norskie journey from the beginning

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norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/17/2007 5:56 AM (GMT -6)   

norskie

 

Stats Age at diagnosis 48 and biopsy results on 11--08-06                                             Current after Pathology Report

PSA 6.22                                                                                                                  Age 49

Gleason 3+3=6                                                                                                        Gleason3+4=7 some agressive cells found score of 5

Stage T1c                                                                                                                 20% of total prostate cancerous

2 of 13 core samples positive 10% each                                                                  Cancer 100% capsule contained

Di Vinci Surgery 01-9-07

Catheter out 1st time 01-18-07

Catheter out 2nd time 01-24-07

Continence status- 1 Pad per day for small leaks 2-3-07

Up-date still same 3/22/07

ED- Back to 90 - 95% prior to surgery, no medication required.

First post Surgery PSA test 3/22/07 <.01 Undetectable

 

 

 

 

The Diagnosis

It was time for my yearly physical, the one we all do to make sure we are healthy right. I am a white male about 6 feet tall and 188 lbs. The morning of 9-26-06 arrived and off for my appointment, the standard routine stuff for a 48 year old in good physical health and condition. Now time for the DRE and I never appreciated the thoroughness of my doctor until this year. He said I don’t know that I really noticed anything but I thought I felt a slightly firmer spot, I think we should do PSA blood test just to be sure, probably nothing. Everything else looked good so off to get the blood work done and get back to the office. That afternoon my doctor called and said the test came back elevated for a guy of my age, like 3 times too high at 6.22. He said still probably nothing because the PSA is not a perfect test but he recommended that I see an urologist. Appointment made for 10-11-06 and the preliminary information seeking beginning to start. I didn’t even know what a prostate did or what a PSA test indicated, so a little digging. October 11th arrived and another physical and DRE along with a urine sample, which came back fine. The urologist concurred with my physician that he too may have felt something, so he recommended an ultrasound and biopsy and the appointment was set, 11-01-06. So back to the Internet and ultrasound and biopsy information and how this would be completed, they are going to do what where!!! Well November 1st arrived and the tests completed and again the urologist stated he didn’t see anything too suspicious, more Internet information searching because I just starting to get the feeling I somehow would get diagnosed with cancer. For now through it was my Tim Conway imitation at a stop on the way home at a home improvement store and figured I better get home, this had taken a little more out of me that I thought it would. By that night I was pretty well over it, but not a lot of fun.

4 days later I had a business trip scheduled to Dallas so off I went, upon returning home on November 8th my daughter informed me that a doctor had called that day for me and he would try later. I let the morning of the next day go by and no word so I made the call and discovered he was on vacation the rest of the week. Well my thoughts were if it was serious he wouldn’t just leave and not tell me, maybe I had hope. They had his assistance call me back a little later and she had the results and the word we all dread, it came back positive you have cancer.  The good news she told me it was only in 2 of the 13 core samples and not in all of them but we would need to make an appointment as to what we should do next. I asked a couple more questions, not that I can’t tell anyone of you what they were but at the time it sufficed. So I set back thought for a couple minutes, what does the mean? What am I going to do? I have two young kids and a great wife. It was at this time that I decided right then and there, I would have no feeling sorry for myself this would not be a death sentence or having anyone feel sorry for me. This must have happened for some reason and I can turn this into a positive, a message for others my age or who knows what, I was sure god would be with me. But for now back to research as everyone on this board has done. Surgery options, radiations options, freezing, heating etc. So with as much information as I could find I went armed with questions for my urologist and the scheduled consultation. To be continued in the next post, The Treatment Decision.       


norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.01 Undetectable
2nd Post PSA Blood Test Scheduled for 7/5/07
Incontenence 1 Pad a day
ED back to 90-95% prior to surgery - no medication required.

Post Edited (norskie) : 3/23/2007 7:58:57 AM (GMT-6)


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/17/2007 5:58 AM (GMT -6)   

The Treatment Decision

Before we met with the urologist I did a lot of research on what to do, read as much as I could and looked for messaged boards, unfortunately I didn’t find this one until I was all scheduled and ready to go. At first I read about the clinic in Georgia and their seed and beam radiation procedure and thought this was the way I would go, maybe not there but that treatment. Then I read about the surgeon in Florida who does hundreds of the laparoscopic procedures each year and the patients would be up and moving around the next day almost as nothing had happened. Well on November 15th 2006 I and my wife went to meet with the urologist and see what options we had. I had already did a lot of research and knew there were numerous options available, actually more overwhelming then learning I had cancer. He went over the numbers with us, PSA 6.22, 2 of 13 cores positive each 10% cancerous, 2 others suspicious, Gleason 3+3=6 and Stage T1. We spoke briefly about surgery and that he preformed the open radical surgery and completed about 20 to 25 a year. We talked about seed implants and external beam and would be happy to set up an appointment with the radiology department to go over those treatments. We also discussed laparoscopic surgery and Robotic surgery with the De Vinci. He told me they didn’t see any better results with those surgeries than the open procedure they did that warranted them going to either of those procedures. He also stated I was young, in good shape and his recommendation would be surgery because I should have 30 plus years of life and good health in front of me, this I did agree with. We talked more in depth of what he would do if he preformed the surgery and along with removing the prostate he would automatically remove the limp nodes and at least one set of nerves along with everything else, just the way he did it. He said I didn’t need to decide right away, I had time and I could call him next week. Well as we left the office and on the way home my wife and I had time to confer. God love my wife but being the worrier of the family was ready to schedule the surgery with this doctor and get the thing out. I said no, I had time and wanted to check with our insurance and a 2nd opinion. Also I had learned that even if I choose surgery and which method, the most important thing was to find an experienced surgeon who preformed many surgeries each year and 20 to 25 per year didn’t seam to meet that. Nothing against the doctor or the hospital, they are well known for many things and are very good at them, I just wasn’t ready to turn myself over to them in this case.

