HIFU Ultrasound

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jajcarro
New Member


Date Joined Jan 2007
Total Posts : 5
   Posted 1/22/2007 10:16 AM (GMT -7)   
My research indicates that HIFU (High Intensity FOcused Ultrasound) is the least evasive treatment with very low risk of incontinence and impotency.  Has anyone had it on this forum? 

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 1/22/2007 11:18 AM (GMT -7)   
Hello jajcarro,

Welcome to our group. Yes there have been several members that have had HIFU treatment. The treatment is not yet approved in the US however, but is in the last stage clinical trials, and will probably be certified soon. If you are certain that this is the procedure you wish to have I would strongly urge you to seek it in Canada first, then Western Europe & Japan. Other countries do not have the level of expertise we expect here in the USA. Good luck, and I hope some of our HIFU members respond soon.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 1/22/2007 12:10 PM (GMT -7)   
Someone had it done in Japan and has posted a detailed thread about his research and the treatmentt. Hopefully another member who reads your comments will remember who it is and the name of the thread.

Alternatively, just start reading over the threads for the past three weeks or so. I know that I read one on HIFU recently.

Good luck.

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 1/22/2007 12:12 PM (GMT -7)   
Hi again,

A moderator just gave an explanation on another thread on how to do a search. Here it is:

1. Click on "Search' (next to 'Chat') and type in the key word(s) you are looking for. This search seems to mainly render findings based off the subject of the post only.

2. You can search for specific information from post contents by typing key word(s) and the following into Google: site:healingwell.com "search keyword here"

I hope that helps... Good luck!

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/22/2007 12:29 PM (GMT -7)   
Jajcarro,

If you go to www.yananow.net and enter the web site and then click on Mentor Experiences and scroll down you will see the stories of men listed by type of treatment. Under the HIFU are six or seven stories. These may be helpful to you. Those men that are listed as Yana Mentors have agreed to receive direct contact so you might want to email some of these guys.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


JWH
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 1/23/2007 6:22 PM (GMT -7)   
Hello Jajcarro, yeah
I dont want to seem negative, I did consider HIFU myself.
Untill I did more research to find out that if one cell of cancer is left behind,
it can and probably will come back. And given the area and the organs and
nerves and blood vessels and bladder, and, and, and....
 
The problem is after HIFU, Radiation, Cyrogeics, or any treatment that does
 not remove the tumer, The entire area is scar tissue, and very few surgens
will do this operation.
 
I just wanted you to consider this before making a decision, This is one decision
you cant take back. But if after surgery it is nessacery to have more treatment
that option is still avalible. Read Dr Scardino's book before you make a decision.
 
                                             yeah

JWH, I am about 4 months into this. PSA 7.4, Gleason score 6 (3+3),Clinical level T1C. I'm 49 years old, the bone scan and CT are negative. Two cores positive, (2 mm and 8 mm). 2 % left side, right side 19 %.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/23/2007 8:56 PM (GMT -7)   

Hi Jajcarro,

 

You may have already found them but here’s how I found 2 members who chose HIFU.

The information I entered to find them are in purple

 

Be on the Main Page where threads are showing

Click on Search next to Chat on Log off line above

Enter the words or phrases to search: floridarobert, DWT

Search for:  Posted By

Search keywords using: Any of the keywords and phrases

Max # 50 (you have choices)

Select forum: Prostate

Searched Date Range.. 3 months (you have choices)

SUBMIT

 

Hope this helps!!

(floridarobert posted the same post on about 11 different threads... when you get to the search page showing list.. click on one of the threads and scroll down... you'll find it)

(DWT & SL... shared their journey from day 1... several posting from them)

 

Read and research as much as you can....

                                   As your Knowledge grows the POWER to make YOUR decision Grows!!!!!

 

Excerpt from: Our Journey ~ Sharing is Caring

 

 

One thing each of us must remember…. NO 2 SITUATIONS ARE THE SAME

 

Take a deep breath.... and know that there's a lot of us like you out there... and we've been where you are now. 

 

All different kinds of lifestyles…  different PSA scores, different treatments, different incomes, different jobs, different health issues, all different ages, and most of all… MENTAL ATTITUDES ARE DIFFERENT. So take a deep breath and let this forum help you!!!

 

Remember… YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

 

In Friendship ! Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 1/23/2007 9:03:00 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/23/2007 9:05 PM (GMT -7)   

Hi~ Jajcarro,

                                 Sending a “Warm Welcome” …to You!

 

I know we can “all” make your journey smoother just by being here for you! 

This is truly a great forum!!! which you’ve joined…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!

Hope to hear from you soon…  Keep posting.... OKAY!!   

 

 

              “God Bless You”

 

It's a little prayer  ~  "God BlessYou"

...but it means so much each day,

It means may angels guard you

 and guide you on your way.

 

Take care and know our thoughts and prayers are with you.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/24/2007 6:11 PM (GMT -7)   
Hey jajcarro, my urologist says that surgery after failed HIFU is very possible. It's not without risk, or side effects, however. I think the catheter stays in for about a month. I strongly suggest that you avoid third world countries. Go to Canada, or England, or Europe.

Regards,

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


jajcarro
New Member


Date Joined Jan 2007
Total Posts : 5
   Posted 2/13/2007 6:48 PM (GMT -7)   
Hi fellow members who have had HIFU:

I am scheduled to have HIFU with Dr. D'Urso in Turin, Italy on 2/28. I would appreciate hearing from anyone who has had HIFU and any comments re: effects, catheter, recovery, insurance coverage.

Best Regards

Jim

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 2/15/2007 1:23 PM (GMT -7)   
For those looking for treatment closer to home, there is a clinic in Toronto that offers HIFU.  I have an article at home that provides the details - I'll pull it out and post here for those who don't want to travel as far as Japan or Italy.
 

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/16/2007 1:30 PM (GMT -7)   

Hi Jim, 

 

I hope you don’t mind hearing from those who have not had HIFU… we care about you too!!

Not hearing from you after several members sent replies to your 1st post…we were wondering what your research had turned up.   It’s always nice to hear back from newbies ~ especially when they’ve made their decision.  It’s a great relief for all ~ once the mind is set to move forward. 

 

The most important thing that jumps to my mind is making sure you have a doctor locally who is willing to be your “doctor” here… to help with any unexpected complications and catheter removal. 

 

It truly would be a wonderful gift to all of us and especially Newbies who will be coming onboard in the future if you could gently guide them from day 1 of your diagnosis, through your decision making process and research, to the decision, etc…..  Also ~ to learn a little more about you with some statistics…. 

 

Our thoughts and prayers will remain with you and will even fly with you to Italy.  So ~ feel the strength from your new family on the forum.

 

In Friendship ~ Lee & Buddy

 

 

~   ~   ~   ~   ~   ~   ~   ~   ~   ~   ~ 

tongue Helping to keep the journey together.... for future readers... yeah

New Thread started by jajcarro 3-3-2007

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Post Edited (bluebird) : 5/27/2007 7:47:15 PM (GMT-6)

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