Mozart250 PC Journey Thread

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mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 1/20/2007 5:52 PM (GMT -7)   
Hello:
 
While googling for online cancer forums I found this one.  
 
Story in nutshell
 
* June 2006.  Routine physical as 51 year old man.  PSA in year increased from 3.7 to 4.6.  DRE: prostate enlarged
* July 2006.  Urologist recommended biopsy
* August 2006.  Second opinion (bad feelings from first urologist) biopsy recommended.
* September 2006.  Biopsy came back positive in one sample (had to be sent to JH to confirm).  Preliminary diagnosis: Gleason 6, cancer likely confined to prostate.  Although cancer is cancer, my research indicated that likelyhood of cure was very high if caught early, which this appeared to have been.  Decided on the standard surgery, since it did in my mind seem to be marginally more effective.
* November 2006.  Had surgery.  Results showed positive at margins.  Gleason upgraded to 7 (3+4).
* December 2006.  First PSA post surgery.  Results 0.1.  Disheartening to learn it was not 0.0.
 
So..
 
It can be disheartening going from "high probability of cure" to "very real possibility this could kill me".  I am trying to get a handle on this.  One disheartening web site I visited indicated that at my stage, any further treatment I receive is only to extend my life, not curative.
 
Still, this could be overly pessimistic.
 
I have come to the realization the only things I can control here are (1) taking care of myself (diet, exercise), (2) attitute, (3) treatment choices. 
 
There does seem to be strong anecdotal evidence that proper diet and exercise can at a minimum delay this disease.  Since this is an area I can control, this is my current focus.  I have lost 10-15 founds with 30 more pounds left to lose, until I am at my desired weight.  Meanwhile I am trying wade through all of the information concerning diet and to separate the wheat from the chaff here.  
 
I drink a glass of pomegranate juice daily, and have switched the focus of my diet towards fruit and vegetables.  I still like my ice cream, but have limited it to once a week. 
 
I also either walk or use the treadmill 30 minutes to an hour daily.
 
Incontinence at this stage is more a nuisance (minor leakage).  Sex is another story, as my wife has shut down on me for over five years anyway.  Whatever.  This does make me feel uncomfortable when my urologist recommends a vacuum pump for me.
 
Am I being too pessimistic as to what my outlook is at this stage.
 
 
 

Post Edited (mozart250) : 1/26/2007 5:21:54 PM (GMT-7)


Bent1
Regular Member


Date Joined Jan 2007
Total Posts : 26
   Posted 1/20/2007 6:50 PM (GMT -7)   
Hi mozart 250,
 
Yes, if I read your stats correctly, you ARE being overly pessimistic!  At least for so early in the fight.
 
I'm sure that others, much more knowledgeable than I, can and will elaborate, but it sure seems to me that it may be far too soon to really tell if you have a remaining problem.  If you do, there are lots of options available to you.
 
So keep a stiff upper lip, and let the knowledgeable folks on here help you sort through what your doctor obviously DIDN'T help you sort through.
 
 
Bent1

Diagnosed 6/2/06, at age 63, DiVinci surgery on 9/21/06, PSA 3.6, Gleason 3+3=6  revised to 4+3=7 after pathology,  11/27/06 PSA undetectable.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/20/2007 7:01 PM (GMT -7)   
Yes, you're being way too pessimistic. For one thing, the lab my blood is sent only goes down to 0.1, so my results come back as <0.1 (less than 0.1), which might be your reading, too. Even if yours is .1 it's small enough to be inconsequential. Just keep watching it every 3 months or so and see if it gets higher. For right now you're doing all the correct things. Don't make yourself crazy over this one reading.

-Gordy

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 1/20/2007 7:36 PM (GMT -7)   
Hi mozart 250,

I concur. My first PSA test was 3 months after surgery because it is my doctor's belief that it takes 3 months for the PSA reading to be accurate following the procedure. You mentioned "positive at the margins" did the report say anything about penetration of the prostate walls?

Hopefully Swimom will soon respond to this thread with a more definitive answer.

