Kurt & Courtney's Journey

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kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 2/3/2007 10:18 PM (GMT -6)   

With permission from Courtney *kziz.... This thread has been reconstructed to show original and reply posts.  Original Posting from Courtney & Kurt *kziz

 

February 2007

 

47 year old, PSA 4.1 (2.5 in may), gleason 6 on both sides.  Leaning toward radical, but looking for opinions on lapro and or other options.  willing to travel.

 

 Kurt & Courtney

47 year old male

Great Health prior to dx

Dx on 1/29/07

PSA 4.1

Gleason 3+3=6, both lobes

Stage T2c, I believe

Tumor involves 20% of cores, both lobes

Looking for Surgeon with lots of da Vinci experience

Live in OK, willing to travel

 

 

Reply posting by Raheeb

I recommend robotic prostatectomy. Surgeon can perform the surgery at greater magnifcation than open and work more precisely. Smaller scars and less recovery time ard big pluses, as well. I felt it gave me the best change of having negative margins coming out of surgery. Survival was of utmost importance, and erection capabilities are a distant second (as well as continence)
Having said that, everyone's journey is personal..

 

Reply posting by naimnut

Kziz,

A comment regarding Da Vinci robotic vs. open--I have heard that the blood loss with an open is often significant enough that the surgeon is performing at least part of the surgery by "feel" because the surgical field is obscured by blood. With the da vinci there is far less blood loss, the field of surgery is far more visible, with 15x magnification, 5 to 1 translation of motion, allowing for very very precise movements, and the arms of the robot never, ever get tired.  I was amazed at the tremendous power and huge size of the hands of my urologist, but now that I better understand the physical challenges of an open surgery, I can see that his strength comes from 30 years of extremely strenuous exercise (the surgeries). All that effort can carry with it the risk of fatigue on the part of the surgical team. With da vinci this is far less.  I guess video games can serve as training for some fields! 

Markus

 

Reply posting by 56pontiac

Short and quick DaVinci so many advantges over open radical. You will become your own expert start researching. Make sure your doctor is a young dude that has no fear of compters and video games. I sure wouldn't want anybody my age of 57 doing the robot dance in my body. Diagnosed 8/10/06 PSA 4.3 5 of 12 cancer Gleason 7 Davinci Surgery 10/12/06 wonderful recovery

 

Reply posting by Pete’s Travels

Well, this voting sounds overwelming twards tha DVinci, I didn't even know about DaVinci back when I had my radical! I guess it was fairly new then. I word about open which is always mentioned in this debate is the surgin can feel things wlth his hands that can't always be seen such as the texture of the prostate which may indicate pre cancerous tissues and the feel of other parts around the prostate. By no means am I suggesting one over the other, I'm just giving a opinion which wasn't brought up yet. No matter which way you pick Kziz, it will be the right one for you! Just make absolutly sure you are comfortable with the surgin you pick. I think anyone here will tell you that this is way more important the the type of surger or other method you pick I'm almost glad I didn't have to pick back when mine was done! Good luck!!
Your friend,
Pete

 

Reply posting by spinbiscuit

Hello kziz,
Early diagnosed PCa contained within the prostate capsule; low Gleason score; seems like a perfect match for an experienced daVinci surgeon to perform a flawless procedure. The key to any successful operation is the experience and skill of the surgeon. The very best of luck in you research.

 

Reply Posting by biker90

Hi kziz,
I had the "open" surgery and am very happy I did. Everything worked fine and I had very little pain. The recovery has been no problem either compared to some previous surgeries I have had. The catheter was in for 6 days and I could hold my pee as soon as it came out. My only incontinence has been some small leaks now and then. The doc saved both nerve bundles and my potency is coming back slowly.
Just thought I would throw in another viewpoint. Do your own research. Pick the treatment option that you feel is best for you then find the best doc you can to perform it. Make your decision then don't look back. The only things we can bring to the OR are a healthy body and a good attitude. Be a cheerleader for the medical team....
Jim

 

 

Reply posting by bluebird

kziz  &  loved ones,

 

                 A   “Special”  Warm Welcome  to  You!

 

I know we can “all” make Your Journey smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you! 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

 

KNOWLEDGE IS POWER... and POWER conquers fear

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

We invite you to visit our personal thread listed in our Signature below…

Our thoughts and prayers will be with you as you continue your search for answers…

 

In Friendship ~ Lee & Buddy

 

“God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

and guide you on your way.