Sometimes fate steps in, in finding a few patients that had made the same type of decisions I ran into two others that had my same doctor locally and both chose to go else where. One of them had chosen University Hospital in Madison WI to perform a laparoscopic procedure about 18 months ago and was very happy with the outcome. Also at this same time our insurance got back to me and while they were open to a second opinion they highly recommended it and we had a service called, Cancer Resource Services that helped in directing you to one of 21 approved cancer centers they recognize which in my case happened to be the Paul Carbone Cancer Center at University Hospital in Madison WI. So I made a call to them to discuss getting a second opinion and to meet with an urologist and I really was interested in discussing the De Vinci procedure. In the days between meetings I had come to the conclusion that I was 90% sure surgery was for me based on the following.

 

1 My present age (48)

2 My present health condition (Excellent)

3 The fact I had two young kids (9 & 12)

4 The fact I should have 30 plus years life remaining

5 The fact if cancer had spread, I could still follow up with radiation where in reverse surgery was not as easily preformed after radiation.

6 The stage of my cancer hopefully still contained with-in the prostate  

7 And plus it felt like the right thing for me, personal decision everyone makes.

 

Also there were three items that I rated in order of importance that I wanted to accomplish

 

1 To have the best chance of long term cure. (Without item 1 item 2 and 3 wouldn’t matter if I wasn’t here in 5 years or whatever.

2 Incontinence. Next in line of priority of life was this issue and now that surgery looked like the way I was leaning it appeared that there may be a slightly better chance of regaining this utilizing the robotic procedure. However I don’t believe there is any difference in the procedure it’s the surgeon who makes the biggest difference.

3 ED problems. This rated third in my list of priorities but again with surgery it appeared there was good nerve sparing capabilities utilizing the De Vinci. Again if you have a good surgeon I don’t know that there is a major difference.

And a bonus number 4, the De Vinci had the added benefit of being less evasive and able to get back to normal life and work sooner.

 

My first impression came in how quickly UW Hospital responded to my initial inquires and how fast they scheduled me for an appointment. The two nurses on the phone after hearing my story decided they should get me in to see Dr. Jarrard and scheduled me with-in a week. So on November 27th we met with Dr. Jarrard at UW Madison and went over many of the same topics. They had started the De Vinci procedure just this past February and he had preformed 2 to 4 procedures a week and had 80 plus completed since they started, not the greatest number of experiences but everyone starts somewhere. Another item that made a big difference was the fact the he primarily worked strictly with prostate issues both as a surgeon and in research at the UW, so if someone should know the prostate he would be the one. He talked to us a long time and answered all our questions and never pressured us as to he was out of time, he gave us all the he answered it this way. I need to compare apples to apples so if I compare men in your health condition, age and stage of cancer he gave me a 95% chance of being completely cured and having all my other working functions, in fact he said a year from now if your sitting in that same chair you wouldn’t know that really anything was greatly changed. He was very optimistic and positive even though I know everyone is different and there will be a difference in my life. As we talked further and the one statement that put me over the top to have surgery was this. As we talked about all of the options including no treatment and changing lifestyle, diet and taking herbal substances, he said yes that is all there to consider also but the one fact that will not change is the fact you have it today, you may slow it down and live many years with it, but I have it and that will never change, at least today. So the decision was made as my wife and I both talked, we liked him, felt comfortable with him and it’s the thing we felt we needed to do, so a little checking with insurance, which turned into a little bit of an ordeal because we were all set up but our insurance through our employer was changing carriers at the first of the year. My surgery was scheduled for January 9th which was in the New Year and the new carrier. Long story short, it’s supposed to have been all worked out, too late now if it isn’t, it’s done. No worry I have a letter stating they covered it. So on to the next post, The Pre-Surgery Prep and Actual Surgery.     


norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal
Gleason score 3+3=6
De Vincie surgery 01-09-07 UW Madison
Post Op follow-up scheduled for 01-18-07 


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/17/2007 6:00 AM (GMT -6)   

The Pre-Surgery Prep and Actual Surgery

Now with the actual surgery date set and what seemed like along way off, by the way this time will pass quickly and you are there, I was set for the pre-surgery appointment to make sure I was a good candidate for surgery and the De Vinci etc. It turned out to be a 4 hour appointment on December 15th in which I met with doctors and nurses to cover some paperwork. Next was a meeting with a research nurse in which I agreed to provide a seamen sample prior to surgery, they are studying to see if they can find another way to diagnosis PC with out the need of a biopsy, of course I said yes because as stated earlier there must be a reason for me to get this and maybe I can help and turn this into a positive. Then it was time to meet the surgery coordinator and check me out physically and mentally. As we talked and another fact the made me feel better about the whole process was she made the statement that Dr. Jarrard wouldn’t even consider me for this surgery if I was not a good candidate. If there was any major doubt as to the chance of success he would direct me in another direction. Then on to blood work EKG and the anisthisougis. Again in meeting with them and as they reviewed the charts they all said the same thing, your having that procedure at your age, a little young but oh you have Dr. Jarrard, he’s excellent.