Glen


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 

Post Edited (spinbiscuit) : 1/21/2007 9:54:25 AM (GMT-7)


Rufus
Regular Member


Date Joined May 2006
Total Posts : 31
   Posted 1/20/2007 8:34 PM (GMT -7)   

Hi Mozart

I tend to agree with the others. You are being a little too pessimistic. 0.1 isn't trememdously bad and it was 1 month after. My urologist, like spins, absolutely refused to do my PSA until 3 months after the prostatectomy. Mine came back 0.87 and I had the same GS 3+4 and 20% involved with positve margins.

Be optomistic, super positive and let yourself heal. Life is great !!

Russ


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/20/2007 9:04 PM (GMT -7)   

Hi Mozart250,

 

Excellent posting for us to meet you!!!  Welcome new friend…

 

  Sending a “Warm Welcome” …to You!

 

I know we can “all” make your journey smoother just by being here for you! 

This is a great forum!!! which you’ve joined… so stay with us.

 

I will start out by letting you know that the new word for you is

Optimistic

(hopeful, positive, confident)

 

 

This is “YOUR” rainbow

/////////////////////////////////////////////////////////////////

////////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

 

Let us walk with you as you move forward in your journey.

Taking one day at a time!!!

 

It’s time to let your body get some healing underway before you get your mind working on the what if’s….  pick up the phone and call about your results.  Get more specific info so you have all the correct information….  So you’re not chasing things that aren’t there!!!

 

Enjoy your ice cream…. You are on the right track with (1) taking care of myself (diet, exercise), (2) attituted, (3) treatment choices. 

 

You are in our thoughts and prayers…

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 1/21/2007 7:32 AM (GMT -7)   
Same to all of the above. We know what a slammer it is to hear that "positive" margins and then the Gleason upgrade. Still, you're only 51 (that's the new 30, right?). Your PSA score is so low and probably undetectable. And, go read BenEcho's posts. He's the one who has researched information that prostate cancer cells "may" not be able to thrive outside the gland - they die off once the gland is removed. You're at a level where you can select many options and, like us, watch and wait for something that may never happen (we hope).

What is your doc recommending for the future?
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 1/21/2007 8:24 AM (GMT -7)   
I agree with all the other posts - be optimistic. Our first PSA was undetectible, but the dr. had explained before that if it was point any number he wouldn't worry as the prostate cells take time to leave the body after surgery and don't mean cancer is still present.

Bob's brother had same surgery, same doctor 1.5 years prior and his PSA is still floating around between 0.1 and 0.2 and the doctor says there's still no cause for concern, only if in the future the numbers climb significantly, at which time radiation is the other alternative . . . certainly not the end!!!!

Focus on the positive; visualize those cells drifting slowly out of your body; tell cancer (with the small "c") it has NO PLACE IN THIS BODY!!!

Take care and stick with us! This forum rocks!!!!

;o) Linda & Bob
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more agressive, previously undetected cancer)      PSA UNDETECTABLE.   Next PSA check Feb 27, 2007.
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


bernieboy31
New Member


Date Joined Dec 2006
Total Posts : 10
   Posted 1/21/2007 8:26 AM (GMT -7)   
Hi Mozart & welcome
 
As Gordy says. a PSA of 0.1 is  a no-brainer.  When I was down to 0.3 the Medico said that it was (to all intents and purposes) zero as there is always a "margin of error" in the analysis equipment used.  you have absolutley nothing to worry about!!
 
Looks like you have the correct outlook  {"10% surgery and 90% attitude" is my motto.} and well on the way to recovery.
 
i strongly suggest that you keep a watchfull eye on the PSA after a few months post-op.  After RadioTherapy mine went down from 19 to the same as yours is now but in the last 6 months it's gone rampart and back to 20.  I am on ZOLADEX & Casodex and waiting to see what affect this has - Bone and MRI scans all normal so heaven knows what's going on!
 
Cheers
Bernie
 
 

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/21/2007 9:12 AM (GMT -7)   
Hi Moz,

Well, the surgery is over an now you can begin to move forward.

