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lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 1/16/2007 8:27 AM (GMT -7)   
Hi Daveed!
 
Just read your response in another thread . . . had you thought about opening a thread in here dealing with support or the lack thereof?? 
 
I'm thinking there are many others out there (lurkers perhaps) who also feel they haven't had the support they should have . . . it could be a most informative, helpful site for all.
 
Just look at the posting dealing with the ED devices originally started by MrLincoln on December 5th!  Who would have thought he'd have 2667 hits and 87 responses within just over a month with tons and tons of useful information within?
 
A topic dealing with what a person with PC is going through in the support/lack of area would be most helpful . . I'm sure there are so many to benefit in this area.  Are you willing to talk??
 
In caring friendship, Bob & Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.   Next PSA check Feb 27, 2007.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 1/16/2007 8:36 AM (GMT -7)   
Bob and Linda
I wouldn't mind opening up another dialogue. Just don't know if this is the place or if it would just bore others to "air your laundry"
Thanks
Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/16/2007 9:27 AM (GMT -7)   
I think most of us have 'laundry' of one sort or another. Just not willing to talk about it, but it's incredibly important. Prostate cancer is an affair of the heart in many ways and it affects our relationships tremendously.

Regards,

Bill

P.S. None of this is required reading. Those who aren't interested may go elsewhere.
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 1/16/2007 9:35 AM (GMT -7)   
I will start something tonight when I am home from the office
Thanks
Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/16/2007 10:31 AM (GMT -7)   
Daveed, remember me? your friend Pete? Remember my dirty laundry? I don't know but I remember you & Jet, & Bob & Linda telling me to go for it! that I would be helping others as well as myself. Well I don't know about the others but I know it helped me, infact I'm thinking about finishing my story. The one I was so worried about boring and offending everyone. I think you should go for it too! Let it go, it feels great.
Your old friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/16/2007 12:15 PM (GMT -7)   

Hi! Daveed,

 

We are all friends and we’ve been through a lot together.

Don’t shut us out now….

We are still here to help each other over stepping-stones that are in our path.

Biopsy is over

Diagnosis is over

Surgery is over

Healing / Recovery is a stone that can take some time to move on to the next one.

 

Healing / Recovery from the surgery comes quicker than the stone with emotional pebbles that seem to linger.

 

We are here for the long haul…. So you may as well unload the heavy bales.

 

Helping Hands ~ help in many ways.

 

Remember what you’ve said to many of us in the past…

 

Our Hands are Reaching Out to You!!!

 

Back at you friend ~ Don’t let us go!!!  Okay….

 

Daveed…. We are all “special friends” and we are here for you!!!!!

Talk to us my friend!

 

Special Hugs from Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 1/16/2007 7:39 PM (GMT -7)   
boy am I p***d off I spent an hour typing and I must have hit some wrong button because it did not post. I will try agin tomorrow.
Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 1/16/2007 9:10 PM (GMT -7)   
Daveed--From my experience here, folks are open to listen and respond to whatever is on your mind.  I've appreciated the openness, the support, the caring, and the informative messages.  This forum so much better than I ever expected of an Internet forum on prostate cancer. For me, it helps just to know that everybody here is going thru what I'm going thru.
 
As far as support from wives,  I can say that my wife and I have been thru the emotional roller coaster in the past year.  Our relationship has been redefined in significant ways by prostate cancer.  What helped me the most is the understanding that prostate cancer was as difficult emotionally for my wife as it was for me.  At first I thought she didn't care, but the more we talked the more I understood that she cared more than I knew.
 
We kept talking and still keep talking thru the ever-changing prostate cancer journey.  We love each other more deeply as a result of this evil disease that neither of us asked for.  We are thankful to have each other and are less apt to take each other for granted.  Another lesson learned is that we take life a day at a time and squeeze joy out of the ordinary ways in which we are a couple. 
 
Life hasn't been easy, but it's been good. We're on this journey hand-in-hand, heart-to-heart. 

Age 58 PSA 2.6 Gleason 5
Bi-lateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA non-detectable

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