Continuing on with installment #2,
The 10/11/06 doctor visit revealed that, after pathology, the Gleason score was revised to 4+3 and that only about
10% of the prostate was cancerous. It was all contained, margins were negative, and everything external to the gland was spared.
The 11/27/06 PSA was undetectable!
So things are slowly getting, more or less, back to normal.
OK, here is where this gets graphic. I hope it isn't TOO much information.
No incontinence when lifting, sneezing, etc. Some minor dribbling after urinating, mostly just a nuisance and uncomfortable. I read somewhere, and I don't know where, that by reaching back under the scrotum and then pressing upward, and stroking forward that it would clear any remaining trapped urine. Sure enough, after you think you're done, a quick press and a forward stroke, and there is usually one more good squirt. This almost entirely eliminates the after dribbling, at least for me. I don't recall reading this little tid bit on here. Maybe it will help others. Of course, depending on what kind of surgery you had, this may be a very tender
location for a while. With the DiVinci it isn't a problem.
OK, more graphic information.
On the ED subject. Prior to surgery there was rarely ever a problem.
After surgery, nothing was happening at about
week five. Fortunately, at about
week six, with the assistance of the little blue pill, we were able to have VERY successful intercourse. [img]/community/emoticons/tongue.gif[/img] Oh what a relief it was. Ha.
Since then, some normal function has returned, but rarely enough to do anything with, without some assistance from the pill. The frequency of our sex life is back to normal, I'd say and in some ways better than before. Some days it is frustrating though. However, it still hasn't been four months since the surgery, so I'm optimistic that things will continue to improve.
I've read several comments on here about
the various ED drugs. Let me share my experience. The doctor started me on 100 mg Viagra. It worked the first time I took it, but resulted in a severe headache. I learned, from reading on here, that cutting each pill in half it seemed to work as well and greatly reduced the side effects. The doctor also gave me some samples of Levitra and Cialis.
The Levitra "mostly" worked, but not as well, and didn't last as long. It was clearly better than nothing, but some days not much better. The Cialis took a long time to work and was, again, barely adequate. Clearly in my case, the Viagara has been the most successful.
So, in my case, and at least for now, life is good! [img]/community/emoticons/yeah.gif[/img] No more cancer, no incontinence, and with a little assistance the ED issue is very manageable.
The next PSA is set for mid to late March.
I feel extremely blessed. I feel that I have an extremely capable doctor, who found and corrected something that many other doctors wouldn't have detected until much later.
So that is the story. If there are questions, or if I can help others, feel free to ask. Otherwise, I'll likely just got back to lurking.
Well, now maybe is a good time for an update.
It has been some three and a half years since my diagnosis, and almost that long since the surgery.
I'm pleased to report that "all is good!" Just got the results of the latest PSA. It continues, as it has been, less than 0.04, or essentially undetectable. So, that I consider to be my best Christmas present.
The doctor is only seeing me once a year now, even though he wants to continue the PSA every six months. They are now telling me, that if everything still looks good at the five year mark, the surveillance will likely be reduced to once per year.
So, I share this to, hopefully, provide encouragement to others who are at various stages of the struggle. You can get through it and return to a normal life. It never totally leaves you mind, but it can become a distant memory.
Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6 revised to 4+3=7 after pathology, 11/27/06 PSA undetectable. Remains undetectable 12/09
Post Edited (Bent1) : 12/23/2009 9:24:28 AM (GMT-7)