With this complete I now had about 4 weeks to get ready. I walked everyday that I had a chance and by the time of the surgery had close to 40 miles logged. I also started the Kegel exercises with the hope this too will make the incontinent issue better to deal with. So now get all things completed at home, Christmas shows to attend and all the other holiday events. This time passed real quick and the next thing I knew the day was upon me.

At 2PM on the January 8th and one last walk completed I started the bowel cleansing process to ready myself for the next day. We left home on January 9th for the 2 to 2 ½ hour trip to Madison. I checked in surgery prep at 9 AM and was wheeled into surgery at 11:06 AM, noticed the De Vinci across room, helped move myself onto the OR table and the next thing I remember is being awakened in the recovery room at 2:50 PM. In the time between I checked in and went to surgery I think I must have met every member of the surgery team who came in and explained what they would be doing what to expect, they were a great group and made me feel very comfortable.

But as the doctor told me just before they wheeled me in this is still major surgery and it hurts. I was out of recovery and to my room at 4 PM. I was pretty much out of it but not a lot of pain and the nurses made sure to take care of any discomfort I was feeling quickly. They had me up at 7:30 for my first walk which did not go very far. Out the door of the room and maybe 5 feet down the hall at which point I was ready to pass out but the nurse and my wife helped me back and now time for an hour nap. Don't give up if you think it wasn't very good, as the nurse told me many can only stand next to the bed and that's it, plus it had only been 5 hours since the surgery.

They kept me comfortable that evening with pain meds and it wasn't too bad. They pulled the drain the next morning at 6:30 am and I ordered and ate a little breakfast at 8 AM. Key here is a little breakfast, a little oatmeal and some Jell-O and then very little else. As stated the gas is the worst part. Up walking around at 9 am and passing a little gas. I was not able to walk all the much, a couple trips up and down the hall and then a nap. Again don't feel it's not enough.

about 2 PM after going over the instructions I was on my way home some 27 hours after the time they wheeled me in. But now it was a little bumpy 2 hour ride home, thank god during the pre-surgery appointment the surgery nurse told me to bring two pillows, one to sit on and one to hold over my belly that helped. The first 48 to 52 hours were the hardest part for me, a little pain and a lot of gas that was hard to find away to get moving. The rest of that night and the next day, Thursday I felt like that I had a good case of the flu, aching body, some pain, gas and no way to get comfortable no matter what I tried. This may just be normal or a little of my own fault too. I wasn't taking my pain meds any more then I had too and maybe should have taken a little more often. I now take one pill two to three times a day, morning, mid-afternoon and bedtime, things have been much better. In short it was at about the 52 hours removed from surgery that I all of a sudden felt better had an urge to eat and was able to get up and around much better. So in my case hang in there for the first 48 to 60 hours and it gets better. I find I now really love popsicles.

Friday January 12th and my first allowed shower, I am feeling human again and tried attaching the leg bag for the day. I have noticed most here just like to keep the large bag on to capture urine around the house, but I have been much more comfortable with the leg bag for the daytime. Yes it does fill every 1 1/2 hours or so, but it makes me get up and around, which is good.

Saturday January 13th and feeling real well, so good in fact I decide to do a little work on the tread mill seeing how Wisconsin finally got winter over the weekend and didn’t feel like trying walking in a cold wind chill, snow and ice. This however may have been a mistake, even through I took it extremely slow and did not walk more then a little over a ¼ mile I paid the price by not sleeping well Saturday and spend anther uncomfortable day on Sunday running slight fevers and just plain week. If I did this part over again I would just continue to walk around the house at a leisurely pace.

Monday and Tuesday the 15th and 16th are better but if I have a problem I have a little constipation which is causing my slight lower stomach pains, nothing server however. My next appointment will be this Thursday the 18th in which I will get the pathology report and hopefully the catheter removed and then the real test. But more important will be the results and hopefully the words we all look for, cancer 100% confined to the prostate. I will report back in late on the 18th or the 19th with the results and continue to up-date every once in a while on how the incontinence and ED issues are coming along.

I hope this helps someone and thanks for all the good support from this site.

 Friday January 19th up-date. Well here is the up-date form Thursday's post op and pathology report and this day turned in to one crazy day. First my buddy the catheter was removed and my voiding wsa a sucess, althrough it was a little redder then normal the nurse told me to keep pushing the fluids, step one covered and it felt great to be free. Now into the meeting with the doctor and go over the reports.
Original PSA 6.22, Gleason 3+3 = 6, Stage T1, 2 of the 13 core samples positive 10% each
Actual Gleason 3+4=7 with a couple agressive cells at 5 alone, 20% of the prostate canerous. I didn't happen to get a new staging. Cancer contained with in the capsule.
Bottom line the doctor said it was a good thing I decided to have this done now vs. not finding or taking care of this in 2 or 3 years. With that agressive cell it could have been much worse by then. The one kind of disclaimer he had was the fact that my cancer begain right at the Lower Apex and there is always a little doubt about the joining of the two organ capsuls and if some might have been shared. But he did not seem overly worried becasue he said if there were any right there they typically would be killed during the process in which they are buring the cells with the instruments to separatem them at the point. Don't know if anyone would have more info on that.
Anyway all is good lets go home. about an hour up the road I notice it's time for my first attemp to urinate so a stop at the first fast mart store we see. I know the meaning of planning in advance, when you need to go, you need to go. So out of the car and notice the first 3 drops down the pants, the good news was I was able to hold the rest until I got to the restroom. This is where it all fell apart, unpon finishing yet more red urinie I begain to have an extense burning in the penis that grew into the stomach area and having intense pain and spasms like I have ever had. I later learned I was a lucky one to experience bladder spasms. Better yet and long story short I got to experience this two more times last night, thank god the third time as we were on our way to our local ER because the third one never let up. Well I have some muscle relexers and my buddy the catheter back. While disapointing and I am being one of the unlucky ones to experiece some of the problems, I just think back to the doctors words had I not found this for 2 or 3 years and the shape I might have been in, so I continue to have faith. I have heard of bladder spasms right after surgery but has anyone else experienced this 9 days later.
For now this is the up-date.
Thursday January 24th 2007

