NOTHING new to report here. Ha.

Actually, I've been occupied getting a routine colonoscopy and now cateract surgery.  I have one eye done and will have the second one done next week. 

Maybe then, I'll have both ends overhauled and can get on with life. 

For a guy who has never been sick this has all been an experience.

As they used to say in the nursing home where my Mother was, "Getting old AIN'T for wimps!"

Bent1


Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.

Post Edited (Bent1) : 2/7/2007 6:23:59 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/5/2007 2:16 PM (GMT -7)   

Bent1,

 

I’m thinking it would be nice…..if you go in and re-word your message…..

 

chastised means: reprimand, tell off, discipline, telling somebody off, give somebody a talking to, censure, punish, rebuke.

 

I really hope my message (new thread: Have we head from “You”??? Hope to soon!) did not come across as any of the words relating to chastised…

If so ~ I need to go and delete my post!!!

 

Sorry if I offended you! it truly was not my intent…

 

Sharing is Caring  before, after, and long after!!!! 

Good luck with your eye surgeries…

 

Lee


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 2/6/2007 11:14:34 AM (GMT-7)


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 2/5/2007 4:41 PM (GMT -7)   
Hi Bent1,

Like Bluebird said we are all concerned for the members of our group, and we worry when we haven't heard from you in a while. Who knows you might have been abducted by aliens! So we're glad to hear from you, and that the healing & fixing continues. I'm like you for the first 60 years 1 appendicitis operation, and then it was as if my warrenty expired. I've seen the inside of enough ORs for a lifetime.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 2/5/2007 6:01 PM (GMT -7)   
bluebird said...

Bent1,

 

I’m thinking it would be nice…..if you go in and re-word your message…..

 

chastised means: reprimand, tell off, discipline, telling somebody off, give somebody a talking to, censure, punish, rebuke.

 

I really hope my message (new thread: Have we head from “You”??? Hope to soon!) did not come across as any of the words relating to chastised…

If so ~ I need to go and delete my post!!!

 

Sorry if I offended you! it truly was not my intent…

 

Sharing is Caring  before, after, and long after!!!! 

Good luck with your eye surgeries…

 

Lee

Sorry Lee,
 
My obviously feeble attempt at humor did not come across the way I intended.
 
Bent1
 


Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.

Post Edited (Bent1) : 2/6/2007 9:46:20 AM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/5/2007 6:51 PM (GMT -7)   
Yep!!!  I feel much better now!  Never want to step on anyone's toes  tongue
 
Take care until we hear from you "again"... in the future.....
 
 

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 2/6/2007 7:45 AM (GMT -7)   
Bent1 - thank you for sharing your story. somehow I missed it when you first posted. I'm glad that once you passed the gas, your recovery went so well. Jeff has been taking cialis but it only seems to work to a certain point. I think it's time to ask the doctor about Viagra. it certainly can't hurt....
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 2/6/2007 9:44 AM (GMT -7)   
M. Kat said...
Bent1 - thank you for sharing your story. somehow I missed it when you first posted. I'm glad that once you passed the gas, your recovery went so well. Jeff has been taking cialis but it only seems to work to a certain point. I think it's time to ask the doctor about Viagra. it certainly can't hurt....

Hi Kat,
 
Yes, I'd say it is worth a try.  If you read the literature, all three of those drugs are similar, and all basically work the same way, but there are apparently some differences.  There are certainly differences in US.  LOL
 
For me, one of them clearly workes better, and more consistently than the other two.  Quite possibly, at a different stage in my recovery,  that may change, but for now, I find Viagara to be the best choice.
 
Good luck in your search.
 
Bent1

Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 4/4/2007 12:53 PM (GMT -7)   

Good news!

Just returned from a doctors visit.  The six month PSA (second one since the surgery) also came back "undectable" 

The doctor doesn't need to see me for another six months he says.

Bent1


Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 4/4/2007 1:25 PM (GMT -7)   

Bent1

Congrats on the latest PSA. May there be a long line of succesive 00000's in you future.

Live long, live strong


Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 4/4/2007 1:54 PM (GMT -7)   

Bent:

Those "0" are GREAT !!!!

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 4/4/2007 2:31 PM (GMT -7)   
Hi Bent

What a wonderful story and thanks for sharing it here. It gives a lot of hope and inspiration to PC patients who elect surgery. It is always rewarding to here success stories here. Yes, I too was blessed with wonderful health for the 1st 68 years until I was diagnosed with PC in early October 2006. Just before my treatment started I had an eye exam and learned that I have a very unexpected problem with my left eye that may require surgery or some form of treatment eventually. I also have a right hernia that needs repairing--the left one was done last year! However, I am still alive and healthy in all other respects. I get furious when I hear the expression "our golden years" which is truly a bunch of BS!!!!! My golden years were a long time ago! Best of luck to you and continued 0's PSA's forever!

Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 6:45 PM (GMT -7)
There are a total of 2,905,968 posts in 318,906 threads.
View Active Threads


Who's Online
This forum has 158250 registered members. Please welcome our newest member, 4som1.
358 Guest(s), 17 Registered Member(s) are currently online.  Details
Tim G, JayMot, mattamx, 1005tanner, PatrickMA, The Dude Abides, Skypilot56, magoo2, artvark, WalkingbyFaith, Progressing, Mergirl, FamilyGuy, UCer23, scar1919, Goat0724, carnut