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints for New Members... Hope this helps you! :)

 

 

Reply posting by BenEcho10

Hi again Kziz,
I also had open surgery. Several reasons I picked open over robotic:
1: As explained in an earlier posting on this thread, the open surgery supposedly gives the surgeon a better more open view of everything. This can be particularly important if the cancer is near the edges and the doctor needs to check carefully to make sure that it hasn't spread and that he/she can get all negative margins. With your Gleason 6, you are mid grade but you mentioned that your husband has cancer on both sides which I think increases the odds of the cancer having penetrated the capsule. I am not trying to scare you about that. You just want to consider all the possibilities that could occur. Being prepared is better than being surprised.

2: The robotic method is fairly new and lots of docs who are doing it have not done a huge number. You don't want a doc who is still in the "learning" stage. You can overcome this problem though by making sure that you seek out a doc who has done hundreds and hundreds of robot assist surgeries. Unless you live in / near a very big city this might require you to travel for your surgery.
I will say that given all the stuff that I have read on this site, if it weren't for my high Gleason score, I would now be a lot more inclined to consider the robot procedure.
Good luck,  Ben

 

Reply posting by Tamu

Kziz,
I had a Da Vinci but my surgeon had done over 2,000 open RRP's and had done over 800 Da Vinci's when I hooked up with him. I asked him about the comparison and besides the less pain, blood loss and quicker recovery he said that the three dimensional view that he gets with the camera and the closeness of that view gives him a lot better surgery field to work in. When I went back for my six week follow up I I asked him about what his university based urology clinic was getting for comparable complication rates between open and robotic. He said that they were not ready to publish anything yet but that the results show that the robotic is getting better results. In saying that you have to understand that there is not a large difference but the Da Vinci is evolving to become the gold standard. It is not the right surgery for advanced PC and even my surgeon says that he has to evaluate paitients to see if they are candidates for the Da Vinci.
Tamu

 

Reply posting by kziz

Da Vinci not available in Oklahoma. Does anyone have information or knowledge regarding MD Anderson in Houston? THis is where we are leaning right now, however have not ruled out John Hopkins, City of Hope, or even Mayo.

 

Reply posting by kw

KZIZ....Not True.....There are two Urologist that use the Divinci in Oklahoma City. One is out of the OU Med Center (name is Wong)?. The other is in Midwest City (name is Law?). The only machine I know of is in Midwest City.
I decided to go with my Urologist in Norman and have the open RRP. I just felt good with My Dr. and being able to stay here in Norman. I could have wished for a little better outcome with the bladder control. But I don't think it had anything to do with my Dr. Some people just have more trouble than others.
My Dr answered all my question regarding the differance of the open vs the Robotic. He even said he would support me if I wanted to go to one of the "Big" centers such as Mayo or Hopklins for surgery and to him for my follow up. He said this decision was all about me and not about him. I really respected him being so open!
Make the decision that is right for YOU. The go for it!!!!
Good Luck...... KW

 

Posting by kziz

KW, Our dr did say that a dr in MWC had just bought a devise, but said if we went to him we would be rehersal for others. He said the urology board in OK has yet to approve the procedure. Thank you for the dr's names, we will check into them.

 

 

Reply posting by GreenAcres

Hi, Kziz. We, too, checked out OK (having lived there for many, many years before moving to E. Texas). I have read that until a surgeon does around 100 robotic procedures, he/she is still in a learning curve. However, we chose The Prostate Center of Austin because 1: Dr. F.A.G.I.N. (word police always snags this one) has done more da Vincis than any other doctor in Texas (at the time we went in August) and because it's a much smaller place than Houston and much easier to navigate, even if you're unfamiliar with the city (especially since I can't find my way out of a paper bag).

 

Reply posting by Swimom

My vote is for MD Anderson's comprehensive cancer center KIZI.

