Hey everyone. Just wanted to let you know that we got Jeff's first PSA score yesterday - less than 0.01 percent (I'm assuming that's the lowest the scale goes). The Dr. was actually out of the office, we'll meet with him next Tuesday. But that was a weight off of our shoulders.
We went to my son's graduation from Marine combat training today and got to spend a lot more time with him than we thought we would, which was a blessing. My husband and 2 of our other sons also got to see him while he had liberty on Monday.
I just returned from my trip to see my dad in Los Angeles. He was really in horrible condition because of the lack of nutrition and dehydration. When they finally got him scheduled for his feeding tube he was so anemic that he had to have 2 units of blood. Then his blood sugar got messed up and he had to have 4 insuline shots in his stomach. They messed up the scheduling of the procedure so he spent 4 days in the hospital, but he ws able to have hydration therapy and morphine during that time, and they had also been giving him hydration theray at USC. Even with all of that, when we brought him home the home healthcare nurse said he was still deydrated, as evidenced by his low blood pressure. (Normally he's on meds for high blood pressure).
It was shocking to see him - he was skeletal, literally skin and bones. He can't walk, stand up or get to bed on his own power. So my sister and I spent time outfitting his home to make life easier and safer for him. His girlfriend is incredible - one of the sweetest ladies I've ever met. You'd think they'd been together all of their lives. My dad can be very demanding and grouchy - I know some of it is from the pain, but some is definitely just his character. My sister and I got to where we'd come right back at him, but in a funny way so he'd end up laughing at himself. He was very glad to have us there and even offered to pay for us to stay longer, but that wasn't possible. So we're going back in a few months. We also met with his Dr., and that was interesting. He's the head of Oncology Radiation at USC Norris Cancer Center. My dad's radiation started in Oct., and he's on his 3rd round. In that time his blood count was only checked once, his urine and blood pressure were not consistantly checked, and until my brother complained 2 weeks ago he'd never seen a nutritionist, even though he was down to 115 with blisters inside his mouth and throat. So we started questioning the dr. about that, and he danced around the questions for a bit, but then finally admitted they'd dropped the ball. So we met with the nutritiones for quite a while a got a new protocol set up for him. In the end the Dr. knew how ticked off we were, and listened to our concerns, and addressed them. I just wish we'd been able to be there sooner, as I don't know how long it will be for my dad to get his strength back, if ever.
We did have some good times watching the Price is Right (his favorite) and looking at picture albums with him. All in all it was a good visit - I know it helped my brother and Loretta tremendously. Plus we got to have some REAL Mexican food and an In 'N' Out burger, and Sees candy. (None of which we have here in the East). Anyone from Southern CA knows what I mean! And my time with my sis, and seeing my bro & his family and my mom and grandma was awesome. So the blessings ourweighed the struggles.
Thanks for your prayers and wishes on Jeff and my dad's behalf - it means so much -
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA in 1/2007