Well try number two at having the catheter removed, it's now been 6 more days and 15 days total for the catheter hopefully everything is healed better and no more bladder spasms, never want that feeling again. No wonder I was much more uncomfortable these past 6 days, the new catheter was much larger and less flexable than the previous, in fact the hospital in Madison does not even carry any this big. If the object was to keep me less active, it worked. We joked that the hosptial that reattached the second catheter got even with me for not having the surgery there. Anyway the voiding trial went well and worked as planned. I hung around drinking fluids to insure there would be no further problems. Try number two worked fine and a quick ultrasound showed I emptied well. Still hung around for a third try and started to feel discomfort but turned out to be the need to urinate was causing the discomfort. The urine is still rather bloody and red but did clear a little with each time I went. Well the two hour trip home and two stops to use the bathroom and home I am. I find I need to use the bathroom about every 40 to 45 minutes becasue I begin to fell the discomfort and when urinating I do feel a certain amount of discomfort and I am sure this is due to the blood in the urine and the fact that this is the first real day of trying to get things working again. It's too early to judge my continence situation but if I concentrate really hard when I stand up I can usually hold my urine or just dibble a drop. So far I can get by with one pad for the day as long as I get to the bathroom in those 45 minutes. Overnight I had to get up 5 times and had a little more leakage but not total loss of control and of course much redder from blood from not drinking over night. Things are clearing up as the day goes on but I do have a certain amount of dicomfort each time I urinate. I feel hopeful that as the urine clears and I continue with the kegel exercises each day, my doctor has me doing 20 sets each hour, that I will be fine and will report in a few days after I have time to continue to heal and get stronger. As someone said on the board, this is a journey and once you clear one hurdle you encounter a new one but with each and everyday a hurdle is cleared. Aside from this my next big hurdle is my first post op PSA test scheduled for March 12th.

February 3, 2007

Well I am now 25 days post surgery and 10 days post catheter removal, the second try. Once past the bladder spasms and with the catheter gone for the second time I keep getting a little better everyday. This past week has seen dramatic improvements in these last 6 days getting stronger and feeling more normal. I have found out that I will tire easily and it will take time to get the same ole energy back but I am up out and around. I also found that even though I feel good, going to my daughters basketball game the other night, that I tired easily and the bleachers are not really made for me and comfort in the mid section, it must just bend me in the right way to make it uncomfortable. As for incontinence issues I feel very fortunate although I can not take anything for granted. I have been able to get by with 1 pad per 24 hour period with just small leaks, I just have to concentrate very hard prior to every time I am going to get up and move and once in a while I will feel a drop slip. I do find that I have the urge to urinate quite frequently and as of today I cannot wait for more then an hour, no matter how much I have built up. The same urge is there if I have a bottle full or a thimble full and sometimes it feels as I could go again after just going, but at least I am able to control things for the most part. I have to keep up on the kegels and get stronger and I am sure I will get there in due time. A lot of the time the pad is there more for confidence I feel. I do know as I move around more it takes more concentration to make sure things are in check. I plan on going into the office for some limited hours starting next week at 27 days post surgery and see how things go.

As for any erection action, I have had some good sensation in the furnace room area and a couple mini enlargements. I haven’t started any drugs yet or tried any more activity with my wife as the doctor wants me to hold off till I am a little more healed.

So in short I am doing pretty good, can’t take nothing for granted and must really concentrate but no major dam breaks in the incontinence issues. I still will take a Tylenol or two a day to help tweak of pain here or there on occasion. The biggest problem is on some nights I don’t sleep well, getting up 5 and 6 times to go to the bathroom. Then on other nights have been able to get by with only a couple trips. As everyone says on this board, time is the great healer, keep up the kegels and you will get there, just don’t try and do too much too soon.

 

March 11, 2007

Well I am now 8 ½ weeks past surgery and everything overall is pretty good, no major issues and as everyday goes by things generally get better.

Incontinence continues to be minor with a little dribble here and there just enough to be aggravating. I use ½ of 1 small pad every 24 hours and most times it’s not catching a lot. I probably ware if more for confidence right now. I can go for a period of time like I used to feel before surgery and then it must be when I get tired I have more of the urge or at least the feeling I have to go. It makes a difference to keep doing the keggels and I hope to get out and do more walking now that winter is starting to let up here in the upper Midwest. I generally only have to get up once during the night now.