Your Doc explained that margins were positive but there is more to it than that...how positive and how many areas would say a whole lot more this early in the game. As for your PSA, 3 months might have been a better time frame for evaluation. Was this first PSA an ultrasensitive and if so/not, what is the limit of the assay used? If it is indeed a .1 then you may have something to be concerned about but perhaps not right now!! It is acceptable to wait that PSA out and have freedom from more treatment until it's necessary but soon enough to be useful. I've read a slow rising PSA could take years to never.

Your PSA was quite low to begin with and while it is true that a 3+4 is more agressive, your PSA doubling time is slow. IF there were to be a problem you may be looking at years before it shows it ugly face enough to require hormone treatment. Then ...there's the question of radiation now vs. later with the thought that whatever is there is in the prostate bed. Bottom line is Moz...this is not something that can be decided at this moment. I'm guessing another PSA is ordered for sometime in the next 1-2 months? A slope is pretty important to timing of treatment if a man needs more. Heck.....you could go back and have it be lower. That is very common too so we'll hope for that!. Good Luck.

swim

BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 1/21/2007 12:35 PM (GMT -7)   
Hi mozart 250,

Take a look at my stats at the bottom of this posting. As you can see, they are extremely similar to yours except that my Gleason is considerably higher. You might also want to read my thread (titled BenEcho Journal) where I cover my situation in more detail.

PSA: First of all, I think that a PSA of 0.1 and less and considered undetectable and 0.2 and above is considered detectable. From what Swim said above, it sounds like there might be a difference between <0.1 and =0.1. She is more knowledgable than I about the medical stuff so I have to defer to her on that topic. Perhaps you should ask your doctor for a better explanation. Also, as others have said, the standard thing is to wait until 90 days after your surgery to have your first post op PSA. I was told that it takes that long for your body to completely filter/remove the old (pre-surgery) PSA out of your blood. So until 90 days have passed, some PSA can remain in your blood from the cancer that has already been removed and this could improperly inflate your PSA score. That is why they normally wait 90 days. My surgeon said to wait 90 days but my local urologist wanted to do a PSA at 5 weeks and I was fortunate that it was 0.0 at five weeks. I would suggest that you wait until you are at 90 days post surgery and then ask to have them run the PSA test again.

POSITIVE MARGINS: Next, let's touch on the issue of positive margins. I share your dread about this. I too live in constant fear of recurrence due to my Gleason 10 and positive margins. This sucks but it is the reality of our lives. I think that the possiblity of recurrence within 7 years is something like 50%. That means that 50% of people like us do not have recurrence. Let's hope we are in that group. If there is a recurrence, I think that you then initiate further treatment, most likely one or more of radiation, hormone, or chemo. I have also read that you can have positive margins without having any cancer that escaped the prostate. I talk about this some on my thread. Better yet, read my source which was Dr. Patrick Walsh's book which talks about this.

RADIATION NOW VS. RADIATION LATER: This is the big question that I am wrestling with right now. Is it better to go ahead and do radiation right now? It might kill any remaining cancer cells but then again maybe we will be in the 50% group that was not going to have a recurrence. In that case, we have 100% chance of damage / side effects from the radiation vs. 50% of a maybe better outcome with the cancer. It seems to me that if you can wait on the radiation without adversely affecting your odds of killing the cancer, that would be the best thing to do to delay any further side effects as long as possible. So far both my surgeon and my local urologist say not to do any further treatments right now. I intend to do more research and discuss this further on my next appointment in about three weeks. I will post the outcome on my own thread.

I am sorry to have you join me and the rest of the small percentage of surgical patients who have positive margins. You and I share a lot of similarities in our situation (age, stats, dates of diagnosis / surgery.) Let's stay in touch. you might want to start your own thread (see Bluebird's helpful hints thread) so I (and all the others on this web site) have a good place to contact you. I wish you all the best.

Ben


DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.

Post Edited (BenEcho10) : 1/21/2007 2:26:25 PM (GMT-7)


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 1/24/2007 10:04 AM (GMT -7)   
Hello:
Thank you for all of your replies.  They have been helpful.
 
