I am sorry that your husband has joined our "club." None of us want to be members but at least you will find some kind and knowledgable friends at this site.
In the months after I was first diagnosised, I was also surprised to meet and talk to many men in their 40s and early 50s who have had PC. When I found this website, I also noticed that there were lots of men in their 40s and early 50s here as well. After reading lots of postings it also sank in to me that whether we are in our 40s, 50s, 60s, or 70s none of us wants cancer, incontinence, or impotence so the age doesn't really matter. Perhaps it is a bigger shock for us when we are younger but it is obviously also pretty shocking and disturbing for us all no matter our age.
Regarding the information that you are getting from your doctor, I think that you are guessing at your husband's stage correctly. If you are uncomfortable with the amount and type of information that you are getting from your local urologist, you may want to consider getting a second opinion or even entirely switching to another urologist. It sounds like you are already following that path in looking for a top surgeon, perhaps even out of state.
I don't know anything about
doctors near OK but there are plenty in TX (Houston and Dallas and I am sure other
locations.) For that matter, if you are willing and able to travel, the distance doesn't matter that much. The key thing is to find a highly skilled surgeon who has done your exact type of treatment (
open surgery vs. robotic surgery vs. radiation or whatever) many, many, many times with good results.
We flew halfway across the U.S. (direct flight fortunately) to Baltimore to go to Johns Hopkins. We stayed in Baltimore six days after the surgery to give me time to heal up some before flying home. I have read about
others on this site who flew home (or drove several hours) much more quickly but I think that most of them had robotic surgery whereas I had
open surgery. My point is that traveling to get to a top hospital and top doc is more manageable than we thought at first.
If you haven't already done so, I would encourage you to read two books on PC written by Dr. Patrick Walsh's and Dr. Peter Scardino. Both can be bought at this site or Amazon.com or lots of other places I am sure. They are good general references.
It is a big plus that you found this site so early in the process. I didn't find it until two months after my surgery so all of my questions have been about
side effects. You have a great opportunity to read a lot of first hand information about
treatment and doctors before you make up your mind.
I wish you luck.
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
POST OP: 12/15/06: First post op PSA was 0.00.
Post Edited (BenEcho10) : 2/2/2007 10:44:10 PM (GMT-7)