Hi~ Dave7,

 

Did you just find us??  What are your specifics??

It let’s all of us know where you were and where you are today!!! 

There is so much information on this forum… start reading and learning… and you’ll start having replies soon!!

 

Glad you found us!!!!

 

                           Sending a “Warm Welcome” …to You!

 

I know we can “all” make your journey smoother just by being here for you!  This is a great forum!!! which you’ve joined… so stay with us.

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!

Hope to hear from you soon…  Keep posting.... OKAY!!   

 

 

              “God Bless You”

 

It's a little prayer  ~  "God BlessYou"

...but it means so much each day,

It means may angels guard you

 and guide you on your way.

 

Take care and know our thoughts and prayers are with you.

In Friendship ~ Lee & Buddy

 

**Buddy & I chose to have the "wide excision RRP" so can't respond directly to your post but we...did want to welcome you...

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mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

Dave7,

I am two and a half months post surgery and have the same situation. I also am taking Viagra and using the pump but I have decided to try penile injections and have an appointment next week to get started on them. The pump and Viagra does give me an erection hard enouh for penetration but limits the positions we can use. The quality of the erection is lacking in stiffness and the tension ring is enough of a discomfort that I am just not pleased. My urologist has been blunt that it may take a couple of years to get a normal erection. He is confident that it will come back but probably not before at least 8 months after surgery. This is one of those highly variable complications while some men on this forum have been on the good side of that variation a lot of us are in the same situation as you. Once I try the penile injections I will post my experience.

Tamu

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Diagnosed 7/6/06

My basic details are below in my signature. I am coming on 6 months post surgery. I think I have been using an ErecAid pump for maybe 2 to 3 months. I take 20 mg Cialis every other day and 100 mg Viagra when I want to be sexually active and think I need it.

My experience with the pump has been mixed. The technician I bought it from recommended using it daily. I probably average about 4 times a week, sometimes every day, sometimes a couple of times a day.

Cutting to the chase, I have had so-so erections when I want to have sex, and have had a few failed attempts at having sex. The ErecAid comes with multiple rings, and I had no success sustaining an erection with any of them. The technician advised me to use two rings, which I've been doing with better success.

Without the pump, in the last month to 6 weeks, I have started to have some firmness, but not enough for intercourse - I would describe it as enough to make m*sturbation interesting (I still don't get why that is a banned word in a prostate cancer forum...).

Erections with the pump can be a pain in the ass. I frequently have scrotal tissue or hair stuck in the rings. The rings can be painful. I think they also sometimes make it difficult for me to orgasm, if not impossible. But I soldier on...

The downside is the erectile dysfunction. On the bright side, I guess physical therapy on the penis is more interesting than dealing with a bum knee or something like that...

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Raheeb, I like your positive outlook about physical therapy! :) Dave7 - yes, it takes time. Jeff does not achieve an erection without the pump, and even then, he doesn't always get one that is worthy of intercourse. he is also taking cialis every other day. but every man I've spoken with who has achieved potency says they have it back in 1-2 years. that's really not that long if you look at a lifetime. like Bluebird said, if you read many different threads, you'll hear about others' experiences with this. patience....patience....frustration....frustration...and more patience!

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Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06

The word from EVERY guy I have personally talked to face to face that got his erections back to working ok said it took at least one year. I guess we have to be patient they (the doctors and some guys that have had the surgery) sugar coat and sort of mislead you to believe this surgery is not really a big deal, and you will be "up" and running in no time . Well, it is a big deal your old body has been majorly invaded and injured severely. So, I will keep entertaining myself with pump therapy and drugs. You gotta have a sense of humor. If you don't find it funny just look at yourself in the mirror while you're wearing the pump pretty sexy huh? If you have good partner you can make some pretty fun games out of it all. Remember every day is a gift nobody gets out of here alive so, relax sit back and enjoy the ride.

On the subject of it being Funny like my wife says, they don't call it "THE HOKEY POKEY" for no reason.

Some days are more frustrating than others.  I realize it takes time for the nerves to heal and I am seeing very very slow periodic incremental progress.  The uncertainty of the end result is hard.  The truth is, it may or may not return.  I have found that the more I dwell on the issue the less progress I make.  It's a mental thing as well as physical.  I just have to not think about how Mr Happy is doing, as once his status crosses my mind, whatever advances he was making are lost.

I've read some positive posts about the tri-mix injections.  However my urologist  is very cautionary about the potential for a priapism (a prolonged erection that requires emergency medical attention).  I'm going to meet with a different urologist that specializes in ED.