 

Reply posting by djhouston

Hi Kziz,
Please check my post on the finding doctors in North Texas thread.
It is about surgeons using the robot at Baylor in Houston. I would vote for Baylor's Urology Department.
dj

 

Post Edited By Moderator (bluebird) : 7/10/2007 9:09:30 PM (GMT-6)


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 2/3/2007 10:20 PM (GMT -6)   
We are looking for any information anyone can give regarding diet prior to treatment? NIH says increase calories?
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Looking for Surgeon with lots of da Vinci experience
Live in OK, willing to travel


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/16/2007 9:03 PM (GMT -6)   
Hi ~ Courtney,
Not sure what happened to this thread...
I'll be happy to work with you on getting "Your Journey"... together and up to date...
You have some wonderful Topie/Threads... we need to get them on here.
Give this some thought... Okay..
In Friendship ~ Lee

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/17/2007 9:40 AM (GMT -6)   
There has been a time in my journey of 9 weeks that I wished I had had the robotic, especially di vinci surgery. That came about after finding this forum. It seems most on this forum have had robotic and for a while I blamed myself for not going that route. However after reading the posts here, it seems that those who have the robotic are just as inclined to have bladder control as those who have the open, as I have, and are just as likely to have impotence, as I have. It seems to be there are many +'s & -'s with each method.

A doctor friend, who has personally helped me through this although he is in another specialty field, called yesterday. His son-in-law is a urologist. So he asked, "which do you think is the best procedure?" He said, his opinion was with the robotic he can get a patient out of the hospital in one day and with the open, he can get them out in two days. In other words, there is no question that healing is better with the robotic. Of course he is not expert, ethier. It is my doctor friend's opinion that much of the hype with robotic has to do with the younger doctors who are more interested in things like video games and such technology. But of course, this friend is not in urology, so he underscored that was his opinion. So again, the decision is personal. Whichever method, hang in there with the rest of us.

Gene

kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/17/2007 2:39 PM (GMT -6)   
blue bird, You have my blessing to do whatever you would like. This is a mess. I have been trying to work on putting it all together, just having a hard time finding time. Thanks, Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


festus
New Member


Date Joined Jul 2007
Total Posts : 5
   Posted 7/8/2007 3:19 PM (GMT -6)   

Kurt & Courtney - my Masters swim coach here in Plano TX had the robotic procedure done at MD Anderson in Houston within the last year, and he was one of their first patients to have the robotic procedure. Closer than Houston is Austin where there is a doctor who has performed more da Vinci procedures (hundreds) than any other Dr. in TX - based on records certified by the maker of the da Vinci robot. Check out his website at www.prostatecenterofaustin.com.  He will also answer initial questions by email.

tj

 


AEG
Regular Member


Date Joined Nov 2005
Total Posts : 154
   Posted 7/9/2007 8:04 PM (GMT -6)   
Hi Kziz,

Best of luck with your decision. I'm not sure if you looked at the yana site, here are the links:

http://www.yananow.net/Surgery.htm#surgery
http://www.yananow.net/LRSurgery.htm#lrrp

AEG

ldoun
New Member


Date Joined Jun 2007
Total Posts : 19
   Posted 7/9/2007 9:14 PM (GMT -6)   
Hello Kziz, check Dr Slawin's site at http://www.drslawin.com/index.html
He has done some state of the art robotic techniques to improve outcomes. Look at some of his medical journal articles on his statistics and experience at Baylor. His online Nomograms are the best I have seen, both pre and post op.
Age 64
5'8" 145#
PSA pre-op 5.2 (12% free)
Gleason 3+4=7
Robotic RP 4/24/07 Dr. Albala, Duke
Post-op- Organ confined Gleason 7
6/18/07 PSA >0.1
1 pad per day
ED Cialis and VED prescribed


bzup
New Member


Date Joined Jul 2007
Total Posts : 11
   Posted 7/10/2007 7:07 AM (GMT -6)   
I just had the robotic procedure done at Ohio State by Dr. Patel who has done more of these procedures than most doctors in the world. There is a great web site that you can watch the entire procedure via webcam. go to Crozier-Keystone hospital.
I was out of the hospital the day after my procedure which was one week ago. Hoping to get the catheter out today(yahoo). There is significantly less blodd loss with the robotic procedure- in my case about 1/2 cup. Pain was minimal afterward- more uncomfortable than anything

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/10/2007 8:58 PM (GMT -6)   

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/10/2007 9:21 PM (GMT -6)   
This thread is from February...... see their newest thread in posting above...

5/17/2007
1st PSA results in!!!

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

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