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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/3/2007 7:39 PM (GMT -6)   

Quote from KW on Thread by: Researcher…..

BlueBird.....how do you start a Thread?  I would not mind at all telling my story in more detail.  It might help some of those guys that aren't having shuch a great time with their recovery.  Just to let them know they are not the only ones that are having a rough time with the bladder issues.

What do you mean by steping stones?  I assume you mean just a more detailed history of my Journey!   Thanks for all the time you put into this forum.     KW

 

 

Hey KW,

 

You’ve had a lot of good postings and now what we need you to do is put them together in a way that a new person can see exactly ~ Where you started…  Where you are today!  J and everything in-between!

 

Buddy & I look at our “Journey with Prostate Cancer” as a path made up of many different stepping-stones…  High PSA, DRE, Biopsy, Diagnosis, Treatment Decisions, Treatment, Recover/Healing, Mental and Physical Feelings….

 

I guess because we have a beautiful creek on our property… I see us crossing the different stones in the water….to get to the other side without getting wet.  And with the help of friends…. It makes them less slippery.  And we do get across.

 

Some people look at it as climbing a huge mountain and making it to the top.

It’s whatever helps to make you know that you are on a positive road/path to being cancer free.

 

Hope this is helpful…. Let me know… I’ll help you in any way possible… to get your story down!  And Thank You ~ for your kind words!!!

 

 

I'm excited.... so let's get started.  I'll be back to check on you… if you have any questions... Put them on this Thread! OK  We'll talk back and forth here!!

 

 

On 12-9-06…You started a Thread called:  Caffene Effects?

You do the same thing except now you’re going to have a detailed Thread... with your journey as the 1st Posting on the new Thread.

 

You can have this information already to Copy & Paste using your WORD program… always keeping in mind that Newbies will be coming on and it makes it so much easier to “see” the whole picture. 

 

(If you aren’t familiar with Copy & Pastestop here and let me know… don’t go any further… until we talk.  Okay!)

 

I’m going to have you go to the Thread in blue below…  follow these directions carefully… A little hand will appear on the blue letters when you put your cursor on them.  CLICK J

 

(direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

Read #1 on the Helpful Hints “Thread” Link:  Helpful Hints for New Members... Hope this helps you! :)

 

 

Now..... after Reading #1… on the Helpful Hints page…

 

Get back to the MAIN PAGE on the Forum where all the Threads are located

Click on the New Topic Button on the left

When the window opens… make sure you put a Title at the top!!!  KW’s Journey, KW’s Journal, Any title you want with your KW in it so we know it’s you!

 

 

Now Click in the big white box so the cursor shows in the top left corner

Now Right Click on your mouse and PASTE

Your message should appear here…

Scroll down and see OPTIONS

Click on Pre-View before Posting….

This allows you to see what it’s going to look like

You can not make changes in the Pre-View Box…  scroll down and make any changes in the original box…..with your message.

 

When you are ready to post it…. 

Click on the SUBMIT button

 

I’ll be looking for you and Your Journey,

tongue    In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/3/2007 8:35 PM (GMT -6)   
Yes I know th cut and paste. Will probalby start writing from sctatch though.
I do have a question for you though. You signature says "Wide excision" How wide are we talking. Mine is only about a 1/4 at the widest point. Just wondering?

Thanks for the help.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Scheduled Feb.20th Cystoscope with possible Cottigen injection into bladder neck to help control leaking.
   


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/4/2007 12:44 AM (GMT -6)   

  Hey Mama.  I started writing in Word tonight.  I have made it through Post op day 6 still more to go!  I'll finish when I can.

  What part of North Carolina.  We went there two summers ago. We stopped in Ashville for a couple of days.  Went out to Nags Head, Cape Hatterus, Kitty Hawk,  We stayed a week in Topsail Island.  On the outer banks.  Had a great time.  Met some great North Carolina people that were in the condo next to us.

  I went in to Camp Lejune and played golf.  Ran into a Okle out on the course.  He saw my OU had and waited for me!  Played a round with some other young marines also.

  Thanks for all your support.