Sexual functions has also been very promising, I have not and currently do not take any medication to help produce an erection, I have been lucky in the fact with just a little work I can get an erection that is probably about 90% of what it was before surgery and can produce penetration without to much trouble. We have only tried a couple times as I have not been back for my follow-up with my doctor and my last appointment he had not wanted me to try yet, plus the one real fact is I just don’t have the same urge just yet but the plumbing works.

In general I just completed my 5th week back at work and the one thing I am still adjusting to is my energy level. I get tired by late afternoon and by the end of the week I am pretty done in. Also getting started in the morning is more of a challenge for me; I just can’t seem to get the energy back. I only have an occasional pain or feeling in the area of the incisions it sometime feels like I have a muscle pull mostly in my right side.

Overall I feel very lucky and really have appreciated the information from this web site has provided me and the caring folks that respond. Right now I am just waiting for my first post surgery PSA test and follow up appointment and hopefully I will be a “0”. One of the few times a 0 is the preferred number. My appointment is on March 22nd and will check back at that time to report my results.

 

March 22, 2007

Well I am now 10½ weeks past surgery and everything remains overall pretty well and I continue to get a little better all the time.

First Post PSA Test was done on 3/22/07, results < .01 or undetectable.

Incontinence continues to be minor probably more frustrating than anything that I just can’t seem to completely shut off the faucet and a drip comes every now and then. It’s was real good last Sunday but each day this week has been more of a challenge. Making sure to keep doing the kegels and walking as much as I can. The doctor said as my bladder continues to adjust to the prostate being removed and looking how to properly fit, I might be having small bladder spasms on some days due to this and it is trying to empty the bladder when there really isn’t much there, thus the urgency I feel sometimes. I will need to just keep working on it and it could be another 6 months or so. I continue to ware ½ of 1 small pad every day for protection, hey at least it’s a nice warm feeling once in a while; remember to keep sense of humor also.

Sexual functions continue to go well, I don’t have the same urge as before but when I do things are working at about 90 to 95% of the way it was prior to surgery with no medication, so very lucky. As for the lack of desire that is pretty normal at this time and should return also as time goes on according to the doctor.

In general all is pretty well this is the 7th week back at work and the energy level is getting better slowly but I am getting by. With a 9 year old and a 12 year old at home they make sure to at least get me moving and a loving wife that has many plans for me, that says it all. She has been great through all this and in fact told me to get out of here a few days with my good buddy that called last week and said lets go to Augusta and visit the Masters and have a little fun, so I am gong. The price to pay her back for all she has helped me through just went up. My doctor is setting up an appointment with a dietician which he feels is the most important thing for continued success and I will see how bad I am. We try and eat and stay pretty healthy but I am sure we can improve.

So I have been blessed this week with a good PSA report and now wait for my next test in 3 months. I can only wish and pray all who read my journey to have as good of results as I have had to date. Thanks to all on the board who add support and advice daily, this is a great place.  

July 5, 2007 

I am now 6 months post surgery and things are pretty darn good, my latest PSA came back at < .1 or undetectable. I have now gone pad free for the past month and half and only have minor ED problems; for the most part everything works as advertised. I am very fortunate on all fronts, the first being the cancer appears to be under check, I have control of continence and very little ED problems and I don’t have the need for any medication for erections etc.

 

norskie

 

 

 


norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.1 Undetectable
2nd Post PSA Blood Test 7/5/07 <.1 Undetectable
3nd Post PSA Blood Test Scheduled for 11/12/07
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.

Post Edited (norskie) : 7/6/2007 1:37:52 PM (GMT-6)


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 1/17/2007 9:58 AM (GMT -6)   

Welcome aboard Norskie.

Your tale is great to help others that would have a fear of surgery (like I had) that it is not that bad and everyday following is an improvement. Hope the pathology report and upcoming PSA teat are all clear and the beast is dead.

God Bless


Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 1/17/2007 10:19 AM (GMT -6)   
Hi Norskie,

This is an outstanding and very detailed posting. This will really help others to understand the entire surgery process. I find that fully understanding something like this makes it less frightening.

It sounds like you are doing great in your recovery. I had the same gas problems that you mentioned. That is pretty normal. I found walking (other than around the house) to be difficult (due to both embarrssment and discomfort) until after the catheter was removed. Just take it easy for the first few weeks and recover from the surgery. Start your walking again after the catheter comes out.

I notice that you and I are both 49 years old which is younger than most who get PCa. However, I have talked to quite a few people who got PCa in their 40s since I was diagnosised. I wonder why people are getting PCa younger? Maybe it is just that better diagnostic techniques are catching the cancer sooner than was true in the past.

In any case, I wish you the best and hope that you get an excellent (negative margins) pathology report. With your 6 Gleason and your excellent doctor, you should be fine. I hope that you are continent from day 1 after the catheter removal. However, if this is not the case don't be too discouraged. The "typical" time is 2 to 3 months which unfortunately appears to be the case for me.

Ben


DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage 2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: First post op PSA was 0.00 in 12/06.

Post Edited (BenEcho10) : 1/17/2007 9:01:50 AM (GMT-7)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/17/2007 10:41 AM (GMT -6)   
Man, another great post! Norski between you and Ben we really have some outstanding writers in our little family now. You two keep it up! your posts will be such a great reference for the unfortunate brother that follow in our footsteps!!!
Thanks again!
Your friend, Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/17/2007 8:43 PM (GMT -6)   

Hi Norskie,

 

These types of threads are so important!!!