I have decided not to be pessimistic, because attitude is on thing that I can control in this disease.
 
I also have decided that if I am to err, I will err on the side of being overly aggressive here.  Which means if it comes to that I would do radiation sooner rather than later.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/24/2007 10:21 AM (GMT -7)   

Welcome back Mozart!!!

 

You are very welcome!! Your new family of friends can really make the difference.  You just have to be willing to reach out and take our hands.

 

Perfect!!!! When those dark clouds start to come in “and they will”…. Reach out to all of us and keep your little rainbow close!!!  It truly will help on those stones that seem to wobble when you first step on them… then you’ll realize … hmmm this stone isn’t so wobbly anymore… J

 

Always Remember….

Your Decision is Your Decision and it will be the Right Decision for YOU!!!

 

You are in our thoughts and prayers as you move forward…

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 1/24/2007 10:46 AM (GMT -7)   
Hi Moz,

I started a new thread that I titled POSITIVE MARGINS FOLLOWING SURGERY. WHAT TO DO NOW? where I am trying to collect all postings related to postive margins and follow on treatment considerations and decisions. You might want to scan it and add your thoughts and decisions as you work through all this. My next appointment is February 12th.

Ben


DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 1/24/2007 10:55 AM (GMT -7)   
Mozart, good for you for keeping a positive attitude and taking good care of your body and mind. Jeff's PSA results are always 0.1 (well, he's only had 2 tests) but as others have said, it's because of the testing that it's not a 0. Keep concentrating on what you can do and what you do know and don't worry about what-ifs. God bless, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 2/15/2007 7:02 PM (GMT -7)   
Bump.
 
Went for second PSA test this week.  Will know results next week.  I guess PSA tests every 3 months will be a way of life.
 
Actually, I just want to test my new signature that I created to make mine like everybody elses.
 
Finally I would like to say that although I am more a lurker, this is a must read almost daily site for me.  I find it both informative and encouraging.
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington
Nov  2006:  Analysis of prostate indicates positive margin.
                 New Gleason: 3+4
Dec  2006:  PSA 0.1


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/16/2007 6:36 PM (GMT -7)   

Hey ~ Mozart,

 

Your signature looks Great!!! 

And a special note for Dec 2006 ~ deserves acknowledgement… This is a “big” thing for all of us…

 

1st PSA 12-2006   *&^%$#@    WOO ~ HOO!!  (*&^%$#  undetectable!!!!!!

 

And in the true spirit of positive thinking…. We will look forward to adding your 2nd one next week.  Mozart ~ We each need to learn to live one day at a time… and not let this control our lives.  Who knows.. we may not be here for the next round of PSA tests...  Hopefully we will be but one never knows... 

 

Thank you for staying with us!!!  And jump in anytime…  We really do need to hear from you periodically… Okay….  We will be looking for a posting next week…

 

We saw our urologist on Monday and he said see you in 6 months.  J

So we continue to move forward… The waiting and hearing the 2nd PSA was undetectable… was much less stressful.  Time is a healer for mental and physical….but the most important thing we must all remember

~ Monitor PSA’s on a regular timeframe (per your doctor’s orders) ~

…Do not put it off just because we’re seeing undetectables… even 3 years down the path.

 

 

Take care for now and know you are in our thoughts and prayers.

In Friendship ~ Lee & Buddy

 

P.S.  Threads started by: mozart250

(direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

First Post

 

Question?? What does the Bump mean??  in your last posting? 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 2/17/2007 9:30 AM (GMT -7)   
One question I hope somebody has the answer for.

I found a web site that gives my chance of recurrence of cancer after a RP. One of the factors there I am not familiar with. I hope to understand this more by the time of my appointment Tuesday.

The factor is Prostate Capsule Invasion or Extra Capsular Penetration or Extra Capsular Extension. It has four possible values, and my probability of recurrence varies significantly depending on what this is:
None: 88
Inv Capsule: 69
Focal: 47
Established: 40

Can anybody explain to me what this is (in English please.