 

 

 

 


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Scheduled Feb.20th Cystoscope with possible Cottigen injection into bladder neck to help control leaking.
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 11:47 AM (GMT -6)   
Hey! KW..... It's 12:50 p.m. in N.C. :)
I'll be back at’chu this afternoon.... with answers to your questions above.
Perfect using a word processing program so you can have it ready to paste when you are ready!
I am thrilled you’re putting Your Journey together. It truly is important for so many.
In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 3:05 PM (GMT -6)   

Hi ~ KW…

 

Take your time and get as much information in your NEW THREAD as possible…  yeah   It will be worth the wait!

 

We’ve been in North Carolina since 1985… Just outside of Asheville.  And we are “permanent transplants”… !!!  We waited for my retirement July-06…before venturing to the Outer Banks… and it was a wonderful trip.  1st visit for me! WOW… beautiful coast.  I can still hear the waves rushing toward the shoreline.  The whole state has so many diverse landscapes.  Truly a beautiful state.  I’m so happy you had a wonderful time.  Come back soon   cool  

Small world isn’t it!!!  With meeting someone from your home state here!  And the Internet has made it even smaller.  

 

In regard to our surgery… (re: your previous posting)

 

RE: Incision…..

     Excerpts from “OUR JOURNEY ~ Sharing is Caring”

April 3rd,  2006  Monday   

Surgery Day…RRP with wide excision ~  6 inch scar starting just below the navel downward to top of pubic bone

The incision is healing beautifully.  Nice thin line and we’ve been using a scar ointment which has helped.

 

Re:  Wide Excision ~ see info below

       Excerpts from “OUR JOURNEY ~ Sharing is Caring”

Radical Retropubic Prostatectomy with “wide excision”:

We requested our urologist to perform RRP with “wide excision”…

Taking out the prostate with attached seminal vesicles and segments of vas deferentia, and the neurovascular bundles.  We were both very adamant and put it in writing to him so there would be no questions about him leaving something behind.  Yes, this is a radical decision… but one we BOTH wanted.  Quality and Quantity was our agenda to this decision.  We wanted to do whatever we needed to do to help in the removal of all cancer cells. 

 

Our choice to have the “wide excision” is a very personal one.  We both wanted the (prostate) taken out immediately and everything that could have any hidden cancer cells in them. 

 

Our 2 main objectives were… Cancer Free & Urinary Continence

 

We continue to take One-Day-At-A-Time.... and enjoy each day to the fullest!!!!!

 

Take care,

Lee & Buddy

 

P.S.

You are very welcome!!!  I am happy to help you!  Thanks for not hesitating to ask…  tongue   


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/4/2007 7:49 PM (GMT -6)   
I am on page 6 of my journal. I am covering the part at home just after release from the hospital now! Hope it's not too long. Trying to cover more than just the numbers and facts. Adding some of the personal issues I have dealt with! I'm doing this cause I know there are guys out there having a rough time and I want to let them kow they aren't alone. Not everyone on here dry after removal. Some of us are taking a little longer!

Will holler at you later. KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Scheduled Feb.20th Cystoscope with possible Cottigen injection into bladder neck to help control leaking.
   


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/4/2007 10:29 PM (GMT -6)   
Hey Mama, I'm finished writitng....only 9 pages on WORD!!! Hope it's not too much for everyone to read! I want to print it out and look over to make any needed changes befor I post it. I hope to get that done tomorrow evening.

Thanks for all the work and encouragement.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Scheduled Feb.20th Cystoscope with possible Cottigen injection into bladder neck to help control leaking.
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 11:02 PM (GMT -6)   

Hey KW…

 

Good for you!!!  Helping others is what it’s all about and if you “touch 1 person” with what you write in your journal…this truly will be a blessing for them.. and as Jetguy said in a response to my saying this…  That 1 person has family so you’re touching more than 1.  And that’s what sharing is all about. 

 

9 Pages is not too long.  It’s been stated on this forum many times.  If someone doesn’t want to read something….. They have a choice!!!

 

Remember to place your name KW somewhere in the title….  :-)  

Good Luck and we look forward to traveling a little closer with you on your journey.

 

If you have any concerns when you’re trying to post it on your new thread… don’t worry… we can walk you through any thing that may come up. 

 

Reminder:  Read the directions carefully and once you submit… you can still go in and edit or even delete it and start over…. So ~ don’t worry… just take your time and enjoy the challenge.  And believe me computers are a challenge!!!!!

 

Take care for now.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

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