Thank you for taking the time to share it all with us!!!   :-)  

 

I posted the following to BenEcho10 and feel strongly that the same words apply here…

 

This is a “Powerful”  Personal Journey Thread!!!!! 

 

I hope you don’t mind me placing it on the Helpful Hints page where I’ll be adding a direct link to it…..

 

I am thrilled that you’ve started a Personal Journal to share with us. 

With a Personal Thread…… Journal / Diary / Page…. We get a true understanding of where a person is or has been, where they are or have been, and where they are today, and where they are headed!!!!

 

**Individual Topic Threads are very important…. Definitely!!!!  Journals let Newbies understand the individuals and see their path.  And to me ~ that’s very important… as important as the individual topics.

 

 

And they help all of us to know where others have been and where they are today.

Thank you so much for your sharing……….

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/17/2007 8:56 PM (GMT -6)   

Norskie.....

 

Just food for thought!!! 

Jetguy is editing his 1st post on his new thread to keep the updated info at the top rather than interspersed throughout the thread...  I personally like this idea… and plan to add it to Helpful Hints.

 

You could continue to update on your 3rd post…….  With daily/weekly/monthly updates....  :-)  

 

Then ~ when you have a response to your postings by other members or you add to your journal …you can do the regular add post to let us know you’ve updated or just reply back to someone’s posting to you…and it won’t interfere with your updates on your journal.

 

You may have already planned to do this but mama bluebirds like to chirp~chirp~chirp

Because I care!!!!!  Again………..Just a personal opinion….. 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/17/2007 10:03 PM (GMT -6)   
Norskie, you are providing a wonderful service to you fellow men.

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/19/2007 3:11 PM (GMT -6)   
Well here is the up-date form yesterday's post op and pathology report and this day turned in to one crazy day. First my buddy the catheter was removed and my voiding wsa a sucess, althrough it was a little redder then normal the nurse told me to keep pushing the fluids, step one covered and it felt great to be free. Now into the meeting with the doctor and go over the reports.
Original PSA 6.22, Gleason 3+3 = 6, Stage T1, 2 of the 13 core samples positive 10% each
Actual Gleason 3+4=7 with a couple agressive cells at 5 alone, 20% of the prostate canerous. I didn't happen to get a new staging. Cancer contained with in the capsule.
Bottom line the doctor said it was a good thing I decided to have this done now vs. not finding or taking care of this in 2 or 3 years. With that agressive cell it could have been much worse by then. The one kind of disclaimer he had was the fact that my cancer begain right at the Lower Apex and there is always a little doubt about the joining of the two organ capsuls and if some might have been shared. But he did not seem overly worried becasue he said if there were any right there they typically would be killed during the process in which they are buring the cells with the instruments to separatem them at the point. Don't know if anyone would have more info on that.
Anyway all is good lets go home. about an hour up the road I notice it's time for my first attemp to urinate so a stop at the first fast mart store. I know the meaning of planning in advance, when you need to go, you need to go. So out of the car and notice the first 3 drops down the pants, the good news was I was able to hold the rest until I got to the restroom. This is where it all fell apart, unpon finishing yet more red urinie I begain to have an extense burning in the penis that grew into the stomach area and having intense pain and spasms like I have ever had. I later learned I was a lucky one to experience bladder spasms. Better yet and long story short I got to experience this two more times last night, thank god the third time as we were on our way to our local ER because the third one never let up. Well I have some muscle relexers and my buddy the catheter back. While disapointing and I am being one of the unlucky ones to experiece some of the problems, I just think back to the doctors words had I not found this for 2 or 3 years and the shape I might have been in, so I continue to have faith. I have heard of bladder spasms right after surgery but has anyone else experience this 9 days later.
For now this is the up-date.

norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal
Gleason score 3+3=6
De Vincie surgery 01-09-07 UW Madison
Post Op follow-up scheduled for 01-18-07 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/20/2007 10:37 PM (GMT -6)   
Hi Norskie,

Thank you for your update… and it’s good to hear a healthy positive attitude even with the setback. You will be moving forward soon and this will be behind you.

Our urologist gave us a prescription for bladder spasms that we were to take every 12 hours… 60 capsules total. We did not experience any problems.

Our thoughts are with you and hang!!
In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/28/2007 3:21 PM (GMT -6)   
Norskie
I see where you've updated on 1-25 at the top of this Thread on page 3..

Perfect!!!!!!

I'm going to enter this entry so it moves Your Thread back to the top!!
:) Lee

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


1588ap
Regular Member


Date Joined Feb 2007
Total Posts : 32
   Posted 2/5/2007 1:17 PM (GMT -6)   

Hi Norskie; read all of your journey-thank-you. I am 47 and so glad I caught it now--looks like the agressive 5 cells can't be identified until post-op, wish I knew more about my cancer pre-op. My surgery slated for 2/28-hard time remaining positive-that the surgeon will get it all-look forward to following your journey-best wishes

-1588ap


Age 47 excellent health
First PSA test ever 12/06 was 17.2
Biopsy - Gleason 3+4=7 involving all core biopsies 80% on right and 30% left
Scheduled for DaVinci 2/28/07 near NYC


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/10/2007 2:15 PM (GMT -6)   

Hi… Norskie,

 

After seeing all the Threads… I’m going to post here!!!  I’m glad to see the updates still coming in.  This is so important!!!  Thank you…  yeah  

 

I’ve really enjoyed re-reading  “Your Continued….. Journey”….. 