Oh..the bump was just a term to put the post to the front.
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington
Nov  2006:  Analysis of prostate indicates positive margin.
                 New Gleason: 3+4
Dec  2006:  PSA 0.1


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/18/2007 8:01 PM (GMT -7)   
I’m not sure of the answer to this…but with this posting it will go back to the top so we can hopefully get some info for you!!!!!

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 2/18/2007 8:38 PM (GMT -7)   

Mozart and Benecho

I've posted a few responses, and I'm waiting for my first post op PSA to edit my signature list below.  I'm in the same boat with you!  I thought I was being overly aggressive having my surgery, only to find positive margins and capsular penetration on the side that the pre-op biopsy showed clear!.  When I read postings with high PSA'a but negative biopsies, it hits me a bit.  Prostate cancer can be a tricky beast!  I'm all for being as aggressive as you can.  One calming concept, is that I know the extent.  I sometimes wonder if I had gone for the seeds, etc, and not known what I was facing.

With the help of this forum, support from my wife, and prayer, I'm awaiting my first PSA.  I realize that I may have to put up with some hormone and radiation treatments, but perhaps not.  Keep as positive as you can, and we'll continue letting those know about this side of the beast!

 


PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006
1 of 10 cores positive 5%
2 others questionable (small gland proliferation)
Gleason 3+3
Robotic surgery scheduled January 19, 2007


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 2/20/2007 11:43 AM (GMT -7)   
Three month PSA was 0.0. Dunno why it goes down from 0.1 to 0.0, but
good news nonetheless. Time to edit sig I suppose.
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington
Nov  2006:  Analysis of prostate indicates positive margin.
                 New Gleason: 3+4
Dec  2006:  PSA 0.1


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 2/20/2007 1:19 PM (GMT -7)   
Great news Moz,

Zeros are better than any other number...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/2/2007 7:18 PM (GMT -7)   

Hi! ~ Mozart250,

 

I posted some information on the thread below that may be helpful…. To your question above…. It may be worth checking out…. I hope it does help!

 

Direct Links ~ just click on the titles below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Perineural invasion?  Started by Raheeb..... 

It has information about capsular penetration also.

 

*     *     *     *     *     *

On April 3rd I saw this Feb  2007:  PSA 0.0 on your signature on a posting to Tony….. 

 

 

Yea!  ~ Mozart250,

2nd ~~~~>>>  Woo~Hoo  <<<~~~~%  undetectable

 

Cause  for   celebration!!!!! 

               What a wonderful day it is ~ each and every-day….

                              Enjoy it to the fullest my friend.

 

Yippeeeee!!!!!! From  Lee & Buddy

 

*     *     *     *     *     *

 

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

:-)  Sharing is Caring ~  Thank You for Caring  :-)


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 4/2/2007 8:23:50 PM (GMT-6)


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 4/3/2007 2:19 PM (GMT -7)   
Hi Bluebird:

You are such an encouragement around here.

One loose end that has bothered me was that my pathology report indicated a positive margin at the base of the apex, but nothing concerning capsular penetration. This seemed a contradiction to what I read here.

While researching this topic, I came upon an article that indicated that capsular penetration is not an issue when your margin is at the apex of the prostate (I guess there is no capsule there). So one loose end cleared up.

As I said in another thread, I found another article that the location of the margin is significant and that a margin located at the apex is not bad (no difference in return of cancer rates to organ confined disease). We'll see (it seemed that the article I saw could have had too small of a sample size..but relatively good news anyway).
51 Year Old DBA by profession; amateur pianist by passion.
 
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb  2007:  PSA 0.0


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 5/22/2007 11:17 AM (GMT -7)   

Woohoo.  PSA still 0 as of today.

Actually the lab report reads under 0.1.  Good news anyway.

 


51 Year Old DBA by profession; amateur pianist by passion.
 
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb  2007:  PSA 0.0 (under 0.1)
May 2007:  PSA 0.0 (under 0.1)

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