A wonderful thread for Newbies & Oldies  tongue   too!

 

                                    Just a little note to let you know we are... 

                          Thinking of " You " 

and hope to hear back soon with your 1st PSA

and an update too!!!  J

 

 

 (direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

 

7–07 Norskie PSA and Status Up-date

2-03  norskie up-date 2-3-07

1-25  Catheter Take II 

1-23  Bloody Urine

1-20  norskie post op and pathology report

1-17  norskie journey from the beginning  (Updates are always placed here!!)

1-13  norskie journey

 

Post edited to add new thread

Post Edited (bluebird) : 7/7/2007 7:19:30 AM (GMT-6)


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 3/11/2007 2:30 PM (GMT -6)   
Thanks for checking up on me Blue Bird, this is by far the most informative and caring site I have found and I really appreciate everyone here that takes the time to share thier stories and information. I check in alomost everyday and see if there is anything I can add but for me the past few weeks have been rather low key just learning to deal with little things. I have attached the following up-date to my journery and as to my present conditions. I await for my first post surgery PSA appointment with my surgeon.

March 11, 2007
Well I am now 8 ½ weeks past surgery and everything overall is pretty good, no major issues and as everyday goes by things generally get better.
Incontinence continues to be minor with a little dribble here and there just enough to be aggravating. I use ½ of 1 small pad every 24 hours and most times it’s not catching a lot. I probably ware if more for confidence right now. I can go for a period of time like I used to feel before surgery and then it must be when I get tired I have more of the urge or at least the feeling I have to go. It makes a difference to keep doing the keggels and I hope to get out and do more walking now that winter is starting to let up here in the upper Midwest. I generally only have to get up once during the night now.
Sexual functions has also been very promising, I have not and currently do not take any medication to help produce an erection, I have been lucky in the fact with just a little work I can get an erection that is probably about 90% of what it was before surgery and can produce penetration without to much trouble. We have only tried a couple times as I have not been back for my follow-up with my doctor and my last appointment he had not wanted me to try yet, plus the one real fact is I just don’t have the same urge just yet but the plumbing works.
In general I just completed my 5th week back at work and the one thing I am still adjusting to is my energy level. I get tired by late afternoon and by the end of the week I am pretty done in. Also getting started in the morning is more of a challenge for me; I just can’t seem to get the energy back. I only have an occasional pain or feeling in the area of the incisions it some
time feels like I have a muscle pull mostly in my right side.
Overall I feel very lucky and really have appreciated the information from this web site has provided me and the caring folks that respond. Right now I am just waiting for my first post surgery PSA test and follow up appointment and hopefully I will be a “0”. One of the few times a 0 is the preferred number. My appointment is on March 22nd and will check back at that time to report my results.

norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test Scheduled for 3-22-07 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 3/11/2007 2:51 PM (GMT -6)   
Hi Norskie,

Thanks for the update. Sounds like you are coming along just fine and I am glad to hear that. We need all the success we can get. And good news on the potency progress. You will be back to full strength before long.

The first PSA test is a big deal. I slept better on the night before surgery than the night before my first PSA results. We will all help you sweat it out.

Good luck...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/12/2007 5:55 AM (GMT -6)   
Norskie, thanks for keeping us up to date on your progress. it sounds like things are going along very well for you. congrats on not having major problems with ED! that's the second best news after hearing that your PSA is 0.whatever. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/22/2007 6:52 PM (GMT -6)   

Hi .... Norskie.....

Great update…on the 11th….

 

Your energy level will slowly work itself up to normal… and at your age ~ I’m thinking you will be back up to a more normal level as time goes by.  Each body is different and adding a work schedule to the process will have different affects.

 

You might monitor that pull in your side…. You don’t want it to be a hernia….  Buddy felt that for a while and monitored it very closely….  It has eased up but he also eased up on the exercise that he was doing when he felt it.

 

I just asked Buddy where he thought his energy level is for being 11 ½ months on the recover/healing process….Take time….. and let your body do the talking.

 

Energy 9 out of 10

Healing incision 8 out of 10

Exercise 8 out of 10  the stretching ones are getting easier….  On Tuesday & Thursday we have a 2 hour.... program we do at the Y!.  He continues to walk a total of  90 minutes,  2 sets of: stairmaster (full extention) 33 flights in 12 minutes @ random tension that changes every 10 seconds (medium to hard), 2 sets of stretching and 2 sets of free weight upper body. And then we swim for about 20 minutes.....

 

Thinking of you and wanted to let you know we are here for the long haul… Thank you for continuing to post your updates and as always… You are in our thoughts ~ especially today.

 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 3/22/2007 10:25 PM (GMT -6)   
Thanks Blue Bird for keeping me in your thoughts and keeping track of me and of so many other on this board, you do an outstanding job. Today was my next big phase in the journey and I will have to up-date all my information but 10 weeks and 2 days after surgery it was time for my first PSA test. To this point I have been overall blessed with my results. Back on my feet and getting back to work with little pain, minor incontenence issues that come and go and some days are better then others and the ability to get erections without medication when I have the drive. Sure everything is not like it used to be exactly and my doctor told me it could be 6 more months, so for now I will keep up the Kegels and the exercise and hopefully it will get me back close to what it was before. All these results are second to the main goal of getting the cancer out of your body and system. Today I have again been very blessed with a PSA result of <.01 which is low as they can read it at UW Madison so in short I got the big "0" that we all hope and pray for. I now will wait and hang on until my next PSA test to be done in July. My hope would be that everyone on this board could achieve the big 0 and it hurts to see others that come back with more challenges. I plan on hanging around and adding information and support when I can. You and so many do such a great job of providing support and information that it's amazing where you find the time, thanks to all of you. I can only hope some of my information will help someone along the way. I will go in tomorrow and update my stats and journey page so I am up to date, for now I am going to bed. With the good results my wife had me moving furniture and doing some spring cleaning after we got home, so much for the excuses now I guess.

norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test Scheduled for 3-22-07 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/22/2007 11:28 PM (GMT -6)   

Norskie,

 

You are allowed to take this time to rejoice in your PSA testing results… 

You’ve just had a surgery ~  hoping to eradicate a cancer in your body.

Please accept this special message …

 

*&^%$#@    WOO ~ HOO!!  (*&^%$#  undetectable!!!!!!

 

It is so important that we see and hear the results from each member of “our family”….  This journey has Good, Bad, & Ugly’s….   and this is where our love and understanding and support comes into play.

We are here!  We all hope and pray for the words Undetectable and it’s important that we share this with all.  We need to hear it just as much as you…. It is equally important that those who are needing us ~ that receive difficult results/reports… keep “posting” and yes… there are some postings that bring the fear back… but this is not a bad thing.  In my heart it is a continued reminder to be thankful for today.  And to know that others may be suffering or in a tail-spin… and that’s where we all are helping by being here for them.

 

Thank you for your kind words… in your post!!!  It’s a gift we love to return… Caring Enough to Share… Our thoughts are with you as you take a nice deep sigh and move on to the next stepping-stone…. ~  moving forward….

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 3/22/2007 11:40 PM (GMT -6)   
Hey Norskie,

Great news on the "undetectable". We all love those zeros. My second is coming up in a couple of weeks and I'm a little anxious about it. We will probably never get over that little twinge when we think about a PSA test.

Please keep up the great posts. Your information is valuable not only to the new folks but to the rest of us as well. We all love success...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/23/2007 5:40 AM (GMT -6)   
Norskie - YEAH on that "0"!! your wife figured out that you're fine now and it's time for you to get back to work at home. :) oh well.... God bless, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/23/2007 3:17 PM (GMT -6)   
Hi Norskie,
 
I have just read through all your posts, and just wanted to add my thanks too for taking the time to share such a detailed and on-going account of your experiences which we have found very helpful as you cover everything we need to know right now. So pleased to hear your post-op zero - everytime I read that result from others, I feel quite excited and very relieved to know that the news is good. When I first started researching Pca in men under 50 in other sites several months ago, I was under the impression that there was hardly any advice or information about, and that we had been lost and somewhat forgotten, in the statistics somewhere. However here, there are so many stories such as yours which make us more than aware that we are not alone, and that good outcomes such as yours, are possible when this is caught and treated early. Thanks again for sharing this is such helpful detail,  and very best wishes for continued good health and recovery. Lana & CJ :-)
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/7/2007 8:16 AM (GMT -6)   

Quote from above in  3rd Posting titled:  The Pre-Surgery Prep and Actual Surgery

Update:  July 5, 2007 

I am now 6 months post surgery and things are pretty darn good, my latest PSA came back at < .1 or undetectable. I have now gone pad free for the past month and half and only have minor ED problems; for the most part everything works as advertised. I am very fortunate on all fronts, the first being the cancer appears to be under check, I have control of continence and very little ED problems and I don't have the need for any medication for erections etc.

 

norskie

 

(other threads started by norskie listed above!!!  tongue )

 

7–06 Quote from Norskie PSA and Status Up-date 

I have just finished up-dating my latest conditions on my thead, norskie from the beginning. In short my latest PSA test came back at <.1 or undetectable so we all breath a little easier again until my next test on November 12, 2007. The incontinence has gotton much better with me being able to go pad free since the end of May or about 4 1/2 months post surgery. Sure I now and again have a day that I don't have quite the same feeling as before but most days are almost like they were prior to surgery. And for ED I have been very fortunate in the fact I am back to about 95% of where I was before surgery and without the need for medication. Even though I don't post much anymore I do check in a couple of times weekly to see if there is a subject I can add some input on, this is a great site for support and information that makes one feel more comfortable. I know as one goes through this journey it seems like something new or some weid feeling comes up all the time and makes one worry about what is that or will I ever get to be back where I was before surgery. While it will never be completly the same as before, with time and patience it does get much better and while in 6 months I am getting back pretty close to pre-surgery conditions, we all heal at different rates, there were days I didn't think I would ever have the same old feelings about incontinence and ED but now I have more days that are normal feeling then those I don't. So hang in there and be patient, as they say time heals all wounds and it takes time.

 
Norskie

 

   tongue   Yea !  ~  Norskie ,

 

2nd……PSA…   !!!~~~>>>  Woo~Hoo  <<<~~~!!! Undetectable   yeah  

 

Cause  for   celebration!!!!!  Definitely!!!     

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

Yippeeeee!!!!!! From  Lee & Buddy

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

J  Caring is Sharing ~  Thank You for Sharing  J

 

Post Edited (bluebird) : 7/7/2007 7:26:53 AM (GMT-6)

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